Disparities and Barriers to Pediatric Cancer Survivorship Care Technical Brief Number 39 R

Susanne Hempel

This Agency for Healthcare Research and Quality (AHRQ) Technical Brief was commissioned by the National Cancer Institute (NCI) to support the development of a research agenda associated with the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act. This Technical Brief provides an overview of the existing evidence and forthcoming research relevant to disparities and barriers for pediatric cancer survivorship care, outlines open questions, and offers concrete guidance for future research in a user-friendly format.

Technical Brief Number 39 R Disparities and Barriers to Pediatric Cancer Survivorship Care Technical Brief Number 39 Disparities and Barriers to Pediatric Cancer Survivorship Care Prepared for: Agency for Healthcare Research and Quality U.S. Department of Health and Human Services 5600 Fishers Lane Rockville, MD 20857 www.ahrq.gov Contract No. 75Q80120D00009 Prepared by: Southern California Evidence-based Practice Center Los Angeles, CA Investigators: Erin M. Mobley, Ph.D. Diana J. Moke, M.D. Joel Milam, Ph.D. Carol Y. Ochoa, M.P.H. Julia Stal, B.A. Nosa Osazuwa, B.A. Maria Bolshakova, B.S. Jai Kemp, B.A. Jennifer E. Dinalo, Ph.D. Aneesa Motala, B.A. Drizelle Baluyot, B.A. Susanne Hempel, Ph.D. AHRQ Publication No. 21-EHC014 March 2021 Key Messages Purpose of Review This Agency for Healthcare Research and Quality (AHRQ) Technical Brief was commissioned by the National Cancer Institute (NCI) to support the development of a research agenda associated with the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act. This Technical Brief provides an overview of the existing evidence and forthcoming research relevant to disparities and barriers for pediatric cancer survivorship care, outlines open questions, and offers concrete guidance for future research in a user-friendly format. Key Messages • In total, 110 studies were identified that addressed disparities, barriers to survivorship care, proposed strategies, evaluated interventions, and ongoing studies in childhood cancer survivors. • Twenty-six studies assessed disparities in survivorship care. The most commonly examined sources of disparities impacting survivorship care were biological sex and insurance. • Forty-seven studies assessed barriers to survivorship care at various levels and their impact on key outcome domains. The most frequently studied barriers were at the level of the patient and provider, and predominantly impacted outcomes in the care domain. • Sixteen organizations have proposed strategies to address survivorship care, most frequently endorsing the presence of disparities and barriers to care, with variation in the level of detail of specific recommendations. We identified only 8 ongoing and 27 published studies evaluating interventions to alleviate disparities and reduce barriers to care. • While research has addressed disparities and barriers to survivorship care for childhood cancer survivors, evidence-based interventions to address these disparities and barriers to care are sparse. Interventions at the patient level were most frequently evaluated and include raising awareness of the need for life-long survivorship care. • Additional research and corresponding funding opportunities are needed to successfully study large and diverse survivorship cohorts representative of disparate subgroups, to examine less frequently studied disparities and barriers, and to evaluate suggested strategies to alleviate barriers that can lead to disparities. ii This report is based on research conducted by the Southern California Evidence-based Practice Center (EPC) under contract to the Agency for Healthcare Research and Quality (AHRQ), Rockville, MD (Contract No. 75Q80120D00009). The National Cancer Institute (NCI) of the National Institutes of Health (NIH) funded the report. The findings and conclusions in this document are those of the authors, who are responsible for its contents; the findings and conclusions do not necessarily represent the views of AHRQ or NCI/NIH. Therefore, no statement in this report should be construed as an official position of AHRQ, NCI/NIH, or the U.S. Department of Health and Human Services. None of the investigators have any affiliations or financial involvement that conflicts with the material presented in this report. The information in this report is intended to help healthcare decision makers—patients and clinicians, health system leaders, and policymakers, among others—make well-informed decisions and thereby improve the quality of healthcare services. This report is not intended to be a substitute for the application of clinical judgment. Anyone who makes decisions concerning the provision of clinical care should consider this report in the same way as any medical reference and in conjunction with all other pertinent information, i.e., in the context of available resources and circumstances presented by individual patients. This report is made available to the public under the terms of a licensing agreement between the author and the Agency for Healthcare Research and Quality. This report may be used and reprinted without permission except those copyrighted materials that are clearly noted in the report. Further reproduction of those copyrighted materials is prohibited without the express permission of copyright holders. AHRQ or U.S. Department of Health and Human Services endorsement of any derivative products that may be developed from this report, such as clinical practice guidelines, other quality enhancement tools, or reimbursement or coverage policies, may not be stated or implied. AHRQ appreciates appropriate acknowledgment and citation of its work. Suggested language for acknowledgment: This work was based on an evidence report, Disparities and Barriers to Pediatric Cancer Survivorship Care, by the Evidence-based Practice Center Program at the Agency for Healthcare Research and Quality (AHRQ). Suggested citation: Mobley EM, Moke DJ, Milam J, Ochoa CY, Stal J, Osazuwa N, Bolshakova M, Kemp J, Dinalo JE, Motala A, Baluyot D, Hempel S. Disparities and Barriers to Pediatric Cancer Survivorship Care . Technical Brief No. 39. (Prepared by the Southern California Evidence-based Practice Center under Contract No. 75Q80120D00009.) Rockville, MD: Agency for Healthcare Research and Quality; March 2021. DOI: https://doi.org/10.23970/AHRQEPCTB39. Posted final reports are located on the Effective Health Care Program search page. iii Preface The Agency for Healthcare Research and Quality (AHRQ), through its Evidence-based Practice Centers (EPCs), sponsors the development of evidence reports and technology assessments to assist public- and private-sector organizations in their efforts to improve the quality of healthcare in the United States. The reports and assessments provide organizations with comprehensive, science-based information on common, costly medical conditions and new healthcare technologies and strategies. The EPCs systematically review the relevant scientific literature on topics assigned to them by AHRQ and conduct additional analyses when appropriate prior to developing their reports and assessments. This report from the EPC Program at AHRQ is one of several efforts underway across the U.S. Department of Health and Human Services to implement provisions of the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act of 2018 (Public Law No: 115-180). The National Cancer Institute of the National Institutes of Health funded this report from the EPC Program at AHRQ. This EPC evidence report is a Technical Brief. A Technical Brief is a rapid report, typically on an emerging medical technology, strategy, or intervention. It provides an overview of key issues related to the intervention—for example, current indications, relevant patient populations and subgroups of interest, outcomes measured, and contextual factors that may affect decisions regarding the intervention. Although Technical Briefs generally focus on interventions for which there are limited published data and too few completed protocol-driven studies to support definitive conclusions, the decision to request a Technical Brief is not solely based on the availability of clinical studies. The goals of the Technical Brief are to provide an early objective description of the state of the science, a potential framework for assessing the applications and implications of the intervention, a summary of ongoing research, and information on future research needs. In particular, through the Technical Brief, AHRQ hopes to gain insight on the appropriate conceptual framework and critical issues that will inform future research. AHRQ expects that the EPC evidence reports and technology assessments will inform individual health plans, providers, and purchasers as well as the healthcare system as a whole by providing important information to help improve healthcare quality. If you have comments on this Technical Brief, they may be sent by mail to the Task Order Officer named below at: Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, or by email to epc@ahrq.hhs.gov. David Meyers, M.D. Acting Director Agency for Healthcare Research and Quality Arlene S. Bierman, M.D., M.S. Director Center for Evidence and Practice Improvement Agency for Healthcare Research and Quality Christine Chang, M.D., M.P.H. Acting Director Evidence-based Practice Center Program Center for Evidence and Practice Improvement Agency for Healthcare Research and Quality Lionel L. Bañez, M.D. Task Order Officer Center for Evidence and Practice Improvement Agency for Healthcare Research and Quality iv Acknowledgments The authors gratefully acknowledge the following individuals for their contributions to this project: We thank Mary Butler, Paul Jacobsen, Emily Tonorezos, Shobha Srinivasan, Danielle Daee, Amy Kennedy, Lionel Bañez, and Meghan Wagner for their helpful comments, and David Freyer and Kimberly Miller for help identifying Key Informants. Key Informants In designing the study questions, the EPC consulted a panel of Key Informants who represent subject experts and end-users of research. Key Informant input can inform key issues related to the topic of the Technical Brief. Key Informants are not involved in the analysis of the evidence or the writing of the report. Therefore, in the end, study questions, design, methodological approaches, and/or conclusions do not necessarily represent the views of individual Key Informants. Key Informants must disclose any financial conflicts of interest greater than $5,000 and any other relevant business or professional conflicts of interest. Because of their role as end-users, individuals with potential conflicts may be retained. The TOO and the EPC work to balance, manage, or mitigate any conflicts of interest. The list of Key Informants who provided input to this report follows: Deborah L. Friedman, M.D., M.S.* Professor, Department of Pediatrics, Vanderbilt University Medical Center Director, Division of Pediatric Hematology and Oncology Associate Director for Community Science and Health Outcomes, Vanderbilt-Ingram Cancer Center Nashville, TN Kaitlyn Ash, B.S.* Co-Founder Live For Today Foundation, Inc. Jacksonville, FL Kira Bona, M.D., M.P.H. Assistant Professor of Pediatrics, Harvard Medical School Physician, Pediatric-Oncology, DanaFarber-Cancer Institute Boston, MA Melissa M. Hudson, M.D.* Director, Cancer Survivorship Division St. Jude Children’s Research Hospital Memphis, TN Eric Chow, M.D., M.P.H.* Associate Professor, Clinical Research and Public Health Sciences Divisions Fred Hutchinson Cancer Research Center Seattle, WA Jennifer Malin, M.D., Ph.D. Senior Medical Director, Oncology and Genetics United Healthcare Minneapolis, MN v Shelley Fuld Nasso CEO National Coalition for Cancer Survivorship Silver Spring, MD Robin Yabroff, Ph.D. Scientific Vice President Health Services Research, American Cancer Society Atlanta, GA Jennifer Tsui, Ph.D., M.P.H. Associate Professor Department of Preventative Medicine Keck School of Medicine University of Southern California Los Angeles, CA *Provided input on draft report Peer Reviewers Prior to publication of the final evidence report, EPCs sought input from independent Peer Reviewers without financial conflicts of interest. However, the conclusions and synthesis of the scientific literature presented in this report do not necessarily represent the views of individual reviewers. Peer Reviewers must disclose any financial conflicts of interest greater than $5,000 and any other relevant business or professional conflicts of interest. Because of their unique clinical or content expertise, individuals with potential nonfinancial conflicts may be retained. The TOO and the EPC work to balance, manage, or mitigate any potential nonfinancial conflicts of interest identified. The list of Peer Reviewers follows: Theresa Keegan, Ph.D., M.S. Associate Professor University of California at Davis Comprehensive Cancer Center Sacramento, CA Karim Thomas Sadak, M.D., M.P.H., M.S.E. Assistant Professor University of Minnesota Minneapolis, MN Paul Nathan, M.D., MS.c., FRCPC Director, Aftercare Program and Staff Oncologist The Hospital for Sick Children Research Institute University of Toronto Toronto, Ontario, Canada Brad Zebrack, Ph.D., M.S.W., M.P.H. Professor University of Michigan Ann Arbor, MI vi Disparities and Barriers to Pediatric Cancer Survivorship Care Structured Abstract Objectives. Survival rates for pediatric cancer have dramatically increased since the 1970s, and the population of childhood cancer survivors (CCS) exceeds 500,000 in the United States. Cancer during childhood and related treatments lead to long-term health problems, many of which are poorly understood. These problems can be amplified by suboptimal survivorship care. This report provides an overview of the existing evidence and forthcoming research relevant to disparities and barriers for pediatric cancer survivorship care, outlines pending questions, and offers guidance for future research. Data sources. This Technical Brief reviews published peer-reviewed literature, grey literature, and Key Informant interviews to answer five Guiding Questions regarding disparities in the care of pediatric survivors, barriers to cancer survivorship care, proposed strategies, evaluated interventions, and future directions. Review methods. We searched research databases, research registries, and published reviews for ongoing and published studies in CCS to October 2020. We used the authors’ definition of CCS; where not specified, CCS included those diagnosed with any cancer prior to age 21. The grey literature search included relevant professional and nonprofit organizational websites and guideline clearinghouses. Key Informants provided content expertise regarding published and ongoing research, and recommended approaches to fill identified gaps. Results. In total, 110 studies met inclusion criteria. We identified 26 studies that assessed disparities in survivorship care for CCS. Key Informants discussed subgroups of CCS by race or ethnicity, sex, socioeconomic status, and insurance coverage that may experience disparities in survivorship care, and these were supported in the published literature. Key Informants indicated that major barriers to care are providers (e.g., insufficient knowledge), the health system (e.g., availability of services), and payers (e.g., network adequacy); we identified 47 studies that assessed a large range of barriers to survivorship care. Sixteen organizations have outlined strategies to address pediatric survivorship care. Our searches identified only 27 published studies that evaluated interventions to alleviate disparities and reduce barriers to care. These predominantly assessed approaches that targeted patients. We found only eight ongoing studies that evaluated strategies to address disparities and barriers. Conclusions. While research has addressed disparities and barriers to survivorship care for childhood cancer survivors, evidence-based interventions to address these disparities and barriers to care are sparse. Additional research is also needed to examine less frequently studied disparities and barriers and to evaluate ameliorative strategies in order to improve the survivorship care for CCS. vii Contents Introduction ................................................................................................................................... 1 Background and Objectives ........................................................................................................ 1 Purpose and Scope ...................................................................................................................... 1 Guiding Questions ...................................................................................................................... 2 Methods.......................................................................................................................................... 3 Technical Brief Approach ........................................................................................................... 3 Data Collection ........................................................................................................................... 3 Key Informants ....................................................................................................................... 3 Grey Literature Search ............................................................................................................ 5 Published Literature Search .................................................................................................... 5 Inclusion and Exclusion Criteria............................................................................................. 5 Screening and Abstraction ...................................................................................................... 7 Findings.......................................................................................................................................... 9 Guiding Question 1. What are the disparities in survivorship care for pediatric cancer survivors? .................................................................................................................................. 10 Guiding Question 2. What are the barriers to survivorship care for pediatric cancer survivors who experience disparities? ...................................................................................................... 12 Guiding Question 3. What are proposed strategies for addressing those barriers? .................. 15 Guiding Question 4. What published and unpublished studies have assessed these strategies? ................................................................................................................................................... 19 Technology ........................................................................................................................... 20 Education .............................................................................................................................. 21 Shared Care, Collaboration, and Location-Based Strategies ................................................ 22 Guiding Question 5. What are future directions for research in addressing barriers to survivorship care for pediatric cancer survivors? ..................................................................... 22 Summary and Implications ........................................................................................................ 25 What are the disparities in survivorship care for pediatric cancer survivors? .......................... 25 What are the barriers to survivorship care for pediatric cancer survivors who experience disparities? ................................................................................................................................ 25 What are proposed strategies for addressing those barriers? .................................................... 25 What published and unpublished studies have assessed these strategies? ................................ 26 What are future directions for research in addressing barriers to survivorship care for pediatric cancer survivors? ...................................................................................................................... 26 Next Steps .................................................................................................................................... 27 Population ................................................................................................................................. 27 Independent variables/interventions and comparators .............................................................. 28 Outcome .................................................................................................................................... 29 Study design .............................................................................................................................. 29 Conclusion ................................................................................................................................ 30 References .................................................................................................................................... 31 Abbreviations and Acronyms .................................................................................................... 45 Tables Table 1. Criteria for Inclusion/Exclusion of Studies in the Technical Brief .................................. 5 Table 2. Research on Disparities in CCS Care ............................................................................. 11 viii Table 3. Research on Barriers to Pediatric Cancer Survivorship Care ......................................... 13 Table 4. Guiding Question 3: Proposed Strategies ....................................................................... 16 Table 5. Research on Evaluated Strategies to Overcome Disparities and Barriers to Pediatric Cancer Survivorship Care ............................................................................................................. 19 Table 6. Ongoing Studies to Assess Strategies Targeting Reducing Disparities and Barriers ..... 23 Figures Figure 1. Study flow diagram ......................................................................................................... 9 Figure 2. Studies by Outcome Domain and Guiding Question .................................................... 10 Figure 3. Disparities in Care Mapped to Outcome Domains ........................................................ 12 Figure 4. Patient, Caregiver, Family, and Local Environment Barriers and Assessed Outcomes 14 Figure 5. Provider, Health System, and Payer Barriers to Survivorship Care Connection to Outcomes by Domain ................................................................................................................... 15 Figure 6. Study Design, Care Domain, and Primary Target of Evaluated Strategies ................... 20 Figure 7. Study Design, Care Domain, and Primary Target of Ongoing Studies Assessing Strategies Mapped to Outcomes by Domain ................................................................................ 24 Appendixes Appendix A. Methods Appendix B. Excluded Studies Appendix C. Key Informant Interviews Appendix D. Evidence Tables ix Introduction Background and Objectives It is estimated that there are more than 500,000 survivors of childhood cancer—that is, survivors who were diagnosed under the age of 21, whether currently children, adolescents, or adults—in the United States. The 5-year survival rate for childhood cancer has increased dramatically from the 1970s, when it was about 62 percent, to 86 percent in the 2010s.1 This increase in survival is attributed to improved treatment, which may include surgery, chemotherapy, radiation, immunotherapy, hematopoietic stem-cell transplantation, or a combination of these treatments using a risk-stratified approach and improvements in supportive care. After completion of treatment, childhood cancer survivors (CCS) face many challenges regarding long-term health outcomes as a result of their cancer diagnosis and treatment. Despite gains in survival, CCS are at risk for adverse physical, psychosocial, functional, and behavioral outcomes. These late effects range in severity and complexity, and commonly result in multimorbidity. including cardiovascular disease and heart failure, decreased pulmonary function, infertility, hormonal changes, kidney failure, osteopenia and osteoporosis, neurocognitive deficits, and secondary malignancies.2 Moreover, CCS exhibit disparities and effects in social, economic, and health-related quality of life outcomes in comparison to healthy peers, including poor academic or professional performance, lower income, and greater burden of mental health disorders.3, 4 Indeed, these nonclinical factors have been demonstrated to impact disparities as much as biological factors.5 Survivorship care is a clinical approach to address the health and well-being of cancer survivors, ideally using risk-based methods (e.g., according to exposure to potentially harmful therapies) of surveillance, screening, management, and prevention of late effects, along with coordination of care with primary care and other healthcare providers.6 Many CCS do not receive recommended survivorship care, particularly after transitioning into adulthood.6 Barriers to survivorship care can encompass barriers at the level of patient and caregiver, healthcare provider, health system or payer, and many other levels.6, 7 As a result of these barriers, disparities exist for a range of outcomes among CCS, and this complexity poses unique challenges for research, clinical care, education, and advocacy. While disparities are increasingly recognized in the pediatric survivorship field, practitioners often are at a loss for how to mitigate disparities. The lack of rigorous assessment of strategies to reduce barriers and the fragmented nature of existing research hinder the establishment of appropriate policies at multiple levels. Effective and efficient access to care for CCS is critical to minimize and alleviate disparities among this population who are burdened by the adverse sequelae of their prior malignancy and treatment. Purpose and Scope This Agency for Healthcare Research and Quality Technical Brief was commissioned by the National Cancer Institute as a result of the passage of the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act.8 The STAR Act is resulting in enhanced support for pediatric, adolescent, and young adult cancer research, including ongoing efforts to address pediatric cancer survivorship disparities. The goals of a Technical Brief are to provide an early objective description of the current science, a potential framework for assessing the intervention, and identification of future research needs. A Technical Brief does not grade evidence or synthesize data on outcomes, and does not attempt to determine whether an intervention is safe 1 or effective.9 This Technical Brief provides an overview of the existing evidence and forthcoming research relevant to disparities and barriers for pediatric cancer survivorship care, outlines open questions, and offers concrete guidance for future research in a user-friendly format. Furthermore, this Technical Brief also discusses disparities in biomedical, psychosocial, health services/economics, and survivorship related outcomes among CCS as a presumed result of barriers to care. Guiding Questions The Technical Brief addresses five Guiding Questions: Guiding Question 1. What are the disparities in survivorship care for pediatric cancer survivors? Guiding Question 2. What are the barriers to survivorship care for pediatric cancer survivors who experience disparities? Guiding Question 3. What are proposed strategies for addressing those barriers? Guiding Question 4. What published and unpublished studies have assessed these strategies? Guiding Question 5. What are future directions for research in addressing barriers to survivorship care for pediatric cancer survivors? 2 Methods This Technical Brief provides a user-friendly synopsis of the existing evidence regarding disparities and barriers to survivorship care for pediatric cancer survivors, outlines unanswered questions, and suggests topic areas for future research. Technical Brief Approach The methods for this Technical Brief follows the Content and Procedures Guide for Evidence-based Practice Center Program. The topic of this report was developed by the National Cancer Institute (NCI) in consultation with the Agency for Healthcare Research and Quality (AHRQ). Key Informants provided input on the Guiding Questions to be addressed and future research directions. The protocol was posted on AHRQ’s Effective Health Care website (https://effectivehealthcare.ahrq.gov/products/pediatric-cancer-survivorship/protocol) on June 24, 2020 and a notice referencing the protocol was posted on the Federal Register (https://www.federalregister.gov/documents/2020/07/15/2020-15190/supplemental-evidenceand-data-request-on-disparities-and-barriers-for-pediatric-cancer-survivorship) on July 15, 2020. We solicited submission of supplemental evidence and data from the public from June 24 to August 14, 2020. The Technical Brief is organized by five Guiding Questions that address observed disparities and barriers to survivorship care, as well as the strategies and their effects to address barriers and disparities. Data Collection Key Informants In consultation with AHRQ and NCI, our team identified areas of expertise that were targeted for Key Informant solicitation, which included: patient, family, or caregiver perspective (N = 2); clinical implications, patient care, and disparities research (N = 4); health services research and access to care for populations that experience disparities (N = 2); and administrative and payer perspective (N = 1). Individual representatives for the key stakeholder groups were determined with the help of content experts and approached for their willingness to serve as a Key Informant. Key Informants were asked to provide feedback regarding topics related to pediatric cancer survivor disparities and barriers to survivorship care, in particular those that have been insufficiently covered in formal research studies. They also helped identify notable subgroups that may experience a disparity, explain barriers that could cause a disparity, and, ultimately, how disparities and barriers could impact key outcomes of interest. Additionally, Key Informant input was used to identify grey literature resources, ongoing research, and recommend approaches to help fill identified gaps. Key Informants addressed the following Guiding Questions and subquestions: • What are the disparities in survivorship care for pediatric cancer survivors? o What types of disparities impact survivorship care for pediatric survivors? o What disparities do you think are most significant in impacting pediatric cancer survivorship care? 3 • • • • o Which domains of disparities should be distinguished? What are the barriers to survivorship care for pediatric cancer survivors who experience disparities? o What are the most influential barriers to pediatric cancer survivorship care? o How do those barriers change as childhood cancer survivors (CCS) transition from pediatric to adult survivorship care? o How do barriers to survivorship care vary by subgroups of pediatric cancer survivors? o How do barriers affecting specific subgroups change over time, specifically as they transition from pediatric to adult care? What are proposed strategies for addressing those barriers? o What strategies to address barriers to survivorship care that lead to disparities are most promising? o Do those strategies need to be implemented using different approaches for subgroups of survivors? o Which professional bodies have proposed strategies? What published and unpublished studies have assessed these strategies? o How effective are the strategies that you are familiar with? o What confounding factors pose a challenge to interpreting research and evaluation studies? What are future directions for research in addressing barriers to survivorship care for pediatric cancer survivors? o What are the most important gaps in our current knowledge of disparities and barriers to survivorship care, and how would you recommend filling those gaps? o How can future research be designed to minimize the confounding factors influencing barriers, and ultimately, disparities? o Are you aware of any important ongoing studies addressing disparities or barriers in pediatric survivorship care? Prior to the Key Informant interviews preliminary feedback was gathered using a Web-based survey regarding the abovementioned Guiding Questions. Data received before the Key Informant calls were included as prompts on the meeting slides to promote discussion. Representatives from AHRQ and NCI attended all three Key Informant interviews meetings, which were held over the course of three weeks. The online survey also enabled Key Informants to provide additional feedback to the EPC after the calls. Key Informant interviews were recorded and the content was discussed in the investigative team. We reviewed themes in the responses and organized resulting themes by Guiding Questions. 4 Grey Literature Search Key to identifying strategies that have been proposed to reduce or mitigate disparities and barriers to pediatric cancer survivorship care is a thorough grey literature search and the grey literature search strategy is detailed in Appendix A. Briefly, we searched the websites of relevant organizations and reviewed clinical practice guideline clearing houses using specified key search terms. We searched clinicaltrials.gov, NIH RePORTER, and Open Science Framework for ongoing research studies. Systematic reviews were identified using PubMed and PROSPERO, an international database of systematic reviews, and reviews were reference-mined to identify further studies. Published Literature Search We designed targeted search strategies for the individual Guiding Question, also detailed in Appendix A. Search strategies were designed, executed, and documented by the Evidence-based Practice Center librarian. We searched PubMed®, CINAHL®, and PsycINFO® databases for published research. We identified studies in CCS that addressed either disparities or barriers directly (either in the title, abstract, or key word). In addition to using synonyms for the term disparity, we also searched for specific disparities using the National Instututes of Health definition of populations that experience health disparities: racial/ethnic minorities (including those who are Blacks/African Americans, Hispanics/Latinos, American Indians/Alaska Natives, Asian Americans, Native Hawaiians and other Pacific Islanders); socioeconomic status; underserved or rural populations; sexual and gender minorities; and educational attainment.10, 11 We also used a sample of publications in CCS that did not highlight disparities in the title or abstract of the publication but that used an important study design (e.g., long-term follow-up or longitudinal studies). We screened the full text of the publications to identify subgroup results that suggest disparities or barriers to survivorship care. Appendix A details the methods and search strategies. Inclusion and Exclusion Criteria The eligibility criteria are shown in Table 1 below, organized in a PICOTSS (population, independent variables/intervention, comparator, outcomes, timing, setting, and study design/other limiters) framework. Table 1. Criteria for inclusion/exclusion of studies in the Technical Brief PICOTSS Inclusion Exclusion Population All Guiding Questions: Childhood cancer survivors (CCS) of all ages. We accepted the authors’ definition of CCS. Mixed samples were eligible where studies include at least 50% CCS or report a subgroup analysis. In studies not self-identifying as CCS research, we applied the following criteria: diagnosed before age 21, received primary acute treatment for any cancer, currently in remission, and currently receiving or eligible to receive survivorship care services, care plans, and/or models of follow-up care. All Guiding Questions: Studies that predominantly included other populations than CCS, that included patients diagnosed predominantly after the age of 20, that had other conditions than cancer, or that were currently undergoing treatment for cancer. 5 PICOTSS Inclusion Exclusion Independent variables and interventions Guiding Question 1: Survivorship care. We included studies addressing healthcare approaches aimed at the health and well-being of cancer survivors. Guiding Question 2: Barriers and facilitators of survivorship care for CCS. Guiding Question 3, 4, 5: Strategies to address barriers to survivorship care and to reduce care disparities. We included care initiatives, structured care programs, care plan, care models, and healthcare interventions aiming to address barriers or disparities. Strategies may have targeted CCS (e.g., providing patient information), primary caregivers (e.g., parents), healthcare providers (e.g., initiating training), or healthcare systems (e.g., implementing health information technologies such as telemedicine). Guiding Question 1, 2: We accepted the authors’ choice of a participant characteristic comparator. Studies could compare subgroups to the general population of CCS or compare multiple participant subgroups defined by participant characteristics (e.g., race/ethnicity, socioeconomic status, gender, rural residence, educational attainment or patient or their parents, other populations that experience health disparities). Guiding Question 3: Strategies did not need to document alternative care models in detail as long as the difference of the proposed survivorship care strategy to usual care was described. Guiding Question 4, 5: Studies comparing participant subgroups as defined in Guiding Question 1 and 2 and studies comparing to other care strategies (no intervention, waitlist, usual care, other active strategies aiming to address barriers or disparities). All Guiding Questions: Studies without reference to survivorship care and studies not addressing care disparities, barriers to care, or strategies outside of healthcare. Guiding Question 1, 2: Disparities and barriers (causes of disparity) in any patient outcomes related to utilization of survivorship care services, care plans, or models of care; intermediate health outcomes and adverse events; mortality; late effects and morbidity (including psychosocial); quality of life, well-being, and satisfaction with care; and cost and resource utilization. Guiding Question 3: Strategies were documented regardless of any information on outcome effects, but strategies had to aim to prevent, reduce, or mitigate disparities and barriers to survivorship care. Guiding Question 4: Changes (reduction) in disparities between comparison groups for outcomes listed in Guiding Question 1 and 2. Guiding Question 5: Ongoing and upcoming studies had to indicate that the study will report on outcomes eligible for Guiding Question 1, 2, or 4. All Guiding Questions: No timing restriction applied. Studies may have addressed CCS who recently or long in the past experienced pediatric cancer now in remission. All Guiding Questions: All care settings applicable to US settings were eligible, including primary, secondary, and tertiary care; inpatient and outpatient care; pediatric and adult care context. All Guiding Questions: Studies that did not address disparities or barriers to survivorship care for pediatric survivors. Comparators Outcomes Timing Setting(s) 6 All Guiding Questions: Studies not addressing patient characteristics or intervention characteristics. All Guiding Questions: No exclusions applied. All Guiding Questions: Studies in resource-limited settings such as developing countries were reviewed for comparability with US settings. PICOTSS Inclusion Exclusion Study design and other limiters All Guiding Questions: All Guiding Questions: English-language publications. Evaluations reported only in abbreviated format (e.g., Guiding Question 1, 2, 4, 5: Primary studies reporting empirical data (including both in a conference abstract) quantitative and qualitative data). with the exception of trial records. Guiding Question 1, 2: Studies exclusively Studies may have either report on distinct subgroups (e.g., reported in non-English dividing the sample by geographic characteristic and reporting data separately for rural and for urban participants) or studies may publications. Systematic reviews were report associations with participant characteristics (e.g., reporting retained for reference correlations with a factor of interest such as gender differences). Guiding Question 3: mining but are not eligible Strategies had to have been suggested by an authoritative source for inclusion. such as a clinical practice guideline or relevant professional organization. Guiding Question 4: Studies with concurrent (e.g., randomized controlled trial) or historic comparator (e.g., organizational pre-post studies). Studies with results published in clinicaltrials.gov were included regardless of whether a journal publication was available. Guiding Question 5: Ongoing and upcoming studies with a published protocol or registered in a research registry. P = population; I = independent variables and interventions; C = comparators; O = outcomes; T = timing; S = setting(s); S = study design and other limiters; CCS = childhood cancer survivors Screening and Abstraction Literature screening and data abstraction were conducted in an online database designed for systematic reviews (DistillerSR). Literature reviewers screened all citations at the title and abstract level and citations determined to be potentially relevant to the Technical Brief were obtained as full text. Excluded citations were assessed for relevance using a machine learning algorithm in the database software that modeled the inclusion screening decisions of the human reviewers. We applied a conservative cut-off identifying all citations that the algorithm was more likely to include than to exclude. The algorithm confirmed the exclusion for the majority of citations. All citations not confirmed by the machine learning algorithm were screened by a second, independent human reviewer to avoid reviewer errors and bias. Full text studies were screened by two independent reviewers against the explicit eligibility criteria; any disagreements were resolved by group discussion and consensus. The literature searches were updated during the peer review process for this report. Data were abstracted by one reviewer and checked by an experienced content expert to confirm accuracy of data collected for all included studies. Data were collected regarding: • Publication type and country of publication • Study participant characteristics, including cancer type and proportion of CCS • Guiding Question addressed • Disparity category and description • Barrier category and description • Outcome(s) assessed and type of analysis • Proposed or evaluated strategy and description • Study design and expected date of completion for ongoing studies • Survivorship care domain (e.g., survivorship care service, care plan, model of care) 7 The outcomes of interest were categorized representing the following domains: • Survivorship care domain (utilization of survivorship care services, care plans, or models of care) • Biomedical domain (intermediate health outcomes and adverse events; clinical or physical late effects and morbidity; mortality) • Psychosocial (psychological or health-related quality of life; education or employment; substance use) • Health services/economics (primary care, specialty care, or other care utilization; quality and satisfaction with care; financial hardship, costs, resource utilization) 8 Findings The brief was directed by five Guiding Questions, which documented and outlined our findings of Key Informant input, grey literature resources, and published and unpublished research. Figure 1 displays the number of studies included and excluded at each stage of the evidence review process for all Guiding Questions. Figure 1. Study flow diagram Appendix B lists excluded studies and reasons for exclusion. A large number of publications were retained as background. While not meeting inclusion criteria, the publications were cited in the introduction and discussion and/or were retained for reference-mining to identify additional studies where appropriate. A total of 110 studies reported in 161 publications were included to frame the findings of this Technical Brief.12-172 Appendix C details the discussion with the Key Informants. Appendix D provides evidence tables for each Guiding Question. Figure 2 depicts the number of studies included by outcome domain and Guiding Question. A large number of studies addressed barriers to care (N = 47), followed by disparities in care (N = 26) and evaluated strategies (N = 27). Discussed less frequently were proposed strategies (N = 16) and future research directions (N = 8). Because an individual study could have addressed multiple outcomes of interest, the total indicated in the figure does not sum to the total number of included studies. 9 Figure 2. Studies by outcome domain and Guiding Question Note: N = 110 studies; each individual study could have addressed multiple outcome domains and Guiding Questions (GQs). Notably, most studies examined multiple outcome domains and more than one Guiding Question. The most frequently studied were survivorship care (N = 95) and health services and economic (N = 62) outcome domains; less frequently examined were psychosocial (N = 28) and biomedical (N = 16) outcome domains. Among the studies that examined survivorship, health services and economic, and psychosocial outcome domains, barriers to care (Guiding Question 2) were most frequently studied, followed by disparities in care (Guiding Question 1). The following describes the results for the five Guiding Questions. Guiding Question 1. What Are the Disparities in Survivorship Care for Pediatric Cancer Survivors? Key Informants provided insight and detail regarding disparities experienced by childhood cancer survivors (CCS) concerning their survivorship care. Appendix C details the discussion with the Key Informants. The primary themes of disparities or challenges faced by CCS included a complex and multifactorial interplay of social determinants of health, such as socioeconomic hardship (e.g., income, medical bills, debt), lower educational attainment, detrimental employment factors (e.g., employment status, benefits, paid time off, sick leave), and inadequate insurance coverage (e.g., under/uninsured, type of insurance, churns/transitions in insurance coverage), and underserved minorities or groups (e.g., urban, rural, nonmetropolitan). We identified 26 studies reporting on disparities in survivorship care and classified them by disparity category. In addition to the disparities identified by the Key Informants, disparities by biological sex, insurance, and race or ethnicity were commonly studied. The literature is documented in Table 2. 10 Table 2. Research on disparities in childhood cancer survivor care Disparity Category Number of Studies Identified Studies Biological Sex N = 15 Barakat, 201218; Berg, 201620; Crom, 200747; de Fine Licht, 201750; Gardner, 201468; Holmes, 198676; McBride, 2011111; Michel, 2011116; Milam, 2015117; Nathan, 2016123; Oeffinger, 2004127; Ojha, 2014130; Streefkerk, 2019157; vanLaar, 2013164; Zheng, 2016172 N = 13 Barakat, 201218; Berg, 201620; Berkman, 201921; Crom, 200747; Daly, 201948; Gardner, 201468; May, 2017110; Milam, 2015117; Oeffinger, 2004127; Ojha, 2014130; Szalda, 2016160; Welch, 2017169; Zheng, 2016172 N = 11 Barakat, 201218; Berkman, 201921; Casillas, 201132; Crom, 200747; Daly, 201948; Gardner, 201468; May, 2017110; Milam, 2015117; Oeffinger, 2004127; Ojha, 2014130; Zheng, 2016172 N=9 Barakat, 201218; Crom, 200747; Daly, 201948; McBride, 2011111; Michel, 2011116; Milam, 2015117; Nathan, 2016123; Oeffinger, 2004127; Sutradhar, 2015158 N=8 Crom, 200747; Johnson, 200485; McBride, 2011111; Mendoza, 2018113; Milam, 2015117; Nathan, 2016123; Oeffinger, 2004127; Zheng, 2016172 N=5 Crom, 200747; Johnson, 200485; Michel, 2011116; Milam, 2015117; Oeffinger, 2004127 N=3 Crom, 200747; Michel, 2011116; Oeffinger, 2004127 N = 14 Crom, 200747; de Fine Licht, 201750; Gardner, 201468; Kazak, 199991; Michel, 2011116; Milam, 2015117; Nathan, 2016123; Oeffinger, 2004127; Reppucci, 2017136; Streefkerk, 2019157; Sutradhar, 2015158; vanLaar, 2013164; Welch, 2017169; Zheng, 2016172 Insurance Race or Ethnicity Underserved or Rural Income Education Employment Other Overall, the most commonly studied groups that experience disparities were based on biological sex (N = 15), insurance (N = 13), and race or ethnicity (N = 11). The least studied disparities were those based on education (N = 5) and employment (N = 3). The other category of disparities predominantly captured age and year at diagnosis, age and marital status at study, diagnosis, and type of cancer treatment received and intensity, among other variables. Figure 3 depicts assessed disparity categories and evaluated outcome domains in the included studies. Within types of disparities, the evidence showed that the more frequently studied disparities tied to the survivorship care outcome domain (survivorship care services, care plans, or models of care) were among biological sex and insurance (bolded arrows signifying ≥ 10 studies). The next most commonly examined type of disparities in the survivorship care outcome domain outcome was among racial or ethnic minorities, income, underserved or rural, and education disparities (the solid lines represent 5-9 studies). It is important to note that variables indicating examination of disparities in the literature could have been either independent or dependent variables, based on the individual study. Additionally, variables commonly categorized as social determinants of health (e.g., income, education, employment) were parsed out individually rather than considering these holistically to better understand disparities in care. 11 Figure 3. Disparities in care mapped to outcome domains The second most assessed domain was the health services and economic domain. Study outcomes in the health services and economic domain included utilization of primary, specialty, or other care; quality and satisfaction with care; or financial hardship, costs, and resource utilization. Biological sex was most frequently documented in the literature among outcomes in the health services and economic domains (e.g., ≥ 10 studies). Outcomes in the biomedical and psychosocial domains were less frequently addressed (displayed by the dashed arrows in Figure 3 indicating 1 to 4 studies). Only six studies assessed either biomedical or psychosocial outcomes caused by one of the eight disparity types. Potential disparities examined by gender minorities (assessed by how someone identifies or expresses themselves) were not examined in any included studies; however, biological sex was the most frequently examined as a group that experiences disparities. Guiding Question 2. What Are the Barriers to Survivorship Care for Pediatric Cancer Survivors Who Experience Disparities? Key Informants also discussed barriers to survivorship care faced by CCS. Key Informants conveyed that barriers experienced by the patient and, by extension, their caregiver or family and local environment included a lack of knowledge or knowledge gaps in the need for life-long survivorship care; the inability to prioritize survivorship care in the midst of other life needs, a lack of adequate financial or employment resources (e.g., money for copayments or coinsurance, time off work, childcare); patient autonomy; the presence of cultural, language, and literacy difficulties; and mistrust in providers and the medical community, in general. The primary themes of barriers impacting survivorship care can be organized by levels of care delivery (patient; caregiver, family, or local environment; provider; health system; and payer). Our literature searches identified 47 studies that assessed barriers to care in CCS. Table 3 stratified the identified studies by barrier level. 12 Table 3. Research on barriers to pediatric cancer survivorship care Barrier Level Number of Studies Identified Studies Patient N = 36 Ahn, 201712; Aziz, 200617; Berg, 201620; Berkman, 201921; Casillas, 201031; Casillas, 201132; Cherven, 201438; Crom, 200747; Eshelman-Kent, 201163; Frederick, 201766; Frobisher, 200867; Gardner, 201468; Granek, 201272; Holmes, 198676; Howard, 201877; Iwai, 201782; Jereb, 200084; Keats, 201992; Kirchhoff, 201494; Knighting, 202097; Kuhlthau, 201699; Maeda, 2010106; Michel, 2011116; Milam, 2015117; Mouw, 2017120; Novakovic, 1997126; Oeffinger, 2004127; Quillen, 2017133; Rosenberg-Yunger, 2013139; Sadak, 2012140; Sadak, 2017142; Sadak, 2020141; Szalda, 2016160; vanLaar, 2013164; Vetsch, 2017165; Warner, 2014168 N = 10 Ahn, 201712; Casillas, 201031; Cherven, 201438; DiNofia, 201757; Jereb, 200084; Keats, 201992; Michel, 2011116; Milam, 2015117; Oeffinger, 2004127; Vetsch, 2017165 N = 17 Aziz, 200617; Casillas, 201132; de Moor, 200751; Eshelman-Kent, 201163; Henderson, 201074; Iyer, 201783; Jereb, 200084; Keats, 201992; Li, 1976104; Michel, 2011116; Mouw, 2017120; Oeffinger, 2004127; Sadak, 2017142; Sima, 2014150; Vetsch, 2017165; Warner, 2014168; Wadhwa, 2019{#5365} N = 11 Aziz, 200617; de Moor, 200751; Eshelman-Kent, 201163; Howard, 201877; Mendoza, 2018113; Mouw, 2017120; Oeffinger, 2004127; Sadak, 2019143; Sherman, 2004147; Vetsch, 2017165; Warner, 2014168 N=4 Hays, 199273; Mouw, 2017120; Oeffinger, 2004127; Sadak, 2012140 Caregiver, Family, or Local Environment Provider Health System Payer The most frequently cited barrier was at the level of the patient (N = 36). Displayed in Figure 4 are the most commonly studied types of barriers to CCS’ survivorship care, such as knowledge of the need for life-long survivorship care (N = 20) and financial or employment resources(N = 19), followed by trust in providers or the medical community (N = 18). Barriers identified at the patient level were commonly studied among all barrier types identified (e.g., ≥ 10 studies) with the exception of prioritization of survivorship care (N = 9); less frequently studied were barriers at the level of the caregiver, family, or local environment. All barrier types were commonly studied impacting the survivorship care domain outcome (e.g., ≥ 10 studies), which includes survivorship care services, care plans, or models of care. The types of barriers to care that impacted outcomes in the health services and economic domain (including utilization of primary, specialty, or other care; quality and satisfaction with care; or financial hardship, costs, and resource utilization) most frequently included knowledge of the need for life-long survivorship care (N = 13), financial or employment resources (N = 15), and trust in providers or medical community (N = 11). The biomedical and psychosocial outcome domains were less frequently reported as being impacted by patient or caregiver, family, or local environment barriers to care. 13 Figure 4. Patient, caregiver, family, and local environment barriers and assessed outcomes At the provider, health system, and payer levels, barriers identified by our Key Informants included lack of adequate resources to deliver needed care; potential geographic obstacles and related lack of availability of specialized services; a difficulty or lack transitioning a CCS from pediatric to adult care; the lack of insurance coverage or reimbursement for complex services provided; and a lack of knowledge or comfort regarding follow-up care guidelines and/or recommended care; and lack of adequate in-network providers and specialists required to address long term health outcomes. Key Informants specifically discussed that payers may not be aware of follow-up care guidelines and/or recommended care for CCS, and this could lead to the barriers to accessing survivorship care. The identified research literature discussed below mirrored the Key Informants’ discussion regarding provider, health system, and payer level barriers to care (N = 23; see Figure 5). 14 Figure 5. Provider, health system, and payer barriers to survivorship care connection to outcomes by domain Overall, the second most frequently cited barrier to survivorship care for CCS were at the provider (N = 17) and health system (N = 11) levels and the most commonly studied barrier types were knowledge or comfort in ability to provide care and geographic, transportation, or local availability of services (N = 12, respectively). The barrier types that were frequently cited as impacting the survivorship care outcome domain (encompassing survivorship care services, care plans, or models of care) and the health services and economic outcome domain predominantly studied were those barriers due to knowledge or comfort in the ability to provide needed care (≥ 10 studies). Guiding Question 3. What Are Proposed Strategies for Addressing Those Barriers? Proposed strategies to address disparities in and barriers to survivorship care were also discussed with Key Informants. The primary themes identified by Key Informants included improving dissemination and education of long-term follow-up guidelines to primary care providers and payers; combining forces with fellow advocacy groups that focus on chronic lifelong conditions that span from pediatrics to adulthood (e.g., diabetes) to increase awareness and resources for CCS; designing a risk-stratification tool for long-term follow-up surveillance (including prioritization and preference of follow-up provider); and instituting health policy changes that support providers via adequate education and reimbursement. Through discussion with the Key Informants and grey literature searches, we identified a total of sixteen proposed strategies endorsed by different organizations and entities with an interest in CCS (see Table 4). All organizations acknowledged disparities regarding pediatric cancer survivorship care but the level of detail and specific recommendations regarding how to alleviate barriers experienced by CCS varied. In 1996, the International Society of Paediatric Oncology suggested that initiatives not only focus on clinical care, but also on educating the public, informing policy change, and educating CCS about future concerns (such as financial or 15 social issues as a result of their cancer diagnosis and treatment).109 And, in 2003, the National Cancer Policy Board of what is now the National Academies of Sciences, Engineering, and Medicine proposed a comprehensive policy agenda to improve healthcare delivery, invested in education and training, and expanded research to improve the long-term outlook for CCS.80 However many of the aims of these proposed strategies still remain as gaps today. Table 4. Guiding Question 3: Proposed strategies Author, Year Study Name/Trial ID Country Cancer Origin Proportion of CCS Masera, 1996109 International Society of Paediatric Oncology Multiple countries Multiple cancer origin 100% National Cancer Policy Board, 200380 National Academies of Sciences, Engineering, and Medicine USA Multiple cancer origin 100% Goldsby, 200471 International Society of Paediatric Oncology Multiple countries Multiple cancer origin 100% Skinner, 2005151 United Kingdom Children’s Cancer Study Group: Late Effects Subcommittee UK Multiple cancer origin 100% Skinner, 2006152 UK Children’s Cancer Study Group (UKCCSG) Late Effects Group (LEG) UK Multiple cancer origin 100% Children’s Oncology Group Nursing Discipline, 200741 USA Multiple cancer origin 50% or more American Academy of Pediatrics, 200914 USA Multiple cancer origin 100% 16 Strategy Type Strategy Title Strategy Description Clinical Practice Guideline SlOP Working Committee on Psychosocial Issues in Pediatric Oncology: Guidelines for Care of LongTerm Survivors Establish a specialty clinic oriented to the preventive medical and psychosocial care of long-term survivors which includes public education and advocacy. Policy Statement Childhood Cancer Survivorship: Improving Care and Quality of Life Comprehensive policy agenda that links improved healthcare delivery, investments in education and training, and expanded research to improve the longterm outlook for survivors of childhood cancer. Meeting Summaries and Recommendations International Society of Paediatric Oncology 2003 meeting summary of the Symposium on LongTerm Follow-up Guidelines Four models of survivorship care were endorsed with strengths and limitations. Clinical Practice Guideline Therapy Based Long Term Follow Up: Practice Statement: United Kingdom Children’s Cancer Study Group (Late Effects Group) Exposure-based clinical practice guidelines for pediatric cancer survivors. Clinical Practice Guideline Long-Term Follow-Up of People Who Have Survived Cancer During Childhood Ideal survivorship strategy will be one that captures the largest number of long-term survivors by ensuring that appropriate clinical and psychosocial care, health education, and health promotion advice are all delivered in an appropriate manner at an appropriate location, while taking advantage of important research opportunities that will benefit future generations of survivors. Meeting Summaries and Recommendations Establishing and Enhancing Services for Childhood Cancer Survivors: Long-term follow-up program resource guide Healthcare organizations and providers should deliver care and alleviate barriers to survivorship care for pediatric survivors. Clinical Practice Guideline Long-Term Follow-Up Care for Pediatric Cancer Survivors Follow up care for pediatric cancer survivors concerning detecting serious late effects and promoting healthy lifestyles. Author, Year Study Name/Trial ID Country Cancer Origin Proportion of CCS Late Effects Taskforce of the Dutch Childhood Oncology Group, 2010103 Netherlands Multiple cancer origin 100% Scottish Intercollegiate Guidelines Network, 2013146 UK Multiple cancer origin 100% American Academy of Pediatrics, 201415, 16 USA Multiple cancer origin 100% Esherich, 201761 Working Group on Adolescents, Young Adults, and Transition (Arbeitsgemeinschaft Adoleszenten, junge Erwachsene, Transition) Germany Multiple cancer origin Less than 50% Children’s Oncology Group, 201842 USA Multiple cancer origin 50% or more Cancer Leadership Council, 201925, 26 USA Multiple cancer origin Less than 50% Denlinger, 202053 National Comprehensive Cancer Network USA Multiple cancer origin Less than 50% International Guideline Harmonization Group, 202081 Multiple countries Multiple cancer origin 50% or more Children's Cancer Cause, 202037, 39, 40 USA Multiple cancer origin 100% 17 Strategy Type Strategy Title Strategy Description Clinical Practice Guideline Guidelines for Follow-Up after Childhood Cancer More Than 5 Years After Diagnosis Exposure-based clinical practice guidelines for pediatric cancer survivors. Clinical Practice Guideline Long term follow up of survivors of childhood cancer Exposure- and risk- based clinical practice guidelines for pediatric cancer survivors. Policy Statement Standards for Pediatric Cancer Centers Strategies for helping survivors transition to primary care with emphasis on pediatric cancer centers. Meeting Summaries and Recommendations Building a National Framework for Adolescent and Young Adult Hematology and Oncology and Transition from Pediatric to Adult Care: Report of the Inaugural Meeting of the Working Group of the German Society for Pediatric Oncology and Hematology Establish a solid infrastructure for transition nationwide so that transition in care can start during adolescence. Clinical Practice Guideline Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers Exposure-based clinical practice guidelines for pediatric cancer survivors. Policy Statement Improve the Delivery of Survivorship Care Encouraged Congress to explore how to define and finance distinct episodes of survivorship care and encouraged the Centers for Medicare and Medicaid Innovation to carefully consider what to base payment for survivorship care on. Clinical Practice Guideline National Comprehensive Cancer Network Clinical Practice Guidelines in Oncology: Survivorship Clinical practice guidelines for cancer survivors, including focus on screening for cardiovascular, psychosocial, and chronic pain late effects and receipt of immunizations to prevent infections for pediatric survivors. Clinical Practice Guideline Long-Term Follow-Up Guidelines Surveillance recommendations regarding what surveillance modalities should be used, at what frequency surveillance should be performed, and what interventions are available if abnormalities are found. Policy Statement Childhood Cancer Survivorship Proposal Endorsed testing of a comprehensive new model of care and survivorship care plan initiative (Child and Survivorship Transition Model), which uses local service delivery and state payment for those covered by Medicaid, coupled with the Children’s Oncology Group record – Summary of Cancer Treatment (Comprehensive) and a survivorship care plan; endorsed improving access to survivorship care via Author, Year Study Name/Trial ID Country Cancer Origin Proportion of CCS Strategy Type Strategy Title Strategy Description digital technology, improved data collection, and addressing barriers to clinical trial participation for survivors. CCS = childhood cancer survivors At the International Society of Paediatric Oncology annual meeting in 2004, a spectrum of models of care with four types were endorsed ranging from least intensive or involved (survivor is given the responsibility to seek their own follow-up care) to most intensive or involved (new genre of family physicians/internists with knowledge of pediatric cancer late effects and local physicians working in close cooperation with the specialty follow-up clinic).71 The Children’s Oncology Group (COG), the United Kingdom Children’s Cancer Study Group: Late Effects Subcommittee, the Late Effects of Childhood Cancer task force of the Dutch Childhood Oncology Group, and the Scottish Intercollegiate Guidelines Network all endorse exposurebased clinical practice guidelines targeting CCS for the surveillance, prevention, management, and treatment of late effects.42, 103, 146, 151 Furthermore, the International Guideline Harmonization Group (IGHG) is working to bring together international experts to develop consistent, effective, and efficient recommendations for CCS.81 The American Academy of Pediatrics and National Comprehensive Cancer Network (NCCN) have endorsed specific strategies to minimize the burden of disparities and alleviate barriers to care for CCS.14, 53 The NCCN Clinical Practice Guidelines in Oncology: Survivorship frequently reference assessing barriers to care with the patient; however, the only reference regarding how to address barriers to care was pertaining to barriers to physical activity.53 More recently, organizations such as the American Academy of Pediatrics, the Working Group on Adolescents, Young Adults, and Transition (Arbeitsgemeinschaft Adoleszenten, junge Erwachsene, Transition) in Germany, and the COG Nursing Discipline have endorsed specific strategies to deliver care to CCS, including the use of a survivorship care plan and transition clinics to assist CCS’ and their families with transitioning from pediatric to adult care settings.15, 41, 61 In 2019, the Cancer Leadership Council, representing a variety of cancer-related organizations, suggested that Congress explore how to define and finance distinct episodes of survivorship care and encouraged the Centers for Medicare and Medicaid Innovation to carefully consider what to base payment for survivorship care on.26 More recently, the Children’s Cancer Cause endorsed the creation of a new demonstration project called the Child and Survivorship Transition Model, which would allow testing of a new model of care and survivorship care plan initiative with local service delivery and state payment for those covered by Medicaid.39 As endorsed, the model would address barriers to survivorship care including staffing capacity, electronic medical records, interoperability of medical records, and legal constraints regarding confidentiality.39 Furthermore, the Children’s Cancer Cause endorsed improving access to survivorship care via digital technology (e.g., telehealth, integration of existing survivorship platforms), improved data collection (e.g., focus on insurance, survivorship care planning, and longitudinal studies), and addressing barriers to clinical trial participation for survivors (e.g., required coverage for routine costs for those insured by Medicaid, alleviating the burden of incidental costs such as food, housing, and transportation).39 18 Guiding Question 4. What Published and Unpublished Studies Have Assessed These Strategies? Key Informants were also asked about studies that have evaluated strategies to decrease or alleviate disparities and barriers to survivorship care. It was evident from the discussion that content experts thought there is only very limited information in the research literature (published or unpublished) that have assessed strategies to overcome barriers to pediatric cancer survivorship care. The Key Informants also mentioned that older research does not necessarily reflect the contemporary US or CCS populations and thus has limited applicability or relevance now. Key Informants proposed reasoning for why strategies have not been assessed, including lack of data, the heterogeneous nature of CCS, and difficulties obtaining funding and support to study these strategies. Our searches identified 27 studies reporting on an evaluation of a strategy to alleviate disparities and barriers to pediatric cancer survivorship care (see Table 5). The strategies were categorized by survivorship care domain, which included establishing survivorship care plans (N = 11; e.g., receipt of a document outlining treatment exposure, risk, and follow-up care needs), implementing models of care (N = 11; e.g., arrangements with providers to provide care), specific survivorship care services (N = 9; type of care received), and other, unique approaches (N = 6). Table 5. Research on evaluated strategies to overcome disparities and barriers to pediatric cancer survivorship care Survivorship Care Domain Number of Studies Identified Studies Survivorship care plan N = 11 Bashore, 201619; Blaauwbroek, 201223; Casillas, 201934; Hudson, 202078; Iyer, 201783; KadanLottick, 201888; Kunin-Batson, 2016100; Landier, 2015102; Oeffinger, 2011129; Santacroce, 201086; Williamson, 2014170 N = 11 Bashore, 201619; Blaauwbroek, 200824; Costello, 201745; Ducassou, 201758; Eilertsen, 200459; Ford, 201364; Hudson, 202078; Iyer, 201783; Kadan-Lottick, 201888; Reynolds, 2019137; Williamson, 2014170 N=9 Casillas, 201730; Casillas, 201934; Casillas, 202035; Costello, 201745; Devine, 202055; Oeffinger, 2019128; Raj, 2018134; Santacroce, 201086; Schwartz, 2019144 N=6 Casillas, 201934; Crom, 200747; de Moor, 201152; Iyer, 201783; Rose; Felker, 2019138; Schwartz, 2018145 Model of care Survivorship care service Other All identified studies are documented in detail in Appendix D and displayed visually in Figure 6. Almost all of the evaluated strategies (N = 24) have been published in the last ten years. With the exception of the studies targeting providers (N = 3), all of the evaluated strategies have been examined using cohorts of patients diagnosed with a variety of pediatric malignancies (N = 25). Analytic studies (N = 8) and randomized controlled trials (N = 7) made up the majority of identified study designs. Most studies evaluated interventions involving survivorship care plans or models or care (N = 11, respectively), followed by survivorship care service (N = 9) and other (N = 6). Studies almost always targeted the patient (≥ 10 studies) rather than providers or organizations. Figure 6 depicts the available literature. 19 Figure 6. Study design, care domain, and primary target of evaluated strategies The majority of evaluated strategies assessed survivorship care as a primary or secondary outcome of interest (N = 21). Other outcome domains less frequently cited included: health services and economics (N = 9),psychosocial (N = 6), and biomedical (N = 5) domains. Among the randomized controlled trials (N = 7) and clinical trials (nonrandomized, quasiexperimental studies; N = 3), models of care (N = 6) and survivorship care services (N = 4) were frequently examined either on their own or in combination. The primary targets of the interventions among the randomized controlled trials and clinical trials were patients in all studies; however, two studies had primary targets of both patients and providers and one study targeted patients and family members. Of the ten randomized controlled trials and clinical trials, six used education interventions and/or intervened by giving tools for empowerment. Less frequently studied were interventions providing access to care (N = 2) or psychosocial support (N = 1). Among the cohort (N = 3), pre-post (N = 4), time series (N = 1), post-only (N = 1), and analytic (N = 8) studies, models of care were most frequently evaluated (N = 8), followed by survivorship care plans and survivorship care services (N = 5, respectively). The primary targets of these studies were almost always patients (N = 14); less frequently targets of the intervention were providers (N = 5) and family members (N = 3). Three of the five provider focused studies examined interventions only involved the providers themselves (e.g., no patients). Of these 17 studies, most evaluated educational interventions (N = 9; all but two of these involved the patient), followed by access to care interventions (N = 6), giving tools for empowerment (N = 3), and psychosocial support (N = 2). Technology A total of 10 studies evaluated strategies that used technological-based interventions, all of which involved the patient, two involving both the patient and family and one involving the patient and provider. An evaluation of a Web-based informational intervention reported no 20 improvement in cancer-related knowledge or anxiety surrounding health beliefs.100 In another study, CCS reported satisfaction, benefits, and ease of use regarding self-management of their health and use of survivorship care plan as a result of a text messaging pilot.144 In another text messaging intervention, CCS reported improved survivorship care knowledge, healthcare selfefficacy, and increased positive attitudes towards survivorship care.34 An intervention using a photonovela among Hispanic/Latino CCS, reported improvement in confidence related to survivorship care, effects on cancer stigma among family members, and improved knowledge of survivorship care among family members.35 One study found that text messaging was an acceptable way to communicate with CCS regarding both reminders about upcoming survivorship care needs and tailored suggestions for resources available in the community.30 Survivors felt that communicating via text message could help alleviate barriers to care, enhance self-management, and assist CCS in reaching their health goals. Similar sentiments from patients were found in a study using telemedicine to facilitate transition of survivorship care from pediatric oncologists to adult primary care providers.45 This service improved patient knowledge of survivorship care needs and overall satisfaction; the only negative comments addressed difficulties with the equipment. The remaining two studies evaluated a Web-based platform. In one study, SurvivorLink provided a personal health record that was securely stored and electronically shared with the patients’ providers.170 The strongest predictor of registering and using the platform was having attended a survivorship clinic. Providing both an electronic and paper-based survivorship care plan that could be shared electronically with providers showed that most survivors and providers found the website user-friendly and the care plan availability helpful.23 The majority of survivors reported that their knowledge of late effects had improved and they had become more aware of how survivorship care can be beneficial. One study reported positive effects for a Web-based psychosocial intervention called “A Survivor’s Journey” for pediatric brain tumor survivors and caregivers.134 One study found that encouragement by CCS’ oncologist or regular doctor to quit smoking resulted in an increase in the number of cessation attempts.52 Education In a recent study, a self-management and peer mentoring intervention found a positive relationship regarding transition readiness and grit.55 An evaluation of an educational intervention targeting CCS who attend a survivorship clinic reported female survivors reported higher knowledge than male survivors.47 In a sample of female CCSS participants, motivational interviewing showed improved use of screening mammography.128 Additionally, survivorship care plans mailed to high-risk survivors appeared to be feasible and effective to deliver information regarding late effects and surveillance needs and resulted in improved compliance with guideline-concordant survivorship care.129 Similarly, a distance-delivered intervention of two personalized telephone counseling sessions increased cardiomyopathy screening among atrisk survivors, therefore improving compliance with guideline-concordant survivorship care.78 Two evaluated strategies used educational approaches in an effort to improve outcomes in the survivorship care domain. One assessed the usefulness of a workbook to assist CCS in transition readiness and reported that the most helpful sections of the workbook were information regarding medical history, provider information, and insurance.19 A risk-based education intervention among CCS already engaged in a survivorship clinic found an increase in awareness of personal health risk in CCS after three sessions.102 21 Three studies evaluated the effect of an intervention addressing healthcare providers. One followed up on survivorship care plans that had been mailed to CCS’s primary care providers that the most significant barrier to providing survivorship care was the provider’s lack of knowledge and level of comfort.83 After completing an educational intervention, pediatric cardiologists’ reported increased knowledge of CCS’ needs for surveillance, risk due to treatment received, potential cardiac dysfunction as time since treatment increases, cardioprotective methods, use of a Web-based risk-assessment tool to estimate risk in CCS experiencing heart failure before the age of 40, and that African American CCS are at particular increased risk of late effects impacting their cardiovascular health.138 Lastly, residents’ knowledge, skills, and comfort discussing topics related to survivorship care improved after receiving CCS-focused curriculum.145 Shared Care, Collaboration, and Location-Based Strategies Four studies used shared care models of survivorship care. One examined the effect of shared care between an oncologist and primary care provider and found that those who used the shared care model experienced an improvement in CCS adherence to survivorship care.58 However, empowering CCS with the distribution of a survivorship care plan and implementation by primary care providers, in comparison to a traditional approach to survivorship care using a survivorship clinic model, resulted in lower adherence to guideline-recommended care and identification of late effects.88 A phone-based coping skills training that also discussed plans for surveillance among CCS (primary target) and their parents’ (secondary target) found that outcomes improved including post-traumatic growth; however, among those that were in the comparison group, outcomes remained the same or decreased.86 Lastly, survivors and local primary care providers participated in a shared care model over three years.24 Advantages of locally-delivered primary care using this shared care model were less travel required for the patient, shorter waiting times for appointments, better patient familiarity with the clinical setting, and less stigmatization.24 Three studies evaluated collaboration- or location-based strategies to improve survivorship care. One reported that collaboration among CCS, family members, and health professionals in the family’s home community is beneficial and valuable for survivorship care adherence.59 A second reported a higher compliance rate with COG-recommended guidelines in cancer-center based facilities compared to primary care or community-based facilities.137 However, the third study found no significant differences in CCS knowledge regarding their cancer diagnosis or potential risk for future health problems (including psychosocial or emotional struggles) among those who attended specialized survivorship clinics when compared to those seen in a nonspecialized clinic.64 Guiding Question 5. What Are Future Directions for Research in Addressing Barriers to Survivorship Care for Pediatric Cancer Survivors? All Key Informant discussions concluded with dialogue surrounding future directions for research to address barriers and disparities to survivorship care among CCS. The primary themes for future directions for research included: • Developing patient and family-endorsed measures of social determinants of health that are amenable to intervention 22 • Use of technology and advanced analytic methods to predict and automate risk stratification (low-, intermediate-, or high-risk) for CCS during and after their treatment in order to facilitate transitions and long-term access to care and support • Identifying where effective patient and provider relationships can be emphasized, including identification of care teams and formalized planning for transitions of care • Creating a data commons for data sharing and promoting interoperability; and, • Increasing awareness among funders that pediatric cancer survivorship research is essential, needs financial support, and would benefit from the removal of barriers to submitting grant applications (e.g., exclusion of CCS in funding opportunity announcement and requests for applications). Our literature searches identified eight ongoing studies assessing strategies that targeted reducing disparities and barriers to survivorship care for CCS (Table 6). Studies addressing Guiding Question 5 addressed survivorship care service (N = 4; e.g., type of care received), survivorship care plan (N = 4; e.g., receipt of a document outlining treatment exposure, risk, and follow-up care needs), models of care (N = 2; e.g., arrangements with providers to provide care), and other (N = 1). Table 6. Ongoing studies to assess strategies targeting reducing disparities and barriers Survivorship Care Domain Number of Studies Identified Studies Survivorship care service Survivorship care plan Model of care N=4 Chow, 202043; Devine, 201956; Escoffery, 201962; Marchak, 2020107 N=4 Devine, 201956; Escoffery, 201962; Hill-Kayser, 202075; Marchak, 2020107 N=2 Denzler, 2020 54; McClellan, 2015112 N=1 Daniel, 201549 Other Half of the ongoing studies are randomized controlled trials (N = 4) and the remaining are pre-post (N = 1), post-only (N = 1), and cross-sectional analytic studies (N = 2). Survivorship care services and care plans (N = 4, respectively) are the most frequently addressed domain of care, with the primary target most often being the patient (N = 5) or patient and provider together (N = 2). Similar to Guiding Question 4, half of the ongoing studies evaluate patient education approaches (N = 4). The remaining studies evaluate the patient being given tools for empowerment (N = 2), access to care (N = 2), and the provider being given tools for empowerment (N = 1). Providers were only cited as one of the primary targets of an intervention when coupled with a patient intervention (N = 2), and no ongoing studies were identified that focus their interventions on family members, health systems, or payers. Figure 7 depicts the identified studies. 23 Figure 7. Study design, care domain, and primary target of ongoing studies assessing strategies mapped to outcomes by domain Currently, four studies are underway and planned to be completed between 2021 and 2023.43, 54, 62, 107 Two evaluate a patient-targeted education intervention, one with and one without a survivorship care plan, both of which focus on survivorship care service as an outcome.43, 107 Notably, only one study was designed to directly address disparities in survivorship care, and uses a sample of patients predicted to be at high-risk based on their treatment exposure.43 One study investigates which long-term follow-up care model (or parts of the model) are the best fit for Swiss CCS, while evaluating transition readiness, facilitators to transition readiness, and adherence to survivorship care.54 This study also compares the transition models across the three participating centers.54 One study uses a Web-based, patient-controlled personalized health record (SurvivorLink) to evaluate survivorship care services.62 Two studies indicated completion by the end of 2020, both evaluate an online survivorship care plan.56, 75 One of these studies examines the feasibility and acceptability of an online survivorship care plan for adult CCS.75 The other study empowers patients through an online self-management skills and peer mentoring intervention to remove barriers to survivorship care.56 Two of the seven ongoing studies have yet to report their findings and have passed their expected completion date.49, 112 One of these studies examines a model of care by providing transition support from oncology to adult primary care by a nurse navigator in combination with follow-up care with a primary care provider who is knowledgeable about late effects for CCS.112 The other is focused on skin examination using a dual-approach of providing education to the patient and provider and tools for empowerment to the provider.49 More detail is documented in Appendix D, Table D4. 24 Summary and Implications This review of the literature, in conjunction with feedback from Key Informants and grey literature, documents disparities, barriers, and strategies to overcome potential barriers to care among childhood cancer surviors (CCS). What Are the Disparities in Survivorship Care for Pediatric Cancer Survivors? A total of 26 studies investigated disparities in survivorship care for pediatric cancer survivors. Disparities by biologic sex and insurance were most frequently addressed. Disparities by educational attainment and employment status were less frequently documented in the literature. The survivorship care and health services and economic domains were more commonly studied in relation to disparities for CCS; however, biomedical and psychosocial outcome domains were less frequently studied with disparities. The literature documents that pediatric cancer survivors are experiencing disparities in survivorship care. These survivors are likely at higher risk of poor long-term health outcomes, psychosocial distress, lower social and work productivity, and early mortality compared to other survivors. What Are the Barriers to Survivorship Care for Pediatric Cancer Survivors Who Experience Disparities? A total of 47 studies were identified that have assessed specific barriers to receipt of survivorship care, and many studies overlapped in describing disparities and barriers. Barriers can be organized at the level of the patient; caregiver, family member, or community; at the level of the provider; at the level of the health system; and at the level of the payer. Barriers at the level of the patient have been most frequently assessed thus far. For example, CCS may not recall (or have never been told about) their need for life-long survivorship care – and in fact, this was one of the most frequently examined barriers to survivorship care identified through our reviews. Furthermore, lack of adequate financial or employment resources was studied equally as much, and trust in providers or the medical community was closely behind and are commonly studied with the survivorship care and health services and economic outcome domains. Barriers to care at the provider and health system levels are also associated with CCS’ ability to improve outcomes related to survivorship care, biomedical, psychosocial, and health services and economic domains. Most commonly studied are barriers at the level of the provider, including resources needed to deliver care; geographic, transportation, or local availability of services; and knowledge or comfort in ability to provide needed care were noted – all of which significantly act as barriers to survivorship care. What Are Proposed Strategies for Addressing Those Barriers? Along with the results from the published studies that have identified barriers and disparities, the need for strategies aimed at addressing these barriers are frequently acknowledged. We found a total of 16 organizations that acknowledged disparities regarding pediatric cancer survivorship care. However, specific recommendations regarding how to alleviate barriers experienced by CCS are limited. Although additional data and research are clearly needed, initial strategies based on the current literature include: increasing access to care, improving health insurance enrollment and coverage, enhancing continuity of care, knowledge of the need for survivorship care, knowledge of long-term follow-up guidelines, and implementation of risk-stratified care. 25 What Published and Unpublished Studies Have Assessed These Strategies? We only found 27 published studies evaluating the effectiveness of strategies to reduce barriers and disparities to pediatric survivorship care. Studies have predominantly focused on addressing barriers at the patient level, most frequently evaluating education-based interventions, followed by access to care and empowerment interventions. Only a few assessed overcoming barriers at the provider level. A minority of evaluated interventions involved a family member, coupled with patient- and provider-based studies, using education or psychosocial interventions. Only one was designed to specifically address disparities in survivorship care. We did not find any studies assessing strategies addressing barriers at the healthcare system or payer levels. Until we have a better understanding of what will be effective in overcoming barriers to survivorship care at all levels that impact CCS outcomes, disparities may persist. What Are Future Directions for Research in Addressing Barriers to Survivorship Care for Pediatric Cancer Survivors? Eight ongoing studies were identified that included directions for future research in addressing barriers to survivorship care for pediatric cancer survivors. Despite the number of studies reporting disparities and barriers, few studies evaluate approaches to overcoming barriers and lessening disparities. Only one identified ongoing study was explicitly designed to address disparities in survivorship care. Identifying and eliminating barriers to care for patients and families is an important first step; however, studies are still needed to determine potential differential impacts once barriers are removed. This includes documenting efforts that address institutional policies and practices that may reinforce inequities. Currently, it is possible for researchers to utilize existing cohorts to compare survivorship care across health systems, examine the use of alternative methods of care delivery and reimbursement models (e.g., virtual or telehealth services), etc.. With the passage of the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act, it is now possible to envision more innovative approaches such as those recommended by Key Informants, including the creation and shared utilization of a large data commons (possibly via the Childhood Cancer Data Initiative), use of advanced analytic techniques (e.g., identify patients and notify providers of surveillance needs automatically through the electronic medical record), and targeting intervention not only at the patient or provider level, but also at the health services and payer level (e.g., examining technology and telemedicine interventions, and improving coverage and reimbursement to incentivize equitable survivorship care; see Appendix C, Table C5). 26 Next Steps Based on the research findings and their implications, we have outlined suggestions to resolve disparities and barriers impacting childhood cancer survivorship care in a PICOS (population, independent variables/interventions, comparators, outcomes, and study design) framework. Population The majority of published pediatric cancer survivorship research comes from the Childhood Cancer Survivor Study (CCSS), a large cohort of survivors of pediatric cancer. The scope of survivorship care represented by the CCSS includes identification of late health effects form cancer and treatment, fertility outcomes, psychosocial assessments, and the recognition and screening for subsequent malignant neoplasms. While the CCSS is a robust survivorship cohort and has been instrumental in the identifying the needs of pediatric cancer survivors, its generalizability to the overall population of childhood cancer survivors (CCS), including underrepresented groups, and those treated with more modern therapies is limited. More specifically, the proportion of racial or ethnic minorities in the CCSS is reflective of the general demographic composition of the U.S. from the 1970s-1990s, and both have diversified greatly over the past twenty years.173 Notably, all disparities examined by the CCSS were also assessed among other studies, typically using smaller cohorts. Survivorship care is impacted by various social determinants of health (e.g., racial or ethnic minority status, income, rural and underserved populations, insurance status or type, sexual or gender minorities, and education level), and interplays between barriers at the patient, family, provider, health system, and payer levels. While many of the social determinants of health can directly impact access to and successful receipt of care, our understanding of why racial and/or ethnic minorities face disparities is unclear and likely highly complex. As a result, diverse samples of survivors, including with adequate representation of racial and ethnic minorities, are needed to gain more insight into barriers experienced by populations that experience health disparities and considerable thought and support should be aimed at funding creative ways to overcome these barriers, given the fragmented nature of the US healthcare system. Another issue among published research is that it is largely clinic or hospital-based and/or comprised of convenience samples. These data largely represent CCS who are already or partially engaged in the healthcare system. Identification of cohorts via a cancer registry represent one strategy for recruiting samples that are more representative (e.g., populationbased), with greater numbers of participants who are under-represented in the current literature (e.g., ethnic/racial minorities, rural populations, those not in follow-up care). Other strategies for representative cohort recruitment include the use of social media or networks of nonprofit organizations that provide support for CCS. Our Key Informants also stressed that survival from primary cancer treatment is also closely associated with many of the same issues pertaining to social determinants of health (although during cancer treatment, there is more support for patients and families). Thus, the study of survivors of pediatric cancer has already selected a biased sample for patients with more favorable social determinants. It is not until we address disparities at the primary cancer treatment level, does the picture of how to alleviate disparities and barriers to survivorship care become complete. Parent, families, caregivers, and local community members are vital to the outcomes of the cancer experience for survivors and are known to provide support for CCS follow-up care. 27 However, little is known about their roles longer term. Thus, the impact of community-, family-, and peer-support on longer term outcomes merits further examination to identify potential facilitators of care (versus solely a focus on barriers/inhibitors) and interventions are needed to foster these protective relationships. Independent Variables/Interventions and Comparators Many studies have examined disparities in survivorship care for pediatric cancer survivors, most frequently including biologic sex, insurance, and race or ethnicity. Less frequently studied are disparities by education or employment; furthermore, disparities by sexual identity or among gender minorities have not yet been studied in the pediatric cancer survivorship literature. This underscores the importance of designing studies that examine disparities in survivorship care with a careful attention paid to interventions and comparisons for these populations. Most current studies that address barriers do so at the patient level. But, as this report outlines, multiple other levels exist, in which barriers inherently affect certain subgroups of survivors more-so than others. Next steps need to include interventions that address barriers at the provider, healthcare system, and payer levels, in addition to interventions targeting the caregivers, family members, and local environment. Our Key Informants highlighted some potential interventions that could be evaluated as next steps to overcome barriers and improve survivorship care delivery and usage, including the application of technology (e.g., social media, telehealth) and innovative methods to identify and classify patients for risk-stratification, in order to better direct patients to the level of care required based on their cancer, treatment and comorbidities. Because of practical or logistic barriers, the use of telemedicine or virtual visits with a survivorship care provider during a time that is convenient for the patient (e.g., outside of typical work hours) is worth examining. Key Informants also discussed CCS-focused nonprofit organizations potentially partnering with other chronic disease-focused nonprofits to raise their voice regarding similar disparities and barriers to care. Key to all CCS interventions focused on survivorship care is that they are tailored to the local culture and community of the survivor and they should address barriers on multiple levels (e.g., not everything needs to use a patient education approach). Comprehensive, innovative approaches using interventions to impact the provider, health system, and payer are needed, ideally first with pilot projects to implement experimental models in order to eventually establish a feasible standard of care. For example, an intervention could be designed to empower primary care providers with adequate tools to respond to the needs of CCS. Using individual states as policy laboratories, an intervention in a group of states via partnership with state-based professional organizations to encourage continuing education regarding pediatric cancer survivorship care could be evaluated with the goal of improving the receipt of guidelineconcordant care. Notably, insurance and reimbursement constrains serve as barriers at many levels including the patient, provider, health system, and payer, and viable interventions are needed to alleviate these barriers. For example, at the payer level, again using states as policy laboratories, federal subsidies could be used to incentivize payers and health systems to provide guideline-concordant survivorship care targeting disparate CCS subgroups to engage these populations in the health system. These proposed interventions would require different ideal comparator groups dependent on the level of intervention, such as 1) those receiving or delivering usual care for interventions at the patient or provider level, 2) contrasting healthcare delivery systems for interventions at the healthcare delivery level, and 3) insurance providers that may provide varying levels of coverage and reimbursement for interventions at the payer level. 28 Finally, it is not proven that enhanced survivorship care mitigates or prevents the incidence or severity of late effects, and as a result, alternative models merit examination (e.g., improving the precision of risk-based modeling using big data to understand the impact of survivorship care provided through primary care providers or utilizing telemedicine). Given the complex landscape of the US healthcare system and the heterogeneous nature of CCS, it is difficult to decipher the best approach for comparator groups across all studies. “One size does not fit all” - for example, it is difficult to compare the CCSS cohort to a local, clinic-based cohort of patients given the limitations discussed above. Likewise, it is also difficult to compare outcomes from a public health system providing a high level of indigent care to a private, for-profit clinic-based sample. Outcome In addition to traditional health and utilization measures, assessment of how to best alleviate or decrease some of the more practical or logistical aspects of barriers to care (e.g., parking fees, transportation, childcare, time off work, out-of-pocket costs for what insurance does not cover) warrant further investigation. Biomedical and psychosocial outcome domains are less frequently examined in reference to disparities and barriers to survivorship care. This may be because biomedical and psychosocial outcomes are more distal and mediated or moderated by access to care; however, further investigation may be warranted to better understand the relationship between access to survivorship care and biomedical and psychosocial outcomes. More recently, there has been discussion in the pediatric cancer survivorship community regarding striking the right balance of surveillance for late effects, to avoid over-surveillance and under-surveillance. In particular, debate surrounding real impact that is has on CCS’ survival and quality of life is key. However, more information is needed about what critical outcomes are for CCS and their families and how to measure them in a reliable and valid way that captures variation in disparate subgroups of CCS. Finally, there is a need to invest in, and test interventions that address health promoting facilitators of desired outcomes (e.g., peer support, occupational therapy). By focusing solely on barriers or strategies to mitigate negative outcomes (e.g., disparities) we may miss additional opportunities to promote positive outcomes and ultimately achieve health equity.174 Study Design Ideally, randomized controlled trials would allow strong evidence statements about the effectiveness of proposed interventions. To incorporate diverse cohorts with varying levels of access to care and social and cultural representation, other approaches may be suitable to advance our knowledge. For example, cluster randomized studies that intervene at the provider level or natural experiments focused on health system or payer interventions could provide much-needed insight. Furthermore, there is a need for collaboration (e.g., multi-site studies) to reach sufficient sample sizes. In addition, longitudinal studies that examine disparities and barriers over time are needed to enhance our understanding of how they impact long-term outcomes for CCS. Finally, an economics-based approach using cost-effectiveness or costbenefit analyses conducted with representative, actual cost data from various levels will provide important information. Examining a variety of perspectives will help to truly understand the costs and benefits, including the patient, family, provider, health system, and payer perspectives. 29 Conclusion Pediatric cancer survivors face a variety of barriers to care, and these barriers often lead to disparities in care. This report highlights the strengths and limitations of the literature surrounding disparities and barriers to pediatric cancer survivorship care. Disparities by biologic sex and insurance were most frequently addressed; while barriers at the level of the patient and provider were most commonly examined. We identified few studies specifically designed to ameliorate disparities among pediatric cancer survivorship care. 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Childhood cancer survivorship research in 44 Abbreviations and Acronyms AHRQ AMC ASCO CCDI CCS CCSS COE COG EPC GIN GQ IGHG LEG NCCN NCI NIH PAE PCP PICOTSS SES SEADS STAR Act UKCCSG Agency for Healthcare Research and Quality Academic Medical Centers American Society for Clinical Oncology Childhood Cancer Data Initiative Childhood cancer survivor(s) Childhood Cancer Survivor Study Center of Excellence Children’s Oncology Group Evidence-based Practice Center Guidelines International Network Guiding Question International Guideline Harmonization Group Late Effects Group National Comprehensive Cancer Network National Cancer Institute National Institutes of Health Patient Activation and Education Primary Care Providers Population, independent variables/intervention, comparator, outcomes, timing, setting, and study design/other limiters Socioeconomic status Supplemental Evidence And Data for Systematic review Childhood Cancer Survivorship, Treatment, Access, and Research Act UK Children’s Cancer Study Group 45 Appendix A. Methods This appendix summarizes the methods used for this technical brief. While the draft report is undergoing peer review, we will undertake an updated search so that the final report is current and includes the most up-to-date information. Search Strategy and Sources For this brief, we searched a variety of sources and applied several measures to reduce potential reviewer errors and bias. This section describes the search strategies for published and unpublished studies. The search strategies for the individual databases were developed, executed, and documented by an experienced EPC librarian and were peer-reviewed by an experienced methodologist. Furthermore, we sought input from Key Informant content experts and a Supplemental Evidence And Data for Systematic review (SEADS) portal was available, in addition to a Notice released by the Federal Register for this review to ensure that all relevant evidence has been considered. Grey Literature To search for grey literature, we screened the websites of relevant professional organizations listed below. The following terms were used to search grey literature websites: childhood OR pediatric cancer survivor AND (disparit* OR barrier*), alone or in combination. The grey literature sources included: • Centers for Disease Control and Prevention • National Academies of Science, Engineering, and Medicine • National Cancer Institute • Children’s Oncology Group • American Cancer Society • American Cancer Society Cancer Action Network • American Academy of Pediatrics • American Society of Pediatric Hematology and Oncology • American Society of Clinical Oncology • National Comprehensive Cancer Network • Leukemia and Lymphoma Society • St. Baldrick’s Foundation • American Society for Transplantation and Cellular Therapy • Center for International Blood and Marrow Transplantation Research • International Guideline Harmonization Group for Late Effects of Childhood Cancer • Alex’s Lemonade Stand Foundation • CureSearch ECRI Guidelines Trust Date: 10/8/2020 Terms: childhood OR pediatric cancer survivor A-1 Guidelines International Network (GIN) Date: 10/8/2020 Terms: childhood OR pediatric cancer survivor NIH RePORTER Date: 10/8/2020 Text search Limit to: publications from 1995-2020 Terms: "childhood cancer survivor" and disparities "childhood cancer survivor" and barriers “childhood cancer survivor" and care and barriers “childhood cancer survivor" and care and disparities “adolescent cancer survivor” “pediatric cancer survivor” National Cancer Institute Research-Tested Intervention Programs Date: 10/8/2020 Terms: Childhood cancer survivor ClinicalTrials.gov Date: 10/8/2020 Terms: AREA[ConditionSearch] Cancer AND (neonate OR neonatal OR newborn OR newborns OR infant OR baby OR babies OR nursery OR nurseries OR toddler OR toddlers OR preschool OR pre school OR child OR children OR childhood OR kid OR kids OR juvenile OR juveniles OR minor OR minors OR youth OR youths OR youngster OR youngsters OR girl OR girls OR boy OR boys OR elementary school OR elementary schools OR grade school OR grade schools OR preadolescent OR preadolescents OR preadolescence OR pre adolescent OR pre adolescents OR pre adolescence OR preteen OR preteens OR preteenager OR preteenagers OR pre teen OR pre teens OR pre teenager OR pre teenagers OR middle school OR middle schools OR middle schooling OR adolescent OR adolescents OR adolescence OR teen OR teens OR teenager OR teenagers OR high school OR high schools OR high schooling OR pediatric OR pediatrics OR PICU OR NICU OR young adult OR young adults) AND (social determinants of health OR socioeconomic OR access to healthcare OR Barriers to healthcare OR ((Black OR African American OR Alaskan Native OR native American OR white OR Asian OR Native Hawaiian OR Pacific Islander OR Hispanic OR Hispanics OR Latino OR Latina OR LatinX OR Latinos OR Latinas OR Blacks OR African Americans OR Alaskan Natives OR native Americans OR whites OR Asians OR Native Hawaiians OR Pacific Islanders OR health OR medic OR medicine OR medical OR insurance OR insurances OR education OR educations) AND (inequity OR inequities OR disparity OR disparities OR inequality OR A-2 inequalities)) OR ((social OR sociological OR sociology) AND (factor OR factors OR trait OR traits OR attribute OR attributes OR characteristic OR characteristics OR phenomenon OR phenomena ))) AND (Survivor OR survivors OR survivorship OR surveillance OR aftercare OR post-treatment OR post treatment OR post-treatments OR post treatment OR follow up care OR follow-up care OR Long term follow up OR long-term follow-up) PROSPERO and Open Science Framework Date: 10/8/2020 Terms: “Cancer” OR “Oncolog*” OR “tumor” OR “tumors” AND “child” OR “Childhood” OR “kid“ OR “kids“ OR “juvenile“ OR “juveniles“ OR “minor“ OR “minors“ OR “youth“ OR “youths“ OR “girl“ OR “girls“ OR “boy“ OR “boys“ OR “preadolescent“ OR “preteen*“ OR “pre teen*” OR “adolescent“ OR “teen” or “teenager” OR “pediatric*“ OR “young adult” OR “young adults” AND “survivor” OR “survivorship” or “survivors” OR “aftercare” OR “post treatment” OR “follow up” AND “barriers” OR “barrier” OR “disparity” OR “disparities” OR “inequality” OR “unequal” Published Literature We searched the research databases PubMed, CINAHL, and PsycINFO using the specified terminology below for each Guiding Question. PubMed indexes biomedical literature, CINAHL includes nursing literature, and PsycINFO is a resource for behavioral and social science research. We also searched the trial registry, clinicaltrials.gov, and NIH RePORTER for ongoing studies. Increasingly, authors provide results in trial records, and particularly for new interventions, trial registries are an important source of research information. PROSPERO, an international database of systematic reviews, was searched using the strategy listed below. We reference-mined these published systematic reviews to ensure that all relevant studies were identified (e.g., rather than summarizing the reviews, we used them as sources to identify available research studies). Open Science Framework was queried for registered protocols of relevance using the terms listed below. We also searched ClinicalTrials.gov and NIH RePORTER for ongoing research using search terms specified below. PubMed Guiding Question 1 Strategy Date: 10/8/2020 Terms: (“Neoplasms”[Mesh] OR “Medical Oncology”[Mesh] OR “Oncology Service, Hospital”[Mesh] OR “Oncology Nursing”[Mesh] OR “Cancer Care Facilities”[Mesh] OR “National Cancer Institute (U.S.)”[Mesh] OR “American Cancer Society”[Mesh] OR “antineoplastic*” OR “antiA-3 neoplastic*” OR “anti neoplastic*” OR “oncolog*” OR “neoplasm” OR “neoplasms” OR “tumor” OR “tumors” OR “cancer” OR “cancers” OR “malignan*” OR “carcinoma” OR “carcinomas”) AND (“child”[MeSH] OR “adolescent”[MeSH] OR "Minors"[Mesh] OR "Pediatrics"[Mesh] OR "Pediatricians"[Mesh] OR "Hospitals, Pediatric"[Mesh] OR "Intensive Care Units, Pediatric"[Mesh] OR "Intensive Care, Neonatal"[Mesh] OR “neonat*“ OR “newborn“ OR “newborns“ OR “infan*“ OR “baby“ OR “babies“ OR “nursery“ OR “nurseries“ OR “toddler“ OR “toddlers“ OR “preschool*“ OR “pre school*” OR “child*“ OR “kid“ OR “kids“ OR “juvenile“ OR “juveniles“ OR “minor“ OR “minors“ OR “youth“ OR “youths“ OR “youngster“ OR “youngsters“ OR “girl“ OR “girls“ OR “boy“ OR “boys“ OR “elementary school*” OR “grade school*” OR “preadolescen*“ OR “pre adolescen*” OR “preteen*“ OR “pre teen*” OR “middle school*” OR “adolescen*“ OR “teen*“ OR “high school*” OR “pediatric*“ OR “PICU“ OR “NICU“ OR “young adult” OR “young adults”) AND (“Social Determinants of Health”[MeSH] OR “Health Status Disparities”[MeSH] OR “Sociology, Medical”[MeSH] OR “Healthcare Disparities”[MeSH] OR “Sociological Factors”[MeSH] OR “social determinants of health” OR “socioeconomic” OR “access to healthcare” OR “Barriers to healthcare” OR ((“Black” OR “African American” OR “Alaskan Native” OR “native American” OR “white” OR “Asian” OR “Native Hawaiian” OR “Pacific Islander” OR “Hispanic” OR “Hispanics” OR “Latino” OR “Latina” OR “LatinX” OR “Latinos” OR “Latinas” OR “Blacks” OR “African Americans” OR “Alaskan Natives” OR “native Americans” OR “whites” OR “Asians” OR “Native Hawaiians” OR “Pacific Islanders” OR “health*” OR “medic*” OR “insurance” OR “insurances” OR “education*”) AND (“inequit*” OR “disparit*” OR “inequal*”)) OR ((“social*” OR “sociolog*” OR “sociology*”) AND (“factor” OR “factors” OR “trait” OR “traits” OR “attribute” OR “attributes” OR “characteristic” OR “characteristics” OR “phenomen*”))) AND (“Survivors”[Mesh] OR “Survivorship”[Mesh] OR "Population Surveillance"[Mesh] OR "Aftercare"[Mesh] OR ”Survivor” OR ”survivors” OR ”survivorship” OR “surveillance” OR “aftercare” OR “post-treatment” OR “post treatment” OR “post-treatments” OR “post treatment” OR “follow up care” OR “follow-up care” OR “Long term follow up” OR “long-term followup”) Guiding Question 2 Strategy Date: 10/8/2020 Terms: (“Neoplasms”[Mesh] OR “Medical Oncology”[Mesh] OR “Oncology Service, Hospital”[Mesh] OR “Oncology Nursing”[Mesh] OR “Cancer Care Facilities”[Mesh] OR “National Cancer Institute (U.S.)”[Mesh] OR “American Cancer Society”[Mesh] OR “antineoplastic*” OR “antineoplastic*” OR “anti neoplastic*” OR “oncolog*” OR “neoplasm” OR “neoplasms” OR “tumor” OR “tumors” OR “cancer” OR “cancers” OR “malignan*” OR “carcinoma” OR “carcinomas”) AND (“child”[MeSH] OR “adolescent”[MeSH] OR "Minors"[Mesh] OR "Pediatrics"[Mesh] OR "Pediatricians"[Mesh] OR "Hospitals, Pediatric"[Mesh] OR "Intensive Care Units, A-4 Pediatric"[Mesh] OR "Intensive Care, Neonatal"[Mesh] OR “neonat*“ OR “newborn“ OR “newborns“ OR “infan*“ OR “baby“ OR “babies“ OR “nursery“ OR “nurseries“ OR “toddler“ OR “toddlers“ OR “preschool*“ OR “pre school*” OR “child*“ OR “kid“ OR “kids“ OR “juvenile“ OR “juveniles“ OR “minor“ OR “minors“ OR “youth“ OR “youths“ OR “youngster“ OR “youngsters“ OR “girl“ OR “girls“ OR “boy“ OR “boys“ OR “elementary school*” OR “grade school*” OR “preadolescen*“ OR “pre adolescen*” OR “preteen*“ OR “pre teen*” OR “middle school*” OR “adolescen*“ OR “teen*“ OR “high school*” OR “pediatric*“ OR “PICU“ OR “NICU“ OR “young adult” OR “young adults”) AND (“Survivors”[Mesh] OR “Survivorship”[Mesh] OR "Population Surveillance"[Mesh] OR "Aftercare"[Mesh] OR ”Survivor” OR ”survivors” OR ”survivorship” OR “surveillance” OR “aftercare” OR “post-treatment” OR “post treatment” OR “post-treatments” OR “post treatment” OR “follow up care” OR “follow-up care” OR “Long term follow up” OR “long-term followup”) AND ("Health Services Accessibility"[Mesh] OR "Standard of Care"[Mesh] OR "Case Managers"[Mesh] OR “access to healthcare” OR “access to health care” OR “healthcare access” OR “health care access” OR “health service access” OR “health services access” OR “access to health service” OR “access to health services” OR “Barriers to healthcare” OR “standard of care” OR “standards of care” OR “care standard” OR “care standards” OR “case manager” OR “case managers” OR “facilitator” OR “facilitators”) Guiding Question 3-5 Strategy Date: 10/8/2020 Terms: (“Neoplasms”[Mesh] OR “Medical Oncology”[Mesh] OR “Oncology Service, Hospital”[Mesh] OR “Oncology Nursing”[Mesh] OR “Cancer Care Facilities”[Mesh] OR “National Cancer Institute (U.S.)”[Mesh] OR “American Cancer Society”[Mesh] OR “antineoplastic*” OR “antineoplastic*” OR “anti neoplastic*” OR “oncolog*” OR “neoplasm” OR “neoplasms” OR “tumor” OR “tumors” OR “cancer” OR “cancers” OR “malignan*” OR “carcinoma” OR “carcinomas”) AND (“child”[MeSH] OR “adolescent”[MeSH] OR "Minors"[Mesh] OR "Pediatrics"[Mesh] OR "Pediatricians"[Mesh] OR "Hospitals, Pediatric"[Mesh] OR "Intensive Care Units, Pediatric"[Mesh] OR "Intensive Care, Neonatal"[Mesh] OR “neonat*“ OR “newborn“ OR “newborns“ OR “infan*“ OR “baby“ OR “babies“ OR “nursery“ OR “nurseries“ OR “toddler“ OR “toddlers“ OR “preschool*“ OR “pre school*” OR “child*“ OR “kid“ OR “kids“ OR “juvenile“ OR “juveniles“ OR “minor“ OR “minors“ OR “youth“ OR “youths“ OR “youngster“ OR “youngsters“ OR “girl“ OR “girls“ OR “boy“ OR “boys“ OR “elementary school*” OR “grade school*” OR “preadolescen*“ OR “pre adolescen*” OR “preteen*“ OR “pre teen*” OR “middle school*” OR “adolescen*“ OR “teen*“ OR “high school*” OR “pediatric*“ OR “PICU“ OR “NICU“ OR “young adult” OR “young adults”) AND (“Survivors”[Mesh] OR “Survivorship”[Mesh] OR "Population Surveillance"[Mesh] OR "Aftercare"[Mesh] OR ”Survivor” OR ”survivors” OR ”survivorship” OR “surveillance” OR “aftercare” OR “post-treatment” OR “post treatment” OR “post-treatments” OR “post treatment” A-5 OR “follow up care” OR “follow-up care” OR “Long term follow up” OR “long-term followup”) AND ("Follow-Up Studies"[Mesh] OR "Longitudinal Studies"[Mesh] OR “follow-up study” OR “follow-up studies” OR “follow up study” OR “follow up studies” OR “followup study” OR “followup studies” OR “longitudinal study” OR “longitudinal studies”) Guiding Question 4 Strategy Experimental Studies Date: 10/8/2020 Terms: childhood cancer survivor* Filters: Clinical Trial, Randomized Controlled Trial, English CINAHL Guiding Question 1 Strategy Date: 10/8/2020 Terms: (MH "Neoplasms+" OR MH "Oncology+" OR MH "Oncology Care Units" OR MH "Oncologic Nursing+" OR MH "Oncologic Care+" OR MH “Cancer Care Facilities” OR MH "National Cancer Institute (U.S.)" OR MH "American Cancer Society" OR “antineoplastic*” OR “antineoplastic*” OR “anti neoplastic*” OR “oncolog*” OR “neoplasm” OR “neoplasms” OR “tumor” OR “tumors” OR “cancer” OR “cancers” OR “malignan*” OR “carcinoma” OR “carcinomas”) AND (MH "Child+" OR MH "Minors (Legal)" OR MH "Adolescence+"OR MH "Pediatrics+" OR MH "Hospitals, Pediatric" OR MH "Intensive Care Units, Pediatric+" OR MH "Pediatric Units+" OR MH "Pediatricians" OR MH "Pediatric Nursing+” OR MH "Neonatal Intensive Care Nursing" OR MH "Intensive Care Units, Neonatal" OR MH "Intensive Care, Neonatal+" OR “neonat*“ OR “newborn“ OR “newborns“ OR “infan*“ OR “baby“ OR “babies“ OR “nursery“ OR “nurseries“ OR “toddler“ OR “toddlers“ OR “preschool*“ OR “pre school*” OR “child*“ OR “kid“ OR “kids“ OR “juvenile“ OR “juveniles“ OR “minor“ OR “minors“ OR “youth“ OR “youths“ OR “youngster“ OR “youngsters“ OR “girl“ OR “girls“ OR “boy“ OR “boys“ OR “elementary school*” OR “grade school*” OR “preadolescen*“ OR “pre adolescen*” OR “preteen*“ OR “pre teen*” OR “middle school*” OR “adolescen*“ OR “teen*“ OR “high school*” OR “pediatric*“ OR “PICU“ OR “NICU“ OR “young adult” OR “young adults”) AND (MH "Social Determinants of Health" OR MH "Health Status Disparities" OR MH "Healthcare Disparities" OR “social determinants of health” OR “socioeconomic” OR “access to healthcare” OR “Barriers to healthcare” OR ((“Black” OR “African American” OR “Alaskan Native” OR “native American” OR “white” OR “Asian” OR “Native Hawaiian” OR “Pacific Islander” OR “Hispanic” OR “Hispanics” OR “Latino” OR “Latina” OR “LatinX” OR “Latinos” OR “Latinas” OR “Blacks” OR “African Americans” OR “Alaskan Natives” OR “native Americans” OR “whites” OR “Asians” OR “Native Hawaiians” OR “Pacific Islanders” OR “health*” OR “medic*” OR “insurance” OR “insurances” OR “education*”) AND (“inequit*” OR “disparit*” OR “inequal*”)) OR ((“social*” OR “sociolog*” OR “sociology*”) AND (“factor” OR “factors” A-6 OR “trait” OR “traits” OR “attribute” OR “attributes” OR “characteristic” OR “characteristics” OR “phenomen*”))) AND (MH “Survivors” OR MH “Survivorship” OR MH "Population Surveillance" OR MH "After care" OR ”Survivor” OR ”survivors” OR ”survivorship” OR “surveillance” OR “aftercare” OR “post-treatment” OR “post treatment” OR “post-treatments” OR “post treatment” OR “follow up care” OR “follow-up care” OR “Long term follow up” OR “long-term follow-up”) Guiding Question 2 Strategy Date: 10/8/2020 Terms: (MH "Neoplasms+" OR MH "Oncology+" OR MH "Oncology Care Units" OR MH "Oncologic Nursing+" OR MH "Oncologic Care+" OR MH “Cancer Care Facilities” OR MH "National Cancer Institute (U.S.)" OR MH "American Cancer Society" OR “antineoplastic*” OR “antineoplastic*” OR “anti neoplastic*” OR “oncolog*” OR “neoplasm” OR “neoplasms” OR “tumor” OR “tumors” OR “cancer” OR “cancers” OR “malignan*” OR “carcinoma” OR “carcinomas”) AND (MH "Child+" OR MH "Minors (Legal)" OR MH "Adolescence+"OR MH "Pediatrics+" OR MH "Hospitals, Pediatric" OR MH "Intensive Care Units, Pediatric+" OR MH "Pediatric Units+" OR MH "Pediatricians" OR MH "Pediatric Nursing+” OR MH "Neonatal Intensive Care Nursing" OR MH "Intensive Care Units, Neonatal" OR MH "Intensive Care, Neonatal+" OR “neonat*“ OR “newborn“ OR “newborns“ OR “infan*“ OR “baby“ OR “babies“ OR “nursery“ OR “nurseries“ OR “toddler“ OR “toddlers“ OR “preschool*“ OR “pre school*” OR “child*“ OR “kid“ OR “kids“ OR “juvenile“ OR “juveniles“ OR “minor“ OR “minors“ OR “youth“ OR “youths“ OR “youngster“ OR “youngsters“ OR “girl“ OR “girls“ OR “boy“ OR “boys“ OR “elementary school*” OR “grade school*” OR “preadolescen*“ OR “pre adolescen*” OR “preteen*“ OR “pre teen*” OR “middle school*” OR “adolescen*“ OR “teen*“ OR “high school*” OR “pediatric*“ OR “PICU“ OR “NICU“ OR “young adult” OR “young adults”) AND (MH “Survivors” OR MH “Survivorship” OR MH "Population Surveillance" OR MH "After care" OR ”Survivor” OR ”survivors” OR ”survivorship” OR “surveillance” OR “aftercare” OR “post-treatment” OR “post treatment” OR “post-treatments” OR “post treatment” OR “follow up care” OR “follow-up care” OR “Long term follow up” OR “long-term follow-up”) AND (MH "Health Services Accessibility+" OR “access to healthcare” OR “access to health care” OR “healthcare access” OR “health care access” OR “health service access” OR “health services access” OR “access to health service” OR “access to health services” OR “Barriers to healthcare” OR “standard of care” OR “standards of care” OR “care standard” OR “care standards”) Guiding Question 4 Strategy Date: 10/8/2020 Terms: (MH "Neoplasms+" OR MH "Oncology+" OR MH "Oncology Care Units" OR MH "Oncologic Nursing+" OR MH "Oncologic Care+" OR MH “Cancer Care Facilities” OR MH "National A-7 Cancer Institute (U.S.)" OR MH "American Cancer Society" OR “antineoplastic*” OR “antineoplastic*” OR “anti neoplastic*” OR “oncolog*” OR “neoplasm” OR “neoplasms” OR “tumor” OR “tumors” OR “cancer” OR “cancers” OR “malignan*” OR “carcinoma” OR “carcinomas”) AND (MH "Child+" OR MH "Minors (Legal)" OR MH "Adolescence+"OR MH "Pediatrics+" OR MH "Hospitals, Pediatric" OR MH "Intensive Care Units, Pediatric+" OR MH "Pediatric Units+" OR MH "Pediatricians" OR MH "Pediatric Nursing+” OR MH "Neonatal Intensive Care Nursing" OR MH "Intensive Care Units, Neonatal" OR MH "Intensive Care, Neonatal+" OR “neonat*“ OR “newborn“ OR “newborns“ OR “infan*“ OR “baby“ OR “babies“ OR “nursery“ OR “nurseries“ OR “toddler“ OR “toddlers“ OR “preschool*“ OR “pre school*” OR “child*“ OR “kid“ OR “kids“ OR “juvenile“ OR “juveniles“ OR “minor“ OR “minors“ OR “youth“ OR “youths“ OR “youngster“ OR “youngsters“ OR “girl“ OR “girls“ OR “boy“ OR “boys“ OR “elementary school*” OR “grade school*” OR “preadolescen*“ OR “pre adolescen*” OR “preteen*“ OR “pre teen*” OR “middle school*” OR “adolescen*“ OR “teen*“ OR “high school*” OR “pediatric*“ OR “PICU“ OR “NICU“ OR “young adult” OR “young adults”) AND (MH "Social Determinants of Health" OR MH "Health Status Disparities" OR MH "Healthcare Disparities" OR “social determinants of health” OR “socioeconomic” OR “access to healthcare” OR “Barriers to healthcare” OR ((“Black” OR “African American” OR “Alaskan Native” OR “native American” OR “white” OR “Asian” OR “Native Hawaiian” OR “Pacific Islander” OR “Hispanic” OR “Hispanics” OR “Latino” OR “Latina” OR “LatinX” OR “Latinos” OR “Latinas” OR “Blacks” OR “African Americans” OR “Alaskan Natives” OR “native Americans” OR “whites” OR “Asians” OR “Native Hawaiians” OR “Pacific Islanders” OR “health*” OR “medic*” OR “insurance” OR “insurances” OR “education*”) AND (“inequit*” OR “disparit*” OR “inequal*”)) OR ((“social*” OR “sociolog*” OR “sociology*”) AND (“factor” OR “factors” OR “trait” OR “traits” OR “attribute” OR “attributes” OR “characteristic” OR “characteristics” OR “phenomen*”))) AND (MH “Survivors” OR MH “Survivorship” OR MH "Population Surveillance" OR MH "After care" OR ”Survivor” OR ”survivors” OR ”survivorship” OR “surveillance” OR “aftercare” OR “post-treatment” OR “post treatment” OR “post-treatments” OR “post treatment” OR “follow up care” OR “follow-up care” OR “Long term follow up” OR “long-term follow-up”) AND (MH "Experimental Studies+") PsycInfo Guiding Question 1 Strategy Date: 10/8/2020 Terms: (MAINSUBJECT.EXACT.EXPLODE("Neoplasms") OR MAINSUBJECT.EXACT.EXPLODE("Oncology") OR “antineoplastic*” OR “anti-neoplastic*” OR “anti neoplastic*” OR “oncolog*” OR “neoplasm” OR “neoplasms” OR “tumor” OR “tumors” OR “cancer” OR “cancers” OR “malignan*” OR “carcinoma” OR “carcinomas”) AND A-8 (MAINSUBJECT.EXACT("Adolescent Development") OR MAINSUBJECT.EXACT.EXPLODE("Pediatrics") OR MAINSUBJECT.EXACT.EXPLODE("Pediatricians") OR MAINSUBJECT.EXACT.EXPLODE("Neonatal Intensive Care") OR “neonat*“ OR “newborn“ OR “newborns“ OR “infan*“ OR “baby“ OR “babies“ OR “nursery“ OR “nurseries“ OR “toddler“ OR “toddlers“ OR “preschool*“ OR “pre school*” OR “child*“ OR “kid“ OR “kids“ OR “juvenile“ OR “juveniles“ OR “minor“ OR “minors“ OR “youth“ OR “youths“ OR “youngster“ OR “youngsters“ OR “girl“ OR “girls“ OR “boy“ OR “boys“ OR “elementary school*” OR “grade school*” OR “preadolescen*“ OR “pre adolescen*” OR “preteen*“ OR “pre teen*” OR “middle school*” OR “adolescen*“ OR “teen*“ OR “high school*” OR “pediatric*“ OR “PICU“ OR “NICU“ OR “young adult” OR “young adults”) AND (MAINSUBJECT.EXACT("Social Discrimination") OR MAINSUBJECT.EXACT.EXPLODE("Health Disparities") OR “social determinants of health” OR “socioeconomic” OR “access to healthcare” OR “Barriers to healthcare” OR ((“Black” OR “African American” OR “Alaskan Native” OR “native American” OR “white” OR “Asian” OR “Native Hawaiian” OR “Pacific Islander” OR “Hispanic” OR “Hispanics” OR “Latino” OR “Latina” OR “LatinX” OR “Latinos” OR “Latinas” OR “Blacks” OR “African Americans” OR “Alaskan Natives” OR “native Americans” OR “whites” OR “Asians” OR “Native Hawaiians” OR “Pacific Islanders” OR “health*” OR “medic*” OR “insurance” OR “insurances” OR “education*”) AND (“inequit*” OR “disparit*” OR “inequal*”)) OR ((“social*” OR “sociolog*” OR “sociology*”) AND (“factor” OR “factors” OR “trait” OR “traits” OR “attribute” OR “attributes” OR “characteristic” OR “characteristics” OR “phenomen*”))) AND (MAINSUBJECT.EXACT.EXPLODE("Survivors") OR MAINSUBJECT.EXACT.EXPLODE("Aftercare") OR ”Survivor” OR ”survivors” OR ”survivorship” OR “surveillance” OR “aftercare” OR “post-treatment” OR “post treatment” OR “post-treatments” OR “post treatment” OR “follow up care” OR “follow-up care” OR “Long term follow up” OR “long-term follow-up”) Guiding Question 2 Strategy Date: 10/8/2020 Terms: (MAINSUBJECT.EXACT.EXPLODE("Neoplasms") OR MAINSUBJECT.EXACT.EXPLODE("Oncology") OR “antineoplastic*” OR “anti-neoplastic*” OR “anti neoplastic*” OR “oncolog*” OR “neoplasm” OR “neoplasms” OR “tumor” OR “tumors” OR “cancer” OR “cancers” OR “malignan*” OR “carcinoma” OR “carcinomas”) AND (MAINSUBJECT.EXACT("Adolescent Development") OR MAINSUBJECT.EXACT.EXPLODE("Pediatrics") OR MAINSUBJECT.EXACT.EXPLODE("Pediatricians") OR MAINSUBJECT.EXACT.EXPLODE("Neonatal Intensive Care") OR “neonat*“ OR “newborn“ OR “newborns“ OR “infan*“ OR “baby“ OR “babies“ OR “nursery“ OR “nurseries“ OR “toddler“ OR “toddlers“ OR “preschool*“ OR “pre school*” OR “child*“ OR “kid“ OR “kids“ OR “juvenile“ OR “juveniles“ OR “minor“ OR “minors“ OR “youth“ OR “youths“ OR “youngster“ OR “youngsters“ OR “girl“ OR “girls“ OR “boy“ OR “boys“ OR “elementary A-9 school*” OR “grade school*” OR “preadolescen*“ OR “pre adolescen*” OR “preteen*“ OR “pre teen*” OR “middle school*” OR “adolescen*“ OR “teen*“ OR “high school*” OR “pediatric*“ OR “PICU“ OR “NICU“ OR “young adult” OR “young adults”) AND (MAINSUBJECT.EXACT.EXPLODE("Survivors") OR MAINSUBJECT.EXACT.EXPLODE("Aftercare") OR ”Survivor” OR ”survivors” OR ”survivorship” OR “surveillance” OR “aftercare” OR “post-treatment” OR “post treatment” OR “post-treatments” OR “post treatment” OR “follow up care” OR “follow-up care” OR “Long term follow up” OR “long-term follow-up”) AND (MAINSUBJECT.EXACT.EXPLODE("Health Care Access") OR “access to healthcare” OR “access to health care” OR “healthcare access” OR “health care access” OR “health service access” OR “health services access” OR “access to health service” OR “access to health services” OR “Barriers to healthcare” OR “standard of care” OR “standards of care” OR “care standard” OR “care standards”) Guiding Question 4 Strategy Date: 10/8/2020 Terms: Methodology Filters used: Clinical Trial, Clinical Case Study, Empirical Study, Experimental Replication, Followup Study, Longitudinal Study, Prospective Study, Retrospective Study, Nonclinical Case Study, Qualitative Study, Quantitative Study, Treatment Outcome (MAINSUBJECT.EXACT.EXPLODE("Neoplasms") OR MAINSUBJECT.EXACT.EXPLODE("Oncology") OR “antineoplastic*” OR “anti-neoplastic*” OR “anti neoplastic*” OR “oncolog*” OR “neoplasm” OR “neoplasms” OR “tumor” OR “tumors” OR “cancer” OR “cancers” OR “malignan*” OR “carcinoma” OR “carcinomas”) AND (MAINSUBJECT.EXACT("Adolescent Development") OR MAINSUBJECT.EXACT.EXPLODE("Pediatrics") OR MAINSUBJECT.EXACT.EXPLODE("Pediatricians") OR MAINSUBJECT.EXACT.EXPLODE("Neonatal Intensive Care") OR “neonat*“ OR “newborn“ OR “newborns“ OR “infan*“ OR “baby“ OR “babies“ OR “nursery“ OR “nurseries“ OR “toddler“ OR “toddlers“ OR “preschool*“ OR “pre school*” OR “child*“ OR “kid“ OR “kids“ OR “juvenile“ OR “juveniles“ OR “minor“ OR “minors“ OR “youth“ OR “youths“ OR “youngster“ OR “youngsters“ OR “girl“ OR “girls“ OR “boy“ OR “boys“ OR “elementary school*” OR “grade school*” OR “preadolescen*“ OR “pre adolescen*” OR “preteen*“ OR “pre teen*” OR “middle school*” OR “adolescen*“ OR “teen*“ OR “high school*” OR “pediatric*“ OR “PICU“ OR “NICU“ OR “young adult” OR “young adults”) AND (MAINSUBJECT.EXACT.EXPLODE("Survivors") OR MAINSUBJECT.EXACT.EXPLODE("Aftercare") OR ”Survivor” OR ”survivors” OR ”survivorship” OR “surveillance” OR “aftercare” OR “post-treatment” OR “post treatment” OR “post-treatments” OR “post treatment” OR “follow up care” OR “follow-up care” OR “Long term follow up” OR “long-term follow-up”) AND A-10 (MAINSUBJECT.EXACT("Social Discrimination") OR MAINSUBJECT.EXACT.EXPLODE("Health Disparities") OR “social determinants of health” OR “socioeconomic” OR “access to healthcare” OR “Barriers to healthcare” OR ((“Black” OR “African American” OR “Alaskan Native” OR “native American” OR “white” OR “Asian” OR “Native Hawaiian” OR “Pacific Islander” OR “Hispanic” OR “Hispanics” OR “Latino” OR “Latina” OR “LatinX” OR “Latinos” OR “Latinas” OR “Blacks” OR “African Americans” OR “Alaskan Natives” OR “native Americans” OR “whites” OR “Asians” OR “Native Hawaiians” OR “Pacific Islanders” OR “health*” OR “medic*” OR “insurance” OR “insurances” OR “education*”) AND (“inequit*” OR “disparit*” OR “inequal*”)) OR ((“social*” OR “sociolog*” OR “sociology*”) AND (“factor” OR “factors” OR “trait” OR “traits” OR “attribute” OR “attributes” OR “characteristic” OR “characteristics” OR “phenomen*”))) Results: 6,857 A-11 Appendix B. Excluded Studies 1. 2008 SNRS abstracts -- M. Southern Online Journal of Nursing Research. 2008;8(4):9-. PMID: 105496452. Language: English. Entry Date: 20090807. Revision Date: 20150711. Publication Type: Journal Article. Outcome 8. RESEARCH BRIEFS. P&T: A PeerReviewed Journal for Managed Care & Formulary Management. 2018;43(11):696700. PMID: 133446789. Language: English. Entry Date: 20181211. Revision Date: 20190715. Publication Type: Article. Outcome 2. 2008 SNRS abstracts -- W - Z. Southern Online Journal of Nursing Research. 2008;8(4):14-. PMID: 105496459. Language: English. Entry Date: 20090807. Revision Date: 20150711. Publication Type: Journal Article. Study design 9. The global burden of childhood and adolescent cancer in 2017: an analysis of the Global Burden of Disease Study 2017. Lancet Oncology. 2019;20(9):1211-25. doi: 10.1016/S1470-2045(19)30339-0. PMID: 138390099. Corporate Author: GBD 2017 Childhood Cancer Collaborators. Language: English. Entry Date: 20200617. Revision Date: 20200701. Publication Type: journal article. Outcome 3. 2008 SNRS abstracts -- L. Southern Online Journal of Nursing Research. 2008;8(4):8-. PMID: 105496451. Language: English. Entry Date: 20090807. Revision Date: 20150711. Publication Type: Journal Article. Study design 10. Survivors of childhood brain tumours have lasting cognitive and socioeconomic burdens. British Journal of Hospital Medicine (17508460). 2019;80(8):428-. PMID: 138027431. Language: English. Entry Date: 20190816. Revision Date: 20190817. Publication Type: Article. Outcome 4. 2008 SNRS abstracts -- S. Southern Online Journal of Nursing Research. 2008;8(4):12-. PMID: 105496455. Language: English. Entry Date: 20090807. Revision Date: 20150711. Publication Type: Journal Article. Study design 5. Advancing Survivorship Care Through the National Cancer Survivorship Resource Center. CA Cancer J Clin. 2013;63(3):14750. Participants 11. Clinical News. British Journal of Hospital Medicine (17508460). 2019;80(4):188-91. doi: 10.12968/hmed.2019.80.4.188. PMID: 135776404. Language: English. Entry Date: 20190410. Revision Date: 20191120. Publication Type: Article. Outcome 6. Dying after cure: A case of suicide in an adolescent treated for cancer. Wolters Kluwer India Pvt Ltd; 2015. p. 667-. Outcome 12. Joint Letter to HHS Secretary Azar on Barriers to Coverage During COVID. 2020. https://www.fightcancer.org/sites/default/file s/Letter%20to%20HHS%20Sec%20Azar%2 0on%20Covid%20Fixes%20for%20Cancer %20Patients%20FINAL.pdf. Accessed on August 10 2020. Participants 7. Handbook of oncology social work: Psychosocial care for people with cancer: Oxford University Press, New York, NY; 2015. Study design B-1 13. Aarsen FK, Paquier PF, Reddingius RE, et al. Functional outcome after low-grade astrocytoma treatment in childhood. Cancer. 2006 Jan 15;106(2):396-402. doi: 10.1002/cncr.21612. PMID: 16353203. Intervention 18. Absolom K, Eiser C, Michel G, et al. Follow-up care for cancer survivors: views of the younger adult. Br J Cancer. 2009 Aug 18;101(4):561-7. doi: 10.1038/sj.bjc.6605213. PMID: 19638979. Participants 14. Aarts MJ, Kamphuis CBm, Louwman MJ, et al. Educational inequalities in cancer survival: a role for comorbidities and health behaviours? Journal of Epidemiology & Community Health. 2013;67(4):365-73. doi: 10.1136/jech-2012-201404. PMID: 86009049. Language: English. Entry Date: 20130314. Revision Date: 20130930. Publication Type: Article. Outcome 19. Absolom K, Greenfield D, Ross R, et al. Predictors of clinic satisfaction among adult survivors of childhood cancer. Eur J Cancer. 2006 Jul;42(10):1421-7. doi: 10.1016/j.ejca.2006.01.053. PMID: 16759851. Intervention 20. Ach E, Gerhardt CA, Barrera M, et al. Family factors associated with academic achievement deficits in pediatric brain tumor survivors. Psychooncology. 2013 Aug;22(8):1731-7. doi: 10.1002/pon.3202. PMID: 23059621. Intervention 15. Abrahamsen AF, Loge JH, Hannisdal E, et al. Socio-medical situation for long-term survivors of Hodgkin's disease: a survey of 459 patients treated at one institution. Eur J Cancer. 1998 Nov;34(12):1865-70. doi: 10.1016/s0959-8049(98)00269-x. PMID: 10023307. Participants 21. Adam S, Doege D, Koch-Gallenkamp L, et al. Age-specific health-related quality of life in disease-free long-term prostate cancer survivors versus male population controls-results from a population-based study. Supportive Care in Cancer. 2020;28(6):2875-85. doi: 10.1007/s00520019-05120-5. PMID: 142867423. Language: English. Entry Date: 20200701. Revision Date: 20200701. Publication Type: journal article. Journal Subset: Biomedical. Participants 16. Abrahão R, Li QW, Malogolowkin MH, et al. Chronic medical conditions and late effects following non-Hodgkin lymphoma in HIV-uninfected and HIV-infected adolescents and young adults: a populationbased study. Br J Haematol. 2020 Feb 20. doi: 10.1111/bjh.16539. PMID: 32080836. Participants 22. Adams HS. Young adult survivors face unique challenges. Oncology (Williston Park). 2009 Oct;23(11 Suppl Nurse Ed):334. PMID: 19856606. Participants 17. Abrahão R, Ribeiro RC, Medeiros BC, et al. Disparities in early death and survival in children, adolescents, and young adults with acute promyelocytic leukemia in California. Cancer. 2015 2015 Nov 15 23. Adel Fahmideh M, Lavebratt C, Schüz J, et al. CCDC26, CDKN2BAS, RTEL1 and TERT Polymorphisms in pediatric brain tumor susceptibility. Carcinogenesis. 2015 Aug;36(8):876-82. doi: 10.1093/carcin/bgv074. PMID: 26014354. Outcome 2017-09-25;121(22):3990-7. doi: http://dx.doi.org/10.1002/cncr.29631. PMID: 1769711031; 2015-50576-009. Outcome B-2 24. Adelman AS, Groves FD, O'Rourke K, et al. Residential mobility and risk of childhood acute lymphoblastic leukaemia: an ecological study. Br J Cancer. 2007 Jul 2;97(1):140-4. doi: 10.1038/sj.bjc.6603793. PMID: 17533404. Study design 29. Agarwal S, Ying J, Boucher KM, et al. The association between socioeconomic factors and breast cancer-specific survival varies by race. PLoS One. 2017;12(12):e0187018. doi: 10.1371/journal.pone.0187018. PMID: 29211739. Participants 25. Affret A, His M, Severi G, et al. Influence of a cancer diagnosis on changes in fruit and vegetable consumption according to cancer site, stage at diagnosis and socioeconomic factors: Results from the large E3N-EPIC study. Int J Cancer. 2018 Oct 1;143(7):1678-87. doi: 10.1002/ijc.31572. PMID: 29717489. Participants 30. Agnese A, Lamparelli T, Bacigalupo A, et al. Supportive care with art therapy, for patients in isolation during stem cell transplant. Palliat Support Care. 2012 Jun;10(2):91-8. doi: 10.1017/s147895151100071x. PMID: 22436493. Participants 31. Agnew F, Higgins A, Casey M, et al. The experience of fatherhood following childhood cancer survival. J Health Psychol. 2020 Mar;25(3):340-9. doi: 10.1177/1359105317717598. PMID: 28810483. Study design 26. Afshar N, English DR, Thursfield V, et al. Differences in cancer survival by sex: a population-based study using cancer registry data. Cancer Causes Control. 2018 Nov;29(11):1059-69. doi: 10.1007/s10552018-1079-z. PMID: 30194549. Participants 32. Aharon D, Calderon M, Solari V, et al. Barriers to Follow-Up for Abnormal Papanicolaou Smears among Female Sex Workers in Lima, Peru. PLoS One. 2017;12(1):e0169327. doi: 10.1371/journal.pone.0169327. PMID: 28060937. Participants 27. Agaku IT, Adisa AO. Nativity status and oral cancer survival in the United States: Implications for dental clinical practice. Quintessence International. 2014;45(4):3559. doi: 10.3290/j.qi.a31344. PMID: 103957056. Language: English. Entry Date: 20140605. Revision Date: 20150710. Publication Type: Journal Article. Outcome 33. Ahomäki R, Gunn ME, MadanatHarjuoja LM, et al. Late psychiatric morbidity in survivors of cancer at a young age: a nationwide registry-based study. Int J Cancer. 2015 Jul 1;137(1):183-92. doi: 10.1002/ijc.29371. PMID: 25450095. Participants 28. Agarwal A, Katz AJ, Chen RC. The Impact of the Affordable Care Act on Disparities in Private and Medicaid Insurance Coverage Among Patients Under 65 With Newly Diagnosed Cancer. Int J Radiat Oncol Biol Phys. 2019 Sep 1;105(1):25-30. doi: 10.1016/j.ijrobp.2019.05.033. PMID: 31150741. Participants B-3 34. Ahomäki R, Harila-Saari A, Matomäki J, et al. Non-graduation after comprehensive school, and early retirement but not unemployment are prominent in childhood cancer survivors-a Finnish registry-based study. Journal of Cancer Survivorship. 2017;11(2):284-94. doi: 10.1007/s11764016-0574-z. PMID: 121919971. Language: English. Entry Date: 20170919. Revision Date: 20181026. Publication Type: journal article. Outcome 39. Al-Bahri A, Al-Moundhri M, AlMandhari Z, et al. The role of patients' families in treatment decision-making among adult cancer patients in the Sultanate of Oman. Eur J Cancer Care (Engl). 2018 May;27(3):e12845. doi: 10.1111/ecc.12845. PMID: 29667246. Participants 40. Al-Gamal E, Long T. Health-related quality of life and its association with selfesteem and fatigue among children diagnosed with cancer. J Clin Nurs. 2016 Nov;25(21-22):3391-9. doi: 10.1111/jocn.13467. PMID: 27378717. Intervention 35. Ahomäki R, Kero A, Koivisto M, et al. Purchases of antidepressants after cancer at a young age in Finland. Int J Cancer. 2019 Mar 15;144(6):1227-33. doi: 10.1002/ijc.31942. PMID: 30357818. Participants 41. Al-Jebari Y, Glimelius I, Berglund Nord C, et al. Cancer therapy and risk of congenital malformations in children fathered by men treated for testicular germcell cancer: A nationwide register study. PLoS Med. 2019 Jun;16(6):e1002816. doi: 10.1371/journal.pmed.1002816. PMID: 31163029. Participants 36. Ailawadhi S, Advani P, Yang D, et al. Impact of access to NCI- and NCCNdesignated cancer centers on outcomes for multiple myeloma patients: A SEER registry analysis. Cancer (0008543X). 2016;122(4):618-25. doi: 10.1002/cncr.29771. PMID: 112733341. Language: English. Entry Date: 20160605. Revision Date: 20190513. Publication Type: journal article. Journal Subset: Biomedical. Outcome 42. Alam R, Barrera M, D'Agostino N, et al. Bereavement experiences of mothers and fathers over time after the death of a child due to cancer. Death Stud. 2012 Jan;36(1):122. doi: 10.1080/07481187.2011.553312. PMID: 24567992. Participants 37. Ailawadhi S, Frank RD, Sharma M, et al. Trends in multiple myeloma presentation, management, cost of care, and outcomes in the Medicare population: A comprehensive look at racial disparities. Cancer (0008543X). 2018;124(8):1710-21. doi: 10.1002/cncr.31237. PMID: 128972856. Language: English. Entry Date: 20190913. Revision Date: 20190915. Publication Type: journal article. Outcome 43. Alananzeh IM, Levesque JV, Kwok C, et al. The Unmet Supportive Care Needs of Arab Australian and Arab Jordanian Cancer Survivors: An International Comparative Survey. Cancer Nurs. 2019 May/Jun;42(3):E51-e60. doi: 10.1097/ncc.0000000000000609. PMID: 29757770. Participants 44. Alapat DV, Ain KB, Sloan DA, et al. Disparity between tissue and serum calcitonin and carcinoembryonic antigen in a patient with medullary thyroid carcinoma. Endocrine. 2011 Apr;39(2):148-52. doi: 10.1007/s12020-010-9433-2. PMID: 21243446. Study design 38. Al Hasani F, Knoepfli M, Gemperli A, et al. Factors affecting screening for hepatocellular carcinoma. Ann Hepatol. 2014 Mar-Apr;13(2):204-10. PMID: 24552862. Participants B-4 45. Alderfer MA, Cnaan A, Annunziato RA, et al. Patterns of posttraumatic stress symptoms in parents of childhood cancer survivors. J Fam Psychol. 2005 Sep;19(3):430-40. doi: 10.1037/08933200.19.3.430. PMID: 16221023. Participants 51. Ali A, Fergus K, Wright FC, et al. The impact of a breast cancer diagnosis in young women on their relationship with their mothers. Breast. 2014 Feb;23(1):50-5. doi: 10.1016/j.breast.2013.10.004. PMID: 24290865. Participants 52. Ali S, Krueger J, Richardson SE, et al. The yield of monitoring adenovirus in pediatric hematopoietic stem cell transplant patients. Pediatr Hematol Oncol. 2019 Apr;36(3):161-72. doi: 10.1080/08880018.2019.1607961. PMID: 31037986. Participants 46. Alderfer MA, Mougianis I, Barakat LP, et al. Family psychosocial risk, distress, and service utilization in pediatric cancer: predictive validity of the Psychosocial Assessment Tool. Cancer. 2009 Sep 15;115(18 Suppl):4339-49. doi: 10.1002/cncr.24587. PMID: 19731359. Outcome 53. Alias H, Morthy SK, Zakaria SZS, et al. Behavioral outcome among survivors of childhood brain tumor: a case control study. BMC Pediatr. 2020 Feb 5;20(1):53. doi: 10.1186/s12887-020-1951-3. PMID: 32020861. Intervention 47. Alderman AK, Hawley ST, Janz NK, et al. Racial and ethnic disparities in the use of postmastectomy breast reconstruction: results from a population- based study. Journal of Clinical Oncology. 2009;27(32):5325-30. doi: 10.1200/JCO.2009.22.2455. PMID: 105241135. Language: English. Entry Date: 20100129. Revision Date: 20161204. Publication Type: journal article. Participants 54. Allaire BT, Ekwueme DU, Guy GP, Jr., et al. Medical Care Costs of Breast Cancer in Privately Insured Women Aged 18-44 Years. Am J Prev Med. 2016 Feb;50(2):2707. doi: 10.1016/j.amepre.2015.08.035. PMID: 26775906. Participants 55. Allard N, Emery J, Cowie B, et al. Knowing and telling: how AfricanAustralians living with chronic hepatitis B understand hepatocellular carcinoma risk and surveillance. Australian Journal of Primary Health. 2018;24(2):141-8. doi: 10.1071/PY17099. PMID: 129092684. Language: English. Entry Date: 20180418. Revision Date: 20190712. Publication Type: Article. Participants 48. Alderson M. The epidemiology of leukemia. Adv Cancer Res. 1980;31:1-76. doi: 10.1016/s0065-230x(08)60656-9. PMID: 6996447. Outcome 49. Alex’s Lemonade Stand Foundation. Childhood Cancer Survivors: A Practical Guide to Your Future, 3rd ed. https://www.alexslemonade.org/childhoodcancer/guides/childhood-cancer-survivors. Accessed on August 10 2020. Intervention 56. Allodji RS, Hawkins MM, Bright CJ, et al. Risk of subsequent primary leukaemias among 69,460 five-year survivors of childhood cancer diagnosed from 1940 to 2008 in Europe: A cohort study within PanCareSurFup. Eur J Cancer. 2019 Aug;117:71-83. doi: 10.1016/j.ejca.2019.05.013. PMID: 31260818. Intervention 50. Alexander FE. Is Mycoplasma Pneumonia associated with childhood acute lymphoblastic leukemia? Cancer Causes Control. 1997 Sep;8(5):803-11. doi: 10.1023/a:1018495708363. PMID: 9328203. Study design B-5 63. American Cancer Society. Cancer Treatment & Survivorship: Facts & Figures 2019-2021. https://www.cancer.org/content/dam/cancerorg/research/cancer-facts-andstatistics/cancer-treatment-and-survivorshipfacts-and-figures/cancer-treatment-andsurvivorship-facts-and-figures-20192021.pdf. Accessed on August 7 2020. Intervention 57. Almasri NM. Hodgkins lymphoma in North Jordan. Does it have a different pattern? Saudi Med J. 2004 Dec;25(12):1917-21. PMID: 15711667. Intervention 58. Almondes KG, de Oliveira TF, SivieroMiachon AA, et al. Selenium inadequacy is not associated with oxidative stress in child and adolescent acute lymphocytic leukemia survivors. Nutrition. 2014 May;30(5):563-8. doi: 10.1016/j.nut.2013.10.012. PMID: 24698347. Intervention 64. American Cancer Society. Systems Policy and Practice: Clinical Survivorship Care 1-6. Intervention 59. Alonso EM, Limbers CA, Neighbors K, et al. Cross-sectional analysis of healthrelated quality of life in pediatric liver transplant recipients. Journal of Pediatrics. 2010;156(2):270-6.e1. doi: 10.1016/j.jpeds.2009.08.048. PMID: 105313000. Corporate Author: Studies of Pediatric Liver Transplantation (SPLIT) Functional Outcomes Group (FOG). Language: English. Entry Date: 20100312. Revision Date: 20200708. Publication Type: journal article. Outcome 65. American Cancer Society. Cancer Survivorship: a policy landscape analysis. https://www.cancer.org/content/dam/cancerorg/cancer-control/en/reports/cancersurvivorship-a-landscape-analysis.pdf. Accessed on August 10 2020. Intervention 66. American Cancer Society. Improving Quality of Life for Children with Cancer. https://www.fightcancer.org/sites/default/file s/National%20Documents/Pediatric%20Palli ative%20Care%20fact%20sheet.pdf. Accessed on August 10 2020. Intervention 60. American Cancer Society. https://www.cancer.org/health-careprofessionals/national-cancer-survivorshipresource-center.html. Accessed on July 21, 2020. Participants 67. American Cancer Society. Disparities in Access to Cancer Care. https://www.fightcancer.org/sites/default/file s/Health%20Disparities%20FS%20%20Access%20FINAL_Updated%207.20.p df. Accessed on August 10 2020. Participants 61. American Cancer Society. After Treatment for Childhood Cancer. https://www.cancer.org/cancer/cancer-inchildren/late-effects.html. Accessed on August 7 2020. Intervention 68. American Cancer Society. Late Effects of Childhood Cancer Treatment https://www.cancer.org/treatment/childrenand-cancer/when-your-child-has-cancer/lateeffects-of-cancer-treatment.html. Accessed on November 3, 2020. Intervention 62. American Cancer Society. Survivorship Care Plans. https://www.cancer.org/treatment/survivorsh ip-during-and-after-treatment/survivorshipcare-plans.html. Accessed on August 7 2020. Participants 69. American Cancer Society. Life after treatment: the next chapter in your survivorship journey. 2016. Participants B-6 76. American Society of Clinical Oncology (ASCO). ASCO in Action Brief: ASCO’s Survivorship Initiatives. 2020. https://www.asco.org/advocacy-policy/ascoin-action/asco-action-brief-ascosurvivorship-initiatives. Accessed on July 21, 2020. Study design 70. American Cancer Society. Living as a Childhood Leukemia Survivor. 2019. https://www.cancer.org/cancer/leukemia-inchildren/after-treatment/follow-up.html. Accessed on August 7 2020. Intervention 71. American Cancer Society Action Network (ACS CAN). Cancer Disparities: A Chartbook. 2018. http://www.fightcancer.org/disparitieschartb ook. Participants 77. Amin N, Kinsey S, Feltbower R, et al. British OsteoNEcrosis Study (BONES) protocol: a prospective cohort study to examine the natural history of osteonecrosis in older children, teenagers and young adults with acute lymphoblastic leukaemia and lymphoblastic lymphoma. BMJ Open. 2019 May 22;9(5):e027204. doi: 10.1136/bmjopen-2018-027204. PMID: 31122988. Intervention 72. American Childhood Cancer Organization. Candlelighters Expands Mission to Include Research. https://www.acco.org/about/, https://www.acco.org/candlelightersexpands-mission-to-include-research/. Accessed on November 3, 2020. Intervention 78. Amini A, Jones BL, Yeh N, et al. Disparities in disease presentation in the four screenable cancers according to health insurance status. Public Health. 2016 Sep;138:50-6. doi: 10.1016/j.puhe.2016.03.014. PMID: 27091437. Participants 73. American Society of Blood and Marrow Transplantation (ASBMT). American Society of Blood and Marrow Transplantation (ASBMT) website. https://www.astct.org/home. Accessed on July 21, 2020. Outcome 79. Amini A, Rusthoven CG, Waxweiler TV, et al. Association of health insurance with outcomes in adults ages 18 to 64 years with melanoma in the United States. J Am Acad Dermatol. 2016 Feb;74(2):309-16. doi: 10.1016/j.jaad.2015.09.054. PMID: 26670715. Participants 74. American Society of Clinical Oncology. Models of Long-Term Follow-Up Care. https://www.asco.org/practicepolicy/cancer-care-initiatives/preventionsurvivorship/survivorship/survivorship-3. Accessed on August 7 2020. Intervention 75. American Society of Clinical Oncology (ASCO). Challenges to Implementing a Survivorship Program. 2020. https://www.asco.org/practicepolicy/cancer-care-initiatives/preventionsurvivorship/survivorship/survivorship-4. Accessed on July 21, 2020. Participants 80. Amir Z, Moran T, Walsh L, et al. Return to paid work after cancer: a British experience. J Cancer Surviv. 2007 Jun;1(2):129-36. doi: 10.1007/s11764-0070021-2. PMID: 18648953. Participants 81. Amirian ES. The role of Hispanic ethnicity in pediatric Wilms' tumor survival. Pediatr Hematol Oncol. 2013 May;30(4):317-27. doi: 10.3109/08880018.2013.775618. PMID: 23484868. Study design B-7 82. Amirian ES, Goodman JC, New P, et al. Pediatric and adult malignant peripheral nerve sheath tumors: an analysis of data from the surveillance, epidemiology, and end results program. J Neurooncol. 2014 Feb;116(3):609-16. doi: 10.1007/s11060013-1345-6. PMID: 24390465. Study design 87. Anders JC, Souza AIJ. Children and adolescents who experience cancer: challenges and possibilities. Ciencia, Cuidado e Saude. 2009;8(1):131-7. PMID: 105421102. Language: Portuguese. Entry Date: 20090911. Revision Date: 20150819. Publication Type: Journal Article. Participants 83. Amoon AT, Crespi CM, Ahlbom A, et al. Proximity to overhead power lines and childhood leukaemia: an international pooled analysis. Br J Cancer. 2018 Aug;119(3):364-73. doi: 10.1038/s41416018-0097-7. PMID: 29808013. Study design 88. Anderson C. Noncancer mortality among adolescents and young adults with cancer [Ph.D.]: The University of North Carolina at Chapel Hill; 2019. Participants 89. Anderson C, Lund JL, Weaver MA, et al. Disparities in Mortality from Noncancer Causes among Adolescents and Young Adults with Cancer. Cancer Epidemiol Biomarkers Prev. 2019 Sep;28(9):1417-26. doi: 10.1158/1055-9965.Epi-18-1384. PMID: 31209147. Participants 84. An H, Lee S. Difficulty in returning to school among adolescent leukemia survivors: A qualitative descriptive study. European Journal of Oncology Nursing. 2019;38:70-5. doi: 10.1016/j.ejon.2018.12.008. PMID: 134422906. Language: English. Entry Date: 20190206. Revision Date: 20190208. Publication Type: Article. Outcome 90. Anderson CA, Wilkening GN, Filley CM, et al. Neurobehavioral outcome in pediatric craniopharyngioma. Pediatr Neurosurg. 1997 May;26(5):255-60. doi: 10.1159/000121200. PMID: 9440495. Intervention 85. An H, Lee S. Returning to Social Life: Development of Social Identity for Adolescent and Young Adult Survivors of Leukemia in Korea. Journal of Pediatric Oncology Nursing. 2019;36(1):35-43. doi: 10.1177/1043454218810145. PMID: 133589568. Language: English. Entry Date: 20181219. Revision Date: 20181229. Publication Type: Article. Outcome 91. Anderson V, Godber T, Smibert E, et al. Neurobehavioural sequelae following cranial irradiation and chemotherapy in children: an analysis of risk factors. Pediatric Rehabilitation. 1997;1(2):63-76. PMID: 107047173. Language: English. Entry Date: 20010824. Revision Date: 20170831. Publication Type: Journal Article. Intervention 86. Ander M, Thorsell Cederberg J, von Essen L, et al. Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support. PLoS One. 2018;13(4):e0195899. doi: 10.1371/journal.pone.0195899. PMID: 29664926. Intervention 92. Annisa F, Allenidekania, Chodidjah S. Do adolescent cancer survivors need health care and psychosocial services?: An Indonesian experience. Enferm Clin. 2018 Feb;28 Suppl 1:41-5. doi: 10.1016/s11308621(18)30034-2. PMID: 29650203. Intervention B-8 93. Annisa F, Allenidekania n, Chodidjah S. Do adolescent cancer survivors need health care and psychosocial services?: An Indonesian experience. Enfermeria Clinica. 2018;28:41-5. doi: 10.1016/S11308621(18)30034-2. PMID: 128956117. Language: English. Entry Date: 20180413. Revision Date: 20191107. Publication Type: Article. Duplicate 99. Arbes SJ, Jr., Olshan AF, Caplan DJ, et al. Factors contributing to the poorer survival of black Americans diagnosed with oral cancer (United States). Cancer Causes Control. 1999 Dec;10(6):513-23. doi: 10.1023/a:1008911300100. PMID: 10616821. Participants 100. Arch JJ, Carr AL. Using Mechanical Turk for research on cancer survivors. Psychooncology. 2017 Oct;26(10):1593603. doi: 10.1002/pon.4173. PMID: 27283906. Participants 94. Anthony SJ, Selkirk E, Sung L, et al. Considering quality of life for children with cancer: a systematic review of patientreported outcome measures and the development of a conceptual model. Quality of Life Research. 2014;23(3):771-89. doi: 10.1007/s11136-013-0482-x. PMID: 104043552. Language: English. Entry Date: 20141017. Revision Date: 20200708. Publication Type: journal article. Outcome 101. Arch JJ, Mitchell JL, Genung SR, et al. A randomized controlled trial of a group acceptance-based intervention for cancer survivors experiencing anxiety at re-entry ('Valued Living'): study protocol. BMC Cancer. 2019;19(1):1-11. doi: 10.1186/s12885-019-5289-x. PMID: 134181079. Language: English. Entry Date: 20190502. Revision Date: 20190722. Publication Type: journal article. Participants 95. Antonio TUoTHSCaS. Improving Adherence to EHT Among Breast Cancer Patients. 2020. Participants 96. Anyiwe K, Qiao Y, De P, et al. Effect of socioeconomic status on hepatocellular carcinoma incidence and stage at diagnosis, a population-based cohort study. Liver Int. 2016 Jun;36(6):902-10. doi: 10.1111/liv.12982. PMID: 26455359. Participants 102. Arès I, Lebel S, Bielajew C. The impact of motherhood on perceived stress, illness intrusiveness and fear of cancer recurrence in young breast cancer survivors over time. Psychol Health. 2014;29(6):65170. doi: 10.1080/08870446.2014.881998. PMID: 24410202. Participants 97. Arai Y, Kawakita M, Okada Y, et al. Sexuality and fertility in long-term survivors of testicular cancer. J Clin Oncol. 1997 Apr;15(4):1444-8. doi: 10.1200/jco.1997.15.4.1444. PMID: 9193338. Participants 103. Aristizabal P, Sherer M, Perdomo BP, et al. Sociodemographic and clinical characteristics associated with vitamin D status in newly diagnosed pediatric cancer patients. Pediatr Hematol Oncol. 2020 May;37(4):314-25. doi: 10.1080/08880018.2020.1721629. PMID: 32153233. Intervention 98. Araque DVP, Bleyer A, Brito JP. Thyroid cancer in adolescents and young adults. Future Oncol. 2017 Jun;13(14):125361. doi: 10.2217/fon-2017-0024. PMID: 28617107. Study design B-9 104. Armstrong FD. Commentary: Implications of health status, health-related quality of life, and socio-economic outcomes in survivors of childhood brain tumor survivors. Neuro Oncol. 2019 May 11;21(8):957-8. doi: 10.1093/neuonc/noz082. PMID: 31111904. Study design 109. Armstrong GT, Liu Q, Yasui Y, et al. Late Mortality Among 5-Year Survivors of Childhood Cancer: A Summary From the Childhood Cancer Survivor Study. Journal of Clinical Oncology. 2009;27(14):2328-38. doi: 10.1200/jco.2008.21.1425. PMID: 19332714. Intervention 110. Armstrong GT, Pan Z, Ness KK, et al. Temporal trends in cause-specific late mortality among 5-year survivors of childhood cancer. J Clin Oncol. 2010 Mar 1;28(7):1224-31. doi: 10.1200/jco.2009.24.4608. PMID: 20124180. Participants 105. Armstrong FD, Reaman GH. Psychological research in childhood cancer: the Children's Oncology Group perspective. J Pediatr Psychol. 2005 Jan-Feb;30(1):8997. doi: 10.1093/jpepsy/jsi020. PMID: 15610989. Intervention 106. Armstrong GT, Jain N, Liu W, et al. Region-specific radiotherapy and neuropsychological outcomes in adult survivors of childhood CNS malignancies. Neuro Oncol. 2010 Nov;12(11):1173-86. doi: 10.1093/neuonc/noq104. PMID: 20716593. Intervention 111. Armstrong GT, Whitton JA, Gajjar A, et al. Abnormal timing of menarche in survivors of central nervous system tumors: A report from the Childhood Cancer Survivor Study. Cancer. 2009 Jun 1;115(11):2562-70. doi: 10.1002/cncr.24294. PMID: 19309737. Intervention 107. Armstrong GT, Liu Q, Yasui Y, et al. Long-term outcomes among adult survivors of childhood central nervous system malignancies in the Childhood Cancer Survivor Study. J Natl Cancer Inst. 2009 Jul 1;101(13):946-58. doi: 10.1093/jnci/djp148. PMID: 19535780. Intervention 112. Armuand GM, Rodriguez-Wallberg KA, Wettergren L, et al. Sex differences in fertility-related information received by young adult cancer survivors. J Clin Oncol. 2012 Jun 10;30(17):2147-53. doi: 10.1200/jco.2011.40.6470. PMID: 22585695. Participants 108. Armstrong GT, Liu Q, Yasui Y, et al. Long-term outcomes among adult survivors of childhood central nervous system malignancies in the Childhood Cancer Survivor Study. JNCI: Journal of the National Cancer Institute. 2009;101(13):946-58. doi: 10.1093/jnci/djp148. PMID: 105380665. Language: English. Entry Date: 20090724. Revision Date: 20200708. Publication Type: journal article. Duplicate 113. Arndt V, Merx H, Stegmaier C, et al. Restrictions in quality of life in colorectal cancer patients over three years after diagnosis: a population based study. Eur J Cancer. 2006 Aug;42(12):1848-57. doi: 10.1016/j.ejca.2006.01.059. PMID: 16829069. Participants 114. Arndt V, Merx H, Stürmer T, et al. Age-specific detriments to quality of life among breast cancer patients one year after diagnosis. Eur J Cancer. 2004 Mar;40(5):673-80. doi: 10.1016/j.ejca.2003.12.007. PMID: 15010067. Participants B-10 121. Asfar T, Dietz N, Arheart K, et al. Smoking behavior among adult childhood cancer survivors: what are we missing? Journal of Cancer Survivorship. 2016;10(1):131-41. doi: 10.1007/s11764015-0459-6. PMID: 112195559. Language: English. Entry Date: 20180720. Revision Date: 20180911. Publication Type: journal article. Duplicate 115. Arnold M, Jiang L, Stefanick ML, et al. Duration of Adulthood Overweight, Obesity, and Cancer Risk in the Women's Health Initiative: A Longitudinal Study from the United States. PLoS Med. 2016 Aug;13(8):e1002081. doi: 10.1371/journal.pmed.1002081. PMID: 27529652. Participants 116. Arriaga-Cázares HE, CázaresBellazetin MA, Sánchez-Sánchez LM, et al. Alteraciones puberales en adolescentes con leucemia en fase de vigilancia. Gac Med Mex. 2017;153(7):903-6. doi: 10.24875/gmm.17003098. PMID: 29414952. Not English 122. Asfar T, Dietz NA, Arheart KL, et al. Smoking behavior among adult childhood cancer survivors: what are we missing? J Cancer Surviv. 2016 Feb;10(1):131-41. doi: 10.1007/s11764-015-0459-6. PMID: 26031234. Intervention 117. Aryal KR, Perakath B, Morton DG. Hereditary colorectal cancer: screen the parents! Colorectal Dis. 2008 Oct;10(8):773-4. doi: 10.1111/j.14631318.2007.01414.x. PMID: 18005191. Participants 123. Ashford JM, Netson KL, Clark KN, et al. Adaptive functioning of childhood brain tumor survivors following conformal radiation therapy. J Neurooncol. 2014 May;118(1):193-9. doi: 10.1007/s11060014-1420-7. PMID: 24658934. Outcome 118. Aschebrook-Kilfoy B, Caces DB, Ollberding NJ, et al. An upward trend in the age-specific incidence patterns for mantle cell lymphoma in the USA. Leuk Lymphoma. 2013 Aug;54(8):1677-83. doi: 10.3109/10428194.2012.760041. PMID: 23350889. Participants 124. Ashing-Giwa K, Rosales M. Recruitment and retention strategies of African American and Latina American breast cancer survivors in a longitudinal psycho-oncology study. Oncol Nurs Forum. 2012 Sep;39(5):E434-42. doi: 10.1188/12.Onf.E434-e442. PMID: 22940523. Participants 119. Aschebrook-Kilfoy B, Zheng T, Foss F, et al. Polymorphisms in immune function genes and non-Hodgkin lymphoma survival. Journal of Cancer Survivorship. 2012;6(1):102-14. doi: 10.1007/s11764-0100164-4. PMID: 104520503. Language: English. Entry Date: 20120629. Revision Date: 20200708. Publication Type: journal article. Outcome 125. Ashing-Giwa K, Rosales M, Lai L, et al. Depressive symptomatology among Latina breast cancer survivors. Psychooncology. 2013 Apr;22(4):845-53. doi: 10.1002/pon.3084. PMID: 22544458. Participants 126. Ashing-Giwa KT, Lim JW, Tang J. Surviving cervical cancer: does healthrelated quality of life influence survival? Gynecol Oncol. 2010 Jul;118(1):35-42. doi: 10.1016/j.ygyno.2010.02.027. PMID: 20382414. Participants 120. Asdahl PH, Winther JF, Bonnesen TG, et al. The Adult Life After Childhood Cancer in Scandinavia (ALiCCS) Study: Design and Characteristics. Pediatr Blood Cancer. 2015 Dec;62(12):2204-10. doi: 10.1002/pbc.25661. PMID: 26193842. Intervention B-11 132. Atwood KCt. Patients have a "CAM" knowledge gap--but who will fill it? Am J Hematol. 2009 Dec;84(12):788-9. doi: 10.1002/ajh.21563. PMID: 19877109. Participants 127. Ashing-Giwa KT, Padilla G, Tejero J, et al. Understanding the breast cancer experience of women: a qualitative study of African American, Asian American, Latina and Caucasian cancer survivors. Psychooncology. 2004 Jun;13(6):408-28. doi: 10.1002/pon.750. PMID: 15188447. Participants 133. Aukema EJ, Last BF, Schouten-van Meeteren AY, et al. Explorative study on the aftercare of pediatric brain tumor survivors: a parents' perspective. Support Care Cancer. 2011 Oct;19(10):1637-46. doi: 10.1007/s00520-010-0995-6. PMID: 20924614. Intervention 128. Ashktorab H, Vilmenay K, Brim H, et al. Colorectal Cancer in Young African Americans: Is It Time to Revisit Guidelines and Prevention? Dig Dis Sci. 2016 Oct;61(10):3026-30. doi: 10.1007/s10620016-4207-1. PMID: 27278956. Participants 134. Austin D. PATIENT CARE. Science of Caring. 2016:2-. PMID: 124441351. Language: English. Entry Date: 20171019. Revision Date: 20171019. Publication Type: Article. Study design 129. Ashley L, Marti J, Jones H, et al. Illness perceptions within 6 months of cancer diagnosis are an independent prospective predictor of health-related quality of life 15 months post-diagnosis. Psychooncology. 2015 Nov;24(11):1463-70. doi: 10.1002/pon.3812. PMID: 25946704. Participants 135. Austin H, Henley SJ, King J, et al. Changes in colorectal cancer incidence rates in young and older adults in the United States: what does it tell us about screening. Cancer Causes Control. 2014 Feb;25(2):191-201. doi: 10.1007/s10552013-0321-y. PMID: 24249437. Participants 130. Askins MA, Sahler OJ, Sherman SA, et al. Report from a multi-institutional randomized clinical trial examining computer-assisted problem-solving skills training for English- and Spanish-speaking mothers of children with newly diagnosed cancer. J Pediatr Psychol. 2009 Jun;34(5):551-63. doi: 10.1093/jpepsy/jsn124. PMID: 19091804. Participants 136. Austin MT, Hamilton E, Zebda D, et al. Health disparities and impact on outcomes in children with primary central nervous system solid tumors. J Neurosurg Pediatr. 2016 Nov;18(5):585-93. doi: 10.3171/2016.5.Peds15704. PMID: 27540957. Intervention 137. Authority NSH, Institute CBHCR. A Feasibility Study of an Online Intervention for Sexual Rehabilitation in Prostate Cancer. 2012. Participants 131. Attai DJ, Cowher MS, Al-Hamadani M, et al. Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey. J Med Internet Res. 2015 Jul 30;17(7):e188. doi: 10.2196/jmir.4721. PMID: 26228234. Participants B-12 138. Avila J, Kuo Y-F, Rodriguez A, et al. Preventive services use among female survivors of adolescent and young adult cancer. Journal of Cancer Survivorship. 2017;11(2):167-74. doi: 10.1007/s11764016-0575-y. PMID: 121919982. Language: English. Entry Date: 20170919. Revision Date: 20181026. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 143. Ayanian JZ, Zaslavsky AM, Arora NK, et al. Patients' experiences with care for lung cancer and colorectal cancer: findings from the Cancer Care Outcomes Research and Surveillance Consortium. Journal of Clinical Oncology. 2010;28(27):4154-61. doi: 10.1200/JCO.2009.27.3268. PMID: 105104945. Language: English. Entry Date: 20101029. Revision Date: 20200708. Publication Type: journal article. Duplicate 139. Avila JC, Livingston JA, Rodriguez AM, et al. Disparities in Adolescent and Young Adult Sarcoma Survival: Analyses of the Texas Cancer Registry and the National SEER Data. Journal of Adolescent & Young Adult Oncology. 2018;7(6):681-7. doi: 10.1089/jayao.2018.0034. PMID: 133478691. Language: English. Entry Date: 20181217. Revision Date: 20200205. Publication Type: Article. Duplicate 144. Aycinena AC, Valdovinos C, Crew KD, et al. Barriers to Recruitment and Adherence in a Randomized Controlled Diet and Exercise Weight Loss Intervention Among Minority Breast Cancer Survivors. J Immigr Minor Health. 2017 Feb;19(1):1209. doi: 10.1007/s10903-015-0310-1. PMID: 26801931. Participants 145. Baddour Jr HM, Fedewa SA, Chen AY, et al. Five- and 10-Year Cause-Specific Survival Rates in Carcinoma of the Minor Salivary Gland. JAMA OtolaryngologyHead & Neck Surgery. 2016;142(1):67-73. doi: 10.1001/jamaoto.2015.2805. PMID: 112446111. Language: English. Entry Date: 20160521. Revision Date: 20190628. Publication Type: journal article. Participants 140. Avila JC, Livingston JA, Rodriguez AM, et al. Disparities in Adolescent and Young Adult Sarcoma Survival: Analyses of the Texas Cancer Registry and the National SEER Data. J Adolesc Young Adult Oncol. 2018 Dec;7(6):681-7. doi: 10.1089/jayao.2018.0034. PMID: 30096005. Participants 146. Badr H, Carmack CL, Diefenbach MA. Psychosocial interventions for patients and caregivers in the age of new communication technologies: opportunities and challenges in cancer care. Journal of Health Communication. 2015;20(3):328-42. doi: 10.1080/10810730.2014.965369. PMID: 109778479. Language: English. Entry Date: 20150923. Revision Date: 20200708. Publication Type: journal article. Participants 141. Avilés A, Neri N, Nambo MJ. Hematological malignancies and pregnancy: treat or no treat during first trimester. Int J Cancer. 2012 Dec 1;131(11):2678-83. doi: 10.1002/ijc.27560. PMID: 22511239. Participants 142. Ayanian JZ, Zaslavsky AM, Arora NK, et al. Patients' experiences with care for lung cancer and colorectal cancer: findings from the Cancer Care Outcomes Research and Surveillance Consortium. J Clin Oncol. 2010 Sep 20;28(27):4154-61. doi: 10.1200/jco.2009.27.3268. PMID: 20713876. Participants 147. Badr H, Chandra J, Paxton RJ, et al. Health-related quality of life, lifestyle behaviors, and intervention preferences of survivors of childhood cancer. Journal of Cancer Survivorship. 2013 Dec 2013 B-13 2019-11-14;7(4):523-34. doi: http://dx.doi.org/10.1007/s11764-013-02893. PMID: 1501841579; 2013-41613-002. Intervention 153. Bajnóczky K, Khezri S, Kajtár P, et al. No chromosomal instability in offspring of survivors of childhood malignancy. Cancer Genet Cytogenet. 1999 Feb;109(1):79-80. doi: 10.1016/s0165-4608(98)00146-0. PMID: 9973966. Participants 148. Baenziger J, Roser K, Mader L, et al. Can the theory of planned behavior help explain attendance to follow-up care of childhood cancer survivors? 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PMID: 15172972. Participants 150. Baerlocher GM, Rovó A, Müller A, et al. Cellular senescence of white blood cells in very long-term survivors after allogeneic hematopoietic stem cell transplantation: the role of chronic graft-versus-host disease and female donor sex. Blood. 2009 Jul 2;114(1):219-22. doi: 10.1182/blood-200903-209833. PMID: 19411630. Participants 156. Balen R, Fielding D, Lewis IJ. An activity week for children with cancer: who wants to go and why? Child Care Health Dev. 1998 Mar;24(2):169-77. doi: 10.1046/j.1365-2214.1998.00062.x. PMID: 9544445. Study design 157. Baltrusch HJ, Waltz M. Cancer from a biobehavioural and social epidemiological perspective. Soc Sci Med. 1985;20(8):78994. doi: 10.1016/0277-9536(85)90332-6. PMID: 3890192. Participants 151. Bailey C, Richardson LC, Allemani C, et al. Adult leukemia survival trends in the United States by subtype: A populationbased registry study of 370,994 patients diagnosed during 1995-2009. Cancer. 2018 Oct 1;124(19):3856-67. doi: 10.1002/cncr.31674. PMID: 30343495. Participants 158. Banegas MP, Guy GP, Jr., de Moor JS, et al. For Working-Age Cancer Survivors, Medical Debt And Bankruptcy Create Financial Hardships. Health Aff (Millwood). 2016 Jan;35(1):54-61. doi: 10.1377/hlthaff.2015.0830. PMID: 26733701. Participants 152. Bailey MB, Shiau R, Zola J, et al. San Francisco hep B free: a grassroots community coalition to prevent hepatitis B and liver cancer. J Community Health. 2011 Aug;36(4):538-51. doi: 10.1007/s10900010-9339-1. PMID: 21125320. Participants B-14 159. Banerjee SC, D'Agostino TA, Gordon ML, et al. "It's Not JUST Skin Cancer": Understanding Their Cancer Experience From Melanoma Survivor Narratives Shared Online. Health Communication. 2018;33(2):188-201. doi: 10.1080/10410236.2016.1250707. PMID: 126796613. Language: English. Entry Date: 20171219. Revision Date: 20191101. Publication Type: Article. Participants 165. Barakat LP, Kazak AE, Meadows AT, et al. Families surviving childhood cancer: a comparison of posttraumatic stress symptoms with families of healthy children. J Pediatr Psychol. 1997 Dec;22(6):843-59. doi: 10.1093/jpepsy/22.6.843. PMID: 9494321. Outcome 166. Barakat LP, Li Y, Hobbie WL, et al. Health-related quality of life of adolescent and young adult survivors of childhood brain tumors. Psychooncology. 2015 Jul;24(7):804-11. doi: 10.1002/pon.3649. PMID: 25111013. Intervention 160. Bann CM, Treiman K, Squiers L, et al. Cancer Survivors' Use of Fertility Preservation. J Womens Health (Larchmt). 2015 Dec;24(12):1030-7. doi: 10.1089/jwh.2014.5160. PMID: 26375046. Participants 167. Barakat LP, Schwartz LA, Szabo MM, et al. Factors that contribute to posttreatment follow-up care for survivors of childhood cancer. Journal of Cancer Survivorship. 2012;6(2):155-62. doi: 10.1007/s11764-011-0206-6. PMID: 104547346. Language: English. Entry Date: 20120907. Revision Date: 20200708. Publication Type: journal article. Duplicate 161. Banner LM, Mackie EJ, Hill JW. Family relationships in survivors of childhood cancer: resource or restraint? Patient Educ Couns. 1996 Jul;28(2):191-9. doi: 10.1016/0738-3991(96)00901-9. PMID: 8852094. Outcome 162. Bao PP, Lu W, Cui Y, et al. Ginseng and Ganoderma lucidum use after breast cancer diagnosis and quality of life: a report from the Shanghai Breast Cancer Survival Study. PLoS One. 2012;7(6):e39343. doi: 10.1371/journal.pone.0039343. PMID: 22745737. Participants 168. Barbarin OA. Psychosocial risks and invulnerability: A review of the theoretical and empirical bases of preventive familyfocused services for survivors of childhood cancer. Journal of Psychosocial Oncology. 1987 Jan 1987 - Mar Jan 1987 - Mar 1987 163. Baquet CR, Commiskey P. Socioeconomic factors and breast carcinoma in multicultural women. Cancer. 2000 Mar 1;88(5 Suppl):1256-64. doi: 10.1002/(sici)10970142(20000301)88:5+<1256::aidcncr13>3.0.co;2-3. PMID: 10705364. 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Participants 2017-09-25;10(5):814-31. doi: http://dx.doi.org/10.1007/s11764-016-05276. PMID: 1850191397; 2016-43999-003. Duplicate 176. Baroff M. Steps Through OC: Early Findings from a National Pilot to Deliver Virtual, Individualized Psychosocial Support to Ovarian Cancer Survivors and Caregivers...Tenth Annual AONN+ Navigation & Survivorship Conference, November 6-10, 2019, Nashville, TN. Journal of Oncology Navigation & Survivorship. 2019;10(11):471-. PMID: 139253118. Language: English. Entry Date: 20191105. Revision Date: 20191105. Publication Type: Article. Participants 171. Barchuk A, Bespalov A, Huhtala H, et al. Breast and cervical cancer incidence and mortality trends in Russia 1980-2013. Cancer Epidemiol. 2018 Aug;55:73-80. doi: 10.1016/j.canep.2018.05.008. PMID: 29843073. Participants 172. Barnea D, Raghunathan N, Friedman DN, et al. Obesity and Metabolic Disease After Childhood Cancer. Oncology (Williston Park). 2015 Nov;29(11):849-55. PMID: 26568532. Outcome 177. Barrera M, Alam R, D'Agostino NM, et al. Parental perceptions of siblings' grieving after a childhood cancer death: a longitudinal study. Death Stud. 2013 Jan;37(1):25-46. doi: 10.1080/07481187.2012.678262. PMID: 24600719. Participants 173. Barnes JM, Brown DS, Harris JK, et al. Impact of the affordable care act dependent coverage provision on young adult cancer patient insurance coverage by sociodemographic and economic characteristics. Cancer Causes Control. 2020 Jan;31(1):33-42. doi: 10.1007/s10552-01901246-3. PMID: 31696421. Participants 178. Barrera M, Andrews GS, Burnes D, et al. Age differences in perceived social support by paediatric haematopoietic progenitor cell transplant patients: a longitudinal study. Child: Care, Health & Development. 2008;34(1):19-24. PMID: 105877157. Language: English. Entry Date: 20080404. Revision Date: 20150711. Publication Type: Journal Article. Outcome 174. Barnett M, McDonnell G, DeRosa A, et al. Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review. Journal of Cancer Survivorship. 2016;10(5):814-31. doi: 10.1007/s11764016-0527-6. PMID: 118022463. Language: English. Entry Date: 20180724. Revision Date: 20180901. Publication Type: journal article. Participants 179. Barrera M, Atenafu E, Andrews GS, et al. Factors related to changes in cognitive, educational and visual motor integration in children who undergo hematopoietic stem cell transplant. J Pediatr Psychol. 2008 Jun;33(5):536-46. doi: 10.1093/jpepsy/jsm080. PMID: 17962337. Outcome 175. Barnett M, McDonnell G, DeRosa A, et al. Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): A systematic review. Journal of Cancer Survivorship. 2016 Oct 2016 B-16 180. Barrera M, Atenafu E, Schulte F, et al. Determinants of social competence in pediatric brain tumor survivors who participated in an intervention study. Supportive Care in Cancer. 2017;25(9):2891-8. doi: 10.1007/s00520017-3708-6. PMID: 124297491. Language: English. Entry Date: 20180720. Revision Date: 20191029. Publication Type: journal article. Duplicate 185. Barrera M, Schulte F. A group social skills intervention program for survivors of childhood brain tumors. J Pediatr Psychol. 2009 Nov-Dec;34(10):1108-18. doi: 10.1093/jpepsy/jsp018. PMID: 19321717. Participants 186. Barrera M, Shaw AK, Speechley KN, et al. Educational and social late effects of childhood cancer and related clinical, personal, and familial characteristics. Cancer. 2005 Oct 15;104(8):1751-60. doi: 10.1002/cncr.21390. PMID: 16130127. Outcome 181. Barrera M, Atenafu EG, Schulte F, et al. Determinants of social competence in pediatric brain tumor survivors who participated in an intervention study. 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PMID: 27778348. Study design B-17 196. Bateman LB, Blakemore S, Koneru A, et al. Barriers and Facilitators to Cervical Cancer Screening, Diagnosis, Follow-Up Care and Treatment: Perspectives of Human Immunodeficiency Virus-Positive Women and Health Care Practitioners in Tanzania. Oncologist. 2019 Jan;24(1):69-75. doi: 10.1634/theoncologist.2017-0444. PMID: 29934410. Participants 191. Barsaglini RA, Soares B. [Impacts of long-term illness: experience of young adults with Acute Myeloid Leukemia]. Cien Saude Colet. 2018 Feb;23(2):399-408. doi: 10.1590/1413-81232018232.15442017. PMID: 29412398. Not English 192. Barton SE, Najita JS, Ginsburg ES, et al. Infertility, infertility treatment, and achievement of pregnancy in female survivors of childhood cancer: a report from the Childhood Cancer Survivor Study cohort. Lancet Oncol. 2013 Aug;14(9):87381. doi: 10.1016/s1470-2045(13)70251-1. PMID: 23856401. Intervention 197. Batra A, Kumari M, Paul R, et al. 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Development of a Culturally Competent Service to Improve Academic Functioning for Latino Survivors of Acute Lymphoblastic Leukemia: Methodological Considerations. J Pediatr Oncol Nurs. 2017 May/Jun;34(3):222-9. doi: 10.1177/1043454216676837. PMID: 27889691. Study design 194. Bashore L, Bender J. Benefits of Attending a Weekend Childhood Cancer Survivor Family Retreat. J Nurs Scholarsh. 2017 Sep;49(5):521-8. doi: 10.1111/jnu.12320. PMID: 28719110. Intervention 195. Bass SB, Leader A, Shwarz M, et al. Correlates to Human Papillomavirus Vaccination Status and Willingness to Vaccinate in Low-Income Philadelphia High School Students. J Sch Health. 2015 Aug;85(8):527-35. doi: 10.1111/josh.12284. PMID: 26149308. Participants 200. Bava L, Johns A, Kayser K, et al. Cognitive outcomes among Latino survivors of childhood acute lymphoblastic leukemia and lymphoma: A cross-sectional cohort study using culturally competent, performance-based assessment. Pediatr Blood Cancer. 2018 Feb;65(2). doi: 10.1002/pbc.26844. PMID: 28988412. Intervention B-18 207. Behringer K, Goergen H, Müller H, et al. Cancer-Related Fatigue in Patients With and Survivors of Hodgkin Lymphoma: The Impact on Treatment Outcome and Social Reintegration. Journal of Clinical Oncology. 2016;34(36):4329-37. doi: 10.1200/JCO.2016.67.7450. PMID: 120356460. Language: English. Entry Date: 20170817. Revision Date: 20190708. Publication Type: journal article. Outcome 201. Bazzi AR, Clark MA, Winter MR, et al. Resilience Among Breast Cancer Survivors of Different Sexual Orientations. LGBT Health. 2018 Jul;5(5):295-302. doi: 10.1089/lgbt.2018.0019. PMID: 29878863. Participants 202. Beaupin LK, Uwazurike OC, Hydeman JA. A Roadmap to Survivorship: Optimizing Survivorship Care Plans for Adolescent and Young Adult Cancer Survivors. J Adolesc Young Adult Oncol. 2018 Dec;7(6):660-5. doi: 10.1089/jayao.2018.0061. PMID: 30141724. Participants 208. Bell CJ, Bell RA, Zebrack B, et al. Measuring Development of Adolescent and Young Adult Cancer Patients: An Integrative Review of Available Instruments. J Adolesc Young Adult Oncol. 2018 Jun;7(3):270-82. doi: 10.1089/jayao.2017.0127. PMID: 29425060. Outcome 203. Beckwitt KE. Surviving survivorship: adults surviving childhood cancers experiences: American University; 2010. Outcome 209. Bell RJ. Ringing the bell and then falling off a cliff … life after cancer. Climacteric. 2019;22(6):533-4. doi: 10.1080/13697137.2019.1576456. PMID: 139136638. Language: English. Entry Date: In Process. Revision Date: 20200927. Publication Type: editorial. Journal Subset: Biomedical. Study design 204. Bedway AJ, Smith LH. "For kids only": Development of a program for children from families with a cancer patient. Journal of Psychosocial Oncology. 1996 1996 2017-09-25;14(4):19-28. doi: http://dx.doi.org/10.1300/J077v14n04_02. PMID: 619054230; 1997-03667-002. Participants 210. Belle F, Wengenroth L, Weiss A, et al. Low adherence to dietary recommendations in adult childhood cancer survivors. Clin Nutr. 2017 Oct;36(5):1266-74. doi: 10.1016/j.clnu.2016.08.012. PMID: 28277304. Intervention 205. Beek L, Schappin R, Gooskens R, et al. Surviving a brain tumor in childhood: impact on family functioning in adolescence. Psychooncology. 2015 Jan;24(1):89-94. doi: 10.1002/pon.3599. PMID: 25044740. Intervention 211. Belle FN, Kasteler R, Schindera C, et al. No evidence of overweight in long-term survivors of childhood cancer after glucocorticoid treatment. Cancer. 2018 Sep 1;124(17):3576-85. doi: 10.1002/cncr.31599. PMID: 30119140. Intervention 206. Begyn E. The psychosocial functioning of pediatric cancer survivors: The role of neurocognitive abilities; 2008. Intervention B-19 212. Belle FN, Schindera C, Guessous I, et al. Sodium and Potassium Intakes and Cardiovascular Risk Profiles in Childhood Cancer Survivors: The SCCSS-Nutrition Study. Nutrients. 2019 Dec 24;12(1). doi: 10.3390/nu12010057. PMID: 31878342. Intervention 218. Belpame N, Kars MC, Deslypere E, et al. Living as a Cancer Survivor: A Qualitative Study on the Experiences of Belgian Adolescents and Young Adults (AYAs) after Childhood Cancer. Journal of Pediatric Nursing. 2019;49:e29-e35. doi: 10.1016/j.pedn.2019.07.015. PMID: 140957507. Language: English. Entry Date: 20200103. Revision Date: 20200106. Publication Type: Article. Outcome 213. Belle FN, Weiss A, Schindler M, et al. Overweight in childhood cancer survivors: the Swiss Childhood Cancer Survivor Study. Am J Clin Nutr. 2018 Jan 1;107(1):3-11. doi: 10.1093/ajcn/nqx006. PMID: 29381792. Intervention 219. Bemanian A, Beyer KM. Measures Matter: The Local Exposure/Isolation (LEx/Is) Metrics and Relationships between Local-Level Segregation and Breast Cancer Survival. Cancer Epidemiol Biomarkers Prev. 2017 Apr;26(4):516-24. doi: 10.1158/1055-9965.Epi-16-0926. PMID: 28325737. Participants 214. Bellizzi KM, Smith A, Schmidt S, et al. Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult. Cancer. 2012 Oct 15;118(20):5155-62. doi: 10.1002/cncr.27512. PMID: 22415815. Participants 220. Ben Charif A, Bouhnik AD, Courbière B, et al. Sexual health problems in French cancer survivors 2 years after diagnosis-the national VICAN survey. J Cancer Surviv. 2016 Jun;10(3):600-9. doi: 10.1007/s11764015-0506-3. PMID: 26685697. Participants 215. Bellizzi KM, Smith A, Schmidt S, et al. Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult. Cancer. 2012 2012 Oct 15 221. Ben Charif A, Bouhnik AD, Rey D, et al. Satisfaction with fertility- and sexualityrelated information in young women with breast cancer--ELIPPSE40 cohort. BMC Cancer. 2015 Aug 5;15:572. doi: 10.1186/s12885-015-1542-0. PMID: 26239242. Participants 2017-09-25;118(20):5155-62. doi: http://dx.doi.org/10.1002/cncr.27512. PMID: 1269432234; 2012-27443-030. Duplicate 216. Belpame N, Kars MC, Beeckman D, et al. "The AYA Director": A Synthesizing Concept to Understand Psychosocial Experiences of Adolescents and Young Adults With Cancer. Cancer Nurs. 2016 JulAug;39(4):292-302. doi: 10.1097/ncc.0000000000000307. PMID: 26496517. Participants 222. Bender JL, Wiljer D, To MJ, et al. Testicular cancer survivors' supportive care needs and use of online support: a crosssectional survey. Support Care Cancer. 2012 Nov;20(11):2737-46. doi: 10.1007/s00520012-1395-x. PMID: 22382589. Participants 217. Belpame N, Kars MC, Beeckman D, et al. The 3-Phase Process in the Cancer Experience of Adolescents and Young Adults. Cancer Nurs. 2018 May/Jun;41(3):E11-e20. doi: 10.1097/ncc.0000000000000501. PMID: 28481777. Participants B-20 223. Bender JL, Wiljer D, To MJ, et al. Testicular cancer survivors' supportive care needs and use of online support: a crosssectional survey. Supportive Care in Cancer. 2012;20(11):2737-46. doi: 10.1007/s00520012-1395-x. PMID: 104373716. Language: English. Entry Date: 20130412. Revision Date: 20200708. Publication Type: journal article. Duplicate 229. Berendsen AJ, Groot Nibbelink A, Blaauwbroek R, et al. Second cancers after childhood cancer--GPs beware! Scand J Prim Health Care. 2013 Sep;31(3):147-52. doi: 10.3109/02813432.2013.824152. PMID: 23906108. Outcome 230. Berg C, Genchanok Y, Gabris P. Development of a Facebook-Delivered, Self-Management Program for Young Adult Childhood Cancer Survivors...AOTA/NBCOT National Student Conclave. Dearborn, Michigan. November 18-19 2016. American Journal of Occupational Therapy. 2015;69:320-3. doi: 10.5014/ajot.2015.69S1-PO1099. PMID: 119443641. Language: English. Entry Date: 20171020. Revision Date: 20190603. Publication Type: Article. Participants 224. Benedict C, Hahn AL, Diefenbach MA, et al. Recruitment via social media: advantages and potential biases. Digit Health. 2019 Jan-Dec;5:2055207619867223. doi: 10.1177/2055207619867223. PMID: 31431827. Participants 225. Benedict C, Hahn AL, McCready A, et al. Toward a theoretical understanding of young female cancer survivors' decisionmaking about family-building posttreatment. Support Care Cancer. 2020 Jan 28. doi: 10.1007/s00520-020-05307-1. PMID: 31993754. Participants 231. Berg C, Stratton E, Esiashvili N, et al. Young Adult Cancer Survivors' Experience with Cancer Treatment and Follow-Up Care and Perceptions of Barriers to Engaging in Recommended Care. Journal of Cancer Education. 2016;31(3):430-42. doi: 10.1007/s13187-015-0853-9. PMID: 117509951. Language: English. Entry Date: 20180220. Revision Date: 20170901. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 226. Benedict C, Thom B, Friedman DN, et al. Fertility information needs and concerns post-treatment contribute to lowered quality of life among young adult female cancer survivors. Support Care Cancer. 2018 Jul;26(7):2209-15. doi: 10.1007/s00520017-4006-z. PMID: 29387996. Participants 232. 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Prospective surveillance study of blood stream infections associated with central venous access devices (port-type) in children with acute leukemia: an intervention program. J Pediatr Hematol Oncol. 2013 Jul;35(5):e194-9. doi: 10.1097/MPH.0b013e318290c24f. PMID: 23652875. Participants 233. Bergeron S, Noskoff K, Hayakawa J, et al. Empowering Adolescents and Young Adults to Support, Lead, and Thrive: Development and Validation of an AYA Oncology Child Life Program. J Pediatr Nurs. 2019 Jul-Aug;47:1-6. doi: 10.1016/j.pedn.2019.04.001. PMID: 30978589. Participants 234. Bergman R, Hellman G. Community nursing services as perceived by posthospatalized patients. Am J Public Health Nations Health. 1969 Dec;59(12):2168-77. doi: 10.2105/ajph.59.12.2168. PMID: 4311058. Participants 239. Bersvendsen HS, Haugnes HS, Fagerli UM, et al. Lifestyle behavior among lymphoma survivors after high-dose therapy with autologous hematopoietic stem cell transplantation, assessed by patient-reported outcomes. 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Qual Health Res. 2008 Jan;18(1):19-30. doi: 10.1177/1049732307309221. PMID: 18174532. Study design 318. Bryere J, Dejardin O, Bouvier V, et al. Socioeconomic environment and cancer incidence: a French population-based study in Normandy. BMC Cancer. 2014 Feb 13;14:87. doi: 10.1186/1471-2407-14-87. PMID: 24524213. Participants 312. Brown M, Schrot R, Bauer K, et al. Incidence of first primary central nervous system tumors in California, 2001-2005: children, adolescents and teens. J Neurooncol. 2009 Sep;94(2):263-73. doi: 10.1007/s11060-009-9860-1. PMID: 19340399. Study design 319. Buchanan N, Leisenring W, Mitby PA, et al. Behaviors associated with ultraviolet radiation exposure in a cohort of adult survivors of childhood and adolescent cancer: a report from the Childhood Cancer Survivor Study. Cancer. 2009 Sep 15;115(18 Suppl):4374-84. doi: 10.1002/cncr.24581. PMID: 19731349. Outcome 313. Brown M, Schrot R, Bauer K, et al. 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CureSearch. CureSearch for Children's Cancer. https://curesearch.org/. Accessed on November 3, 2020. Duplicate 522. Crosbie AB, Roche LM, Johnson LM, et al. Trends in colorectal cancer incidence among younger adults-Disparities by age, sex, race, ethnicity, and subsite. Cancer Med. 2018 Aug;7(8):4077-86. doi: 10.1002/cam4.1621. PMID: 29932308. Participants 528. Curesearch for Children's Cancer. Finding a healthcare team after childhood cancer. https://curesearch.org/FindingHealthcare. Accessed on August 10 2020. Intervention 529. Curesearch for Children's Cancer. Long-term follow-up care. https://curesearch.org/Long-Term-FollowUp-Care. Accessed on August 10 2020. Intervention 523. Crozier GKD, Michaud B. Juvenile Ovarian Tissue Cryopreservation and Social Justice: An Imperative to Broaden the Discussion. American Journal of Bioethics. 2012;12(6):46-7. doi: 10.1080/15265161.2012.671897. PMID: 76274029. Language: English. Entry Date: 20120606. Revision Date: 20190328. 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Cancer (0008543X). 2016;122(5):730-9. doi: 10.1002/cncr.29705. PMID: 113205746. Language: English. Entry Date: 20160709. Revision Date: 20190712. Publication Type: journal article. Duplicate 563. de Leeuw J, Prins JB, Teerenstra S, et al. Nurse-led follow-up care for head and neck cancer patients: a quasi-experimental prospective trial. Supportive Care in Cancer. 2013;21(2):537-47. doi: 10.1007/s00520012-1553-1. PMID: 104415089. Language: English. Entry Date: 20130705. Revision Date: 20200708. Publication Type: journal article. Duplicate B-51 564. de Moor JS, Coa K, Kent EE, et al. Patient and provider communication about employment following a cancer diagnosis. J Cancer Surviv. 2018 Dec;12(6):813-20. doi: 10.1007/s11764-018-0718-4. PMID: 30284114. Participants 570. Deckert AL, Gheihman G, Nissim R, et al. The importance of meaningful activity in people living with acute myeloid leukemia. Leuk Res. 2018 Apr;67:86-91. doi: 10.1016/j.leukres.2018.02.009. PMID: 29482172. 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The impact of rural residence on adult brain cancer survival in the United States. J Neurooncol. 2019 Sep;144(3):53543. doi: 10.1007/s11060-019-03254-4. PMID: 31385185. Participants 569. Deatrick JA, Barakat LP, Knafl GJ, et al. Patterns of family management for adolescent and young adult brain tumor survivors. J Fam Psychol. 2018 Apr;32(3):321-32. doi: 10.1037/fam0000352. PMID: 29698006. Intervention 576. Delavar A, Barnes JM, Wang X, et al. Associations Between Race/Ethnicity and US Childhood and Adolescent Cancer Survival by Treatment Amenability. JAMA Pediatr. 2020 Feb 24;174(5):1-9. doi: 10.1001/jamapediatrics.2019.6074. PMID: 32091555. Intervention B-52 577. Delavar A, Feng Q, Johnson KJ. Rural/urban residence and childhood and adolescent cancer survival in the United States. Cancer. 2019;125(2):261-8. doi: 10.1002/cncr.31704. Intervention 582. Demuynck H, Verhoef GE, Zachee P, et al. 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Willingness to participate in a parental training intervention to reduce neurocognitive late effects among Latino parents of childhood cancer survivors. J Cancer Educ. 2015 Mar;30(1):37-44. doi: 10.1007/s13187-014-0667-1. PMID: 24792525. Participants 579. Deleemans JM, Chleilat F, Reimer RA, et al. The chemo-gut study: investigating the long-term effects of chemotherapy on gut microbiota, metabolic, immune, psychological and cognitive parameters in young adult Cancer survivors; study protocol. BMC Cancer. 2019 Dec 23;19(1):1243. doi: 10.1186/s12885-0196473-8. PMID: 31870331. Participants 585. Dennison C, King AR, Rutledge H, et al. HPV Vaccine-Related Research, Promotion and Coordination in the State of Georgia: A Systematic Review. J Community Health. 2019 Apr;44(2):313-21. doi: 10.1007/s10900-018-0589-7. PMID: 30374822. Participants 580. Demanelis K, Sriplung H, Meza R, et al. 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PsychoOncology. 2010 Dec 2010 2017-09-26;19(12):1277-84. doi: http://dx.doi.org/10.1002/pon.1692. PMID: 851233814; 2010-26299-005. Duplicate 591. Desmond RA, Jackson BE, Waterbor JW. Disparities in Cancer Survivorship Indicators in the Deep South Based on BRFSS Data: Recommendations for Survivorship Care Plans. South Med J. 2017 Mar;110(3):181-7. doi: 10.14423/smj.0000000000000617. PMID: 28257542. Participants 597. Dieluweit U, Debatin KM, Grabow D, et al. Social outcomes of long-term survivors of adolescent cancer. Psychooncology. 2010 Dec;19(12):1277-84. doi: 10.1002/pon.1692. PMID: 20140879. Intervention B-54 598. Dieluweit U, Debatin KM, Grabow D, et al. Educational and vocational achievement among long-term survivors of adolescent cancer in Germany. Pediatr Blood Cancer. 2011 Mar;56(3):432-8. doi: 10.1002/pbc.22806. PMID: 21072822. Intervention 603. Diorio C, Lin M, Ginn E, et al. 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The roles of social domains, behavioral risk, health care resources, and chlamydia in spatial clusters of US cervical cancer mortality: not all the clusters are the same. Cancer Causes Control. 2010 Oct;21(10):1669-83. doi: 10.1007/s10552010-9596-4. PMID: 20532608. Participants 620. Doshi K, Kazak AE, Derosa BW, et al. Measuring health-related beliefs of mothers of adolescent and young adult childhood cancer survivors. Fam Syst Health. 2011 Mar;29(1):55-63. doi: 10.1037/a0022198. PMID: 21417524. Participants 626. Duchman KR, Gao Y, Miller BJ. Prognostic factors for survival in patients with Ewing's sarcoma using the surveillance, epidemiology, and end results (SEER) program database. Cancer Epidemiol. 2015 Apr;39(2):189-95. doi: 10.1016/j.canep.2014.12.012. PMID: 25595632. Study design 621. Doshi K, Kazak AE, Hocking MC, et al. Why mothers accompany adolescent and young adult childhood cancer survivors to follow-up clinic visits. J Pediatr Oncol Nurs. 2014 Jan-Feb;31(1):51-7. doi: 10.1177/1043454213518111. PMID: 24451909. Intervention 627. Duggal MS, Curzon ME, Bailey CC, et al. Dental parameters in the long-term survivors of childhood cancer compared with siblings. Oral Oncol. 1997 Sep;33(5):348-53. doi: 10.1016/s13688375(97)89103-8. PMID: 9415335. Intervention 622. Dozier DM, Beach WA, Gutzmer K, et al. The Transformative Power of Authentic Conversations About Cancer. Health Communication. 2017;32(11):1350-7. doi: 10.1080/10410236.2016.1220045. PMID: 124782372. Language: English. Entry Date: 20170825. Revision Date: 20190425. Publication Type: Article. Participants 628. Dumas A, Allodji R, Fresneau B, et al. The right to be forgotten: a change in access to insurance and loans after childhood cancer? Journal of Cancer Survivorship. 2017;11(4):431-7. doi: 10.1007/s11764-0170600-9. PMID: 123992126. Language: English. Entry Date: 20171114. Revision Date: 20180801. Publication Type: journal article. Duplicate 623. Drayton RF, Gardner M, Wilson D. Tobacco related cancer disparities: community perspective. J S C Med Assoc. 2006 Aug;102(7):210-1. PMID: 17319232. Study design B-57 629. Dumas A, Berger C, Auquier P, et al. Educational and occupational outcomes of childhood cancer survivors 30 years after diagnosis: a French cohort study. Br J Cancer. 2016 Apr 26;114(9):1060-8. doi: 10.1038/bjc.2016.62. PMID: 27115571. Intervention 635. Eapen M, Rubinstein P, Zhang MJ, et al. Comparable long-term survival after unrelated and HLA-matched sibling donor hematopoietic stem cell transplantations for acute leukemia in children younger than 18 months. J Clin Oncol. 2006 Jan 1;24(1):14551. doi: 10.1200/jco.2005.02.4612. PMID: 16382124. Intervention 630. Dumas A, Cailbault I, Perrey C, et al. Educational trajectories after childhood cancer: When illness experience matters. Soc Sci Med. 2015 Jun;135:67-74. doi: 10.1016/j.socscimed.2015.04.031. PMID: 25957162. Intervention 636. Easley J. Motivations for cancer history disclosure among young adult cancer survivors. J Cancer Surviv. 2019 Jun;13(3):447-58. doi: 10.1007/s11764-01900766-w. PMID: 31102132. Participants 631. Dunn J, Ng SK, Breitbart W, et al. Health-related quality of life and life satisfaction in colorectal cancer survivors: trajectories of adjustment. Health Qual Life Outcomes. 2013 Mar 14;11:46. doi: 10.1186/1477-7525-11-46. PMID: 23497387. Participants 637. Easley J, Miedema B, Robinson L. It's the "good" cancer, so who cares? Perceived lack of support among young thyroid cancer survivors. Oncol Nurs Forum. 2013 Nov;40(6):596-600. doi: 10.1188/13.Onf.596-600. PMID: 24161638. Participants 632. Duran B. Posttraumatic growth as experienced by childhood cancer survivors and their families: a narrative synthesis of qualitative and quantitative research. J Pediatr Oncol Nurs. 2013 JulAug;30(4):179-97. doi: 10.1177/1043454213487433. PMID: 23657991. Outcome 638. Eaton Russell C, Bouffet E, Beaton J, et al. Balancing grief and survival: Experiences of children with brain tumors and their parents. J Psychosoc Oncol. 2016 Sep-Oct;34(5):376-99. doi: 10.1080/07347332.2016.1212448. PMID: 27435121. Participants 639. Effinger KE, Stratton KL, Fisher PG, et al. Long-term health and social function in adult survivors of paediatric astrocytoma: A report from the Childhood Cancer Survivor Study. Eur J Cancer. 2019 Jan;106:171-80. doi: 10.1016/j.ejca.2018.10.016. PMID: 30528801. Intervention 633. Dusik-Sharpe J. Kerry's story: the challenges of facing a recurrent craniopharyngioma. Axone. 2004 Dec;26(2):8-12. PMID: 15663314. Outcome 634. Eakin EG, Hayes SC, Haas MR, et al. Healthy Living after Cancer: a dissemination and implementation study evaluating a telephone-delivered healthy lifestyle program for cancer survivors. BMC Cancer. 2015 Dec 21;15:992. doi: 10.1186/s12885-015-2003-5. PMID: 26690258. Participants 640. Ehrhardt MJ, Chen Y, Sandlund JT, et al. Late Health Outcomes After Contemporary Lymphome Malin de Burkitt Therapy for Mature B-Cell Non-Hodgkin Lymphoma: A Report From the Childhood Cancer Survivor Study. J Clin Oncol. 2019 Oct 1;37(28):2556-70. doi: 10.1200/jco.19.00525. PMID: 31283408. Intervention B-58 641. Ehrhardt MJ, Mulrooney DA, Li C, et al. Neurocognitive, psychosocial, and quality-of-life outcomes in adult survivors of childhood non-Hodgkin lymphoma. Cancer (0008543X). 2018;124(2):417-25. doi: 10.1002/cncr.31019. PMID: 127216381. Language: English. Entry Date: 20190602. Revision Date: 20190731. Publication Type: journal article. Outcome 647. Eiser C, Vance YH, Horne B, et al. The value of the PedsQLTM in assessing quality of life in survivors of childhood cancer. Child Care Health Dev. 2003 Mar;29(2):95-102. doi: 10.1046/j.13652214.2003.00318.x. PMID: 12603354. Outcome 648. Ekwueme DU, Allaire BT, Guy GP, Jr., et al. Treatment Costs of Breast Cancer Among Younger Women Aged 19-44 Years Enrolled in Medicaid. 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Neurocognitive status in long-term survivors of childhood CNS malignancies: a report from the Childhood Cancer Survivor Study. Neuropsychology. 2009 Nov;23(6):705-17. doi: 10.1037/a0016674. PMID: 19899829. Intervention 646. Eiser C, Levitt G, Leiper A, et al. Clinic audit for long-term survivors of childhood cancer. Arch Dis Child. 1996 Nov;75(5):405-9. doi: 10.1136/adc.75.5.405. PMID: 8957953. Intervention B-59 653. Ellis SJ, Wakefield CE, McLoone JK, et al. Fertility concerns among child and adolescent cancer survivors and their parents: A qualitative analysis. J Psychosoc Oncol. 2016 Sep-Oct;34(5):347-62. doi: 10.1080/07347332.2016.1196806. PMID: 27269305. Intervention 659. Emond A, Edwards L, Peacock S, et al. Social competence in children and young people treated for a brain tumour. Support Care Cancer. 2016 Nov;24(11):4587-95. doi: 10.1007/s00520-016-3301-4. PMID: 27312844. Outcome 660. Endén K, Tainio J, Jalanko H, et al. Lower quality of life in young men after pediatric kidney transplantation when compared to healthy controls and survivors of childhood leukemia-a cross-sectional study. Transpl Int. 2018 Feb;31(2):157-64. doi: 10.1111/tri.13040. PMID: 28850735. Intervention 654. Elsbernd A, Crenner C, Rosell T, et al. Individual Experiences and Utilization of Supportive Resources in Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2019 Jun;8(3):329-34. doi: 10.1089/jayao.2018.0107. PMID: 30653388. Participants 655. Elsbernd A, Pedersen KJ, Boisen KA, et al. "On Your Own": Adolescent and Young Adult Cancer Survivors' Experience of Managing Return to Secondary or Higher Education in Denmark. Journal of Adolescent & Young Adult Oncology. 2018;7(5):618-25. doi: 10.1089/jayao.2018.0058. PMID: 132245213. Language: English. Entry Date: 20181016. Revision Date: 20191001. Publication Type: Article. Outcome 661. Eng L, Bender J, Hueniken K, et al. Age differences in patterns and confidence of using internet and social media for cancer-care among cancer survivors. J Geriatr Oncol. 2020 Mar 10. doi: 10.1016/j.jgo.2020.02.011. PMID: 32169545. Participants 662. Eniu AE, Martei YM, Trimble EL, et al. Cancer Care and Control as a Human Right: Recognizing Global Oncology as an Academic Field. Am Soc Clin Oncol Educ Book. 2017;37:409-15. doi: 10.1200/edbk_175251. PMID: 28561681. Intervention 656. Ely GE, White C, Jones K, et al. Cervical cancer screening: exploring Appalachian patients' barriers to follow-up care. Soc Work Health Care. 2014;53(2):8395. doi: 10.1080/00981389.2013.827149. PMID: 24483330. Participants 663. Enskär K, von Essen L. Physical problems and psychosocial function in children with cancer. Paediatr Nurs. 2008 Apr;20(3):37-41. doi: 10.7748/paed2008.04.20.3.37.c6521. PMID: 18500142. Intervention 657. Emmons K. Smoking among childhood cancer survivors: we can do better. J Natl Cancer Inst. 2008 Aug 6;100(15):1048-9. doi: 10.1093/jnci/djn242. PMID: 18664648. Study design 664. Epplein M, Zheng Y, Zheng W, et al. Quality of life after breast cancer diagnosis and survival. J Clin Oncol. 2011 Feb 1;29(4):406-12. doi: 10.1200/jco.2010.30.6951. PMID: 21172892. Participants 658. Emmons KM, Butterfield RM, Puleo E, et al. Smoking among participants in the childhood cancer survivors cohort: the Partnership for Health Study. J Clin Oncol. 2003 Jan 15;21(2):189-96. doi: 10.1200/jco.2003.06.130. PMID: 12525509. Intervention B-60 671. Ernst M, Tibubos AN, Unterrainer J, et al. Status and predictors of planning ability in adult long-term survivors of CNS tumors and other types of childhood cancer. Sci Rep. 2019 May 13;9(1):7290. doi: 10.1038/s41598-019-43874-4. PMID: 31086281. Intervention 665. Epplein M, Zheng Y, Zheng W, et al. Quality of life after breast cancer diagnosis and survival. Journal of Clinical Oncology. 2011;29(4):406-12. doi: 10.1200/JCO.2010.30.6951. PMID: 105003436. Language: English. Entry Date: 20110325. Revision Date: 20200708. Publication Type: journal article. Duplicate 672. Eschbach K, Mahnken JD, Goodwin JS. Neighborhood composition and incidence of cancer among Hispanics in the United States. Cancer. 2005 Mar 1;103(5):1036-44. doi: 10.1002/cncr.20885. PMID: 15672387. Participants 666. Erdmann F, Winther JF, Dalton SO, et al. Survival From Childhood Hematological Malignancies in Denmark: Is Survival Related to Family Characteristics? Pediatr Blood Cancer. 2016 Jun;63(6):1096-104. doi: 10.1002/pbc.25950. PMID: 26937602. Intervention 673. Essig S, Li Q, Chen Y, et al. Risk of late effects of treatment in children newly diagnosed with standard-risk acute lymphoblastic leukaemia: a report from the Childhood Cancer Survivor Study cohort. Lancet Oncol. 2014 Jul;15(8):841-51. doi: 10.1016/s1470-2045(14)70265-7. PMID: 24954778. Intervention 667. 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What's past is prologue: Recalled parenting styles are associated with childhood cancer survivors' mental health outcomes more than 25 years after diagnosis. Soc Sci Med. 2020 May;252:112916. doi: 10.1016/j.socscimed.2020.112916. PMID: 32200184. Outcome 676. Essig S, Steiner C, Kuehni CE, et al. Improving Communication in Adolescent Cancer Care: A Multiperspective Study. Pediatr Blood Cancer. 2016 Aug;63(8):1423-30. doi: 10.1002/pbc.26012. PMID: 27081706. Intervention 670. Ernst M, Brähler E, Wild PS, et al. Risk factors for suicidal ideation in a large, registry-based sample of adult long-term childhood cancer survivors. J Affect Disord. 2020 Mar 15;265:351-6. doi: 10.1016/j.jad.2020.01.080. PMID: 32090759. Intervention B-61 677. Estefan A, Moules NJ, Laing CM. Composing Sexuality in the Midst of Adolescent Cancer. Journal of Pediatric Oncology Nursing. 2019;36(3):191-206. doi: 10.1177/1043454219836961. PMID: 135877317. Language: English. Entry Date: 20190417. Revision Date: 20190417. Publication Type: Article. Outcome 683. Fardell JE, Wakefield CE, Patterson P, et al. Narrative Review of the Educational, Vocational, and Financial Needs of Adolescents and Young Adults with Cancer: Recommendations for Support and Research. J Adolesc Young Adult Oncol. 2018 Apr;7(2):143-7. doi: 10.1089/jayao.2017.0086. PMID: 29125906. Participants 678. Evans SE, Radford M. Current lifestyle of young adults treated for cancer in childhood. Arch Dis Child. 1995 May;72(5):423-6. doi: 10.1136/adc.72.5.423. PMID: 7618909. Outcome 684. Farjou G, Sinha R, Dix D, et al. Understanding the healthcare experiences of teenaged cancer patients and survivors. Child: Care, Health & Development. 2014;40(5):723-30. doi: 10.1111/cch.12109. PMID: 97427894. Language: English. Entry Date: 20140817. Revision Date: 20190708. Publication Type: Article. Participants 679. Evans SE, Radford M, Evans SE, et al. Current lifestyle of young adults treated for cancer in childhood. Archives of Disease in Childhood. 1995;72(5):423-6. PMID: 107336213. Language: English. Entry Date: 19970901. Revision Date: 20190505. Publication Type: journal article. Duplicate 685. Faulk KE, Anderson-Mellies A, Cockburn M, et al. Assessment of enrollment characteristics for Children's Oncology Group (COG) upfront therapeutic clinical trials 2004-2015. PLoS One. 2020;15(4):e0230824. doi: 10.1371/journal.pone.0230824. PMID: 32324751. Intervention 680. Faghani S, Rahmani A, Parizad N, et al. Social support and its predictors among Iranian cancer survivors. Asian Pac J Cancer Prev. 2014;15(22):9767-71. doi: 10.7314/apjcp.2014.15.22.9767. PMID: 25520102. Participants 686. Feijen EA, Font-Gonzalez A, van Dalen EC, et al. Late Cardiac Events after Childhood Cancer: Methodological Aspects of the Pan-European Study PanCareSurFup. PLoS One. 2016;11(9):e0162778. doi: 10.1371/journal.pone.0162778. PMID: 27643694. Study design 681. Faizan M, Taj MM, Anwar S, et al. Comparison of Presentation and Outcome in 100 Pediatric Hodgkin Lymphoma Patients Treated at Children Hospital, Lahore, Pakistan and Royal Marsden Hospital, UK. J Coll Physicians Surg Pak. 2016 Nov;26(11):904-7. PMID: 27981925. Intervention 687. Felder-Puig R, Formann AK, Mildner A, et al. Quality of life and psychosocial adjustment of young patients after treatment of bone cancer. Cancer. 1998 Jul 1;83(1):6975. doi: 10.1002/(sici)10970142(19980701)83:1<69::aidcncr10>3.0.co;2-a. PMID: 9655295. Participants 682. Fang FM, Tsai WL, Lee TF, et al. Multivariate analysis of quality of life outcome for nasopharyngeal carcinoma patients after treatment. Radiother Oncol. 2010 Nov;97(2):263-9. doi: 10.1016/j.radonc.2010.05.022. PMID: 20817290. Participants B-62 688. Felder-Puig R, Frey E, Sonnleithner G, et al. German cross-cultural adaptation of the Health Utilities Index and its application to a sample of childhood cancer survivors. Eur J Pediatr. 2000 Apr;159(4):283-8. doi: 10.1007/s004310050071. PMID: 10789935. Study design 693. Fenn KM, Evans SB, McCorkle R, et al. Impact of Financial Burden of Cancer on Survivors' Quality of Life. Journal of Oncology Practice. 2014;10(5):332-9. doi: 10.1200/JOP.2013.001322. PMID: 98197247. Language: English. Entry Date: 20140916. Revision Date: 20190711. Publication Type: Article. Participants 689. Felder-Puig R, Peters C, MatthesMartin S, et al. Psychosocial adjustment of pediatric patients after allogeneic stem cell transplantation. Bone Marrow Transplant. 1999 Jul;24(1):75-80. doi: 10.1038/sj.bmt.1701853. PMID: 10435739. Outcome 694. Ferraresso M, Ghio L, Raiteri M, et al. Pediatric kidney transplantation: a snapshot 10 years later. Transplant Proc. 2008 JulAug;40(6):1852-3. doi: 10.1016/j.transproceed.2008.05.003. PMID: 18675068. Participants 690. Feldman DR, Ardeshir-Rouhani-Fard S, Monahan P, et al. Predicting Cardiovascular Disease Among Testicular Cancer Survivors After Modern Cisplatinbased Chemotherapy: Application of the Framingham Risk Score. Clin Genitourin Cancer. 2018 Aug;16(4):e761-e9. doi: 10.1016/j.clgc.2018.01.011. PMID: 29534941. Participants 695. Fidler MM, Gupta S, Soerjomataram I, et al. Cancer incidence and mortality among young adults aged 20-39 years worldwide in 2012: a population-based study. Lancet Oncol. 2017 Dec;18(12):1579-89. doi: 10.1016/s1470-2045(17)30677-0. PMID: 29111259. Participants 696. Fidler MM, Reulen RC, Winter DL, et al. Risk of Subsequent Bone Cancers Among 69 460 Five-Year Survivors of Childhood and Adolescent Cancer in Europe. J Natl Cancer Inst. 2018 Feb 1;110(2). doi: 10.1093/jnci/djx165. PMID: 28954302. Intervention 691. Feltbower RG, Glaser AW, Parslow RC, et al. Geographic mobility following cancer treatment in Yorkshire, UK. Arch Dis Child. 2004 Apr;89(4):380-1. doi: 10.1136/adc.2002.022061. PMID: 15033853. Outcome 697. Fidler MM, Ziff OJ, Wang S, et al. Aspects of mental health dysfunction among survivors of childhood cancer. Br J Cancer. 2015 Sep 29;113(7):1121-32. doi: 10.1038/bjc.2015.310. PMID: 26418531. Outcome 692. Feltbower RG, Glaser AW, Parslow RC, et al. Geographic mobility following cancer treatment in Yorkshire, UK. Archives of Disease in Childhood. 2004;89(4):380-1. doi: 10.1136/adc.2002.022061. PMID: 106779247. Language: English. Entry Date: 20040924. Revision Date: 20200624. Publication Type: journal article. Duplicate 698. Filippini G, Maisonneuve P, McCredie M, et al. Relation of childhood brain tumors to exposure of parents and children to tobacco smoke: the SEARCH international case-control study. Surveillance of Environmental Aspects Related to Cancer in Humans. Int J Cancer. 2002 Jul 10;100(2):206-13. doi: 10.1002/ijc.10465. PMID: 12115571. Outcome B-63 704. Fitzmaurice C, Akinyemiju TF, Al Lami FH, et al. Global, Regional, and National Cancer Incidence, Mortality, Years of Life Lost, Years Lived With Disability, and Disability-Adjusted Life-Years for 29 Cancer Groups, 1990 to 2016: A Systematic Analysis for the Global Burden of Disease Study. JAMA Oncol. 2018 Nov 1;4(11):1553-68. doi: 10.1001/jamaoncol.2018.2706. PMID: 29860482. Participants 699. Findley PA, Sambamoorthi U. Preventive health services and lifestyle practices in cancer survivors: a population health investigation. J Cancer Surviv. 2009 Mar;3(1):43-58. doi: 10.1007/s11764-0080074-x. PMID: 19067178. Participants 700. Finnegan L, Campbell RT, Ferrans CE, et al. Symptom cluster experience profiles in adult survivors of childhood cancers. J Pain Symptom Manage. 2009 Aug;38(2):258-69. doi: 10.1016/j.jpainsymman.2008.09.010. PMID: 19535218. Outcome 705. Fitzmaurice C, Allen C, Barber RM, et al. Global, Regional, and National Cancer Incidence, Mortality, Years of Life Lost, Years Lived With Disability, and DisabilityAdjusted Life-years for 32 Cancer Groups, 1990 to 2015: A Systematic Analysis for the Global Burden of Disease Study. JAMA Oncol. 2017 Apr 1;3(4):524-48. doi: 10.1001/jamaoncol.2016.5688. PMID: 27918777. Participants 701. Finnegan L, Campbell RT, Ferrans CE, et al. Symptom cluster experience profiles in adult survivors of childhood cancers. Journal of Pain & Symptom Management. 2009;38(2):258-69. doi: 10.1016/j.jpainsymman.2008.09.010. PMID: 105397319. Language: English. Entry Date: 20091023. Revision Date: 20200708. Publication Type: journal article. Duplicate 706. Flink DM, Kondapalli LA, KellarGuenther Y. Priorities in fertility decisions for reproductive-aged cancer patients: Fertility attitudes and cancer treatment study. Journal of Adolescent and Young Adult Oncology. 2017 Sep 2017 702. Fintel AE, Jamy O, Martin MG. Influence of insurance and marital status on outcomes of adolescents and young adults with acute lymphoblastic leukemia. Clin Lymphoma Myeloma Leuk. 2015 Jun;15(6):364-7. doi: 10.1016/j.clml.2014.12.006. PMID: 25592548. Outcome 2018-02-15;6(3):435-43. PMID: 2002263248; 2017-41726-008. Outcome 707. Florin TA, Fryer GE, Miyoshi T, et al. Physical inactivity in adult survivors of childhood acute lymphoblastic leukemia: a report from the childhood cancer survivor study. Cancer Epidemiol Biomarkers Prev. 2007 Jul;16(7):1356-63. doi: 10.1158/10559965.EPI-07-0048. PMID: 17627001. Outcome 703. Fitzmaurice C, Abate D, Abbasi N, et al. Global, Regional, and National Cancer Incidence, Mortality, Years of Life Lost, Years Lived With Disability, and DisabilityAdjusted Life-Years for 29 Cancer Groups, 1990 to 2017: A Systematic Analysis for the Global Burden of Disease Study. JAMA Oncol. 2019 Sep 27;5(12):1749-68. doi: 10.1001/jamaoncol.2019.2996. PMID: 31560378. Participants 708. Fluchel M, Horsman JR, Furlong W, et al. Self and proxy-reported health status and health-related quality of life in survivors of childhood cancer in Uruguay. Pediatr Blood Cancer. 2008 Apr;50(4):838-43. doi: 10.1002/pbc.21299. PMID: 17635006. Intervention B-64 709. Foley GV. The patient's child. The forgotten survivor. Cancer Pract. 2000 MarApr;8(2):58. doi: 10.1046/j.15235394.2000.82002.x. PMID: 11898177. Study design 714. Ford JS, Kawashima T, Whitton J, et al. Psychosexual functioning among adult female survivors of childhood cancer: a report from the childhood cancer survivor study. J Clin Oncol. 2014 Oct 1;32(28):3126-36. doi: 10.1200/jco.2013.54.1086. PMID: 25113763. Intervention 710. Follin C, Thilén U, Osterberg K, et al. Cardiovascular risk, cardiac function, physical activity, and quality of life with and without long-term growth hormone therapy in adult survivors of childhood acute lymphoblastic leukemia. J Clin Endocrinol Metab. 2010 Aug;95(8):3726-35. doi: 10.1210/jc.2010-0117. PMID: 20484480. Outcome 715. Forman D, de Martel C, Lacey CJ, et al. Global burden of human papillomavirus and related diseases. Vaccine. 2012 Nov 20;30 Suppl 5:F12-23. doi: 10.1016/j.vaccine.2012.07.055. PMID: 23199955. Participants 711. Font-Gonzalez A, Feijen EL, Sieswerda E, et al. Social outcomes in adult survivors of childhood cancer compared to the general population: linkage of a cohort with population registers. Psychooncology. 2016 Aug;25(8):933-41. doi: 10.1002/pon.4040. PMID: 26592199. Intervention 716. Forzoni S, Perez M, Martignetti A, et al. Art therapy with cancer patients during chemotherapy sessions: an analysis of the patients' perception of helpfulness. Palliat Support Care. 2010 Mar;8(1):41-8. doi: 10.1017/s1478951509990691. PMID: 20163759. Participants 717. Foster RH, Brouwer AM, Dillon R, et al. "Cancer was a speed bump in my path to enlightenment:" A qualitative analysis of situational coping experiences among young adult survivors of childhood cancer. J Psychosoc Oncol. 2017 Jul-Aug;35(4):37792. doi: 10.1080/07347332.2017.1292575. PMID: 28332951. Intervention 712. Font‐Gonzalez A, Feijen E, Sieswerda E, et al. Social outcomes in adult survivors of childhood cancer compared to the general population: linkage of a cohort with population registers. Psycho-Oncology. 2016;25(8):933-41. doi: 10.1002/pon.4040. PMID: 117000382. Language: English. Entry Date: 20171210. Revision Date: 20191120. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 718. Foster RH, Stern M. Peer and romantic relationships among adolescent and young adult survivors of childhood hematological cancer: a review of challenges and positive outcomes. Acta Haematol. 2014;132(34):375-82. doi: 10.1159/000360239. PMID: 25228563. Study design 713. Ford JS, Chou JF, Sklar CA, et al. Psychosocial Outcomes in Adult Survivors of Retinoblastoma. J Clin Oncol. 2015 Nov 1;33(31):3608-14. doi: 10.1200/jco.2014.60.5733. PMID: 26417002. Outcome 719. Fowler B, Samadder NJ, Kepka D, et al. Improvements in Colorectal Cancer Incidence Not Experienced by Nonmetropolitan Women: A PopulationBased Study From Utah. J Rural Health. 2018 Mar;34(2):155-61. doi: 10.1111/jrh.12242. PMID: 28426915. Participants B-65 725. Friedman DL, Kadan-Lottick NS, Whitton J, et al. Increased risk of cancer among siblings of long-term childhood cancer survivors: a report from the childhood cancer survivor study. Cancer Epidemiol Biomarkers Prev. 2005 Aug;14(8):1922-7. doi: 10.1158/10559965.Epi-05-0066. PMID: 16103438. Outcome 720. Frank-Stromborg M, Wright P. Ambulatory cancer patients' perception of the physical and psychosocial changes in their lives since the diagnosis of cancer. Cancer Nurs. 1984 Apr;7(2):117-30. PMID: 6561062. Participants 721. Frederick NN, Campbell K, Kenney LB, et al. Barriers and facilitators to sexual and reproductive health communication between pediatric oncology clinicians and adolescent and young adult patients: The clinician perspective. Pediatr Blood Cancer. 2018 Aug;65(8):e27087. doi: 10.1002/pbc.27087. PMID: 29697189. Participants 726. Friedman-Bender AE. Self-perceived competencies and adjustment of children and adolescents with cancer; 1998. Outcome 727. Friedrich P, Itriago E, RodriguezGalindo C, et al. Racial and Ethnic Disparities in the Incidence of Pediatric Extracranial Embryonal Tumors. J Natl Cancer Inst. 2017 Oct 1;109(10). doi: 10.1093/jnci/djx050. PMID: 29117360. Intervention 722. Freijomil-Vázquez C, Gastaldo D, Coronado C, et al. When risk becomes illness: The personal and social consequences of cervical intraepithelial neoplasia medical surveillance. PLoS One. 2019;14(12):e0226261. doi: 10.1371/journal.pone.0226261. PMID: 31841543. Participants 728. Friedrich P, Lam CG, Itriago E, et al. Magnitude of Treatment Abandonment in Childhood Cancer. PLoS One. 2015;10(9):e0135230. doi: 10.1371/journal.pone.0135230. PMID: 26422208. Participants 723. French AE, Tsangaris E, Barrera M, et al. School attendance in childhood cancer survivors and their siblings. J Pediatr. 2013 Jan;162(1):160-5. doi: 10.1016/j.jpeds.2012.06.066. PMID: 22835883. Intervention 729. Friis K, Larsen FB, Nielsen CV, et al. Social inequality in cancer survivors’ health behaviours—A Danish population‐based study. European Journal of Cancer Care. 2018;27(3):1-. doi: 10.1111/ecc.12840. PMID: 129933225. Language: English. Entry Date: 20180606. Revision Date: 20190501. Publication Type: Article. Participants 724. Freyer DR, Freyer DR. Transition of care for young adult survivors of childhood and adolescent cancer: rationale and approaches. Journal of Clinical Oncology. 2010;28(32):4810-8. doi: 10.1200/JCO.2009.23.4278. PMID: 104941565. Language: English. Entry Date: 20110218. Revision Date: 20200708. Publication Type: journal article. Duplicate 730. Frobisher C, Lancashire ER, Jenkinson H, et al. Employment status and occupational level of adult survivors of childhood cancer in Great Britain: The British childhood cancer survivor study. Int J Cancer. 2017 Jun 15;140(12):2678-92. doi: 10.1002/ijc.30696. PMID: 28316069. Intervention B-66 731. Frobisher C, Lancashire ER, Reulen RC, et al. Extent of alcohol consumption among adult survivors of childhood cancer: the British Childhood Cancer Survivor Study. Cancer Epidemiol Biomarkers Prev. 2010 May;19(5):1174-84. doi: 10.1158/1055-9965.EPI-10-0006. PMID: 20447915. Intervention 736. Futani H, Minamizaki T, Nishimoto Y, et al. Long-term follow-up after limb salvage in skeletally immature children with a primary malignant tumor of the distal end of the femur. J Bone Joint Surg Am. 2006 Mar;88(3):595-603. doi: 10.2106/jbjs.C.01686. PMID: 16510827. Outcome 732. Frobisher C, Lancashire ER, Winter DL, et al. Long-term population-based marriage rates among adult survivors of childhood cancer in Britain. Int J Cancer. 2007 Aug 15;121(4):846-55. doi: 10.1002/ijc.22742. PMID: 17450524. Intervention 737. Gabriel MG, Wakefield CE, Vetsch J, et al. Paediatric surgery for childhood cancer: Lasting experiences and needs of children and parents. Eur J Cancer Care (Engl). 2019 Sep;28(5):e13116. doi: 10.1111/ecc.13116. PMID: 31184790. Intervention 733. Frobisher C, Lancashire ER, Winter DL, et al. Long-term population-based divorce rates among adult survivors of childhood cancer in Britain. Pediatr Blood Cancer. 2010 Jan;54(1):116-22. doi: 10.1002/pbc.22290. PMID: 19774635. Outcome 738. Gad MM, Saad AM, Al-Husseini MJ, et al. Temporal trends of pancreatic ductal adenocarcinoma in young adults in the United States: A Population-Based Study. Clin Res Hepatol Gastroenterol. 2020 Apr;44(2):204-10. doi: 10.1016/j.clinre.2019.07.001. PMID: 31420297. Participants 734. Frobisher C, Winter DL, Lancashire ER, et al. Extent of smoking and age at initiation of smoking among adult survivors of childhood cancer in Britain. JNCI: Journal of the National Cancer Institute. 2008;100(15):1068-81. doi: 10.1093/jnci/djn210. PMID: 105666237. Corporate Author: British Childhood Cancer Survivor Study. Language: English. Entry Date: 20081017. Revision Date: 20200708. Publication Type: journal article. Duplicate 739. Gagliardi F, Bailo M, Spina A, et al. Gamma Knife Radiosurgery for Low-Grade Gliomas: Clinical Results at Long-Term Follow-Up of Tumor Control and Patients' Quality of Life. World Neurosurg. 2017 May;101:540-53. doi: 10.1016/j.wneu.2017.02.041. PMID: 28216397. Participants 740. Galán S, de la Vega R, Miró J. Needs of adolescents and young adults after cancer treatment: a systematic review. Eur J Cancer Care (Engl). 2018 Nov;27(6):e12558. doi: 10.1111/ecc.12558. PMID: 27507260. Participants 735. Fu S, Rybicki L, Abounader D, et al. Association of socioeconomic status with long-term outcomes in 1-year survivors of allogeneic hematopoietic cell transplantation. Bone Marrow Transplant. 2015 Oct;50(10):1326-30. doi: 10.1038/bmt.2015.166. PMID: 26191953. Participants 741. Galán S, de la Vega R, Tomé Pires C, et al. What are the needs of adolescents and young adults after a cancer treatment? A Delphi study. Eur J Cancer Care (Engl). 2017 Mar;26(2). doi: 10.1111/ecc.12488. PMID: 27007727. Participants B-67 748. Ganz FD, Raz H, Gothelf D, et al. Post-traumatic stress disorder in Israeli survivors of childhood cancer. Oncology Nursing Forum. 2010;37(2):160-7. doi: 10.1188/10.ONF.160-167. PMID: 105135543. Language: English. Entry Date: 20100409. Revision Date: 20200708. Publication Type: Journal Article. Duplicate 742. Galarce EM, Ramanadhan S, Weeks J, et al. Class, race, ethnicity and information needs in post-treatment cancer patients. Patient Educ Couns. 2011 Dec;85(3):432-9. doi: 10.1016/j.pec.2011.01.030. PMID: 21354761. Participants 743. Gallo-Silver L, Weiner MO. Survivors of childhood sexual abuse diagnosed with cancer: managing the impact of early trauma on cancer treatment. Journal of Psychosocial Oncology. 2006;24(1):107-34. PMID: 106235216. Language: English. Entry Date: 20070216. Revision Date: 20150819. Publication Type: Journal Article. Outcome 749. Ganz FD, Raz H, Gothelf D, et al. Post-traumatic stress disorder in Israeli survivors of childhood cancer. Oncology Nursing Forum. 2010 Mar 2010 2019-09-12;37(2):160-7. doi: http://dx.doi.org/10.1188/10.ONF.160-167. PMID: 742975175; 2010-04534-001. Duplicate 744. Gamba CS, Clarke CA, Keegan TH, et al. Melanoma survival disadvantage in young, non-Hispanic white males compared with females. JAMA Dermatol. 2013 Aug;149(8):912-20. doi: 10.1001/jamadermatol.2013.4408. PMID: 23804160. Participants 750. Ganz P. Cancer Prevention and Control: Then and Now. NAM Perspectives. Commentary. 2018: . Intervention 751. Gao W, Verne J, Peacock J, et al. Place of death in children and young people with cancer and implications for end of life care: a population-based study in England, 1993-2014. BMC Cancer. 2016 Sep 19;16(1):727. doi: 10.1186/s12885-0162695-1. PMID: 27641492. Intervention 745. Gamba CS, Clarke CA, Keegan THM, et al. Melanoma survival disadvantage in young, non-Hispanic white males compared with females. JAMA Dermatology. 2013;149(8):912-20. doi: 10.1001/jamadermatol.2013.4408. PMID: 104221881. Language: English. Entry Date: 20131115. Revision Date: 20200708. Publication Type: journal article. Duplicate 752. Gapstur R, Gross CR, Ness K. Factors associated with sleep-wake disturbances in child and adult survivors of pediatric brain tumors: a review. Oncol Nurs Forum. 2009 Nov;36(6):723-31. doi: 10.1188/09.ONF.723-731. PMID: 19887361. Outcome 746. Gan HW, Spoudeas HA. Long-term follow-up of survivors of childhood cancer (SIGN Clinical Guideline 132). Arch Dis Child Educ Pract Ed. 2014 Aug;99(4):13843. doi: 10.1136/archdischild-2013-305452. PMID: 24639409. Intervention 753. Gardner MH, Mrug S, Schwebel DC, et al. Demographic, medical, and psychosocial predictors of benefit finding among caregivers of childhood cancer survivors. Psychooncology. 2017 Jan;26(1):125-32. doi: 10.1002/pon.4014. PMID: 26489522. Intervention 747. Gan HW, Spoudeas HA. Long-term follow-up of survivors of childhood cancer (SIGN Clinical Guideline 132). Arch Dis Child Educ Pract Ed. 2014 Aug;99(4):13843. doi: 10.1136/archdischild-2013-305452. PMID: 24639409. Duplicate B-68 754. Garlan RW, Butler LD, Rosenbaum E, et al. Perceived benefits and psychosocial outcomes of a brief existential family intervention for cancer patients/survivors. Omega (Westport). 2010;62(3):243-68. doi: 10.2190/om.62.3.c. PMID: 21495534. Outcome 760. Gebauer J, Fick EM, Waldmann A, et al. Self-reported endocrine late effects in adults treated for brain tumours, Hodgkin and non-Hodgkin lymphoma: a registry based study in Northern Germany. Eur J Endocrinol. 2015 Aug;173(2):139-48. doi: 10.1530/eje-15-0174. PMID: 25947143. Participants 755. Garrett K, Okuyama S, Jones W, et al. Bridging the transition from cancer patient to survivor: pilot study results of the Cancer Survivor Telephone Education and Personal Support (C-STEPS) program. Patient Educ Couns. 2013 Aug;92(2):266-72. doi: 10.1016/j.pec.2013.04.002. PMID: 23647980. Participants 761. Gedleh A, Lee S, Hill JA, et al. "Where Does it Come from?" Experiences Among Survivors and Parents of Children with Retinoblastoma in Kenya. J Genet Couns. 2018 Jun;27(3):574-88. doi: 10.1007/s10897-017-0174-8. PMID: 29170903. Outcome 756. Garvey G, Cunningham J, Janda M, et al. Psychological distress among Indigenous Australian cancer survivors. Support Care Cancer. 2018 Jun;26(6):1737-46. doi: 10.1007/s00520-017-3995-y. PMID: 29243167. Participants 762. Geiger AM, Castellino SM, Tooze JA, et al. Potential role of community-based healthcare system data in research on survivors of adolescent and young adult cancer. Journal of Adolescent and Young Adult Oncology. 2013 Jun 2013 757. Gass J, Mitchell S, Hanna M. How do breast cancer surgery scars impact survivorship? Findings from a nationwide survey in the United States. BMC Cancer. 2019 Apr 11;19(1):342. doi: 10.1186/s12885-019-5553-0. PMID: 30971201. Participants 2017-09-25;2(2):53-8. doi: http://dx.doi.org/10.1089/jayao.2012.0033. PMID: 1805492257; 2015-44189-003. Participants 763. Geller AC, Emmons KM. The Time Has Come to Enhance Skin Cancer Screening for Adult Childhood Cancer Survivors. J Natl Cancer Inst. 2019 Aug 1;111(8):760-1. doi: 10.1093/jnci/djy213. PMID: 30802912. Outcome 758. Gatta G, Trama A, Capocaccia R. Epidemiology of rare cancers and inequalities in oncologic outcomes. Eur J Surg Oncol. 2019 Jan;45(1):3-11. doi: 10.1016/j.ejso.2017.08.018. PMID: 29032924. Participants 764. Georgakis M, Karalexi M, Agius D, et al. Incidence and time trends of childhood lymphomas: findings from 14 Southern and Eastern European cancer registries and the Surveillance, Epidemiology and End Results, USA. Cancer Causes & Control. 2016;27(11):1381-94. doi: 10.1007/s10552016-0817-3. PMID: 119384950. Language: English. Entry Date: 20170701. Revision Date: 20171212. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 759. Gaudichon J, Toscani S, Cohen-Gogo S, et al. Care management for foreign children, adolescents, young adults with cancer, and their families. Pediatr Blood Cancer. 2017 Jun;64(6). doi: 10.1002/pbc.26336. PMID: 27905679. Intervention B-69 769. George SM, Smith AW. Commentary: understanding risk behavior among adolescent cancer survivors--are they more like healthy adolescents or is cancer a teachable moment? A commentary on Klosky and colleagues' article on health behaviors in survivors of childhood cancer and their siblings. J Pediatr Psychol. 2012 Jul;37(6):647-9. doi: 10.1093/jpepsy/jss064. PMID: 22586152. Study design 765. Georgakis MK, Karalexi MA, Agius D, et al. Incidence and time trends of childhood lymphomas: findings from 14 Southern and Eastern European cancer registries and the Surveillance, Epidemiology and End Results, USA. Cancer Causes Control. 2016 Nov;27(11):1381-94. doi: 10.1007/s10552016-0817-3. PMID: 27757777. Intervention 766. Georgakis MK, Papathoma P, Ryzhov A, et al. Malignant central nervous system tumors among adolescents and young adults (15-39 years old) in 14 Southern-Eastern European registries and the US Surveillance, Epidemiology, and End Results program: Mortality and survival patterns. Cancer. 2017 Nov 15;123(22):4458-71. doi: 10.1002/cncr.30884. PMID: 28708937. Participants 770. Gerber NU, Zehnder D, Zuzak TJ, et al. Outcome in children with brain tumours diagnosed in the first year of life: long-term complications and quality of life. Archives of Disease in Childhood. 2008;93(7):582-9. doi: 10.1136/adc.2007.116202. PMID: 105780173. Language: English. Entry Date: 20080801. Revision Date: 20200708. Publication Type: Journal Article. Outcome 771. Gerbi GB, Ivory S, Archie‐Booker E, et al. Factors associated with self-reported history of depression diagnosis among cancer survivors aged 18 years and over in the United States. Psycho-Oncology. 2018;27(8):2039-44. doi: 10.1002/pon.4770. PMID: 131134503. Language: English. Entry Date: In Process. Revision Date: 20190814. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 767. Georgakis MK, Papathoma P, Ryzhov A, et al. Malignant central nervous system tumors among adolescents and young adults (15-39 years old) in 14 Southern-Eastern European registries and the US Surveillance, Epidemiology, and End Results program: Mortality and survival patterns. Cancer (0008543X). 2017;123(22):4458-71. doi: 10.1002/cncr.30884. PMID: 126052813. Language: English. Entry Date: 20171129. Revision Date: 20190517. Publication Type: journal article. Duplicate 772. Gerhardt CA, Vannatta K, Valerius KS, et al. Social and romantic outcomes in emerging adulthood among survivors of childhood cancer. J Adolesc Health. 2007 May;40(5):462.e9-15. doi: 10.1016/j.jadohealth.2006.12.004. PMID: 17448406. Intervention 768. George SA, Williamson Lewis R, McKenzie L, et al. Assessment of ovarian function in adolescents and young adults after childhood cancer treatment-How accurate are young adult/parent proxyreported outcomes? Pediatr Blood Cancer. 2019 Dec;66(12):e27981. doi: 10.1002/pbc.27981. PMID: 31502374. Intervention 773. Geue K, Brähler E, Faller H, et al. Prevalence of mental disorders and psychosocial distress in German adolescent and young adult cancer patients (AYA). Psycho-Oncology. 2018 Jul 2018 2019-07-22;27(7):1802-9. doi: http://dx.doi.org/10.1002/pon.4730. PMID: 2032686610; 2018-19324-001. Participants B-70 774. Geue K, Richter R, Buttstädt M, et al. An art therapy intervention for cancer patients in the ambulant aftercare—Results from a non-randomised controlled study. European Journal of Cancer Care. 2013 May 2013 780. Gibson TM, Li C, Armstrong GT, et al. Perceptions of Future Health and Cancer Risk in Adult Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study. Cancer. 2018;124:3436-44. Intervention 2017-09-25;22(3):345-52. doi: http://dx.doi.org/10.1111/ecc.12037. PMID: 1373443810; 2013-15250-009. Participants 781. Gibson TM, Liu W, Armstrong GT, et al. Longitudinal smoking patterns in survivors of childhood cancer: An update from the Childhood Cancer Survivor Study. Cancer. 2015 Nov 15;121(22):4035-43. doi: 10.1002/cncr.29609. PMID: 26287647. Outcome 775. Geue K, Schmidt R, Sender A, et al. [Pain experiences and life satisfaction of young adult cancer patients]. Schmerz. 2017 Feb;31(1):23-30. doi: 10.1007/s00482-0160125-6. PMID: 27324630. Not English 782. Gil-Fernández J, Ramos C, Tamayo T, et al. Quality of life and psychological wellbeing in Spanish long-term survivors of Hodgkin's disease: results of a controlled pilot study. Ann Hematol. 2003 Jan;82(1):14-8. doi: 10.1007/s00277-0020582-0. PMID: 12574958. Outcome 776. Geue K, Schmidt R, Sender A, et al. Sexuality and romantic relationships in young adult cancer survivors: satisfaction and supportive care needs. Psychooncology. 2015 Nov;24(11):1368-76. doi: 10.1002/pon.3805. PMID: 25826748. Participants 783. Gilleland J, Reed‐Knight B, Brand S, et al. Assessment of family psychosocial functioning in survivors of pediatric cancer using the PAT2.0. Psycho-Oncology. 2013 Sep 2013 777. Geue K, Sender A, Schmidt R, et al. Gender-specific quality of life after cancer in young adulthood: a comparison with the general population. Qual Life Res. 2014 May;23(4):1377-86. doi: 10.1007/s11136013-0559-6. PMID: 24197479. Participants 2017-09-25;22(9):2133-9. doi: http://dx.doi.org/10.1002/pon.3265. PMID: 1461654502; 2013-30711-029. Duplicate 778. Gianinazzi ME, Rueegg CS, Vetsch J, et al. Cancer's positive flip side: posttraumatic growth after childhood cancer. Support Care Cancer. 2016 Jan;24(1):195203. doi: 10.1007/s00520-015-2746-1. PMID: 26003421. Intervention 784. Gilliam M, Schwebel D. Physical activity in child and adolescent cancer survivors: a review. Health Psychology Review. 2013;7(1):92-110. doi: 10.1080/17437199.2011.603641. PMID: 86009589. Language: English. Entry Date: 20130805. Revision Date: 20190708. Publication Type: Article. Duplicate 779. Gianinazzi ME, Rueegg CS, Wengenroth L, et al. Adolescent survivors of childhood cancer: are they vulnerable for psychological distress? Psychooncology. 2013 Sep;22(9):2051-8. doi: 10.1002/pon.3249. PMID: 23401292. Outcome 785. Gilliam MB, Madan-Swain A, Whelan K, et al. Social, demographic, and medical influences on physical activity in child and adolescent cancer survivors. J Pediatr Psychol. 2012 Mar;37(2):198-208. doi: 10.1093/jpepsy/jsr085. PMID: 22004885. Outcome B-71 786. Gilliam MB, Madan-Swain A, Whelan K, et al. Cognitive influences as mediators of family and peer support for pediatric cancer survivors' physical activity. Psychooncology. 2013 Jun;22(6):1361-8. doi: 10.1002/pon.3140. PMID: 22826210. Outcome 792. Godino L, Turchetti D, Jackson L, et al. Presymptomatic genetic testing for hereditary cancer in young adults: a survey of young adults and parents. Eur J Hum Genet. 2019 Feb;27(2):291-9. doi: 10.1038/s41431-018-0262-8. PMID: 30287899. Participants 787. Gilliam MB, Madan-Swain A, Whelan K, et al. Social, demographic, and medical influences on physical activity in child and adolescent cancer survivors. Journal of Pediatric Psychology. 2012;37(2):198-208. doi: 10.1093/jpepsy/jsr085. PMID: 104520564. Language: English. Entry Date: 20120727. Revision Date: 20200708. Publication Type: journal article. Duplicate 793. Goebel AM, Koustenis E, Rueckriegel SM, et al. Motor function in survivors of pediatric acute lymphoblastic leukemia treated with chemotherapy-only. Eur J Paediatr Neurol. 2019 Mar;23(2):304-16. doi: 10.1016/j.ejpn.2018.12.005. PMID: 30611625. Outcome 794. Gogan JL, Koocher GP, Fine WE, et al. Pediatric cancer survival and marriage: issues affecting adult adjustment. Am J Orthopsychiatry. 1979 Jul;49(3):423-30. doi: 10.1111/j.1939-0025.1979.tb02624.x. PMID: 157700. Outcome 788. Girard P, Auquier P, Barlogis V, et al. Symptomatic osteonecrosis in childhood leukemia survivors: prevalence, risk factors and impact on quality of life in adulthood. Haematologica. 2013 Jul;98(7):1089-97. doi: 10.3324/haematol.2012.081265. PMID: 23645686. Outcome 795. Goggins WB, Lo FF. Racial and ethnic disparities in survival of US children with acute lymphoblastic leukemia: evidence from the SEER database 1988-2008. Cancer Causes Control. 2012 May;23(5):737-43. doi: 10.1007/s10552-012-9943-8. PMID: 22450738. Intervention 789. Glaser AW, Abdul Rashid NF, U CL, et al. School behaviour and health status after central nervous system tumours in childhood. Br J Cancer. 1997;76(5):643-50. doi: 10.1038/bjc.1997.439. PMID: 9303365. Outcome 796. Gohar SF, Comito M, Price J, et al. Feasibility and parent satisfaction of a physical therapy intervention program for children with acute lymphoblastic leukemia in the first 6 months of medical treatment. Pediatr Blood Cancer. 2011 May;56(5):799804. doi: 10.1002/pbc.22713. PMID: 21370414. Participants 790. Glaser SL, Chang ET, Clarke CA, et al. Hodgkin lymphoma incidence in ethnic enclaves in California. Leuk Lymphoma. 2015;56(12):3270-80. doi: 10.3109/10428194.2015.1026815. PMID: 25899402. Participants 797. Goldsby RE, Liu Q, Nathan PC, et al. Late-occurring neurologic sequelae in adult survivors of childhood acute lymphoblastic leukemia: a report from the Childhood Cancer Survivor Study. J Clin Oncol. 2010 Jan 10;28(2):324-31. doi: 10.1200/jco.2009.22.5060. PMID: 19917844. Outcome 791. Gliwa C, Grewe ME, Rennie S, et al. Pediatric Leukemia, Psychosocial Dimensions of Cures, and Implications for HIV. Pediatrics. 2016 Apr;137(4). doi: 10.1542/peds.2015-3045. PMID: 26940986. Study design B-72 798. Goldstein AM, Stidd KC, Yang XR, et al. Pediatric melanoma in melanoma-prone families. Cancer. 2018 Sep 15;124(18):3715-23. doi: 10.1002/cncr.31641. PMID: 30207590. Outcome 803. Gordijn MS, van Litsenburg RR, Gemke RJ, et al. Sleep, fatigue, depression, and quality of life in survivors of childhood acute lymphoblastic leukemia. Pediatr Blood Cancer. 2013 Mar;60(3):479-85. doi: 10.1002/pbc.24261. PMID: 22887764. Outcome 799. Gonçalves de Sousa Almondes K, de Oliveira TF, Aparecida Siviero-Miachon A, et al. Selenium inadequacy is not associated with oxidative stress in child and adolescent acute lymphocytic leukemia survivors. Nutrition. 2014;30(5):563-8. doi: 10.1016/j.nut.2013.10.012. PMID: 95381794. Language: English. Entry Date: 20140409. Revision Date: 20140630. Publication Type: Article. Outcome 804. Gorman JR, Pan-Weisz TM, Drizin JH, et al. Revisiting the Reproductive Concerns After Cancer (RCAC) scale. Psychooncology. 2019 Jul;28(7):1544-50. doi: 10.1002/pon.5130. PMID: 31128074. Outcome 805. Gorman JR, Su HI, Roberts SC, et al. Experiencing reproductive concerns as a female cancer survivor is associated with depression. Cancer. 2015 Mar 15;121(6):935-42. doi: 10.1002/cncr.29133. PMID: 25377593. Participants 800. Gonzales F, Zheng Z, Yabroff KR. Trends in Financial Access to Prescription Drugs Among Cancer Survivors. J Natl Cancer Inst. 2018 Feb 1;110(2):216-9. doi: 10.1093/jnci/djx164. PMID: 28954298. Participants 806. Gorman JR, Whitcomb BW, Standridge D, et al. Adoption consideration and concerns among young adult female cancer survivors. J Cancer Surviv. 2017 Feb;11(1):149-57. doi: 10.1007/s11764-0160572-1. PMID: 27696249. Participants 801. Goodman A. Study reveals gaps in insurance coverage for adult survivors of childhood cancer. Oncology Times. 2006;28(6):24-7. doi: 10.1097/01.cot.0000294394.33300.45. PMID: 106348927. Language: English. Entry Date: 20061020. Revision Date: 20200624. Publication Type: Journal Article. Study design 807. Goswami S, Peipert BJ, Mongelli MN, et al. Clinical factors associated with worse quality-of-life scores in United States thyroid cancer survivors. Surgery. 2019 Jul;166(1):69-74. doi: 10.1016/j.surg.2019.01.034. PMID: 30898373. Participants 802. Gordijn MS, Gemke RJ, Bierings MB, et al. Adequate endocrine and cardiovascular response to social stress in survivors of childhood acute lymphoblastic leukemia. Psychoneuroendocrinology. 2013 Dec;38(12):3145-9. doi: 10.1016/j.psyneuen.2013.07.013. PMID: 23972944. Outcome 808. Götze H, Taubenheim S, Dietz A, et al. Comorbid conditions and health-related quality of life in long-term cancer survivorsassociations with demographic and medical characteristics. J Cancer Surviv. 2018 Oct;12(5):712-20. doi: 10.1007/s11764-0180708-6. PMID: 30097854. Participants B-73 809. Grabow D, Kaiser M, Hjorth L, et al. The PanCareSurFup cohort of 83,333 fiveyear survivors of childhood cancer: a cohort from 12 European countries. Eur J Epidemiol. 2018 Mar;33(3):335-49. doi: 10.1007/s10654-018-0370-3. PMID: 29497894. Study design 815. Gray WN, Szulczewski LJ, Regan SM, et al. Cultural influences in pediatric cancer from diagnosis to cure/end of life. J Pediatr Oncol Nurs. 2014 Sep-Oct;31(5):252-71. doi: 10.1177/1043454214529022. PMID: 25299000. Intervention 816. Green DM, Sklar CA, Boice JD, Jr., et al. Ovarian failure and reproductive outcomes after childhood cancer treatment: results from the Childhood Cancer Survivor Study. J Clin Oncol. 2009 May 10;27(14):2374-81. doi: 10.1200/jco.2008.21.1839. PMID: 19364956. Outcome 810. Grant J, Cranston A, Horsman J, et al. Health status and health-related quality of life in adolescent survivors of cancer in childhood. J Adolesc Health. 2006 May;38(5):504-10. doi: 10.1016/j.jadohealth.2005.08.002. PMID: 16635760. Outcome 811. Grant S, Carlsen K, Bidstrup PE, et al. Parental separation and pediatric cancer: a Danish cohort study. Pediatrics. 2012 May;129(5):e1187-91. doi: 10.1542/peds.2011-2657. PMID: 22492760. Outcome 817. Green DM, Zhu L, Wang M, et al. Effect of cranial irradiation on sperm concentration of adult survivors of childhood acute lymphoblastic leukemia: a report from the St. Jude Lifetime Cohort Study†. Hum Reprod. 2017 Jun 1;32(6):1192-201. doi: 10.1093/humrep/dex082. PMID: 28444255. Outcome 812. Grant SR, Walker GV, Guadagnolo BA, et al. Variation in insurance status by patient demographics and tumor site among nonelderly adult patients with cancer. Cancer. 2015 Jun 15;121(12):2020-8. doi: 10.1002/cncr.29120. PMID: 25917222. Participants 818. Greenberg HS, Kazak AE, Meadows AT. Psychologic functioning in 8- to 16year-old cancer survivors and their parents. J Pediatr. 1989 Mar;114(3):488-93. doi: 10.1016/s0022-3476(89)80581-5. PMID: 2921697. Outcome 813. Gratwohl A, Sureda A, Baldomero H, et al. Economics and Outcome After Hematopoietic Stem Cell Transplantation: A Retrospective Cohort Study. EBioMedicine. 2015 Dec;2(12):2101-9. doi: 10.1016/j.ebiom.2015.11.021. PMID: 26844291. Participants 819. Greenberg HS, Meadows AT. Psychosocial impact of cancer survival on school-age children and their parents. Journal of Psychosocial Oncology. 1992;9(4):43-56. PMID: 107492642. Language: English. Entry Date: 19921001. Revision Date: 20150712. Publication Type: Journal Article. Outcome 814. Gray RE, Doan BD, Shermer P, et al. Psychologic adaptation of survivors of childhood cancer. Cancer. 1992 Dec 1;70(11):2713-21. doi: 10.1002/10970142(19921201)70:11<2713::aidcncr2820701124>3.0.co;2-t. PMID: 1423202. Intervention B-74 820. Greenlee H, Shi Z, Sardo Molmenti CL, et al. Trends in Obesity Prevalence in Adults With a History of Cancer: Results From the US National Health Interview Survey, 1997 to 2014. J Clin Oncol. 2016 Sep 10;34(26):3133-40. doi: 10.1200/jco.2016.66.4391. PMID: 27458295. Participants 826. Grewal S, Merchant T, Reymond R, et al. Auditory late effects of childhood cancer therapy: a report from the Children's Oncology Group. Pediatrics. 2010 Apr;125(4):e938-50. doi: 10.1542/peds.2009-1597. PMID: 20194279. Study design 827. Griffith KC. Functional, affective, and adjustment characteristics of adolescent cancer survivors who pursued postsecondary education; 1998. Outcome 821. Greenlee H, Zaixing S, Molmenti CLS, et al. Trends in Obesity Prevalence in Adults With a History of Cancer: Results From the US National Health Interview Survey, 1997 to 2014. Journal of Clinical Oncology. 2016;34(26):3133-40. doi: 10.1200/JCO.2016.66.4391. PMID: 117972218. Language: English. Entry Date: 20180724. Revision Date: 20180929. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 828. Grigsby TJ, Kent EE, Montoya MJ, et al. Attitudes Toward Cancer Clinical Trial Participation in Young Adults with a History of Cancer and a Healthy College Student Sample: A Preliminary Investigation. Journal of Adolescent & Young Adult Oncology. 2014;3(1):20-7. doi: 10.1089/jayao.2013.0030. PMID: 94885598. Language: English. Entry Date: 20140905. Revision Date: 20170719. Publication Type: Article. Outcome 822. Greenwald HP, McCorkle R, Baumgartner K, et al. Quality of life and disparities among long-term cervical cancer survivors. J Cancer Surviv. 2014 Sep;8(3):419-26. doi: 10.1007/s11764-0140352-8. PMID: 24706363. Participants 829. Grinshpun A, Rottenberg Y. Unemployment following breast cancer diagnosis: A population-based study. Breast. 2019 Apr;44:24-8. doi: 10.1016/j.breast.2018.12.013. PMID: 30597404. Participants 823. Greenzang KA, Al-Sayegh H, Ma C, et al. Parental Considerations Regarding Cure and Late Effects for Children With Cancer. Pediatrics. 2020 May;145(5). doi: 10.1542/peds.2019-3552. PMID: 32284427. Intervention 830. Grinyer A. The late effects of mantle field radiotherapy: the information and support needs of women survivors of Hodgkin's disease. Eur J Oncol Nurs. 2010 Jul;14(3):183-9. doi: 10.1016/j.ejon.2009.12.006. PMID: 20080443. Participants 824. Greenzang KA, Dauti A, Mack JW. Parent perspectives on information about late effects of childhood cancer treatment and their role in initial treatment decision making. Pediatr Blood Cancer. 2018 Jun;65(6):e26978. doi: 10.1002/pbc.26978. PMID: 29380535. Participants 831. Group CsO. Mobile Health and Social Media Physical Activity Intervention Among Adolescent and Young Adult Childhood Cancer Survivors, the StepByStep StudyAdolescent and Young Adult Childhood Cancer Survivors. 2021. Outcome 825. Gregg G. I'm a Jesus girl: coping stories of Black American women diagnosed with breast cancer. J Relig Health. 2011 Dec;50(4):1040-53. doi: 10.1007/s10943010-9395-y. PMID: 20953712. Participants B-75 840. Gunn ME, Lähdesmäki T, Malila N, et al. Late morbidity in long-term survivors of childhood brain tumors: a nationwide registry-based study in Finland. Neuro Oncol. 2015 May;17(5):747-56. doi: 10.1093/neuonc/nou321. PMID: 25422316. Intervention 832. Group CsO, Institute NC. Study to Assess Compliance With Long-Term Mercaptopurine Treatment in Young Patients With Acute Lymphoblastic Leukemia in Remission. 2005. Intervention 833. Group CsO, Institute NC. Combination Chemotherapy in Treating Young Patients With Newly Diagnosed Acute Lymphoblastic Leukemia. 2005. Participants 841. Gunn ME, Malila N, Lähdesmäki T, et al. Late new morbidity in survivors of adolescent and young-adulthood brain tumors in Finland: a registry-based study. Neuro Oncol. 2015 Oct;17(10):1412-8. doi: 10.1093/neuonc/nov115. PMID: 26136494. Participants 834. Group CsO, Institute NC. Late Effects After Treatment in Patients With Previously Diagnosed High-Risk Neuroblastoma. 2017. Intervention 842. Gunn ME, Mört S, Arola M, et al. Quality of life and late-effects among childhood brain tumor survivors: a mixed method analysis. Psycho-Oncology. 2016;25(6):677-83. doi: 10.1002/pon.3995. PMID: 116102499. Language: English. Entry Date: 20170316. Revision Date: 20180712. Publication Type: journal article. Outcome 835. Group CsO, Institute NC. Web-Based Physical Activity Intervention in Improving Long Term Health in Children and Adolescents With Cancer. 2017. Outcome 836. Grubb WR, Neboori HJ, Diaz AD, et al. Racial and Ethnic Disparities in the Pediatric Hodgkin Lymphoma Population. Pediatr Blood Cancer. 2016 Mar;63(3):42835. doi: 10.1002/pbc.25802. PMID: 26524117. Outcome 837. Guha T, Malkin D. Inherited TP53 Mutations and the Li-Fraumeni Syndrome. Cold Spring Harb Perspect Med. 2017 Apr 3;7(4). doi: 10.1101/cshperspect.a026187. PMID: 28270529. Study design 843. Gunnes MW, Lie RT, Bjørge T, et al. Reproduction and marriage among male survivors of cancer in childhood, adolescence and young adulthood: a national cohort study. Br J Cancer. 2016 Feb 2;114(3):348-56. doi: 10.1038/bjc.2015.455. PMID: 26794280. Outcome 838. Güngör D, Nadaud P, Dreibelbis C, et al. Infant milk-feeding practices and childhood leukemia: a systematic review. Am J Clin Nutr. 2019 Mar 1;109(Suppl_7):757s-71s. doi: 10.1093/ajcn/nqy306. PMID: 30982871. Outcome 844. Gunnes MW, Lie RT, Bjørge T, et al. Economic independence in survivors of cancer diagnosed at a young age: A Norwegian national cohort study. Cancer. 2016 Dec 15;122(24):3873-82. doi: 10.1002/cncr.30253. PMID: 27518040. Outcome 839. Gunn K, Turnbull D, McWha JL, et al. Psychosocial service use: a qualitative exploration from the perspective of rural Australian cancer patients. Support Care Cancer. 2013 Sep;21(9):2547-55. doi: 10.1007/s00520-013-1812-9. PMID: 23636646. Participants 845. Gunst DC, Kaatsch P, Goldbeck L. Seeing the good in the bad: which factors are associated with posttraumatic growth in long-term survivors of adolescent cancer? Support Care Cancer. 2016 Nov;24(11):4607-15. doi: 10.1007/s00520016-3303-2. PMID: 27349524. Intervention B-76 846. Guo Y, Logan HL, Marks JG, et al. The relationships among individual and regional smoking, socioeconomic status, and oral and pharyngeal cancer survival: a mediation analysis. Cancer Med. 2015 Oct;4(10):1612-9. doi: 10.1002/cam4.509. PMID: 26250857. Participants 852. Gutiérrez-Colina AM, Lee JL, VanDellen M, et al. Family Functioning and Depressive Symptoms in Adolescent and Young Adult Cancer Survivors and Their Families: A Dyadic Analytic Approach. J Pediatr Psychol. 2017 Jan 1;42(1):19-27. doi: 10.1093/jpepsy/jsw041. PMID: 28173209. Outcome 847. Guo Y, McGorray SP, Riggs CE, Jr., et al. Racial disparity in oral and pharyngeal cancer in Florida in 1991-2008: mixed trends in stage of diagnosis. Community Dent Oral Epidemiol. 2013 Apr;41(2):110-9. doi: 10.1111/j.1600-0528.2012.00738.x. PMID: 22882581. Participants 853. Guy GP, Jr., Berkowitz Z, Ekwueme DU, et al. Annual economic burden of productivity losses among adult survivors of childhood cancers. Pediatrics. 2016 2016 Nov 01 2017-11-06;138(Suppl 1):S15-S21. doi: http://dx.doi.org/10.1542/peds.2015-4268D. PMID: 1960442463; 2017-13256-001. Duplicate 848. Gupta AA, Donen RM, Sung L, et al. Testicular Biopsy for Fertility Preservation in Prepubertal Boys with Cancer: Identifying Preferences for Procedure and Reactions to Disclosure Practices. J Urol. 2016 Jul;196(1):219-24. doi: 10.1016/j.juro.2016.02.2967. PMID: 26947434. Intervention 854. Guy GP, Jr., Yabroff KR, Ekwueme DU, et al. Estimating the health and economic burden of cancer among those diagnosed as adolescents and young adults. Health Aff (Millwood). 2014 Jun;33(6):1024-31. doi: 10.1377/hlthaff.2013.1425. PMID: 24889952. Participants 849. Gurney JG, Krull KR, Kadan-Lottick N, et al. Social outcomes in the Childhood Cancer Survivor Study cohort. J Clin Oncol. 2009 May 10;27(14):2390-5. doi: 10.1200/jco.2008.21.1458. PMID: 19224833. Duplicate 855. Guy Jr GP, Berkowitz Z, Ekwueme DU, et al. Annual Economic Burden of Productivity Losses Among Adult Survivors of Childhood Cancers. Pediatrics. 2016;138:S15-S21. doi: 10.1542/peds.20154268D. PMID: 119345528. Language: English. Entry Date: 20161114. Revision Date: 20161118. Publication Type: Article. Duplicate 850. Gurney JG, Krull KR, Kadan-Lottick N, et al. Social outcomes in the Childhood Cancer Survivor Study cohort. Journal of Clinical Oncology. 2009;27(14):2390-5. doi: 10.1200/JCO.2008.21.1458. PMID: 105535345. Language: English. Entry Date: 20090529. Revision Date: 20161116. Publication Type: journal article. Duplicate 856. Guy Jr GP, Yabroff KR, Ekwueme DU, et al. Estimating The Health And Economic Burden Of Cancer Among Those Diagnosed As Adolescents And Young Adults. Health Affairs. 2014;33(6):1024-31. doi: 10.1377/hlthaff.2013.1425. PMID: 96335074. Language: English. Entry Date: 20140610. Revision Date: 20140623. Publication Type: Article. Duplicate 851. Gustave Roussy CC, Grand Paris. Neurocognitive Risks in Children With Solid Tumors. 2014. Outcome B-77 862. Hahn EE, Wu YL, Munoz‐Plaza CE, et al. Use of recommended posttreatment services for adolescent and young adult survivors of Hodgkin lymphoma. Cancer (0008543X). 2019;125(9):1558-67. doi: 10.1002/cncr.31953. PMID: 135912217. Language: English. Entry Date: 20200119. Revision Date: 20200430. Publication Type: journal article. Participants 857. Gyorki DE, Muyco A, Kushner AL, et al. Cancer surgery in low-income countries: an unmet need. Arch Surg. 2012 Dec;147(12):1135-40. doi: 10.1001/archsurg.2012.1265. PMID: 23248017. Participants 858. Haase JE, Robb SL, Burns DS, et al. Adolescent/Young Adult Perspectives of a Therapeutic Music Video Intervention to Improve Resilience During Hematopoietic Stem Cell Transplant for Cancer. J Music Ther. 2020 Feb 25;57(1):3-33. doi: 10.1093/jmt/thz014. PMID: 31802124. Participants 863. Hall A, Lynagh M, Tzelepis F, et al. How can we help haematological cancer survivors cope with the changes they experience as a result of their cancer? Annals of Hematology. 2016;95(12):206576. doi: 10.1007/s00277-016-2806-8. PMID: 119202287. Language: English. Entry Date: 20170201. Revision Date: 20171201. Publication Type: journal article. Journal Subset: Biomedical. Participants 859. Haberthur K, Brennan K, Hoglund V, et al. NKG2D ligand expression in pediatric brain tumors. Cancer Biol Ther. 2016 Dec;17(12):1253-65. doi: 10.1080/15384047.2016.1250047. PMID: 27834580. Outcome 864. Hall AE, Boyes AW, Bowman J, et al. Young adult cancer survivors' psychosocial well-being: a cross-sectional study assessing quality of life, unmet needs, and health behaviors. Support Care Cancer. 2012 Jun;20(6):1333-41. doi: 10.1007/s00520011-1221-x. PMID: 21720746. Participants 860. Haghdoost AA, Baneshi MR, HajiMaghsoodi S, et al. Application of a Network Scale-up Method to Estimate the Size of Population of Breast, Ovarian/Cervical, Prostate and Bladder Cancers. Asian Pac J Cancer Prev. 2015;16(8):3273-7. doi: 10.7314/apjcp.2015.16.8.3273. PMID: 25921131. Participants 865. Haluska HB, Jessee PO, Nagy MC. Sources of social support: adolescents with cancer. Oncol Nurs Forum. 2002 Oct;29(9):1317-24. doi: 10.1188/02.Onf.1317-1324. PMID: 12370701. Outcome 861. Hagström J, Ander M, Cernvall M, et al. Heeding the psychological concerns of young cancer survivors: a single-arm feasibility trial of CBT and a cognitive behavioral conceptualization of distress. PeerJ. 2020;8:e8714. doi: 10.7717/peerj.8714. PMID: 32219023. Intervention 866. Halvorsen JF, Sund AM, Zeltzer L, et al. Health-related quality of life and psychological distress in young adult survivors of childhood cancer and their association with treatment, education, and demographic factors. Qual Life Res. 2018 Feb;27(2):529-37. doi: 10.1007/s11136-0171716-0. PMID: 29090422. Intervention B-78 867. Hammond C. Against a Singular Message of Distinctness: Challenging Dominant Representations of Adolescents and Young Adults in Oncology. Journal of Adolescent & Young Adult Oncology. 2017;6(1):45-9. doi: 10.1089/jayao.2016.0018. PMID: 121698437. Language: English. Entry Date: 20170901. Revision Date: 20190711. Publication Type: Article. Journal Subset: Biomedical. Study design 872. Harju E, Roser K, Dehler S, et al. Health-related quality of life in adolescent and young adult cancer survivors. Support Care Cancer. 2018 Sep;26(9):3099-110. doi: 10.1007/s00520-018-4151-z. PMID: 29572734. Participants 873. Hasan H, Howard F, Morgan SG, et al. Provincial Disparities of Growth Hormone Coverage for Young Adult Survivors of Paediatric Brain Tumours across Canada. Healthcare Policy. 2014;9(3):80-96. PMID: 95650938. Language: English. Entry Date: 20140423. Revision Date: 20191111. Publication Type: Article. Intervention 868. Hao Y, Smith T, Kaw C, et al. Residential Segregation and Disparities in Health-Related Quality of Life Among Black and White Cancer Survivors. Health Psychology. 2011;30(2):137-44. doi: 10.1037/a0022096. PMID: 104851400. Language: English. Entry Date: 20110323. Revision Date: 20200708. Publication Type: Journal Article. Participants 874. Hashmi SK, Lee SJ, Savani BN, et al. ASBMT Practice Guidelines Committee Survey on Long-Term Follow-Up Clinics for Hematopoietic Cell Transplant Survivors. Biol Blood Marrow Transplant. 2018 Jun;24(6):1119-24. doi: 10.1016/j.bbmt.2018.03.023. PMID: 29608957. Intervention 869. Hardy KK, Bonner MJ, Masi R, et al. Psychosocial functioning in parents of adult survivors of childhood cancer. J Pediatr Hematol Oncol. 2008 Feb;30(2):153-9. doi: 10.1097/MPH.0b013e31815814d9. PMID: 18376269. Participants 875. Hau EM, Caccia JN, Kasteler R, et al. Cardiovascular disease after childhood acute lymphoblastic leukaemia: a cohort study. Swiss Med Wkly. 2019 Feb 25;149:w20012. doi: 10.4414/smw.2019.20012. PMID: 30852834. Intervention 870. Hardy KK, Willard VW, Allen TM, et al. Working memory training in survivors of pediatric cancer: a randomized pilot study. Psychooncology. 2013 Aug;22(8):1856-65. doi: 10.1002/pon.3222. PMID: 23203754. Intervention 876. Hauken MA, Grue M, Dyregrov A. "It's been a life‐changing experience!" A qualitative study of young adult cancer survivors' experiences of the coexistence of negative and positive outcomes after cancer treatment. Scandinavian Journal of Psychology. 2019;60(6):577-84. doi: 10.1111/sjop.12572. PMID: 139621053. Language: English. Entry Date: 20191119. Revision Date: 20191120. Publication Type: Article. Outcome 871. Hardy KK, Willard VW, Watral MA, et al. Perceived social competency in children with brain tumors: comparison between children on and off therapy. J Pediatr Oncol Nurs. 2010 MayJun;27(3):156-63. doi: 10.1177/1043454209357918. PMID: 20147514. Outcome B-79 877. Hauken MA, Holsen I, Fismen E, et al. Participating in life again: a mixed-method study on a goal-orientated rehabilitation program for young adult cancer survivors. Cancer Nurs. 2014 Jul-Aug;37(4):E48-59. doi: 10.1097/NCC.0b013e31829a9add. PMID: 23860395. Participants 882. Heiney SP, Neuberg RW, Myers D, et al. The aftermath of bone marrow transplant for parents of pediatric patients: a posttraumatic stress disorder. Oncol Nurs Forum. 1994 Jun;21(5):843-7. PMID: 7937246. Intervention 883. Heinks K, Boekhoff S, Hoffmann A, et al. Quality of life and growth after childhood craniopharyngioma: results of the multinational trial KRANIOPHARYNGEOM 2007. Endocrine. 2018 Feb;59(2):364-72. doi: 10.1007/s12020-017-1489-9. PMID: 29230635. Participants 878. Hauken MA, Holsen I, Fismen E, et al. Participating in life again: A mixed-method study on a goal-orientated rehabilitation program for young adult cancer survivors. Cancer Nursing. 2014 Jul 2014 - Aug Jul 2014 - Aug 2014 2017-09-26;37(4):E48-E59. doi: http://dx.doi.org/10.1097/NCC.0b013e3182 9a9add. PMID: 1617243843; 2014-26177007. Duplicate 884. Henderson TO, Nathan PC. Childhood cancer survivors: considerations for surgeons in the transition from pediatric to adult care. Semin Pediatr Surg. 2015 Apr;24(2):93-9. doi: 10.1053/j.sempedsurg.2015.01.007. PMID: 25770371. Outcome 879. Havercamp SM, Scandlin D, Roth M. Health disparities among adults with developmental disabilities, adults with other disabilities, and adults not reporting disability in North Carolina. Public Health Rep. 2004 Jul-Aug;119(4):418-26. doi: 10.1016/j.phr.2004.05.006. PMID: 15219799. Participants 885. Hendrickson KC, Rimar J. Patterns of hospital resource utilization of children with leukemia and CNS tumors: a comparison of children who survive and those who die within 3 years of diagnosis. Nursing Economic$. 2009;27(1):35-44. PMID: 105460554. Language: English. Entry Date: 20090410. Revision Date: 20150818. Publication Type: Journal Article. Outcome 880. Head KJ, Iannarino NT. "It Changed Our Outlook on How We Want to Live": Cancer as a Transformative Health Experience for Young Adult Survivors and Their Family Members. Qual Health Res. 2019 Feb;29(3):404-17. doi: 10.1177/1049732318800674. PMID: 30234430. Participants 886. Henneghan A, Phillips C, Courtney A. We are different: Young adult survivors' experience of breast cancer. Breast Journal. 2018;24(6):1126-8. doi: 10.1111/tbj.13128. PMID: 133048163. Language: English. Entry Date: 20181120. Revision Date: 20191101. Publication Type: Article. Participants 881. Health HSoP, Health NIoM, Disparities H. MassCONECT (Massachusetts Community Networks to Eliminate Cancer Disparities Through Education) 4 Kids: Promoting Smoke-free Homes. 2010. Outcome B-80 892. Hill J, Watanabe-Galloway S, Shope R. Gaps in Perceptions of Breast Cancer Disparities among Patients, Community Members, and Providers: Educational Intervention Opportunities. Journal of National Black Nurses Association. 2016;27(1):45-52. PMID: 117396725. Language: English. Entry Date: 20160929. Revision Date: 20161003. Publication Type: Article. Participants 887. Henneghan A, Stuifbergen A, Becker H, et al. Modifiable correlates of perceived cognitive function in breast cancer survivors up to 10 years after chemotherapy completion. J Cancer Surviv. 2018 Apr;12(2):224-33. doi: 10.1007/s11764-0170661-9. PMID: 29116555. Participants 888. Herndon JE, 2nd, Kornblith AB, Holland JC, et al. Effect of socioeconomic status as measured by education level on survival in breast cancer clinical trials. Psycho-Oncology. 2013;22(2):315-23. doi: 10.1002/pon.2094. PMID: 104306061. Language: English. Entry Date: 20130816. Revision Date: 20200708. Publication Type: journal article. Participants 893. Hill JA, Gedleh A, Lee S, et al. Knowledge, experiences and attitudes concerning genetics among retinoblastoma survivors and parents. Eur J Hum Genet. 2018 Apr;26(4):505-17. doi: 10.1038/s41431-017-0027-9. PMID: 29379195. Participants 889. Heutte N, Flechtner HH, Mounier N, et al. Quality of life after successful treatment of early-stage Hodgkin's lymphoma: 10-year follow-up of the EORTC-GELA H8 randomised controlled trial. Lancet Oncol. 2009 Dec;10(12):1160-70. doi: 10.1016/s1470-2045(09)70258-x. PMID: 19828373. Participants 894. Hiyoshi A, Fall K, Bergh C, et al. Comorbidity trajectories in working age cancer survivors: A national study of Swedish men. Cancer Epidemiol. 2017 Jun;48:48-55. doi: 10.1016/j.canep.2017.03.001. PMID: 28365446. Participants 890. Hile S, Erickson SJ, Agee B, et al. Parental stress predicts functional outcome in pediatric cancer survivors. Psychooncology. 2014 Oct;23(10):1157-64. doi: 10.1002/pon.3543. PMID: 24817624. Participants 895. Hobbie W. Pediatric Cancer Survivors Require Additional Care and Monitoring. ONS Voice. 2020;35(7):22-. Study design 896. Hobbie WL, Ogle S, Reilly M, et al. Adolescent and Young Adult Survivors of Childhood Brain Tumors: Life After Treatment in Their Own Words. Cancer Nurs. 2016 Mar-Apr;39(2):134-43. doi: 10.1097/ncc.0000000000000266. PMID: 25950583. Outcome 891. Hill J, Kondryn H, Mackie E, et al. Adult psychosocial functioning following childhood cancer: the different roles of sons' and daughters' relationships with their fathers and mothers. J Child Psychol Psychiatry. 2003 Jul;44(5):752-62. doi: 10.1111/1469-7610.00161. PMID: 12831119. Intervention 897. Hobbie WL, Ogle S, Reilly M, et al. Adolescent and Young Adult Survivors of Childhood Brain Tumors. Cancer Nursing. 2016;39(2):134-43. doi: 10.1097/NCC.0000000000000266. PMID: 113515844. Language: English. Entry Date: 20180329. Revision Date: 20190212. Publication Type: Article. Duplicate B-81 898. Hobbie WL, Stuber M, Meeske K, et al. Symptoms of posttraumatic stress in young adult survivors of childhood cancer. J Clin Oncol. 2000 Dec 15;18(24):4060-6. doi: 10.1200/JCO.2000.18.24.4060. PMID: 11118467. Intervention 904. Hoekstra-Weebers JE, Heuvel F, Jaspers JP, et al. Brief report: an intervention program for parents of pediatric cancer patients: a randomized controlled trial. J Pediatr Psychol. 1998 Jun;23(3):20714. doi: 10.1093/jpepsy/23.3.207. PMID: 9640900. Participants 899. Hocking MC, Hobbie WL, Deatrick JA, et al. Family Functioning Mediates the Association Between Neurocognitive Functioning and Health-Related Quality of Life in Young Adult Survivors of Childhood Brain Tumors. J Adolesc Young Adult Oncol. 2015 Mar;4(1):18-25. doi: 10.1089/jayao.2014.0022. PMID: 25852971. Outcome 905. Hohmann C, Borgmann-Staudt A, Rendtorff R, et al. Patient counselling on the risk of infertility and its impact on childhood cancer survivors: Results from a national survey. Journal of Psychosocial Oncology. 2011 May 2011 2017-09-25;29(3):274-85. doi: http://dx.doi.org/10.1080/07347332.2011.56 3344. PMID: 881000849; 2011-10508-004. Intervention 900. Hocking MC, Hobbie WL, Deatrick JA, et al. Neurocognitive and family functioning and quality of life among young adult survivors of childhood brain tumors. Clin Neuropsychol. 2011 Aug;25(6):942-62. doi: 10.1080/13854046.2011.580284. PMID: 21722062. Study design 906. Holland AA, Colaluca B, Bailey L, et al. Impact of attention on social functioning in pediatric medulloblastoma survivors. Pediatr Hematol Oncol. 2018 Feb;35(1):7689. doi: 10.1080/08880018.2018.1440333. PMID: 29652554. Outcome 901. Hocking MC, McCurdy M, Turner E, et al. Social competence in pediatric brain tumor survivors: application of a model from social neuroscience and developmental psychology. Pediatr Blood Cancer. 2015 Mar;62(3):375-84. doi: 10.1002/pbc.25300. PMID: 25382825. Study design 907. Holland BK, Foster JD, Louria DB. Cervical cancer and health care resources in Newark, New Jersey, 1970 to 1988. American Journal of Public Health. 1993;83(1):45-8. doi: 10.2105/AJPH.83.1.45. PMID: 107464583. Language: English. Entry Date: 19930501. Revision Date: 20200708. Publication Type: Journal Article. Participants 902. Hocking MC, Noll RB, Kazak AE, et al. Friendships in Pediatric Brain Tumor Survivors and Non-Central Nervous System Tumor Survivors. J Pediatr Psychol. 2020 Mar 1;45(2):194-202. doi: 10.1093/jpepsy/jsz101. PMID: 31925436. Outcome 908. Holland LR, Walker R, Henney R, et al. Adolescents and Young Adults with Cancer: Barriers in Access to Psychosocial Support. J Adolesc Young Adult Oncol. 2020 Jun 2. doi: 10.1089/jayao.2020.0027. PMID: 32486879. Participants 903. Hocking MC, Quast LF, Brodsky C, et al. Caregiver perspectives on the social competence of pediatric brain tumor survivors. Support Care Cancer. 2017 Dec;25(12):3749-57. doi: 10.1007/s00520017-3805-6. PMID: 28689249. Participants B-82 915. Holmqvist AS, Wiebe T, Hjorth L, et al. Young age at diagnosis is a risk factor for negative late socio-economic effects after acute lymphoblastic leukemia in childhood. Pediatr Blood Cancer. 2010 Oct;55(4):698707. doi: 10.1002/pbc.22670. PMID: 20589625. Intervention 909. Holleczek B, Brenner H. Trends of population-based breast cancer survival in Germany and the US: decreasing discrepancies, but persistent survival gap of elderly patients in Germany. BMC Cancer. 2012 Jul 28;12:317. doi: 10.1186/14712407-12-317. PMID: 22838641. Participants 916. Hong SS, Park HR. [Predictors of Resilience in Adolescents with Leukemia]. J Korean Acad Nurs. 2015 Aug;45(4):595603. doi: 10.4040/jkan.2015.45.4.595. PMID: 26364534. Not English 910. Hollen PJ, Hobbie WL, Finley SM. Testing the effects of a decision-making and risk-reduction program for cancer-surviving adolescents. Oncol Nurs Forum. 1999 Oct;26(9):1475-86. PMID: 11064879. Intervention 917. Hong SS, Park HR, Kim KS, et al. [Late effects, social adjustment, and quality of life in adolescent survivors of childhood leukemia]. J Korean Acad Nurs. 2014 Feb;44(1):55-63. doi: 10.4040/jkan.2014.44.1.55. PMID: 24637286. Not English 911. Hollen PJ, Tyc VL, Shannon SV, et al. Factors related to decision making and substance use in adolescent survivors of childhood cancer: a presenting clinical profile. J Cancer Surviv. 2013 Sep;7(3):50010. doi: 10.1007/s11764-013-0287-5. PMID: 23712611. Intervention 918. Hong Sung S, Park Ho R, Kim Kwang S, et al. Late Effects, Social Adjustment, and Quality of Life in Adolescent Survivors of Childhood Leukemia. Journal of Korean Academy of Nursing. 2014;44(1):55-63. doi: 10.4040/jkan.2014.44.1.55. PMID: 95099856. Language: English. Entry Date: 20140401. Revision Date: 20140402. Publication Type: Article. Duplicate 912. Holmes GE. Long-term survival in childhood and adolescent cancer. Fivecenter study--U.S.A. Ann N Y Acad Sci. 1997 Sep 17;824:180-9. doi: 10.1111/j.1749-6632.1997.tb46220.x. PMID: 9382442. Outcome 913. Holmes HA, Holmes FF. After ten years, what are the handicaps and life styles of children treated for cancer? An examination of the present status of 124 such survivors. Clin Pediatr (Phila). 1975 Sep;14(9):819-23. doi: 10.1177/000992287501400906. PMID: 1157434. Intervention 919. Hopkins SKCCCaJ. Group Intervention to Increase Physical Activity in Childhood Cancer Survivors. 2013. Outcome 920. Hopmeyer E, Werk A. A comparative study of family bereavement groups. Death Stud. 1994 May-Jun;18(3):243-56. doi: 10.1080/07481189408252657. PMID: 10135136. Participants 914. Holmes JL, Opara F, Hossain J. A Five-Year Breast Cancer-Specific Survival Disadvantage of African American Women. African Journal of Reproductive Health. 2010;14(3):195-200. PMID: 59680949. Language: English. Entry Date: 20110511. Revision Date: 20180530. Publication Type: Article. Participants B-83 929. Hovén EI, Lannering B, Gustafsson G, et al. Persistent impact of illness on families of adult survivors of childhood central nervous system tumors: a population-based cohort study. Psychooncology. 2013 Jan;22(1):160-7. doi: 10.1002/pon.2067. PMID: 21948459. Intervention 921. Hornquist L, Rickardsson J, Lannering B, et al. Altered self-perception in adult survivors treated for a CNS tumor in childhood or adolescence: population-based outcomes compared with the general population. Neuro Oncol. 2015 May;17(5):733-40. doi: 10.1093/neuonc/nou289. PMID: 25332406. Outcome 930. Howard A, Goddard K, Tan de Bibiana J, et al. Adult childhood cancer survivors' narratives of managing their health: the unexpected and the unresolved. Journal of Cancer Survivorship. 2016;10(4):711-25. doi: 10.1007/s11764016-0517-8. PMID: 116397360. Language: English. Entry Date: 20170430. Revision Date: 20180515. Publication Type: journal article. Participants 922. Hoskinson KR, Wolfe KR, Yeates KO, et al. Predicting changes in adaptive functioning and behavioral adjustment following treatment for a pediatric brain tumor: A report from the Brain Radiation Investigative Study Consortium. Psychooncology. 2018 Jan;27(1):178-86. doi: 10.1002/pon.4394. PMID: 28171696. Outcome 931. Howard AF, Hasan H, Bobinski MA, et al. Parents' perspectives of life challenges experienced by long-term paediatric brain tumour survivors: work and finances, daily and social functioning, and legal difficulties. J Cancer Surviv. 2014 Sep;8(3):372-83. doi: 10.1007/s11764-013-0331-5. PMID: 24563168. Outcome 923. Hospital MG. Patient Navigation to Improve Patient-Centered Cancer Care. 2017. Participants 924. Hospital SJCsR. Social Experiences of Adolescents and Young Adults With Cancer. 2020. Outcome 925. Hospital SJCsR, Genentech I, Institute NC. A Clinical and Molecular Risk-Directed Therapy for Newly Diagnosed Medulloblastoma. 2013. Outcome 932. Howard AF, Tan de Bibiana J, Smillie K, et al. Trajectories of social isolation in adult survivors of childhood cancer. J Cancer Surviv. 2014 Mar;8(1):80-93. doi: 10.1007/s11764-013-0321-7. PMID: 24202698. Intervention 926. Hospital SJCsR, Health NIo, Health EKSNIoC, et al. Sperm Banking Among Adolescents Newly Diagnosed With Cancer: Development of a Profiling and Referral Tool. 2010. Outcome 933. Howarth RA, Ashford JM, Merchant TE, et al. The utility of parent report in the assessment of working memory among childhood brain tumor survivors. J Int Neuropsychol Soc. 2013 Apr;19(4):380-9. doi: 10.1017/s1355617712001567. PMID: 23351399. Participants 927. Hospital SJCsR, Institute NC. Stress, Adjustment And Growth In Children With Cancer And Their Parents. 2009. Outcome 928. Hovén E, Lannering B, Gustafsson G, et al. Information needs of survivors and families after childhood CNS tumor treatment: a population-based study. Acta Oncol. 2018 May;57(5):649-57. doi: 10.1080/0284186x.2017.1406136. PMID: 29191069. Intervention B-84 934. Howell CR, Krull KR, Partin RE, et al. Randomized web-based physical activity intervention in adolescent survivors of childhood cancer. Pediatr Blood Cancer. 2018 Aug;65(8):e27216. doi: 10.1002/pbc.27216. PMID: 29722481. Intervention 940. Hsieh MH, Meng MV, Walsh TJ, et al. Increasing incidence of neuroblastoma and potentially higher associated mortality of children from nonmetropolitan areas: analysis of the surveillance, epidemiology, and end results database. J Pediatr Hematol Oncol. 2009 Dec;31(12):942-6. doi: 10.1097/MPH.0b013e3181bcc809. PMID: 19875967. Outcome 935. Howell CR, Wilson CL, Yasui Y, et al. Neighborhood effect and obesity in adult survivors of pediatric cancer: A report from the St. Jude lifetime cohort study. Int J Cancer. 2020 Jul 15;147(2):338-49. doi: 10.1002/ijc.32725. PMID: 31600422. Intervention 941. Huang IC, Bhakta N, Brinkman TM, et al. Determinants and Consequences of Financial Hardship Among Adult Survivors of Childhood Cancer: A Report From the St. Jude Lifetime Cohort Study. J Natl Cancer Inst. 2019 Feb 1;111(2):189-200. doi: 10.1093/jnci/djy120. PMID: 30085213. Intervention 936. Howell D, Hack TF, Oliver TK, et al. Models of care for post-treatment follow-up of adult cancer survivors: a systematic review and quality appraisal of the evidence. J Cancer Surviv. 2012 Dec;6(4):359-71. doi: 10.1007/s11764-012-0232-z. PMID: 22777364. Participants 942. Huang IC, Brinkman TM, Mullins L, et al. Child symptoms, parent behaviors, and family strain in long-term survivors of childhood acute lymphoblastic leukemia. Psychooncology. 2018 Aug;27(8):2031-8. doi: 10.1002/pon.4769. PMID: 29772082. Outcome 937. Hoyt M, Gamarel K, Saigal C, et al. Goal Navigation, Approach-Oriented Coping, and Adjustment in Young Men with Testicular Cancer. Annals of Behavioral Medicine. 2016;50(4):572-81. doi: 10.1007/s12160-016-9785-9. PMID: 116622324. Language: English. Entry Date: 20171222. Revision Date: 20190515. Publication Type: journal article. Outcome 943. Huang IC, Jones CM, Brinkman TM, et al. Development of the functional social network index for adolescent and young adult cancer survivors. Cancer. 2018 May 15;124(10):2220-7. doi: 10.1002/cncr.31278. PMID: 29517807. Outcome 938. Hoyt MA, Cano SJ, Saigal CS, et al. Health-related quality of life in young men with testicular cancer: validation of the Cancer Assessment for Young Adults (CAYA). J Cancer Surviv. 2013 Dec;7(4):630-40. doi: 10.1007/s11764-0130302-x. PMID: 23918454. Study design 944. Huang T, Ducore JM. Children and adolescents with ALL are taller than expected at diagnosis. J Pediatr Hematol Oncol. 2014 Jan;36(1):16-21. doi: 10.1097/MPH.0b013e31829bcb10. PMID: 23799523. Outcome 945. Hubbeling HG, Rosenberg SM, González-Robledo MC, et al. Psychosocial needs of young breast cancer survivors in Mexico City, Mexico. PLoS One. 2018;13(5):e0197931. doi: 10.1371/journal.pone.0197931. PMID: 29787612. Participants 939. Hsiao CC, Chiou SS, Hsu HT, et al. Adverse health outcomes and health concerns among survivors of various childhood cancers: Perspectives from mothers. Eur J Cancer Care (Engl). 2018 Nov;27(6):e12661. doi: 10.1111/ecc.12661. PMID: 28169481. Participants B-85 946. Hudson MM, Landier W, Ganz PA. Impact of survivorship-based research on defining clinical care guidelines. Cancer Epidemiol Biomarkers Prev. 2011 Oct;20(10):2085-92. doi: 10.1158/10559965.Epi-11-0642. PMID: 21980016. Outcome 951. Hughes MC, Hannon PA, Harris JR, et al. Health behaviors of employed and insured adults in the United States, 20042005. Am J Health Promot. 2010 MayJun;24(5):315-23. doi: 10.4278/ajhp.080603-QUAN-77. PMID: 20465145. Participants 947. Hudson MM, Mertens AC, Yasui Y, et al. Health status of adult long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Jama. 2003 Sep 24;290(12):1583-92. doi: 10.1001/jama.290.12.1583. PMID: 14506117. Outcome 952. Hulvat MC, Jeruss JS. Maintaining fertility in young women with breast cancer. Curr Treat Options Oncol. 2009 Dec;10(56):308-17. doi: 10.1007/s11864-010-0116-2. PMID: 20238254. Study design 953. Hummel YM, Hooimeijer HL, Zwart N, et al. Long-term cardiac abnormalities after cranial radiotherapy in childhood cancer survivors. Acta Oncol. 2015 Apr;54(4):515-21. doi: 10.3109/0284186x.2014.969845. PMID: 25333757. Outcome 948. Hudson MM, Oeffinger KC, Jones K, et al. Age-dependent changes in health status in the Childhood Cancer Survivor cohort. J Clin Oncol. 2015 Feb 10;33(5):479-91. doi: 10.1200/jco.2014.57.4863. PMID: 25547510. Outcome 954. Humpl T, Fritsche M, Bartels U, et al. Survivors of childhood cancer for more than twenty years. Acta Oncol. 2001;40(1):44-9. doi: 10.1080/028418601750071046. PMID: 11321659. Outcome 949. Hudson MM, Tyc VL, Cremer LK, et al. Patient satisfaction after limb-sparing surgery and amputation for pediatric malignant bone tumors... including commentary by Walker CL. Journal of Pediatric Oncology Nursing. 1998;15(2):6071. PMID: 107270898. Language: English. Entry Date: 19980701. Revision Date: 20150819. Publication Type: Journal Article. Outcome 955. Husson O, Prins JB, Kaal SE, et al. Adolescent and young adult (AYA) lymphoma survivors report lower healthrelated quality of life compared to a normative population: results from the PROFILES registry. Acta Oncol. 2017 Feb;56(2):288-94. doi: 10.1080/0284186x.2016.1267404. PMID: 28077017. Participants 950. Hugh-Yeun K, Kumar D, Moghaddamjou A, et al. Young adult cancer survivors' follow-up care expectations of oncologists and primary care physicians. J Cancer Surviv. 2017 Jun;11(3):295-301. doi: 10.1007/s11764-016-0587-7. PMID: 28039569. Participants 956. Husson O, Zebrack B, Block R, et al. Personality Traits and Health-Related Quality of Life Among Adolescent and Young Adult Cancer Patients: The Role of Psychological Distress. J Adolesc Young Adult Oncol. 2017 Jun;6(2):358-62. doi: 10.1089/jayao.2016.0083. PMID: 28072554. Outcome B-86 957. Husson O, Zebrack BJ. Perceived impact of cancer among adolescents and young adults: Relationship with healthrelated quality of life and distress. Psychooncology. 2017 Sep;26(9):1307-15. doi: 10.1002/pon.4300. PMID: 27862627. Participants 962. Iannarino NT, Scott AM, Shaunfield SL. Normative Social Support in Young Adult Cancer Survivors. Qual Health Res. 2017 Jan;27(2):271-84. doi: 10.1177/1049732315627645. PMID: 26825483. Outcome 963. İnce D, Demirağ B, Karapınar TH, et al. Assessment of sleep in pediatric cancer patients. Turk J Pediatr. 2017;59(4):379-86. doi: 10.24953/turkjped.2017.04.003. PMID: 29624217. Intervention 958. Husson O, Zebrack BJ, Aguilar C, et al. Cancer in adolescents and young adults: Who remains at risk of poor social functioning over time? Cancer. 2017 Jul 15;123(14):2743-51. doi: 10.1002/cncr.30656. PMID: 28319256. Participants 964. Infante-Rivard C. Hospital or population controls for case-control studies of severe childhood diseases? Am J Epidemiol. 2003 Jan 15;157(2):176-82. doi: 10.1093/aje/kwf174. PMID: 12522025. Outcome 959. Husson O, Zebrack BJ, Aguilar C, et al. Cancer in adolescents and young adults: Who remains at risk of poor social functioning over time? Cancer (0008543X). 2017;123(14):2743-51. doi: 10.1002/cncr.30656. PMID: 123928443. Language: English. Entry Date: 20180727. Revision Date: 20180810. Publication Type: journal article. Duplicate 965. Ishida Y, Higaki T, Hayashi M, et al. Factors associated with the specific worries of childhood cancer survivors: Crosssectional survey in Japan. Pediatr Int. 2016 May;58(5):331-7. doi: 10.1111/ped.12940. PMID: 26860529. Intervention 960. Hutchinson AD, Pfeiffer SM, Wilson C. Cancer-related cognitive impairment in children. Curr Opin Support Palliat Care. 2017 Mar;11(1):70-5. doi: 10.1097/spc.0000000000000258. PMID: 28009650. Intervention 966. Ishida Y, Honda M, Kamibeppu K, et al. Social outcomes and quality of life of childhood cancer survivors in Japan: a crosssectional study on marriage, education, employment and health-related QOL (SF36). Int J Hematol. 2011 May;93(5):633-44. doi: 10.1007/s12185-011-0843-6. PMID: 21519844. Outcome 961. Hyewon S. Physical and Psychological Late Effects on Health-Related Quality of Life in Long-Term Survivors of Childhood Cancer. Physical & Psychological Late Effects on Health-Related Quality of Life in Long-Term Survivors of Childhood Cancer. 2017:1-. PMID: 129592979. Language: English. Entry Date: 20180516. Revision Date: 20180516. Publication Type: Article. Intervention 967. Ishida Y, Honda M, Ozono S, et al. Late effects and quality of life of childhood cancer survivors: part 1. Impact of stem cell transplantation. Int J Hematol. 2010 Jun;91(5):865-76. doi: 10.1007/s12185-0100584-y. PMID: 20467848. Intervention 968. Ishida Y, Sakamoto N, Kamibeppu K, et al. Late effects and quality of life of childhood cancer survivors: Part 2. Impact of radiotherapy. Int J Hematol. 2010 Jul;92(1):95-104. doi: 10.1007/s12185-0100611-z. PMID: 20577841. Outcome B-87 975. Jacobson LA, Paré-Blagoev EJ, Ruble K. Barriers to Schooling in Survivorship: The Role of Neuropsychological Assessment. JCO Oncol Pract. 2020 Oct 2:Op2000549. doi: 10.1200/op.20.00549. PMID: 33006913. Intervention 969. Ito Y, Okuyama T, Ito Y, et al. Good death for children with cancer: a qualitative study. Jpn J Clin Oncol. 2015 Apr;45(4):349-55. doi: 10.1093/jjco/hyu223. PMID: 25628351. Outcome 970. Jabson J, Jabson JM. Treatment summaries, follow-up care instructions, and patient navigation: could they be combined to improve cancer survivor's receipt of follow-up care? Journal of Cancer Survivorship. 2015;9(4):692-8. doi: 10.1007/s11764-015-0444-0. PMID: 110728461. Language: English. Entry Date: 20180802. Revision Date: 20180802. Publication Type: journal article. Duplicate 976. Jacola LM, Edelstein K, Liu W, et al. Cognitive, behaviour, and academic functioning in adolescent and young adult survivors of childhood acute lymphoblastic leukaemia: A report from the Childhood Cancer Survivor Study. The Lancet Psychiatry. 2016 Oct 2016 2017-09-26;3(10):965-72. doi: http://dx.doi.org/10.1016/S22150366(16)30283-8. PMID: 1821806562; 2016-45076-001. Duplicate 971. Jabson JM. Treatment summaries, follow-up care instructions, and patient navigation: could they be combined to improve cancer survivor's receipt of followup care? J Cancer Surviv. 2015 Dec;9(4):692-8. doi: 10.1007/s11764-0150444-0. PMID: 25764272. Participants 977. Jacola LM, Edelstein K, Liu W, et al. Cognitive, behaviour, and academic functioning in adolescent and young adult survivors of childhood acute lymphoblastic leukaemia: a report from the Childhood Cancer Survivor Study. Lancet Psychiatry. 2016 Oct;3(10):965-72. doi: 10.1016/s22150366(16)30283-8. PMID: 27639661. Intervention 972. Jabson JM, Bowen DJ. Cancer treatment summaries and follow-up care instructions: which cancer survivors receive them? Cancer Causes Control. 2013 May;24(5):861-71. doi: 10.1007/s10552013-0163-7. PMID: 23385334. Participants 978. Jaehee Y, Zebrack B, Min Ah K, et al. Posttraumatic Growth Outcomes and Their Correlates Among Young Adult Survivors of Childhood Cancer. Journal of Pediatric Psychology. 2015;40(9):981-91. doi: 10.1093/jpepsy/jsv075. PMID: 109970656. Language: English. Entry Date: 20160526. Revision Date: 20180623. Publication Type: journal article. Outcome 973. Jacobs AJ, Lindholm EB, Levy CF, et al. Racial and ethnic disparities in treatment and survival of pediatric sarcoma. J Surg Res. 2017 Nov;219:43-9. doi: 10.1016/j.jss.2017.05.031. PMID: 29078908. Intervention 974. Jacobsen PB. Assessment of fatigue in cancer patients. J Natl Cancer Inst Monogr. 2004(32):93-7. doi: 10.1093/jncimonographs/lgh010. PMID: 15263047. Outcome B-88 979. Janin MMH, Ellis SJ, Wakefield CE, et al. Talking About Cancer Among Adolescent and Young Adult Cancer Patients and Survivors: A Systematic Review. Journal of Adolescent & Young Adult Oncology. 2018;7(5):515-24. doi: 10.1089/jayao.2017.0131. PMID: 132245202. Language: English. Entry Date: 20181016. Revision Date: 20191001. Publication Type: Article. Outcome 984. Jervaeus A, af Sandeberg M, Johansson E, et al. Survivors of childhood cancer report high levels of independence five years after diagnosis. J Pediatr Oncol Nurs. 2014 Sep-Oct;31(5):245-51. doi: 10.1177/1043454214524026. PMID: 25298999. Intervention 985. Jervaeus A, Kottorp A, Wettergren L. Psychometric properties of KIDSCREEN-27 among childhood cancer survivors and age matched peers: a Rasch analysis. Health Qual Life Outcomes. 2013 Jun 13;11:96. doi: 10.1186/1477-7525-11-96. PMID: 23764269. Study design 980. Janson C, Leisenring W, Cox C, et al. Predictors of marriage and divorce in adult survivors of childhood cancers: a report from the Childhood Cancer Survivor Study. Cancer Epidemiol Biomarkers Prev. 2009 Oct;18(10):2626-35. doi: 10.1158/10559965.Epi-08-0959. PMID: 19815636. Outcome 986. Jessop E. Researchers Team up to Tackle Ethnic Disparity in Childhood Cancers. August 7, 2017. https://www.stbaldricks.org/blog/post/resear chers-team-up-to-tackle-ethnic-disparity-inchildhood-cancers. Outcome 981. Jayachandran D, Rundell AE, Hannemann RE, et al. Optimal chemotherapy for leukemia: a model-based strategy for individualized treatment. PLoS One. 2014;9(10):e109623. doi: 10.1371/journal.pone.0109623. PMID: 25310465. Outcome 987. Jiang C, Wang H, Wang Q, et al. Prevalence of Chronic Pain and HighImpact Chronic Pain in Cancer Survivors in the United States. JAMA Oncology. 2019;5(8):1224-6. doi: 10.1001/jamaoncol.2019.1439. PMID: 137994054. Language: English. Entry Date: 20190814. Revision Date: 20190823. Publication Type: Article. Participants 982. Jensen-Johansen MB, Christensen S, Valdimarsdottir H, et al. Effects of an expressive writing intervention on cancerrelated distress in Danish breast cancer survivors - results from a nationwide randomized clinical trial. Psycho-Oncology. 2013;22(7):1492-500. doi: 10.1002/pon.3193. PMID: 104080602. Language: English. Entry Date: 20140321. Revision Date: 20200708. Publication Type: Journal Article. Participants 988. Jiang S. The role of social media use in improving cancer survivors' emotional wellbeing: a moderated mediation study. Journal of Cancer Survivorship. 2017;11(3):386-92. doi: 10.1007/s11764-017-0595-2. PMID: 122858749. Language: English. Entry Date: 20180723. Revision Date: 20180723. Publication Type: journal article. Participants 983. Jeon M, II, Yoo Y, Kim S, et al. Post‐ traumatic growth in survivors of allogeneic hematopoietic stem cell transplantation. Psycho-Oncology. 2015 Aug 2015 989. Jin J. Encountering darkness: grieving in Korean adolescents with cancer: University of California, San Francisco; 2009. Outcome 2019-06-13;24(8):871-7. doi: http://dx.doi.org/10.1002/pon.3724. PMID: 1715674219; 2015-34283-003. Outcome B-89 990. Jinguji S, Yoshimura J, Nishiyama K, et al. Factors affecting functional outcomes in long-term survivors of intracranial germinomas: a 20-year experience in a single institution. J Neurosurg Pediatr. 2013 Apr;11(4):454-63. doi: 10.3171/2012.12.Peds12336. PMID: 23373627. Participants 995. Johnson AC, Mays D, Rehberg K, et al. Knowledge and Beliefs About Oncofertility and Associations with Quality of Life Among Adolescent and Young Adult Survivors of Pediatric Cancer. J Adolesc Young Adult Oncol. 2018 Aug;7(4):424-9. doi: 10.1089/jayao.2018.0014. PMID: 29672191. Participants 991. Jo MJ, Hong S, Park HR. Effects of Art Intervention Program for Siblings of Children With Cancer: A Pilot Study. J Pediatr Oncol Nurs. 2018 May;35(3):17887. doi: 10.1177/1043454218762702. PMID: 29577798. Participants 996. Johnson R, Horne B, Feltbower RG, et al. Hospital attendance patterns in long term survivors of cancer. Archives of Disease in Childhood. 2004;89(4):374-7. doi: 10.1136/adc.2002.021816. PMID: 106779245. Language: English. Entry Date: 20040924. Revision Date: 20200708. Publication Type: journal article. Duplicate 992. Jóhannsdóttir IM, Hjermstad MJ, Moum T, et al. Social outcomes in young adult survivors of low incidence childhood cancers. J Cancer Surviv. 2010 Jun;4(2):110-8. doi: 10.1007/s11764-0090112-3. PMID: 20082150. Intervention 997. Johnston EE, Alvarez E, Saynina O, et al. Inpatient utilization and disparities: The last year of life of adolescent and young adult oncology patients in California. Cancer. 2018 Apr 15;124(8):1819-27. doi: 10.1002/cncr.31233. PMID: 29393967. Participants 993. Jóhannsdóttir IM, Hjermstad MJ, Moum T, et al. Social outcomes in young adult survivors of low incidence childhood cancers. Journal of Cancer Survivorship. 2010;4(2):110-8. doi: 10.1007/s11764-0090112-3. PMID: 105025353. Language: English. Entry Date: 20101008. Revision Date: 20200708. Publication Type: journal article. Duplicate 998. Jones B, Currin-Mcculloch J, Pelletier W, et al. Psychosocial standards of care for children with cancer and their families: A national survey of pediatric oncology social workers. Soc Work Health Care. 2018 Apr;57(4):221-49. doi: 10.1080/00981389.2018.1441212. PMID: 29498614. Outcome 994. Jóhannsdóttir IM, Moum T, Hjermstad MJ, et al. Emotional Functioning and School Contentment in Adolescent Survivors of Acute Myeloid Leukemia, Infratentorial Astrocytoma, and Wilms Tumor. J Adolesc Young Adult Oncol. 2011 Sep;1(3):133-9. doi: 10.1089/jayao.2011.0019. PMID: 23610734. Outcome 999. Jones BL, Volker DL, Vinajeras Y, et al. The meaning of surviving cancer for Latino adolescents and emerging young adults. Cancer Nurs. 2010 Jan-Feb;33(1):7481. doi: 10.1097/NCC.0b013e3181b4ab8f. PMID: 19926975. Intervention 1000. Jones GL, McClellan W, Raman S, et al. Parental Perceptions of Obesity and Obesity Risk Associated With Childhood Acute Lymphoblastic Leukemia. J Pediatr Hematol Oncol. 2017 Jul;39(5):370-5. doi: 10.1097/mph.0000000000000852. PMID: 28538500. Outcome B-90 1001. Jones WC, Parry C, Devine S, et al. Understanding distress in posttreatment adult leukemia and lymphoma survivors: a lifespan perspective. J Psychosoc Oncol. 2015;33(2):142-62. doi: 10.1080/07347332.2014.1002658. PMID: 25671408. Participants 1006. Kadan-Lottick NS, Robison LL, Gurney JG, et al. Childhood cancer survivors' knowledge about their past diagnosis and treatment: Childhood Cancer Survivor Study. JAMA. 2002 Apr 10;287(14):1832-9. doi: 10.1001/jama.287.14.1832. PMID: 11939869. Duplicate 1002. Jurbergs N, Long A, Ticona L, et al. Symptoms of posttraumatic stress in parents of children with cancer: are they elevated relative to parents of healthy children? J Pediatr Psychol. 2009 Jan-Feb;34(1):4-13. doi: 10.1093/jpepsy/jsm119. PMID: 18073235. Participants 1007. Kagen-Goodheart L. Reentry: living with childhood cancer. Am J Orthopsychiatry. 1977 Oct;47(4):651-b. doi: 10.1111/j.1939-0025.1977.tb01275.x. PMID: 920788. Study design 1008. Kahalley LS, Tyc VL, Wilson SJ, et al. Adolescent cancer survivors' smoking intentions are associated with aggression, attention, and smoking history. J Cancer Surviv. 2011 Jun;5(2):123-31. doi: 10.1007/s11764-010-0149-3. PMID: 20922493. Outcome 1003. Kaal SE, Kuijken NM, Verhagen CA, et al. Experiences of Parents and General Practitioners with End-of-Life Care in Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2016 Mar;5(1):64-8. doi: 10.1089/jayao.2015.0009. PMID: 26812457. Participants 1009. Kahana E, Kahana B, Wykle M, et al. Marshalling social support: a care-getting model for persons living with cancer. Journal of Family Social Work. 2009;12(2):168-93. doi: 10.1080/10522150902874834. PMID: 105408967. Language: English. Entry Date: 20090828. Revision Date: 20200708. Publication Type: Journal Article. Study design 1004. Kadan-Lottick NS, Kawashima T, Tomlinson G, et al. The risk of cancer in twins: a report from the childhood cancer survivor study. Pediatr Blood Cancer. 2006 Apr;46(4):476-81. doi: 10.1002/pbc.20465. PMID: 16078231. Outcome 1005. Kadan-Lottick NS, Ness KK, Bhatia S, et al. Survival variability by race and ethnicity in childhood acute lymphoblastic leukemia. JAMA: Journal of the American Medical Association. 2003;290(15):200814. doi: 10.1001/jama.290.15.2008. PMID: 106731522. Language: English. Entry Date: 20040507. Revision Date: 20200708. Publication Type: journal article. Outcome 1010. Kahn JM, Keegan THM, Tao L, et al. Racial disparities in the survival of American children, adolescents, and young adults with acute lymphoblastic leukemia, acute myelogenous leukemia, and Hodgkin lymphoma. Cancer (0008543X). 2016;122(17):2723-30. doi: 10.1002/cncr.30089. PMID: 117573186. Language: English. Entry Date: 20170601. Revision Date: 20190514. Publication Type: journal article. Outcome B-91 1011. Kakembo N, Kisa P, Fitzgerald T, et al. Colonic polyposis in a 15 year-old boy: Challenges and lessons from a rural resource-poor area. Ann Med Surg (Lond). 2016 May;7:75-8. doi: 10.1016/j.amsu.2016.03.027. PMID: 27144002. Outcome 1016. Karalexi MA, Baka M, Ryzhov A, et al. Survival trends in childhood chronic myeloid leukaemia in Southern-Eastern Europe and the United States of America. European Journal of Cancer. 2016;67:18390. doi: 10.1016/j.ejca.2016.08.011. PMID: 118652824. Language: English. Entry Date: 20161209. Revision Date: 20190710. Publication Type: Article. Outcome 1012. Kaleita TA, Reaman GH, MacLean WE, et al. Neurodevelopmental outcome of infants with acute lymphoblastic leukemia: a Children's Cancer Group report. Cancer. 1999 Apr 15;85(8):1859-65. doi: 10.1002/(sici)10970142(19990415)85:8<1859::aidcncr28>3.0.co;2-2. PMID: 10223582. Intervention 1017. Karam S. Secondary Cancers in Pediatric Survivors Increased Risk and Unique Barriers to Care. ONS Voice. 2020;35(7):16-20. PMID: 144343539. Language: English. Entry Date: 20200711. Revision Date: 20200711. Publication Type: Article. Study design 1013. Kamibeppu K, Murayama S, Ozono S, et al. Predictors of Posttraumatic Stress Symptoms Among Adolescent and Young Adult Survivors of Childhood Cancer: Importance of Monitoring Survivors' Experiences of Family Functioning. J Fam Nurs. 2015 Nov;21(4):529-50. doi: 10.1177/1074840715606247. PMID: 26442952. Intervention 1018. Karami S, Young HA, Henson DE. Earlier age at diagnosis: another dimension in cancer disparity? Cancer Detect Prev. 2007;31(1):29-34. doi: 10.1016/j.cdp.2006.11.004. PMID: 17303347. Participants 1019. Karian VE, Jankowski SM, Beal JA. Exploring the lived-experience of childhood cancer survivors. J Pediatr Oncol Nurs. 1998 Jul;15(3):153-62. doi: 10.1177/104345429801500304. PMID: 9699452. Outcome 1014. Kamibeppu K, Murayama S, Ozono S, et al. Predictors of Posttraumatic Stress Symptoms Among Adolescent and Young Adult Survivors of Childhood Cancer. Journal of Family Nursing. 2015;21(4):52950. doi: 10.1177/1074840715606247. PMID: 110826597. Language: English. Entry Date: 20151119. Revision Date: 20170203. Publication Type: Article. Duplicate 1020. Karimi M, Cox AD, White SV, et al. Fatigue, Physical and Functional Mobility, and Obesity in Pediatric Cancer Survivors. Cancer Nurs. 2019 Mar 29. doi: 10.1097/ncc.0000000000000712. PMID: 30925511. Intervention 1021. Karst JS, Hoag JA, Chan SF, et al. Assessment of end-of-treatment transition needs for pediatric cancer and hematopoietic stem cell transplant patients and their families. Pediatr Blood Cancer. 2018 Aug;65(8):e27109. doi: 10.1002/pbc.27109. PMID: 29697192. Outcome 1015. Kamibeppu K, Sato I, Honda M, et al. Mental health among young adult survivors of childhood cancer and their siblings including posttraumatic growth. J Cancer Surviv. 2010 Dec;4(4):303-12. doi: 10.1007/s11764-010-0124-z. PMID: 20396974. Outcome B-92 1022. Kaste SC, Goodman P, Leisenring W, et al. Impact of radiation and chemotherapy on risk of dental abnormalities: a report from the Childhood Cancer Survivor Study. Cancer (0008543X). 2009;115(24):5817-27. doi: 10.1002/cncr.24670. PMID: 105271409. Language: English. Entry Date: 20100226. Revision Date: 20161125. Publication Type: journal article. Duplicate 1028. Kaul S, Fair D, Wright J, et al. Dental Care for Survivors of Adolescent and Young Adult Cancer: Special Considerations. Journal of Adolescent & Young Adult Oncology. 2016;5(2):152-8. doi: 10.1089/jayao.2015.0064. PMID: 115832882. Language: English. Entry Date: 20170831. Revision Date: 20170831. Publication Type: Article. Participants 1023. Kasteler R, Belle F, Schindera C, et al. Prevalence and reasons for smoking in adolescent Swiss childhood cancer survivors. Pediatr Blood Cancer. 2019 Jan;66(1):e27438. doi: 10.1002/pbc.27438. PMID: 30239111. Intervention 1029. Kaul S, Fluchel M, Spraker-Perlman H, et al. Health care experiences of longterm survivors of adolescent and young adult cancer. Supportive Care in Cancer. 2016;24(9):3967-77. doi: 10.1007/s00520016-3235-x. PMID: 117109105. Language: English. Entry Date: 20170930. Revision Date: 20190821. Publication Type: journal article. Duplicate 1024. Kasteler R, Belle F, Schindera C, et al. Prevalence and reasons for smoking in adolescent Swiss childhood cancer survivors. Pediatric Blood & Cancer. 2019;66(1):N.PAG-N.PAG. doi: 10.1002/pbc.27438. PMID: 133132874. Corporate Author: Swiss Pediatric Oncology Group (SPOG). Language: English. Entry Date: 20191013. Revision Date: 20200101. Publication Type: journal article. Duplicate 1030. Kaul S, Fluchel M, Spraker-Perlman H, et al. Health care experiences of longterm survivors of adolescent and young adult cancer. Support Care Cancer. 2016 Sep;24(9):3967-77. doi: 10.1007/s00520016-3235-x. PMID: 27126772. Participants 1031. Kaushal T, Satapathy S, Chadda RK, et al. Hospital Based Psychosocial Support Program for Children with ALL and their Families: A Comprehensive Triad's Perspective. Indian J Pediatr. 2019 Feb;86(2):118-25. doi: 10.1007/s12098-0182679-z. PMID: 29679216. Intervention 1025. Kasteler R, Weiss A, Schindler M, et al. Long-term pulmonary disease among Swiss childhood cancer survivors. Pediatr Blood Cancer. 2018 Jan;65(1). doi: 10.1002/pbc.26749. PMID: 28868646. Intervention 1032. Kawamura J, Katz LF, Breiger D. Maternal directiveness in childhood survivors of acute lymphoblastic leukemia. J Clin Psychol Med Settings. 2014 Dec;21(4):329-36. doi: 10.1007/s10880014-9410-7. PMID: 25224583. Outcome 1026. Kato M, Manabe A. Treatment and biology of pediatric acute lymphoblastic leukemia. Pediatr Int. 2018 Jan;60(1):4-12. doi: 10.1111/ped.13457. PMID: 29143423. Study design 1027. Katzman BI, John R. Adolescent Cancer Survivors: A Literature Review of Psychological Effects Following Remission. Clin J Oncol Nurs. 2018 Oct 1;22(5):507-15. doi: 10.1188/18.Cjon.507-515. PMID: 30239515. Participants B-93 1033. Kazak AE, Alderfer M, Rourke MT, et al. Posttraumatic stress disorder (PTSD) and posttraumatic stress symptoms (PTSS) in families of adolescent childhood cancer survivors. J Pediatr Psychol. 2004 AprMay;29(3):211-9. doi: 10.1093/jpepsy/jsh022. PMID: 15131138. Outcome 1039. Ke Y, Tan CJ, Ng T, et al. Optimizing Survivorship Care Services for Asian Adolescent and Young Adult Cancer Survivors: A Qualitative Study...Multinational Association of Supportive Care in Cancer Annual Meeting 2019 in San Francisco. Journal of Adolescent & Young Adult Oncology. 2020;9(3):384-93. doi: 10.1089/jayao.2019.0145. PMID: 143724448. Language: English. Entry Date: 20200616. Revision Date: 20200616. Publication Type: Article. Participants 1034. Kazak AE, Barakat LP, Meeske K, et al. Posttraumatic stress, family functioning, and social support in survivors of childhood leukemia and their mothers and fathers. J Consult Clin Psychol. 1997 Feb;65(1):1209. doi: 10.1037//0022-006x.65.1.120. PMID: 9103741. Outcome 1040. Keats MR, Culos-Reed SN, Courneya KS, et al. Understanding physical activity in adolescent cancer survivors: an application of the theory of planned behavior. Psychooncology. 2007 May;16(5):448-57. doi: 10.1002/pon.1075. PMID: 16915562. Outcome 1035. Kazak AE, Baxt C. Families of infants and young children with cancer: a post-traumatic stress framework. Pediatr Blood Cancer. 2007 Dec;49(7 Suppl):110913. doi: 10.1002/pbc.21345. PMID: 17943959. Study design 1041. Keefe FJ, Rumble ME, Scipio CD, et al. Psychological aspects of persistent pain: current state of the science. J Pain. 2004 May;5(4):195-211. doi: 10.1016/j.jpain.2004.02.576. PMID: 15162342. Study design 1036. Kazak AE, Derosa BW, Schwartz LA, et al. Psychological outcomes and health beliefs in adolescent and young adult survivors of childhood cancer and controls. J Clin Oncol. 2010 Apr 20;28(12):2002-7. doi: 10.1200/jco.2009.25.9564. PMID: 20231679. Intervention 1042. Keegan TH, Tao L, DeRouen MC, et al. Medical care in adolescents and young adult cancer survivors: what are the biggest access-related barriers? Journal of Cancer Survivorship. 2014;8:282-92. Participants 1037. Kazak AE, Meadows AT. Families of young adolescents who have survived cancer: social-emotional adjustment, adaptability, and social support. J Pediatr Psychol. 1989 Jun;14(2):175-91. doi: 10.1093/jpepsy/14.2.175. PMID: 2754573. Outcome 1043. Keegan TH, Grogan RH, Parsons HM, et al. Sociodemographic disparities in differentiated thyroid cancer survival among adolescents and young adults in California. Thyroid. 2015 Jun;25(6):635-48. doi: 10.1089/thy.2015.0021. PMID: 25778795. Participants 1038. Kazak AE, Stuber ML, Barakat LP, et al. Predicting posttraumatic stress symptoms in mothers and fathers of survivors of childhood cancers. J Am Acad Child Adolesc Psychiatry. 1998 Aug;37(8):82331. doi: 10.1097/00004583-19980800000012. PMID: 9695444. Participants B-94 1044. Keegan TH, Lichtensztajn DY, Kato I, et al. Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study. J Cancer Surviv. 2012 Sep;6(3):23950. doi: 10.1007/s11764-012-0219-9. PMID: 22457219. Participants 1049. Keegan THM, Lichtensztajn DY, Kato I, et al. Unmet adolescent and young adult cancer survivors information and service needs: A population-based cancer registry study. Journal of Cancer Survivorship. 2012 Sep 2012 2019-02-14;6(3):239-50. doi: http://dx.doi.org/10.1007/s11764-012-02199. PMID: 1272266850; 2012-24271-001. Duplicate 1045. Keegan TH, Lichtensztajn DY, Kato I, et al. Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study. Journal of Cancer Survivorship. 2012;6(3):239-50. doi: 10.1007/s11764-0120219-9. PMID: 104365426. Corporate Author: and the AYA HOPE Study Collaborative Group. Language: English. Entry Date: 20130301. Revision Date: 20200708. Publication Type: journal article. Duplicate 1050. Keegan THM, Tao L, Derouen MC, et al. Medical care in adolescents and young adult cancer survivors: what are the biggest access-related barriers? Journal of Cancer Survivorship. 2014;8(2):282-92. doi: 10.1007/s11764-013-0332-4. PMID: 103822131. Corporate Author: AYA HOPE Study Collaborative Group. Language: English. Entry Date: 20150213. Revision Date: 20200708. Publication Type: journal article. Duplicate 1046. Keegan TH, Tao L, DeRouen MC, et al. Medical care in adolescents and young adult cancer survivors: what are the biggest access-related barriers? J Cancer Surviv. 2014 Jun;8(2):282-92. doi: 10.1007/s11764013-0332-4. PMID: 24408440. Participants 1051. Kehm RD, Spector LG, Poynter JN, et al. Does socioeconomic status account for racial and ethnic disparities in childhood cancer survival? Cancer. 2018;124(20):4090-7. doi: 10.1002/cncr.31560. Intervention 1047. Keegan THM, Kushi LH, Li Q, et al. Cardiovascular disease incidence in adolescent and young adult cancer survivors: a retrospective cohort study. J Cancer Surviv. 2018 Jun;12(3):388-97. doi: 10.1007/s11764-018-0678-8. PMID: 29427203. Participants 1052. Keim-Malpass J, Steeves RH. Talking with death at a diner: young women's online narratives of cancer. Oncol Nurs Forum. 2012 Jul;39(4):373-8, 406. doi: 10.1188/12.Onf.373-378. PMID: 22750895. Participants 1048. Keegan THM, Li Q, Steele A, et al. Sociodemographic disparities in the occurrence of medical conditions among adolescent and young adult Hodgkin lymphoma survivors. Cancer Causes Control. 2018 Jun;29(6):551-61. doi: 10.1007/s10552-018-1025-0. PMID: 29654427. Participants 1053. Kelly D. Developing age appropriate psychosexual support for adolescent cancer survivors: a discussion paper. J Sex Med. 2013 Feb;10 Suppl 1:133-8. doi: 10.1111/jsm.12048. PMID: 23387919. Study design B-95 1054. Kenney LB, Antal Z, Ginsberg JP, et al. Improving Male Reproductive Health After Childhood, Adolescent, and Young Adult Cancer: Progress and Future Directions for Survivorship Research. J Clin Oncol. 2018 Jul 20;36(21):2160-8. doi: 10.1200/jco.2017.76.3839. PMID: 29874140. Setting 1060. Kero AE, Järvelä LS, Arola M, et al. Cardiovascular morbidity in long-term survivors of early-onset cancer: a population-based study. Int J Cancer. 2014 Feb 1;134(3):664-73. doi: 10.1002/ijc.28385. PMID: 23852751. Participants 1061. Kero AE, Järvelä LS, Arola M, et al. Late mortality among 5-year survivors of early onset cancer: a population-based register study. Int J Cancer. 2015 Apr 1;136(7):1655-64. doi: 10.1002/ijc.29135. PMID: 25110999. Intervention 1055. Kent EE. Mind the gaps: Disparities in survival and survivorship among adolescents and young adults with hematopoietic cancer; 2010. Outcome 1056. Kent EE, Parry C, Montoya MJ, et al. "You're too young for this": adolescent and young adults' perspectives on cancer survivorship. J Psychosoc Oncol. 2012;30(2):260-79. doi: 10.1080/07347332.2011.644396. PMID: 22416959. Participants 1062. Khakban A, Mohammadi T, Lynd LD, et al. Societal preferences in the treatment of pediatric medulloblastoma: Balancing risk of death and quality of life. Pediatr Blood Cancer. 2017 Jun;64(6). doi: 10.1002/pbc.26340. PMID: 27917595. Outcome 1057. Kent EE, Sender LS, Largent JA, et al. Leukemia survival in children, adolescents, and young adults: Influence of socioeconomic status and other demographic factors. Cancer Causes & Control. 2009 Oct 2009 1063. Khalifa AS, Bishry Z, Tantawy AA, et al. Psychiatric morbidity in Egyptian children with acute lymphoblastic leukemia and their care providers. Hematol Oncol Stem Cell Ther. 2014 Jun;7(2):76-84. doi: 10.1016/j.hemonc.2014.01.002. PMID: 24631570. Outcome 2017-09-25;20(8):1409-20. doi: http://dx.doi.org/10.1007/s10552-009-93672. PMID: 1095459287; 2012-17676-018. Outcome 1064. KidsHealth. https://kidshealth.org/. Accessed on November 3, 2020. Intervention 1058. Kent EE, Sender LS, Morris RA, et al. Multilevel socioeconomic effects on quality of life in adolescent and young adult survivors of leukemia and lymphoma. Qual Life Res. 2013 Aug;22(6):1339-51. doi: 10.1007/s11136-012-0254-z. PMID: 22922952. Participants 1065. Kieffer V, Chevignard MP, Dellatolas G, et al. Intellectual, educational, and situation-based social outcome in adult survivors of childhood medulloblastoma. Dev Neurorehabil. 2019 Jan;22(1):19-26. doi: 10.1080/17518423.2018.1424262. PMID: 29336639. Outcome 1059. Kent EE, Smith AW, Keegan TH, et al. Talking About Cancer and Meeting Peer Survivors: Social Information Needs of Adolescents and Young Adults Diagnosed with Cancer. J Adolesc Young Adult Oncol. 2013 Jun;2(2):44-52. doi: 10.1089/jayao.2012.0029. PMID: 23781400. Participants B-96 1072. Kim MA, Yi J. Psychological Distress in Adolescent and Young Adult Survivors of Childhood Cancer in Korea. Journal of Pediatric Oncology Nursing. 2013;30(2):99-108. doi: 10.1177/1043454213478469. PMID: 86172181. Language: English. Entry Date: 20130321. Revision Date: 20200708. Publication Type: Article. Journal Subset: Core Nursing. Outcome 1066. Kilcommons A, Rawlinson D. Dysphagia and Long-Term Feeding Difficulties in the Pediatric Brain Tumor Population. Perspectives of the ASHA Special Interest Groups. 2016;1(13):143-8. doi: 10.1044/persp1.SIG13.143. PMID: 127236568. Language: English. Entry Date: 20180205. Revision Date: 20191120. Publication Type: Article. Outcome 1067. Kim B, Gillham DM. The experience of young adult cancer patients described through online narratives. Cancer Nurs. 2013 Sep-Oct;36(5):377-84. doi: 10.1097/NCC.0b013e318291b4e9. PMID: 23842521. Participants 1073. Kim MA, Yi J. Life after cancer: how does public stigma increase psychological distress of childhood cancer survivors? Int J Nurs Stud. 2014 Dec;51(12):1605-14. doi: 10.1016/j.ijnurstu.2014.04.005. PMID: 24880526. Outcome 1068. Kim DH, Im YJ. The influence of family management style on psychosocial problems of childhood cancer survivors in Korea. Eur J Oncol Nurs. 2015 Apr;19(2):107-12. doi: 10.1016/j.ejon.2014.10.010. PMID: 25466826. Intervention 1074. Kim MA, Yi J, Prince KC, et al. The effects of individual- and network-level factors on discussion of cancer experiences: Survivors of childhood cancer in Korea. J Psychosoc Oncol. 2018 Jan-Feb;36(1):3148. doi: 10.1080/07347332.2017.1379582. PMID: 28922073. Intervention 1069. Kim J, Mersereau JE, Su HI, et al. Young female cancer survivors' use of fertility care after completing cancer treatment. Support Care Cancer. 2016 Jul;24(7):3191-9. doi: 10.1007/s00520-0163138-x. PMID: 26939923. Participants 1075. Kim Y, Lee K-S, Koh K-N. Difficulties faced by long-term childhood cancer survivors: A qualitative study. European Journal of Oncology Nursing. 2018;36:129-34. doi: 10.1016/j.ejon.2018.08.003. PMID: 132488136. Language: English. Entry Date: 20181025. Revision Date: 20190708. Publication Type: Article. Duplicate 1070. Kim JH, Park EC. Influence of offspring on quality of life among cancer patients and survivors: results from the Korean longitudinal study of aging (KLoSA), 2008-2011. Asian Pac J Cancer Prev. 2014;15(23):10531-7. doi: 10.7314/apjcp.2014.15.23.10531. PMID: 25556504. Outcome 1076. Kim Y, Lee KS, Koh KN. Difficulties faced by long-term childhood cancer survivors: A qualitative study. Eur J Oncol Nurs. 2018 Oct;36:129-34. doi: 10.1016/j.ejon.2018.08.003. PMID: 30322503. Intervention 1071. Kim MA, Park JH, Park HJ, et al. Experiences of peer exclusion and victimization, cognitive functioning, and depression among adolescent cancer survivors in South Korea. Am J Orthopsychiatry. 2018;88(4):441-9. doi: 10.1037/ort0000292. PMID: 29369652. Outcome B-97 1077. Kinahan KE, Kircher S, Altman J, et al. Promoting the Shared-Care Model for Adolescent and Young Adults With Cancer: Optimizing Referrals and Care Coordination With Primary Care Providers. J Natl Compr Canc Netw. 2017 Jan;15(1):38-44. doi: 10.6004/jnccn.2017.0005. PMID: 28040718. Participants 1082. King CJ, Chen J, Dagher RK, et al. Decomposing differences in medical care access among cancer survivors by race and ethnicity. Am J Med Qual. 2015 SepOct;30(5):459-69. doi: 10.1177/1062860614537676. PMID: 24904178. Participants 1083. King SDW, Fitchett G, Murphy PE, et al. Religious/Spiritual Struggle in Young Adult Hematopoietic Cell Transplant Survivors. J Adolesc Young Adult Oncol. 2018 Apr;7(2):210-6. doi: 10.1089/jayao.2017.0069. PMID: 29099640. Participants 1078. Kinahan KE, Sharp LK, Arntson P, et al. Adult survivors of childhood cancer and their parents: experiences with survivorship and long-term follow-up. J Pediatr Hematol Oncol. 2008 Sep;30(9):651-8. doi: 10.1097/MPH.0b013e31817e4a6a. PMID: 18776756. Intervention 1084. King TZ, Ailion AS, Fox ME, et al. Neurodevelopmental model of long-term outcomes of adult survivors of childhood brain tumors. Child Neuropsychol. 2019 Jan;25(1):1-21. doi: 10.1080/09297049.2017.1380178. PMID: 28956496. Study design 1079. Kinahan KE, Sharp LK, Seidel K, et al. Scarring, disfigurement, and quality of life in long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor study. J Clin Oncol. 2012 Jul 10;30(20):2466-74. doi: 10.1200/JCO.2011.39.3611. PMID: 22614987. Outcome 1085. Kirchhoff AC, Krull KR, Ness KK, et al. Occupational outcomes of adult childhood cancer survivors: A report from the childhood cancer survivor study. Cancer. 2011 Jul 1;117(13):3033-44. doi: 10.1002/cncr.25867. PMID: 21246530. Intervention 1080. Kinahan KE, Sharp LK, Seidel K, et al. Scarring, disfigurement, and quality of life in long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor study. J Clin Oncol. 2012 Jul 10;30(20):2466-74. doi: 10.1200/JCO.2011.39.3611. PMID: 22614987. Duplicate 1086. Kirchhoff AC, Krull KR, Ness KK, et al. Occupational outcomes of adult childhood cancer survivors: A report from the childhood cancer survivor study. Cancer (0008543X). 2011;117(13):3033-44. doi: 10.1002/cncr.25867. PMID: 104650229. Language: English. Entry Date: 20110902. Revision Date: 20161125. Publication Type: journal article. Duplicate 1081. King AA, Seidel K, Di C, et al. Longterm neurologic health and psychosocial function of adult survivors of childhood medulloblastoma/PNET: a report from the Childhood Cancer Survivor Study. Neuro Oncol. 2017 May 1;19(5):689-98. doi: 10.1093/neuonc/now242. PMID: 28039368. Intervention 1087. Kirchhoff AC, Kuhlthau K, Pajolek H, et al. Employer-sponsored health insurance coverage limitations: results from the Childhood Cancer Survivor Study. Support Care Cancer. 2013 Feb;21(2):37783. doi: 10.1007/s00520-012-1523-7. PMID: 22717916. Duplicate B-98 1088. Kirchhoff AC, Kuhlthau K, Pajolek H, et al. Employer-sponsored health insurance coverage limitations: results from the Childhood Cancer Survivor Study. Supportive Care in Cancer. 2013;21(2):37783. doi: 10.1007/s00520-012-1523-7. PMID: 104415072. Language: English. Entry Date: 20130705. Revision Date: 20200708. Publication Type: journal article. Duplicate 1093. Kirchhoff AC, Spraker-Perlman HL, McFadden M, et al. Sociodemographic Disparities in Quality of Life for Survivors of Adolescent and Young Adult Cancers in the Behavioral Risk Factor Surveillance System. J Adolesc Young Adult Oncol. 2014 Jun 1;3(2):66-74. doi: 10.1089/jayao.2013.0035. PMID: 24940530. Participants 1089. Kirchhoff AC, Leisenring W, Krull KR, et al. Unemployment among adult survivors of childhood cancer: a report from the childhood cancer survivor study. Med Care. 2010 Nov;48(11):1015-25. doi: 10.1097/MLR.0b013e3181eaf880. PMID: 20940653. Duplicate 1094. Kirchhoff AC, Yi J, Wright J, et al. Marriage and divorce among young adult cancer survivors. J Cancer Surviv. 2012 Dec;6(4):441-50. doi: 10.1007/s11764-0120238-6. PMID: 22956304. Participants 1095. Kirchoff D, Deutsch G, Fujita M, et al. Overall Survival Is Impacted by Birthplace and Not Extent of Surgery in Asian Americans with Resectable Gastric Cancer. Journal of Gastrointestinal Surgery. 2015;19(11):1966-73. doi: 10.1007/s11605015-2919-8. PMID: 110606284. Language: English. Entry Date: 20160622. Revision Date: 20180718. Publication Type: journal article. Participants 1090. Kirchhoff AC, Leisenring W, Krull KR, et al. Unemployment among adult survivors of childhood cancer: a report from the childhood cancer survivor study. Medical Care. 2010;48(11):1015-25. doi: 10.1097/MLR.0b013e3181eaf880. PMID: 105011585. Language: English. Entry Date: 20101126. Revision Date: 20161116. Publication Type: journal article. Duplicate 1096. Kiserud CE, Fosså A, Holte H, et al. Post-treatment parenthood in Hodgkin's lymphoma survivors. Br J Cancer. 2007 May 7;96(9):1442-9. doi: 10.1038/sj.bjc.6603711. PMID: 17406362. Participants 1091. Kirchhoff AC, Lyles CR, Fluchel M, et al. Limitations in health care access and utilization among long-term survivors of adolescent and young adult cancer. Cancer. 2012 Dec 1;118(23):5964-72. doi: 10.1002/cncr.27537. PMID: 23007632. Duplicate 1097. Kiss TL, Abdolell M, Jamal N, et al. Long-term medical outcomes and quality-oflife assessment of patients with chronic myeloid leukemia followed at least 10 years after allogeneic bone marrow transplantation. Journal of Clinical Oncology. 2002;20(9):2334-43. PMID: 106980716. Language: English. Entry Date: 20021122. Revision Date: 20161120. Publication Type: journal article. Participants 1092. Kirchhoff AC, Mann K, Warner EL, et al. HPV vaccination knowledge, intentions, and practices among caregivers of childhood cancer survivors. Hum Vaccin Immunother. 2019;15(7-8):1767-75. doi: 10.1080/21645515.2019.1619407. PMID: 31116634. Intervention B-99 1103. Klassen AF, Grant C, Barr R, et al. Development and validation of a generic scale for use in transition programmes to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q. Child Care Health Dev. 2015 Jul;41(4):547-58. doi: 10.1111/cch.12207. PMID: 25351414. Study design 1098. Kitamura T, Kiyohara K, Sakai T, et al. Epidemiology and outcome of adult outof-hospital cardiac arrest of non-cardiac origin in Osaka: a population-based study. BMJ Open. 2014 Dec 22;4(12):e006462. doi: 10.1136/bmjopen-2014-006462. PMID: 25534213. Participants 1099. Kılıcarslan Toruner E, Altay N, Kisecik Z. Determine the difficulties of home care in children following haematopoietic stem cell transplantation. Eur J Cancer Care (Engl). 2016 Jul;25(4):661-7. doi: 10.1111/ecc.12335. PMID: 26053129. Intervention 1104. Klassen AF, Gulati S, Granek L, et al. Understanding the health impact of caregiving: a qualitative study of immigrant parents and single parents of children with cancer. Qual Life Res. 2012 Nov;21(9):1595-605. doi: 10.1007/s11136011-0072-8. PMID: 22127385. Participants 1100. Kızmazoğlu D, Sarı S, Evim Sezgin M, et al. Assessment of Health-Related Quality of Life in Pediatric Acute Lymphoblastic Leukemia Survivors: Perceptions of Children, Siblings, and Parents. Turk J Haematol. 2019 May 3;36(2):112-6. doi: 10.4274/tjh.galenos.2018.2018.0351. PMID: 30401658. Outcome 1105. Klassen AF, Rosenberg-Yunger ZR, D'Agostino NM, et al. The development of scales to measure childhood cancer survivors' readiness for transition to longterm follow-up care as adults. Health Expect. 2015 Dec;18(6):1941-55. doi: 10.1111/hex.12241. PMID: 25052198. Study design 1101. Kızmazoğlu D, Sarı S, Sezgin ME, et al. Assessment of Health-Related Quality of Life in Pediatric Acute Lymphoblastic Leukemia Survivors: Perceptions of Children, Siblings, and Parents. Turkish Journal of Hematology. 2019;36(2):112-6. doi: 10.4274/tjh.galenos.2018.2018.0351. PMID: 136608645. Language: English. Entry Date: 20190604. Revision Date: 20190604. Publication Type: Article. Duplicate 1106. Klipstein S, Fallat ME, Savelli S. Fertility Preservation for Pediatric and Adolescent Patients With Cancer: Medical and Ethical Considerations. American Academy of Pediatrics. 2020;145(3):1-19. Participants 1107. Klosky JL, Cash DK, Buscemi J, et al. Factors influencing long-term follow-up clinic attendance among survivors of childhood cancer. Journal of Cancer Survivorship. 2008;2(4):225-32. doi: 10.1007/s11764-008-0063-0. PMID: 105619266. Language: English. Entry Date: 20090227. Revision Date: 20200708. Publication Type: journal article. Duplicate 1102. Klassen AF, Anthony SJ, Khan A, et al. Identifying determinants of quality of life of children with cancer and childhood cancer survivors: a systematic review. Supportive Care in Cancer. 2011;19(9):1275-87. doi: 10.1007/s00520011-1193-x. PMID: 104576339. Language: English. Entry Date: 20120323. Revision Date: 20171020. Publication Type: journal article. Duplicate B-100 1108. Klosky JL, Fang W, Russell KM, et al. Prevalence and Predictors of Sperm Banking in Adolescents Newly Diagnosed With Cancer: Examination of Adolescent, Parent, and Provider Factors Influencing Fertility Preservation Outcomes. Journal of Clinical Oncology. 2017;35(34):3830-6. doi: 10.1200/JCO.2016.70.4767. PMID: 126523592. Language: English. Entry Date: 20180728. Revision Date: 20190612. Publication Type: journal article. Intervention 1113. Klosky JL, Russell KM, Simmons JL, et al. Medical and sociodemographic factors associated with human papillomavirus (HPV) vaccination adherence among female survivors of childhood cancer. Pediatr Blood Cancer. 2015 Sep;62(9):1630-6. doi: 10.1002/pbc.25539. PMID: 25900433. Comparator 1114. Klosky JL, Simmons JL, Russell KM, et al. Fertility as a priority among at-risk adolescent males newly diagnosed with cancer and their parents. Support Care Cancer. 2015 Feb;23(2):333-41. doi: 10.1007/s00520-014-2366-1. PMID: 25082365. Outcome 1109. Klosky JL, Howell CR, Li Z, et al. Risky health behavior among adolescents in the childhood cancer survivor study cohort. J Pediatr Psychol. 2012 Jul;37(6):634-46. doi: 10.1093/jpepsy/jss046. PMID: 22427699. Outcome 1115. Klosky JL, Zhenghong L, Peasant C, et al. Risky Sexual Behavior in Adolescent Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study. Health Psychology. 2014;38(8):868-77. doi: 10.1037/hea0000044. PMID: 97269993. Language: English. Entry Date: 20140804. Revision Date: 20140804. Publication Type: Article. Outcome 1110. Klosky JL, Krull KR, Kawashima T, et al. Relations between posttraumatic stress and posttraumatic growth in long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Health Psychol. 2014 Aug;33(8):878-82. doi: 10.1037/hea0000076. PMID: 24799000. Outcome 1116. Knight S, McCarthy M, Anderson V, et al. Visuomotor function in children treated for acute lymphoblastic leukaemia with chemotherapy only. Dev Neuropsychol. 2014;39(2):101-12. doi: 10.1080/87565641.2013.860980. PMID: 24571929. Outcome 1111. Klosky JL, Lehmann V, Flynn JS, et al. Patient factors associated with sperm cryopreservation among at-risk adolescents newly diagnosed with cancer. Cancer. 2018 Sep 1;124(17):3567-75. doi: 10.1002/cncr.31596. PMID: 29975417. Participants 1117. Knijnenburg SL, Kremer LC, van den Bos C, et al. Health information needs of childhood cancer survivors and their family. Pediatr Blood Cancer. 2010 Jan;54(1):123-7. doi: 10.1002/pbc.22207. PMID: 19743299. Intervention 1112. Klosky JL, Russell KM, Canavera KE, et al. Risk factors for non-initiation of the human papillomavirus vaccine among adolescent survivors of childhood cancer. Cancer Prev Res (Phila). 2013 Oct;6(10):1101-10. doi: 10.1158/19406207.CAPR-13-0127. PMID: 23983087. Study design 1118. Knobel H, Havard Loge J, Lund MB, et al. Late medical complications and fatigue in Hodgkin's disease survivors. J Clin Oncol. 2001 Jul 1;19(13):3226-33. doi: 10.1200/JCO.2001.19.13.3226. PMID: 11432890. Outcome B-101 1119. Koch L, Jansen L, Herrmann A, et al. Quality of life in long-term breast cancer survivors - a 10-year longitudinal population-based study. Acta Oncologica. 2013;52(6):1119-28. doi: 10.3109/0284186X.2013.774461. PMID: 88958298. Language: English. Entry Date: 20130719. Revision Date: 20150123. Publication Type: Article. Participants 1125. Koltai K, Walsh C, Jones B, et al. Applying Social Network Analysis to Identify the Social Support Needs of Adolescent and Young Adult Cancer Patients and Survivors. J Adolesc Young Adult Oncol. 2018 Apr;7(2):181-6. doi: 10.1089/jayao.2017.0058. PMID: 29106316. Participants 1126. Kong TUoH. Validation of the Chinese Version of the Pittsburgh Sleep Quality Index in Hong Kong Childhood Cancer Survivors. 2018. Study design 1120. Koch SV, Kejs AM, Engholm G, et al. Educational attainment among survivors of childhood cancer: a population-based cohort study in Denmark. Br J Cancer. 2004 Aug 31;91(5):923-8. doi: 10.1038/sj.bjc.6602085. PMID: 15292930. Outcome 1127. Kornblith AB, Powell M, Regan MM, et al. Long-term psychosocial adjustment of older vs younger survivors of breast and endometrial cancer. Psychooncology. 2007 Oct;16(10):895-903. doi: 10.1002/pon.1146. PMID: 17245695. Participants 1121. Koch SV, Kejs AM, Engholm G, et al. Leaving home after cancer in childhood: a measure of social independence in early adulthood. Pediatr Blood Cancer. 2006 Jul;47(1):61-70. doi: 10.1002/pbc.20827. PMID: 16572415. Outcome 1128. Kosir U. Methodological Issues in Psychosocial Research in Adolescent and Young Adult Cancer Populations. J Adolesc Young Adult Oncol. 2020 Feb;9(1):96-9. doi: 10.1089/jayao.2019.0034. PMID: 31418633. Outcome 1122. Koch SV, Kejs AM, Engholm G, et al. Marriage and divorce among childhood cancer survivors. J Pediatr Hematol Oncol. 2011 Oct;33(7):500-5. doi: 10.1097/MPH.0b013e31822820a1. PMID: 21941142. Outcome 1129. Kosir U, Wiedemann M, Wild J, et al. Cognitive Mechanisms in Adolescent and Young Adult Cancer Patients and Survivors: Feasibility and Preliminary Insights from the Cognitions and Affect in Cancer Resiliency Study. J Adolesc Young Adult Oncol. 2020 Apr;9(2):289-94. doi: 10.1089/jayao.2019.0127. PMID: 31747327. Participants 1123. Koch SV, Kejs AMT, Engholm G, et al. Leaving home after cancer in childhood: a measure of social independence in early adulthood. Pediatric Blood & Cancer. 2006;47(1):61-70. doi: 10.1002/pbc.20827. PMID: 106344457. Language: English. Entry Date: 20061006. Revision Date: 20200708. Publication Type: Journal Article. Duplicate 1130. Kosir U, Wild J. Cognitions and Affect in Cancer Resiliency (CAnCR) Study. https://osf.io/d4e59/. Intervention 1124. Kok TB, Koerts J, Lemiere J, et al. Social competence in newly diagnosed pediatric brain tumor patients. Pediatr Hematol Oncol. 2020 Feb;37(1):41-57. doi: 10.1080/08880018.2019.1682089. PMID: 31682775. Outcome B-102 1131. Kowalczyk R, Nowosielski K, Cedrych I, et al. Factors Affecting Sexual Function and Body Image of Early-Stage Breast Cancer Survivors in Poland: A ShortTerm Observation. Clin Breast Cancer. 2019 Feb;19(1):e30-e9. doi: 10.1016/j.clbc.2018.09.006. PMID: 30385228. Participants 1136. Krull KR, Brouwers P, Jain N, et al. Folate pathway genetic polymorphisms are related to attention disorders in childhood leukemia survivors. J Pediatr. 2008 Jan;152(1):101-5. doi: 10.1016/j.jpeds.2007.05.047. PMID: 18154909. Outcome 1137. Krull KR, Huang S, Gurney JG, et al. Adolescent behavior and adult health status in childhood cancer survivors. Journal of Cancer Survivorship. 2010;4(3):210-7. doi: 10.1007/s11764-010-0123-0. PMID: 104915708. Language: English. Entry Date: 20110107. Revision Date: 20200708. Publication Type: journal article. Outcome 1132. Kremer MEB, Derikx JPM, Baren R, et al. Patient-Reported Defecation and Micturition Problems Among Adults Treated for Sacrococcygeal Teratoma During Childhood--The Need for New Surveillance Strategies. Pediatric Blood & Cancer. 2016;63(4):690-4. doi: 10.1002/pbc.25857. PMID: 112968588. Language: English. Entry Date: 20160616. Revision Date: 20180703. Publication Type: journal article. Journal Subset: Biomedical. Outcome 1138. Krull KR, Huang S, Hudson MM, et al. Adolescent psychopathology and adult health behaviors in long-term survivors of childhood cancer: Findings from the Childhood Cancer Survivors Study. Journal of Clinical Oncology. 2009;27:10027-. PMID: 120351124. Language: English. Entry Date: In Process. Revision Date: 20161223. Publication Type: journal article. Supplement Title: 5/21/2009 Supplement Part 1 of 2. Journal Subset: Biomedical. Study design 1133. Kristjanson LJ, Ng C, Oldham L, et al. The impact and responses of men who have experienced testicular cancer. Australian Journal of Cancer Nursing. 2006;7(1):10-7. PMID: 106233117. Language: English. Entry Date: 20070209. Revision Date: 20150818. Publication Type: Journal Article. Participants 1139. Kubota M, Yagi M, Kanada S, et al. Long-term follow-up status of patients with neuroblastoma after undergoing either aggressive surgery or chemotherapy--a single institutional study. J Pediatr Surg. 2004 Sep;39(9):1328-32. doi: 10.1016/j.jpedsurg.2004.05.012. PMID: 15359385. Outcome 1134. Krok-Schoen JL, Palmer-Wackerly AL, Dailey PM, et al. Age Differences in Cancer Treatment Decision Making and Social Support. J Aging Health. 2017 Mar;29(2):187-205. doi: 10.1177/0898264316628488. PMID: 26850474. Participants 1140. Kuehni CE, Rueegg CS, Michel G, et al. Cohort profile: the Swiss childhood cancer survivor study. International Journal of Epidemiology. 2012;41(6):1553-64. doi: ije/dyr142. PMID: 104237186. Corporate Author: Swiss Paediatric Oncology Group (SPOG). Language: English. Entry Date: 20130628. Revision Date: 20150711. Publication Type: Journal Article. Duplicate 1135. Kroll T, Petermann F. Social reintegration as a rehabilitative task in paediatric oncology. Rehabilitation. 2000;39(6):324-37. PMID: 106996260. Language: German. Entry Date: 20010209. Revision Date: 20150820. Publication Type: Journal Article. Not English B-103 1141. Kuehni CE, Rueegg CS, Michel G, et al. Cohort profile: the Swiss childhood cancer survivor study. Int J Epidemiol. 2012 Dec;41(6):1553-64. doi: 10.1093/ije/dyr142. PMID: 22736394. Study design 1147. Kunin-Batson AS, Lu X, Balsamo L, et al. Prevalence and predictors of anxiety and depression after completion of chemotherapy for childhood acute lymphoblastic leukemia: A prospective longitudinal study. Cancer. 2016 May 15;122(10):1608-17. doi: 10.1002/cncr.29946. PMID: 27028090. Outcome 1142. Kuhlthau K, Nipp R, Shui A, et al. Health insurance coverage, care accessibility and affordability for adult survivors of childhood cancer: a cross-sectional study of a nationally representative database. Journal of Cancer Survivorship. 2016;10(6):964-71. doi: 10.1007/s11764-016-0542-7. PMID: 119239390. Language: English. Entry Date: 20170919. Revision Date: 20190519. Publication Type: journal article. Duplicate 1148. Kunin‐Batson A, Steele J, Mertens A, et al. A randomized controlled pilot trial of a Web-based resource to improve cancer knowledge in adolescent and young adult survivors of childhood cancer. PsychoOncology. 2016;25(11):1308-16. doi: 10.1002/pon.3956. PMID: 119234478. Language: English. Entry Date: 20180725. Revision Date: 20191120. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 1143. Kulkarni AV, Piscione J, Shams I, et al. Long-term quality of life in children treated for posterior fossa brain tumors. J Neurosurg Pediatr. 2013 Sep;12(3):235-40. doi: 10.3171/2013.6.Peds12535. PMID: 23829377. Outcome 1149. Kunin‐Batson AS, Lu X, Balsamo L, et al. Prevalence and predictors of anxiety and depression after completion of chemotherapy for childhood acute lymphoblastic leukemia: A prospective longitudinal study. Cancer (0008543X). 2016;122(10):1608-17. doi: 10.1002/cncr.29946. PMID: 115131277. Language: English. Entry Date: 20170307. Revision Date: 20190308. Publication Type: journal article. Duplicate 1144. Kumar AR, Schapira L. The impact of intrapersonal, interpersonal, and community factors on the identity formation of young adults with cancer: a qualitative study. Psychooncology. 2013 Aug;22(8):1753-8. doi: 10.1002/pon.3207. PMID: 23080480. Outcome 1145. Kunin-Batson A, Kadan-Lottick N, Neglia JP. The contribution of neurocognitive functioning to quality of life after childhood acute lymphoblastic leukemia. Psychooncology. 2014 Jun;23(6):692-9. doi: 10.1002/pon.3470. PMID: 24497266. Intervention 1150. Kupst MJ, Natta MB, Richardson CC, et al. Family coping with pediatric leukemia: ten years after treatment. J Pediatr Psychol. 1995 Oct;20(5):601-17. doi: 10.1093/jpepsy/20.5.601. PMID: 7500233. Outcome 1146. Kunin-Batson A, Kadan-Lottick N, Zhu L, et al. Predictors of independent living status in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Pediatr Blood Cancer. 2011 Dec 15;57(7):1197-203. doi: 10.1002/pbc.22982. PMID: 21294244. Outcome 1151. Kurtz BP, Abrams AN. Psychiatric aspects of pediatric cancer. Child Adolesc Psychiatr Clin N Am. 2010 Apr;19(2):40121, x-xi. doi: 10.1016/j.chc.2010.01.009. PMID: 20478507. Study design B-104 1152. Kwak M, Zebrack BJ, Meeske KA, et al. Prevalence and predictors of posttraumatic stress symptoms in adolescent and young adult cancer survivors: a 1-year follow-up study. Psychooncology. 2013 Aug;22(8):1798-806. doi: 10.1002/pon.3217. PMID: 23135830. Outcome 1158. Landier W, Ahern J, Barakat LP, et al. Patient/family education for newly diagnosed pediatric oncology patients: Consensus recommendations from a Children’s Oncology Group expert panel. Journal of Pediatric Oncology Nursing. 2016 Nov 2016 2017-09-26;33(6):422-31. doi: http://dx.doi.org/10.1177/104345421665598 3. PMID: 1837341274; 2016-48897-003. Participants 1153. Lahteenmaki PM, Harila-Saari A, Pukkala EI, et al. Scholastic achievements of children with brain tumors at the end of comprehensive education: a nationwide, register-based study. Neurology. 2007 Jul 17;69(3):296-305. doi: 10.1212/01.wnl.0000265816.44697.b4. PMID: 17636068. Outcome 1159. Landolt MA, Vollrath M, Niggli FK, et al. Health-related quality of life in children with newly diagnosed cancer: a one year follow-up study. Health Qual Life Outcomes. 2006 Sep 20;4:63. doi: 10.1186/1477-7525-4-63. PMID: 16987419. Outcome 1154. Lähteenmäki PM, Huostila J, Hinkka S, et al. Childhood cancer patients at school. Eur J Cancer. 2002 Jun;38(9):1227-40. doi: 10.1016/s0959-8049(02)00066-7. PMID: 12044510. Outcome 1160. Landwehr MS, Watson SE, DolphinKrute M. Healthcare costs and access for young adult cancer survivors: a snapshot post ACA. Am J Manag Care. 2018 Aug;24(10 Spec No.):Sp440-sp1. PMID: 30260616. Participants 1155. Lai J-S, Zelko F, Krull KR, et al. Parent-reported cognition of children with cancer and its potential clinical usefulness. Quality of Life Research. 2014;23(4):104958. doi: 10.1007/s11136-013-0548-9. PMID: 104052771. Language: English. Entry Date: 20140620. Revision Date: 20200708. Publication Type: journal article. Duplicate 1161. Landy DC, Lipsitz SR, Kurtz JM, et al. Dietary quality, caloric intake, and adiposity of childhood cancer survivors and their siblings: an analysis from the cardiac risk factors in childhood cancer survivors study. Nutr Cancer. 2013;65(4):547-55. doi: 10.1080/01635581.2013.770042. PMID: 23659446. Intervention 1156. Lai JS, Zelko F, Krull KR, et al. Parent-reported cognition of children with cancer and its potential clinical usefulness. Qual Life Res. 2014 May;23(4):1049-58. doi: 10.1007/s11136-013-0548-9. PMID: 24197478. Outcome 1162. Langbecker D, Ekberg S, Yates P, et al. What are the barriers of quality survivorship care for haematology cancer patients? Qualitative insights from cancer nurses. Journal of Cancer Survivorship. 2016;10(1):122-30. doi: 10.1007/s11764015-0458-7. PMID: 112195560. Language: English. Entry Date: 20180720. Revision Date: 20191121. Publication Type: journal article. Duplicate 1157. Lancashire ER, Frobisher C, Reulen RC, et al. Educational attainment among adult survivors of childhood cancer in Great Britain: a population-based cohort study. J Natl Cancer Inst. 2010 Feb 24;102(4):25470. doi: 10.1093/jnci/djp498. PMID: 20107164. Outcome B-105 1169. Lauer ME, Mulhern RK, Schell MJ, et al. Long-term follow-up of parental adjustment following a child's death at home or hospital. Cancer. 1989 Mar 1;63(5):98894. doi: 10.1002/10970142(19890301)63:5<988::aidcncr2820630534>3.0.co;2-y. PMID: 2914304. Outcome 1163. Langbecker D, Ekberg S, Yates P, et al. What are the barriers of quality survivorship care for haematology cancer patients? Qualitative insights from cancer nurses. J Cancer Surviv. 2016 Feb;10(1):122-30. doi: 10.1007/s11764-0150458-7. PMID: 26024780. Participants 1164. Lange DD, Wong AWK, Strauser DR, et al. Vocational identity, positive affect, and career thoughts in a group of young adult central nervous system cancer survivors. International Journal of Rehabilitation Research. 2014;37(4):297301. doi: 10.1097/MRR.0000000000000071. PMID: 101765591. Language: English. Entry Date: 20150331. Revision Date: 20150331. Publication Type: Article. Outcome 1170. Laufer D, Ansermet F, von der Weid N, et al. Endocrine response and perceived stress test during an experimental challenge task in adult survivors of a childhood cancer. Pediatric Blood & Cancer. 2012;59(1):13843. doi: 10.1002/pbc.24044. PMID: 104447287. Language: English. Entry Date: 20120727. Revision Date: 20200708. Publication Type: Journal Article. Outcome 1165. Langeveld NE, Grootenhuis MA, Voute PA, et al. Quality of life, self-esteem and worries in young adult survivors of childhood cancer. Psychooncology. 2004 Dec;13(12):867-81. doi: 10.1002/pon.800. PMID: 15386796. Outcome 1171. Lavelle TA, Wittenberg E, Lamarand K, et al. Variation in the spillover effects of illness on parents, spouses, and children of the chronically ill. Appl Health Econ Health Policy. 2014 Apr;12(2):117-24. doi: 10.1007/s40258-014-0079-8. PMID: 24590611. Participants 1166. Langeveld NE, Ubbink MC, Last BF, et al. Educational achievement, employment and living situation in long-term young adult survivors of childhood cancer in the Netherlands. Psychooncology. 2003 AprMay;12(3):213-25. doi: 10.1002/pon.628. PMID: 12673806. Outcome 1172. Laverdière C, Liu Q, Yasui Y, et al. Long-term outcomes in survivors of neuroblastoma: a report from the Childhood Cancer Survivor Study. J Natl Cancer Inst. 2009 Aug 19;101(16):1131-40. doi: 10.1093/jnci/djp230. PMID: 19648511. Outcome 1167. Lannering B, Marky I, Lundberg A, et al. Long-term sequelae after pediatric brain tumors: their effect on disability and quality of life. Med Pediatr Oncol. 1990;18(4):304-10. doi: 10.1002/mpo.2950180410. PMID: 2355890. Intervention 1173. Lawrence DP, Kupelnick B, Miller K, et al. Evidence report on the occurrence, assessment, and treatment of fatigue in cancer patients. J Natl Cancer Inst Monogr. 2004(32):40-50. doi: 10.1093/jncimonographs/lgh027. PMID: 15263040. Participants 1168. Larcombe I, Mott M, Hunt L. Lifestyle behaviours of young adult survivors of childhood cancer. Br J Cancer. 2002 Nov 18;87(11):1204-9. doi: 10.1038/sj.bjc.6600632. PMID: 12439706. Outcome B-106 1179. Lee MK, Park SY, Choi GS. Facilitators and Barriers to Adoption of a Healthy Diet in Survivors of Colorectal Cancer. Journal of Nursing Scholarship. 2019;51(5):509-17. doi: 10.1111/jnu.12496. PMID: 138570323. Language: English. Entry Date: 20190914. Revision Date: 20190914. Publication Type: Article. Participants 1174. Le Y, Gao Z, Gomez SL, et al. Acculturation and Adherence to Physical Activity Recommendations Among Chinese American and Non-Hispanic White Breast Cancer Survivors. Journal of Immigrant & Minority Health. 2019;21(1):80-8. doi: 10.1007/s10903-018-0721-x. PMID: 134170640. Language: English. Entry Date: 20190124. Revision Date: 20190710. Publication Type: Article. Participants 1180. Lee S, Kim DH. The relationship between perceived parental rearing behaviors and school adjustment of adolescent cancer survivors in Korea: A cross-sectional study. Medicine (Baltimore). 2017 Aug;96(32):e7758. doi: 10.1097/md.0000000000007758. PMID: 28796068. Outcome 1175. Lea S, Martins A, Bassett M, et al. Issues experienced and support provided to adolescents and young adults at the end of active treatment for cancer: A rapid review of the literature. Eur J Cancer Care (Engl). 2018 Nov;27(6):e12972. doi: 10.1111/ecc.12972. PMID: 30485604. Participants 1181. Lee Y, Santacroce SJ. Posttraumatic stress in long-term young adult survivors of childhood cancer: a questionnaire survey. International Journal of Nursing Studies. 2007;44(8):1406-17. doi: 10.1016/j.ijnurstu.2006.07.002. PMID: 105987244. Language: English. Entry Date: 20080222. Revision Date: 20200708. Publication Type: Journal Article. Duplicate 1176. Leach DD, Link M. Alliance ACA Letter. 2017. Intervention 1177. Leclair T, Carret AS, Samson Y, et al. Stability and Repeatability of the Distress Thermometer (DT) and the Edmonton Symptom Assessment System-Revised (ESAS-r) with Parents of Childhood Cancer Survivors. PLoS One. 2016;11(7):e0159773. doi: 10.1371/journal.pone.0159773. PMID: 27454432. Study design 1182. Lee Y-L, Santacroce SJ, Sadler L. Predictors of healthy behaviour in long-term survivors of childhood cancer. Journal of Clinical Nursing. 2007 Nov 2007 1178. Lee M, Salloum R, Salloum RG. Racial and ethnic disparities in cost-related medication non-adherence among cancer survivors. Journal of Cancer Survivorship. 2016;10(3):534-44. doi: 10.1007/s11764015-0499-y. PMID: 115248137. Language: English. Entry Date: 20180724. Revision Date: 20190711. Publication Type: journal article. Participants 2017-09-25;16(11c):285-95. doi: http://dx.doi.org/10.1111/j.13652702.2007.01966.x. PMID: 621911152; 2007-15400-006. Duplicate 1183. Lee YL. The relationships between uncertainty and posttraumatic stress in survivors of childhood cancer. J Nurs Res. 2006 Jun;14(2):133-42. doi: 10.1097/01.jnr.0000387571.20856.45. PMID: 16741863. Intervention B-107 1184. Lee YL, Santacroce SJ. Posttraumatic stress in long-term young adult survivors of childhood cancer: a questionnaire survey. Int J Nurs Stud. 2007 Nov;44(8):1406-17. doi: 10.1016/j.ijnurstu.2006.07.002. PMID: 16989835. Intervention 1189. Lehmann V, Keim MC, Nahata L, et al. Fertility-related knowledge and reproductive goals in childhood cancer survivors: short communication. Hum Reprod. 2017 Nov 1;32(11):2250-3. doi: 10.1093/humrep/dex297. PMID: 29040512. Intervention 1185. Lee YL, Santacroce SJ, Sadler L. Predictors of healthy behaviour in long-term survivors of childhood cancer. J Clin Nurs. 2007 Nov;16(11c):285-95. doi: 10.1111/j.1365-2702.2007.01966.x. PMID: 17931322. Intervention 1190. Lehmann V, Tuinman MA, Keim MC, et al. Am I a 6 or a 10? Mate Value Among Young Adult Survivors of Childhood Cancer and Healthy Peers. J Adolesc Young Adult Oncol. 2018 Feb;7(1):72-8. doi: 10.1089/jayao.2017.0041. PMID: 28783412. Outcome 1186. Lehmann V. Romantic relationships of emerging adult survivors of childhood cancer: a discussion of study limitations...Psychooncology. 2009 Jul;18(7):767-74. Psycho-Oncology. 2010;19(11):1234-. doi: 10.1002/pon.1674. PMID: 104937601. Language: English. Entry Date: 20110218. Revision Date: 20200708. Publication Type: Journal Article. Study design 1191. Leisenring WM, Mertens AC, Armstrong GT, et al. Pediatric cancer survivorship research: experience of the Childhood Cancer Survivor Study. J Clin Oncol. 2009 May 10;27(14):2319-27. doi: 10.1200/jco.2008.21.1813. PMID: 19364957. Study design 1187. Lehmann V, Ferrante AC, Winning AM, et al. The perceived impact of infertility on romantic relationships and singlehood among adult survivors of childhood cancer. Psycho-Oncology. 2019;28(3):622-8. doi: 10.1002/pon.4999. PMID: 135078706. Language: English. Entry Date: In Process. Revision Date: 20200302. Publication Type: journal article. Journal Subset: Biomedical. Outcome 1192. Leo Swenne C, Jangland E, Arakelian E. Patients' experiences of their everyday life 14 months after cytoreductive surgery and hyperthermic intraperitoneal chemotherapy - a qualitative follow-up study. Scandinavian Journal of Caring Sciences. 2017;31(4):904-13. doi: 10.1111/scs.12412. PMID: 126461958. Language: English. Entry Date: 20171205. Revision Date: 20181203. Publication Type: Article. Participants 1188. Lehmann V, Hagedoorn M, Gerhardt CA, et al. Memories of Parent Behaviors and Adult Attachment in Childhood Cancer Survivors. J Adolesc Young Adult Oncol. 2017 Mar;6(1):134-41. doi: 10.1089/jayao.2016.0033. PMID: 27768513. Outcome 1193. Lesko LM. Surviving hematological malignancies: stress responses and predicting psychological adjustment. Prog Clin Biol Res. 1990;352:423-37. PMID: 2402518. Intervention 1194. Leukemia & Lymphoma Society. Communicating with your healthcare team. https://www.lls.org/sites/default/files/Nation al/USA/Pdf/Publications/FF6_Survivorship_ full.pdf. Accessed on August 7 2020. Participants B-108 1202. Levi F, Moeckli R, Randimbison L, et al. Skin cancer in survivors of childhood and adolescent cancer. Eur J Cancer. 2006 Mar;42(5):656-9. doi: 10.1016/j.ejca.2005.08.042. PMID: 16442793. Outcome 1195. Leukemia & Lymphoma Society. Long-Term and Late Effects of Treatment for Childhood Leukemia or Lymphoma Facts. 2013. https://www.lls.org/sites/default/files/file_as sets/FS15_LongTermandLateEffects_FactSh eet.pdf. Accessed on August 7 2020. Intervention 1203. Levi F, Randimbison L, La Vecchia C, et al. Incidence of invasive cancers following carcinoma in situ of the cervix. Br J Cancer. 1996 Oct;74(8):1321-3. doi: 10.1038/bjc.1996.538. PMID: 8883426. Participants 1196. Leukemia & Lymphoma Society. Survivorship Care for Childhood and Adolescent Blood Cancer. July 16, 2020. http://www.cancereducation.com/cancersysp agesnb/a/lls/lls18123arc/home.html. Accessed on October 13 2020. Study design 1204. Levin Newby W, Brown RT, Pawletko TM, et al. Social skills and psychological adjustment of child and adolescent cancer survivors. Psychooncology. 2000 Mar-Apr;9(2):11326. doi: 10.1002/(sici)10991611(200003/04)9:2<113::aidpon432>3.0.co;2-f. PMID: 10767749. Outcome 1197. Leukemia & Lymphoma Society. A Guidebook for Young Adult Cancer Survivors. July 16, 2020. https://www.lls.org/sites/default/files/chapte rs/il/Pdf/AYA%20Survivorship%20Book%2 0English.pdf. Intervention 1198. Leukemia & Lymphoma Society. Follow-up Care for Childhood Cancer Survivors. July 16, 2020. https://www.lls.org/childhood-bloodcancer/follow-up-care-for-childhood-cancersurvivors. Accessed on October 13 2020. Intervention 1205. Levine JM, Whitton JA, Ginsberg JP, et al. Nonsurgical premature menopause and reproductive implications in survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Cancer. 2018 Mar 1;124(5):1044-52. doi: 10.1002/cncr.31121. PMID: 29338081. Intervention 1199. Leukemia & Lymphoma Society. Chapter 13: Beyond Treatment. Caring for Kids and Adolescents Workbook. September 2, 2020. Intervention 1206. Lewis DR, Seibel NL, Smith AW, et al. Adolescent and young adult cancer survival. J Natl Cancer Inst Monogr. 2014 Nov;2014(49):228-35. doi: 10.1093/jncimonographs/lgu019. PMID: 25417236. Participants 1200. Leukemia and Lymphoma Society (LLS). Leukemia and Lymphoma Society (LLS) website. https://www.lls.org/. Accessed on July 21, 2020. Outcome 1201. Leukemia and Lymphoma Society (LLS). Enhancing myeloma awareness in African American communities. https://www.lls.org/lls-us-hq/news/taking-itto-church-enhancing-myeloma-knowledgeand-access-to-latest-treatments-to-addresshealth-disparities-in-african-americancommunities. Accessed on July 21, 2020. Participants B-109 1212. Lewis‐Thames MW, Carnahan LR, James AS, et al. Understanding Posttreatment Patient‐Provider Communication and Follow‐Up Care Among Self‐Identified Rural Cancer Survivors in Illinois. Journal of Rural Health. 2020;36(4):549-63. doi: 10.1111/jrh.12414. PMID: 146119785. Language: English. Entry Date: In Process. Revision Date: 20201003. Publication Type: Article. Journal Subset: Biomedical. Participants 1207. Lewis FM, Bohan JK. Early adolescent language development following intrathecal chemotherapy for acute lymphoblastic leukaemia. International Journal of Speech-Language Pathology. 2018;20(5):485-93. doi: 10.1080/17549507.2017.1309066. PMID: 133103276. Language: English. Entry Date: 20181123. Revision Date: 20200324. Publication Type: Article. Outcome 1208. Lewis P, Jordens CFC, MooneySomers J, et al. Growing Up With Cancer: Accommodating the Effects of Cancer Into Young People’s Social Lives. Journal of Pediatric Oncology Nursing. 2013;30(6):311-9. doi: 10.1177/1043454213513839. PMID: 93341410. Language: English. Entry Date: 20131231. Revision Date: 20190708. Publication Type: Article. Outcome 1213. Li CC, Huang SM, Lai JC, et al. Development and Validation of a Fertility Intention Scale in Breast Cancer Survivors. J Nurs Res. 2018 Jun;26(3):177-84. doi: 10.1097/jnr.0000000000000223. PMID: 28858975. Outcome 1214. Li HC, Chung OK, Ho KY, et al. Effectiveness of an integrated adventurebased training and health education program in promoting regular physical activity among childhood cancer survivors. Psychooncology. 2013 Nov;22(11):2601-10. doi: 10.1002/pon.3326. PMID: 23733273. Outcome 1209. Lewis P, Mooney-Somers J, Jordens C, et al. Parents as Advocates for the Psychosocial Survival of Adolescents and Young Adults with Cancer. Journal of Child & Family Studies. 2015;24(4):872-81. doi: 10.1007/s10826-013-9896-x. PMID: 101603374. Language: English. Entry Date: 20150320. Revision Date: 20190708. Publication Type: Article. Participants 1215. Li HCW, Chung OKJ, Ho KY, et al. Effectiveness of an integrated adventurebased training and health education program in promoting regular physical activity among childhood cancer survivors. PsychoOncology. 2013;22(11):2601-10. doi: 10.1002/pon.3326. PMID: 104106768. Language: English. Entry Date: 20140502. Revision Date: 20200708. Publication Type: Journal Article. Duplicate 1210. Lewis PE, Sheng M, Rhodes MM, et al. Psychosocial concerns of young African American breast cancer survivors. J Psychosoc Oncol. 2012;30(2):168-84. doi: 10.1080/07347332.2011.651259. PMID: 22416954. Participants 1211. Lewis-Thames MW, Carnahan LR, James AS, et al. Understanding Posttreatment Patient-Provider Communication and Follow-Up Care Among Self-Identified Rural Cancer Survivors in Illinois. J Rural Health. 2020 Jan 11. doi: 10.1111/jrh.12414. PMID: 31925854. Participants 1216. Li HCW, Chung OKJ, Ho KY, et al. Effectiveness of an integrated adventure‐ based training and health education program in promoting regular physical activity among childhood cancer survivors. PsychoOncology. 2013 Nov 2013 B-110 2017-09-25;22(11):2601-10. doi: http://dx.doi.org/10.1002/pon.3326. PMID: 1499097686; 2013-37637-025. Duplicate 1222. Link K, Moëll C, Osterberg K, et al. Adult survivors of childhood acute lymphoblastic leukaemia with GH deficiency have normal self-rated quality of life but impaired neuropsychological performance 20 years after cranial irradiation. Clin Endocrinol (Oxf). 2006 Nov;65(5):617-25. doi: 10.1111/j.13652265.2006.02637.x. PMID: 17054463. Outcome 1217. Li HCW, Lopez V, Joyce Chung OK, et al. The impact of cancer on the physical, psychological and social well-being of childhood cancer survivors. European Journal of Oncology Nursing. 2013;17(2):214-9. doi: 10.1016/j.ejon.2012.07.010. PMID: 85745113. Language: English. Entry Date: 20130308. Revision Date: 20170203. Publication Type: Article. Outcome 1223. Links PS, Stockwell ML. Obstacles in the prevention of psychological sequelae in survivors of childhood cancer. Am J Pediatr Hematol Oncol. 1985 Summer;7(2):132-40. PMID: 3842558. Study design 1218. Lin M, Sansom-Daly UM, Wakefield CE, et al. Health Literacy in Adolescents and Young Adults: Perspectives from Australian Cancer Survivors. J Adolesc Young Adult Oncol. 2017 Mar;6(1):150-8. doi: 10.1089/jayao.2016.0024. PMID: 27656761. Participants 1224. Linwei W, Gomez SL, Yutaka Y. Racial and Ethnic Differences in Socioeconomic Position and Risk of Childhood Acute Lymphoblastic Leukemia. American Journal of Epidemiology. 2017;185(12):1263-71. doi: 10.1093/aje/kww164. PMID: 123660770. Language: English. Entry Date: 20170621. Revision Date: 20190712. Publication Type: Article. Outcome 1219. Lindahl M, Addington SV, Winther JF, et al. Socioeconomic Factors and Ninth Grade School Performance in Childhood Leukemia and CNS Tumor Survivors. JNCI Cancer Spectr. 2018 Jan;2(1):pky003. doi: 10.1093/jncics/pky003. PMID: 31360837. Intervention 1225. Lipshultz SE, Landy DC, LopezMitnik G, et al. Cardiovascular status of childhood cancer survivors exposed and unexposed to cardiotoxic therapy. J Clin Oncol. 2012 Apr 1;30(10):1050-7. doi: 10.1200/jco.2010.33.7907. PMID: 22393080. Intervention 1220. Lindahl Norberg A, Montgomery SM, Bottai M, et al. Short-term and longterm effects of childhood cancer on income from employment and employment status: A national cohort study in Sweden. Cancer. 2017 Apr 1;123(7):1238-48. doi: 10.1002/cncr.30436. PMID: 27870013. Outcome 1226. Liptak C, Brinkman T, Bronson A, et al. A social program for adolescent and young adult survivors of pediatric brain tumors: The power of a shared medical experience. J Psychosoc Oncol. 2016 NovDec;34(6):493-511. doi: 10.1080/07347332.2016.1225146. PMID: 27541834. Intervention 1221. Link BG, Northridge ME, Phelan JC, et al. Social epidemiology and the fundamental cause concept: on the structuring of effective cancer screens by socioeconomic status. Milbank Q. 1998;76(3):375-402, 304-5. doi: 10.1111/1468-0009.00096. PMID: 9738168. Participants B-111 1227. Liptak C, Manley P, Recklitis CJ. The feasibility of psychosocial screening for adolescent and young adult brain tumor survivors: The value of self-report. Journal of Cancer Survivorship. 2012 Dec 2012 1232. Liu W, Cheung YT, Brinkman TM, et al. Behavioral symptoms and psychiatric disorders in child and adolescent long-term survivors of childhood acute lymphoblastic leukemia treated with chemotherapy only. Psychooncology. 2018 Jun;27(6):1597-607. doi: 10.1002/pon.4699. PMID: 29521470. Outcome 2017-09-26;6(4):379-87. doi: http://dx.doi.org/10.1007/s11764-012-02377. PMID: 1317827505; 2012-31817-004. Duplicate 1233. Liu YM, Jaing TH, Chen YC, et al. Quality of Life After Hematopoietic Stem Cell Transplantation in Pediatric Survivors: Comparison With Healthy Controls and Risk Factors. Cancer Nurs. 2016 Nov/Dec;39(6):502-9. doi: 10.1097/ncc.0000000000000339. PMID: 26863053. Outcome 1228. Liptak C, Manley P, Recklitis CJ, et al. The feasibility of psychosocial screening for adolescent and young adult brain tumor survivors: the value of self-report. Journal of Cancer Survivorship. 2012;6(4):379-87. doi: 10.1007/s11764-012-0237-7. PMID: 104386916. Language: English. Entry Date: 20130510. Revision Date: 20200708. Publication Type: journal article. Study design 1234. Liuhto N, Grönroos MH, Malila N, et al. Diseases of renal function and bone metabolism after treatment for early onset cancer: A registry-based study. Int J Cancer. 2020 Mar 1;146(5):1324-32. doi: 10.1002/ijc.32687. PMID: 31523804. Outcome 1229. Liu HL, Sun ZM, Geng LQ, et al. Similar survival, but better quality of life after myeloablative transplantation using unrelated cord blood vs matched sibling donors in adults with hematologic malignancies. Bone Marrow Transplant. 2014 Aug;49(8):1063-9. doi: 10.1038/bmt.2014.102. PMID: 24842525. Outcome 1235. Livestrong. Livestrong Fertility Program [formerly Fertile Hope]. https://www.livestrong.org/what-wedo/program/fertility. Accessed on November 3, 2020. Intervention 1236. Livinalli A, Silva MT, Lopes LC. Late adverse effects related to treatment in a cohort of survivors of childhood and adolescent cancer. Medicine (Baltimore). 2019 Mar;98(12):e14921. doi: 10.1097/md.0000000000014921. PMID: 30896650. Intervention 1230. Liu Q, Leisenring W, Ness KK, et al. Racial/Ethnic Differences in Adverse Outcomes Among Childhood Cancer Survivors: The Childhood Cancer Survivor Study. Journal of Clinical Oncology. 2016;34(14):1634-43. Intervention 1231. Liu Q, Leisenring WM, Ness KK, et al. Racial/Ethnic Differences in Adverse Outcomes Among Childhood Cancer Survivors: The Childhood Cancer Survivor Study. J Clin Oncol. 2016 May 10;34(14):1634-43. doi: 10.1200/jco.2015.66.3567. PMID: 27001569. Duplicate 1237. Ljungman L, Boger M, Ander M, et al. Impressions That Last: Particularly Negative and Positive Experiences Reported by Parents Five Years after the End of a Child's Successful Cancer Treatment or Death. PLoS One. 2016;11(6):e0157076. doi: 10.1371/journal.pone.0157076. PMID: 27272318. Intervention B-112 1238. Loblaw A, Souter LH, Canil C, et al. Follow-up Care for Survivors of Prostate Cancer - Clinical Management: a Program in Evidence-Based Care Systematic Review and Clinical Practice Guideline. Clin Oncol (R Coll Radiol). 2017 Nov;29(11):711-7. doi: 10.1016/j.clon.2017.08.004. PMID: 28928084. Participants 1245. Lövgren M, Sveen J, Nyberg T, et al. Care at End of Life Influences Grief: A Nationwide Long-Term Follow-Up among Young Adults Who Lost a Brother or Sister to Childhood Cancer. J Palliat Med. 2018 Feb;21(2):156-62. doi: 10.1089/jpm.2017.0029. PMID: 28949788. Participants 1239. Löf CM, Forinder U, Winiarski J. Risk factors for lower health-related QoL after allogeneic stem cell transplantation in children. Pediatr Transplant. 2007 Mar;11(2):145-51. doi: 10.1111/j.13993046.2006.00630.x. PMID: 17300493. Outcome 1246. Løvschal ‐ Nielsen P, Clausen N, Meinert L. Children's disengagement from cancer care and treatment on the ward: an undesirable social tactic in the long term. European Journal of Cancer Care. 2017;26(6):n/a-N.PAG. doi: 10.1111/ecc.12519. PMID: 126068728. Language: English. Entry Date: 20171111. Revision Date: 20181101. Publication Type: Article. Outcome 1240. Lokich E. Gynecologic Cancer Survivorship. Obstet Gynecol Clin North Am. 2019 Mar;46(1):165-78. doi: 10.1016/j.ogc.2018.10.002. PMID: 30683262. Participants 1247. Lown EA, Goldsby R, Mertens AC, et al. Alcohol consumption patterns and risk factors among childhood cancer survivors compared to siblings and general population peers. Addiction. 2008 Jul;103(7):1139-48. doi: 10.1111/j.1360-0443.2008.02242.x. PMID: 18554347. Outcome 1241. Lopategui DM, Yechieli R, Ramasamy R. Oncofertility in sarcoma patients. Transl Androl Urol. 2017 Oct;6(5):951-8. doi: 10.21037/tau.2017.07.03. PMID: 29184796. Outcome 1248. Lown EA, Hijiya N, Zhang N, et al. Patterns and predictors of clustered risky health behaviors among adult survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Cancer. 2016 Sep 1;122(17):2747-56. doi: 10.1002/cncr.30106. PMID: 27258389. Outcome 1242. Lopez AJ, Butow PN, Philp S, et al. Age-related supportive care needs of women with gynaecological cancer: A qualitative exploration. Eur J Cancer Care (Engl). 2019 Jul;28(4):e13070. doi: 10.1111/ecc.13070. PMID: 31050081. Participants 1243. Love B, Thompson CM, Knapp J. The need to be Superman: the psychosocial support challenges of young men affected by cancer. Oncol Nurs Forum. 2014 Jan 1;41(1):E21-7. doi: 10.1188/14.Onf.E21e27. PMID: 24368249. Participants 1249. Lu Q, Krull KR, Leisenring W, et al. Pain in long-term adult survivors of childhood cancers and their siblings: a report from the Childhood Cancer Survivor Study. Pain. 2011 Nov;152(11):2616-24. doi: 10.1016/j.pain.2011.08.006. PMID: 21907493. Intervention 1244. Love C, Sabiston CM. Exploring the links between physical activity and posttraumatic growth in young adult cancer survivors. Psychooncology. 2011 Mar;20(3):278-86. doi: 10.1002/pon.1733. PMID: 20238374. Participants B-113 1256. Lund MJ, Eliason MT, Haight AE, et al. Racial/ethnic diversity in children's oncology clinical trials. Cancer. 2009 2009 Aug 15 1250. Lucas MS, Barakat LP, Jones NL, et al. Expectations for function and independence by childhood brain tumors survivors and their mothers. Narrat Inq Bioeth. 2014 Winter;4(3):233-51. doi: 10.1353/nib.2014.0068. PMID: 25482002. Outcome 2017-09-25;115(16):3808-16. doi: http://dx.doi.org/10.1002/cncr.24437. PMID: 622176008; 2009-13080-001. Outcome 1251. Lucas MS, Barakat LP, Ulrich CM, et al. Mother-caregiver expectations for function among survivors of childhood brain tumors. Support Care Cancer. 2016 May;24(5):2147-54. doi: 10.1007/s00520015-3013-1. PMID: 26556212. Participants 1257. Lynch BM, Owen N, Hawkes AL, et al. Perceived barriers to physical activity for colorectal cancer survivors. Supportive Care in Cancer. 2010;18(6):729-34. doi: 10.1007/s00520-009-0705-4. PMID: 105206953. Language: English. Entry Date: 20101008. Revision Date: 20171020. Publication Type: journal article. Participants 1252. Lucas MS, Brawner BM, Hardie TL, et al. Assessing Suicidal Ideation and Behaviors Among Survivors of Childhood Brain Tumors and Their Mothers During Sociobehavioral Research. Oncol Nurs Forum. 2015 Sep;42(5):E319-29. doi: 10.1188/15.Onf.42-05ap. PMID: 26302289. Intervention 1258. Lyu W, Wehby GL. The Impacts of the ACA Medicaid Expansions on Cancer Screening Use by Primary Care Provider Supply. Med Care. 2019 Mar;57(3):202-7. doi: 10.1097/mlr.0000000000001053. PMID: 30624303. Outcome 1253. Luctkar-Flude M, Aiken A, McColl MA, et al. Are primary care providers implementing evidence-based care for breast cancer survivors? Can Fam Physician. 2015 Nov;61(11):978-84. PMID: 26889509. Participants 1259. Mabbott DJ, Spiegler BJ, Greenberg ML, et al. Serial evaluation of academic and behavioral outcome after treatment with cranial radiation in childhood. Journal of Clinical Oncology. 2005;23(10):2256-63. PMID: 106422702. Language: English. Entry Date: 20060407. Revision Date: 20150711. Publication Type: Journal Article. Outcome 1254. Lund LW, Winther JF, Cederkvist L, et al. Increased risk of antidepressant use in childhood cancer survivors: a Danish population-based cohort study. Eur J Cancer. 2015 Mar;51(5):675-84. doi: 10.1016/j.ejca.2015.01.001. PMID: 25677304. Intervention 1260. Mack JW, Cronin A, Fasciano K, et al. Cancer treatment decision-making among young adults with lung and colorectal cancer: a comparison with adults in middle age. Psychooncology. 2016 Sep;25(9):108591. doi: 10.1002/pon.3949. PMID: 26335435. Participants 1255. Lund LW, Winther JF, Dalton SO, et al. Hospital contact for mental disorders in survivors of childhood cancer and their siblings in Denmark: a population-based cohort study. Lancet Oncol. 2013 Sep;14(10):971-80. doi: 10.1016/s14702045(13)70351-6. PMID: 23954078. Intervention B-114 1261. Mack JW, Cronin A, Keating NL, et al. Associations between end-of-life discussion characteristics and care received near death: a prospective cohort study. Journal of Clinical Oncology. 2012;30(35):4387-95. doi: 10.1200/JCO.2012.43.6055. PMID: 104392865. Language: English. Entry Date: 20130517. Revision Date: 20200708. Publication Type: journal article. Participants 1266. Madanat-Harjuoja LM, Malila N, Lähteenmäki PM, et al. Preterm delivery among female survivors of childhood, adolescent and young adulthood cancer. Int J Cancer. 2010 Oct 1;127(7):1669-79. doi: 10.1002/ijc.25157. PMID: 20054856. Outcome 1267. Madenci AL, Dieffenbach BV, Liu Q, et al. Late-onset anorectal disease and psychosocial impact in survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Cancer. 2019 Nov 1;125(21):3873-81. doi: 10.1002/cncr.32395. PMID: 31322729. Outcome 1262. Mackie E, Hill J, Kondryn H, et al. Adult psychosocial outcomes in long-term survivors of acute lymphoblastic leukaemia and Wilm's tumour: a controlled study. Lancet. 2000;355 North American Edition(9212):1310-4. doi: 10.1016/s01406736(00)02112-7. PMID: 107126603. Language: English. Entry Date: 20000801. Revision Date: 20200701. Publication Type: Journal Article. Outcome 1268. Mader L, Hargreave M, Frederiksen LE, et al. The impact of childhood cancer on parental separation, divorce, and family planning in Denmark. Cancer. 2020 May 25. doi: 10.1002/cncr.32901. PMID: 32449155. Outcome 1263. Madan-Swain A, Brown RT, Foster MA, et al. Identity in adolescent survivors of childhood cancer. J Pediatr Psychol. 2000 Mar;25(2):105-15. doi: 10.1093/jpepsy/25.2.105. PMID: 10820948. Outcome 1269. Mader L, Vetsch J, Christen S, et al. Education, employment and marriage in long-term survivors of teenage and young adult cancer compared with healthy controls. Swiss Med Wkly. 2017;147:w14419. doi: 10.4414/smw.2017.14419. PMID: 28322430. Outcome 1264. Madan-Swain A, Brown RT, Sexson SB, et al. Adolescent cancer survivors. Psychosocial and familial adaptation. Psychosomatics. 1994 Sep-Oct;35(5):453-9. doi: 10.1016/s0033-3182(94)71739-4. PMID: 7972660. Outcome 1270. Maggiolini A, Grassi R, Adamoli L, et al. Self-image of adolescent survivors of long-term childhood leukemia. J Pediatr Hematol Oncol. 2000 Sep-Oct;22(5):417-21. doi: 10.1097/00043426-200009000-00006. PMID: 11037852. Outcome 1265. Madanat LM, Malila N, Dyba T, et al. Probability of parenthood after early onset cancer: a population-based study. Int J Cancer. 2008 Dec 15;123(12):2891-8. doi: 10.1002/ijc.23842. PMID: 18798259. Outcome 1271. Magyarosy E. [Long-term survivors of childhood malignant tumors: cure and care]. Magy Onkol. 2008 Dec;52(4):401-3. doi: 10.1556/MOnkol.52.2008.4.11. PMID: 19068470. Not English B-115 1272. Maheswaran R, Morley N. Incidence, socioeconomic deprivation, volumeoutcome and survival in adult patients with acute lymphoblastic leukaemia in England. BMC Cancer. 2018 Jan 4;18(1):25. doi: 10.1186/s12885-017-3975-0. PMID: 29301507. Participants 1278. Mancini J, Rey D, Préau M, et al. Barriers to procreational intentions among cancer survivors 2 years after diagnosis: a French national cross-sectional survey. Psychooncology. 2011 Jan;20(1):12-8. doi: 10.1002/pon.1714. PMID: 20151410. Participants 1273. Majhail NS, Rizzo JD, Lee SJ, et al. Recommended screening and preventive practices for long-term survivors after hematopoietic cell transplantation. Biol Blood Marrow Transplant. 2012 Mar;18(3):348-71. doi: 10.1016/j.bbmt.2011.12.519. PMID: 22178693. Intervention 1279. Mancini J, Rey D, Préau M, et al. Infertility induced by cancer treatment: inappropriate or no information provided to majority of French survivors of cancer. Fertil Steril. 2008 Nov;90(5):1616-25. doi: 10.1016/j.fertnstert.2007.08.064. PMID: 18054004. Participants 1280. Mansky P, Arai A, Stratton P, et al. Treatment late effects in long-term survivors of pediatric sarcoma. Pediatr Blood Cancer. 2007 Feb;48(2):192-9. doi: 10.1002/pbc.20871. PMID: 16642490. Outcome 1274. Majid HA, Keow LP, Islam T, et al. Nutritional Status of Breast Cancer Survivors 1 Year after Diagnosis: A Preliminary Analysis from the Malaysian Breast Cancer Survivorship Cohort Study. J Acad Nutr Diet. 2018 Apr;118(4):705-13. doi: 10.1016/j.jand.2017.05.024. PMID: 28756991. Participants 1281. Mantey J, Ruterbusch J, Meza R, et al. Cancer incidence trends using American Community Survey estimates are not consistent with SEER for small populations. Cancer Epidemiol. 2016 Aug;43:87-91. doi: 10.1016/j.canep.2016.06.014. PMID: 27420630. Participants 1275. Makipernaa A. Long-term quality of life and psychosocial coping after treatment of solid tumours in childhood. A populationbased study of 94 patients 11-28 years after their diagnosis. Acta Paediatr Scand. 1989 Sep;78(5):728-35. doi: 10.1111/j.16512227.1989.tb11134.x. PMID: 2596279. Outcome 1282. Marcoux S, Robaey P, Krajinovic M, et al. Predictive factors of internalized and externalized behavioral problems in children treated for acute lymphoblastic leukemia. Pediatr Blood Cancer. 2012 Jun;58(6):9717. doi: 10.1002/pbc.24079. PMID: 22287274. Outcome 1276. Mallik A, Leonard JP. Reality of complementary and alternative medicine in lymphoma patients: hope, hype, or help? Am J Hematol. 2009 Dec;84(12):785-7. doi: 10.1002/ajh.21567. PMID: 19894246. Study design 1283. Marec-Berard P, Dubois C, d’Estaing SG, et al. An information booklet on the semen freezing intended for adolescents and young adults treated for cancer and the evaluation of its use in paediatric oncology centres in France: Preliminary results. Oncologie. 2013;15(5):255-59. doi: 10.1007/s10269-012-2243-9. Intervention 1277. Manchester Uo, Hospital RCs. Triple P for Parents of Children With a Diagnosis of Cancer. 2016. Outcome B-116 1284. Margelisch K, Studer M, Ritter BC, et al. Cognitive dysfunction in children with brain tumors at diagnosis. Pediatr Blood Cancer. 2015 Oct;62(10):1805-12. doi: 10.1002/pbc.25596. PMID: 26053691. Outcome 1290. Marusak HA, Iadipaolo AS, Paulisin S, et al. Emotion-related brain organization and behavioral responses to socioemotional stimuli in pediatric cancer survivors with posttraumatic stress symptoms. Pediatr Blood Cancer. 2019 Jan;66(1):e27470. doi: 10.1002/pbc.27470. PMID: 30270517. Outcome 1285. Marina N, Hudson MM, Jones KE, et al. Changes in health status among aging survivors of pediatric upper and lower extremity sarcoma: a report from the childhood cancer survivor study. Arch Phys Med Rehabil. 2013 Jun;94(6):1062-73. doi: 10.1016/j.apmr.2013.01.013. PMID: 23380347. Outcome 1291. Marusak HA, Iadipaolo AS, Paulisin S, et al. Emotion-related brain organization and behavioral responses to socioemotional stimuli in pediatric cancer survivors with posttraumatic stress symptoms. Pediatric Blood & Cancer. 2019;66(1):N.PAGN.PAG. doi: 10.1002/pbc.27470. PMID: 133132903. Language: English. Entry Date: 20191013. Revision Date: 20200320. Publication Type: journal article. Outcome 1286. Marseille APHD. Multi-centre Prospective Cohort of Childhood Leukaemia: Determinants of Health and Quality of Life of the Patients After Treatment for an Acute Leukaemia During Childhood or Adolescence - LEA. 2012. Outcome 1292. Masonic Cancer Center UoM. Empowering Cancer Survivors Through Information Technology. 2007. Intervention 1287. Marseille APHD. A Study on the Uterus, Ovarian and Reproductive Functions According to Conditioning Regimen and Pubertal Status at the Time of Stem Cell Transplantation in a Leukemia Pediatric Population. 2018. Outcome 1293. Massetti GM, Thomas CC, King J, et al. Mental Health Problems and Cancer Risk Factors Among Young Adults. Am J Prev Med. 2017 Sep;53(3s1):S30-s9. doi: 10.1016/j.amepre.2017.04.023. PMID: 28818243. Participants 1288. Martinez LR, Hebl MR. Adult survivors of childhood cancers' identity disclosures in the workplace. J Cancer Surviv. 2016 Apr;10(2):416-24. doi: 10.1007/s11764-015-0487-2. PMID: 26407809. Outcome 1294. Massimo LM, Wiley TJ. Young siblings of children with cancer deserve care and a personalized approach. Pediatr Blood Cancer. 2008 Mar;50(3):708-10. doi: 10.1002/pbc.21056. PMID: 17009220. Participants 1289. Martinez SR, Beal SH, Chen SL, et al. Disparities in the use of radiation therapy in patients with local-regionally advanced breast cancer. Int J Radiat Oncol Biol Phys. 2010 Nov 1;78(3):787-92. doi: 10.1016/j.ijrobp.2009.08.080. PMID: 20619550. Participants 1295. Matthew A, Souter LH, Breau RH, et al. Prostate Cancer Follow-up Expert Panel. Follow-up care and psychosocial needs of survivors of prostate cancer Cancer Care Ontario. Toronto, Ontario: June 2015. https://guidelines.ecri.org/brief/1199. Participants B-117 1301. Maurice-Stam H, Oort FJ, Last BF, et al. Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment. Psychooncology. 2008 May;17(5):448-59. doi: 10.1002/pon.1260. PMID: 17828715. Outcome 1296. Mattson MR, Demshar RK, Daly BJ. Quality of life of young adult survivors of hematologic malignancies. Cancer Nurs. 2013 Mar-Apr;36(2):E1-7. doi: 10.1097/NCC.0b013e31824242dd. PMID: 22293158. Participants 1297. Mattsson E, Einhorn K, Ljungman L, et al. Women treated for gynaecological cancer during young adulthood - A mixedmethods study of perceived psychological distress and experiences of support from health care following end-of-treatment. Gynecol Oncol. 2018 Jun;149(3):464-9. doi: 10.1016/j.ygyno.2018.03.055. PMID: 29588102. Participants 1302. Maurice-Stam H, Oort FJ, Last BF, et al. A predictive model of health-related quality of life in young adult survivors of childhood cancer. Eur J Cancer Care (Engl). 2009 Jul;18(4):339-49. doi: 10.1111/j.13652354.2007.00916.x. PMID: 19486128. Outcome 1303. Maurice-Stam H, Silberbusch LM, Last BF, et al. Evaluation of a psychoeducational group intervention for children treated for cancer: a descriptive pilot study. Psycho-Oncology. 2009;18(7):762-6. doi: 10.1002/pon.1470. PMID: 105375677. Language: English. Entry Date: 20091009. Revision Date: 20200708. Publication Type: Journal Article. Intervention 1298. Maurice-Stam H, Grootenhuis MA, Caron HN, et al. Course of life of survivors of childhood cancer is related to quality of life in young adulthood. J Psychosoc Oncol. 2007;25(3):43-58. doi: 10.1300/J077v25n03_03. PMID: 19341013. Intervention 1299. Maurice-Stam H, Oort F, Last B, et al. A predictive model of health-related quality of life in young adult survivors of childhood cancer. European Journal of Cancer Care. 2009;18(4):339-49. doi: 10.1111/j.1365-2354.2007.00916.x. PMID: 105376651. Language: English. Entry Date: 20090904. Revision Date: 20200708. Publication Type: Journal Article. Duplicate 1304. Maurice-Stam H, Verhoof EJ, Caron HN, et al. Are survivors of childhood cancer with an unfavourable psychosocial developmental trajectory more likely to apply for disability benefits? Psychooncology. 2013 Mar;22(3):708-14. doi: 10.1002/pon.2112. PMID: 22213575. Outcome 1305. Mavrides N, Pao M. Updates in paediatric psycho-oncology. Int Rev Psychiatry. 2014 Feb;26(1):63-73. doi: 10.3109/09540261.2013.870537. PMID: 24716501. Study design 1300. Maurice-Stam H, Oort FJ, Last BF, et al. Longitudinal assessment of health-related quality of life in preschool children with non-CNS cancer after the end of successful treatment. Pediatr Blood Cancer. 2008 May;50(5):1047-51. doi: 10.1002/pbc.21374. PMID: 17914734. Outcome 1306. May EA, McGill BC, Robertson EG, et al. Adolescent and Young Adult Cancer Survivors' Experiences of the Healthcare System: A Qualitative Study. J Adolesc Young Adult Oncol. 2018 Feb;7(1):88-96. doi: 10.1089/jayao.2017.0015. PMID: 28737997. Participants B-118 1307. Mayer DK, Ratichek S, Berhe H, et al. Development of a health-related website for parents of children receiving hematopoietic stem cell transplant: HSCTCHESS. J Cancer Surviv. 2010 Mar;4(1):6773. doi: 10.1007/s11764-009-0108-z. PMID: 19967409. Study design 1313. McClellan W, Klemp JR, Krebill H, et al. Understanding the Functional Late Effects and Informational Needs of Adult Survivors of Childhood Cancer. Oncology Nursing Forum. 2013;40(3):254-62. doi: 10.1188/13.ONF.254-262. PMID: 87280368. Language: English. Entry Date: 20130426. Revision Date: 20170203. Publication Type: Article. Outcome 1308. McBride D. ADHD Medication May Help Childhood Cancer Survivors. ONS Connect. 2011;26(3):24-. PMID: 59351074. Language: English. Entry Date: 20110324. Revision Date: 20191121. Publication Type: Article. Intervention 1314. McCullough A, Ruehrdanz A, Jenkins MA, et al. Measuring the Effects of an Animal-Assisted Intervention for Pediatric Oncology Patients and Their Parents: A Multisite Randomized Controlled Trial [Formula: see text]. J Pediatr Oncol Nurs. 2018 May;35(3):159-77. doi: 10.1177/1043454217748586. PMID: 29268667. Intervention 1309. McBride ML, De Oliveira C, Duncan R, et al. Comparing Childhood Cancer Care Costs in Two Canadian Provinces. Healthcare Policy. 2020;15(3):76-88. PMID: 142606266. Language: English. Entry Date: 20200410. Revision Date: 20200410. Publication Type: Article. Outcome 1315. McCullough L, Ng A, Najita J, et al. Breastfeeding in survivors of Hodgkin lymphoma treated with chest radiotherapy. Cancer. 2010 Oct 15;116(20):4866-71. doi: 10.1002/cncr.25442. PMID: 20629028. Participants 1310. McCabe MS, Partridge AH, Grunfeld E, et al. Risk-based health care, the cancer survivor, the oncologist, and the primary care physician. Semin Oncol. 2013 Dec;40(6):804-12. doi: 10.1053/j.seminoncol.2013.09.004. PMID: 24331199. Duplicate 1316. McCurdy MD, Turner EM, Barakat LP, et al. Discrepancies among Measures of Executive Functioning in a Subsample of Young Adult Survivors of Childhood Brain Tumor: Associations with Treatment Intensity. J Int Neuropsychol Soc. 2016 Oct;22(9):900-10. doi: 10.1017/s1355617716000771. PMID: 27667398. Outcome 1311. McCann L, Kearney N, Wengstrom Y. "It's just going to a new hospital ... that's it." Or is it? An experiential perspective on moving from pediatric to adult cancer services. Cancer Nurs. 2014 SepOct;37(5):E23-31. doi: 10.1097/NCC.0b013e3182a40f99. PMID: 24145251. Intervention 1317. McDonnell GA, Salley CG, Barnett M, et al. Anxiety Among Adolescent Survivors of Pediatric Cancer. J Adolesc Health. 2017 Oct;61(4):409-23. doi: 10.1016/j.jadohealth.2017.04.004. PMID: 28729145. Setting 1312. McCarthy MC, McNeil R, Drew S, et al. Psychological Distress and Posttraumatic Stress Symptoms in Adolescents and Young Adults with Cancer and Their Parents. J Adolesc Young Adult Oncol. 2016 Dec;5(4):322-9. doi: 10.1089/jayao.2016.0015. PMID: 27214245. Outcome B-119 1318. McDougall J, Tsonis M. Quality of life in survivors of childhood cancer: a systematic review of the literature (20012008). Support Care Cancer. 2009 Oct;17(10):1231-46. doi: 10.1007/s00520009-0660-0. PMID: 19488790. Study design 1324. McGrath P, Suppiah R, Patton MA. Re-entering life: paediatric acute myeloid leukaemia at one year post treatment. Aust J Holist Nurs. 2005 Oct;12(2):23-34. PMID: 19175261. Intervention 1325. McKenzie SE, Curle C. 'The end of treatment is not the end': parents' experiences of their child's transition from treatment for childhood cancer. Psychooncology. 2012 Jun;21(6):647-54. doi: 10.1002/pon.1953. PMID: 21394822. Participants 1319. McDougall J, Tsonis M, McDougall J, et al. Quality of life in survivors of childhood cancer: a systematic review of the literature (2001-2008). Supportive Care in Cancer. 2009;17(10):1231-46. doi: 10.1007/s00520-009-0660-0. PMID: 105226316. Language: English. Entry Date: 20100115. Revision Date: 20171020. Publication Type: journal article. Duplicate 1326. McLaughlin M, Nam Y, Gould J, et al. A videosharing social networking intervention for young adult cancer survivors. Computers in Human Behavior. 2012 Mar 2012 1320. McDougall JA, Anderson J, Adler Jaffe S, et al. Food Insecurity and Forgone Medical Care Among Cancer Survivors. JCO Oncol Pract. 2020 May 8:Jop1900736. doi: 10.1200/jop.19.00736. PMID: 32384017. Participants 2017-09-25;28(2):631-41. doi: http://dx.doi.org/10.1016/j.chb.2011.11.009. PMID: 921291740; 2012-00508-030. Intervention 1321. McGill BC, Sansom-Daly UM, Wakefield CE, et al. Therapeutic Alliance and Group Cohesion in an Online Support Program for Adolescent and Young Adult Cancer Survivors: Lessons from "Recapture Life". J Adolesc Young Adult Oncol. 2017 Dec;6(4):568-72. doi: 10.1089/jayao.2017.0001. PMID: 28581346. Participants 1327. McLoone JK, Wakefield CE, Cohn RJ. Childhood cancer survivors' school (re)entry: Australian parents' perceptions. Eur J Cancer Care (Engl). 2013 Jul;22(4):484-92. doi: 10.1111/ecc.12054. PMID: 23730821. Participants 1328. McNeil SB. Spirituality in Adolescents and Young Adults With Cancer: A Review of Literature. J Pediatr Oncol Nurs. 2016 Jan-Feb;33(1):55-63. doi: 10.1177/1043454214564397. PMID: 25637188. Outcome 1322. McGoldrick D, Neal C, Whiteson M. Advocacy and adolescent/young adult cancer survivors. Pediatr Blood Cancer. 2008 May;50(5 Suppl):1109-11. doi: 10.1002/pbc.21457. PMID: 18360839. Study design 1329. McWilliams L, Bellhouse S, Yorke J, et al. The acceptability and feasibility of layhealth led interventions for the prevention and early detection of cancer. Psychooncology. 2018 Apr;27(4):1291-7. doi: 10.1002/pon.4670. PMID: 29441629. Outcome 1323. McGrath P, Rawson-Huff N. Corticosteroids during continuation therapy for acute lymphoblastic leukemia: the psycho-social impact. Issues Compr Pediatr Nurs. 2010;33(1):5-19. doi: 10.3109/01460860903486572. PMID: 20121577. Outcome B-120 1330. Medicine WUSo, Institute UC, Uganda RtY, et al. Suubi4Cancer: Improving Access to Pediatric Cancer Services and Treatment Adherence Among Children Living With HIV/AIDS. 2020. Participants 1336. Mellblom AV, Finset A, Korsvold L, et al. Emotional concerns in follow-up consultations between paediatric oncologists and adolescent survivors: a video-based observational study. Psycho-Oncology. 2014;23(12):1365-72. doi: 10.1002/pon.3568. PMID: 109768272. Language: English. Entry Date: 20150923. Revision Date: 20200708. Publication Type: Journal Article. Intervention 1331. Meeske K, Katz ER, Palmer SN, et al. Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemia. Cancer. 2004 Nov 1;101(9):2116-25. doi: 10.1002/cncr.20609. PMID: 15389475. Outcome 1337. Mellblom AV, Korsvold L, Finset A, et al. Providing Information About Late Effects During Routine Follow-Up Consultations Between Pediatric Oncologists and Adolescent Survivors: A Video-Based, Observational Study. J Adolesc Young Adult Oncol. 2015 Dec;4(4):200-8. doi: 10.1089/jayao.2015.0037. PMID: 26697269. Intervention 1332. Meeske KA, Patel SK, Palmer SN, et al. Factors associated with health-related quality of life in pediatric cancer survivors. Pediatr Blood Cancer. 2007 Sep;49(3):298305. doi: 10.1002/pbc.20923. PMID: 16779805. Intervention 1338. Meneses K, McNees P, Azuero A, et al. Evaluation of the Fertility and Cancer Project (FCP) among young breast cancer survivors. Psychooncology. 2010 Oct;19(10):1112-5. doi: 10.1002/pon.1648. PMID: 19918959. Participants 1333. Meeske KA, Sherman-Bien S, Hamilton AS, et al. Mental health disparities between Hispanic and non-Hispanic parents of childhood cancer survivors. Pediatr Blood Cancer. 2013 Sep;60(9):1470-7. doi: 10.1002/pbc.24527. PMID: 23512267. Participants 1339. Meng-Yao L, Yi-Long Y, Li L, et al. Effects of social support, hope and resilience on quality of life among Chinese bladder cancer patients: a cross-sectional study. Health & Quality of Life Outcomes. 2016;14:1-9. doi: 10.1186/s12955-0160481-z. PMID: 115255241. Language: English. Entry Date: 20180724. Revision Date: 20190710. Publication Type: journal article. Participants 1334. Mehnert A, Koch U, Sundermann C, et al. Predictors of fear of recurrence in patients one year after cancer rehabilitation: A prospective study. Acta Oncologica. 2013;52(6):1102-9. doi: 10.3109/0284186X.2013.765063. PMID: 88958271. Language: English. Entry Date: 20130719. Revision Date: 20190516. Publication Type: Article. Participants 1340. Mersereau JE, Goodman LR, Deal AM, et al. To preserve or not to preserve: how difficult is the decision about fertility preservation? Cancer. 2013 Nov 15;119(22):4044-50. doi: 10.1002/cncr.28317. PMID: 24037854. Participants 1335. Melin J, Madanat-Harjuoja L, Hirvonen E, et al. Use of fertility drugs in early-onset female cancer survivors-A Finnish register-based study on 8,929 survivors. Int J Cancer. 2020 Feb 1;146(3):829-38. doi: 10.1002/ijc.32346. PMID: 30989639. Outcome B-121 1341. Mertens AC, Brand S, Ness KK, et al. Health and well-being in adolescent survivors of early childhood cancer: a report from the Childhood Cancer Survivor Study. Psychooncology. 2014 Mar;23(3):266-75. doi: 10.1002/pon.3414. PMID: 24123762. Intervention 1346. Mertens AC, Yasui Y, Neglia JP, et al. Late mortality experience in five-year survivors of childhood and adolescent cancer: the Childhood Cancer Survivor Study. J Clin Oncol. 2001 Jul 1;19(13):3163-72. doi: 10.1200/JCO.2001.19.13.3163. PMID: 11432882. Outcome 1342. Mertens AC, Cotter KL, Foster BM, et al. Improving health care for adult survivors of childhood cancer: recommendations from a delphi panel of health policy experts. Health Policy. 2004 Aug;69(2):169-78. doi: 10.1016/j.healthpol.2003.12.008. PMID: 15212864. Intervention 1347. Merz EL, Tomfohr-Madsen L. Sleep Disruption in Pediatric Cancer Survivors: Conceptual Framework and Opportunities for Clinical Assessment and Behavioral Treatment. Am J Lifestyle Med. 2018 JulAug;12(4):311-23. doi: 10.1177/1559827616681725. PMID: 32063816. Study design 1343. Mertens AC, Liu Q, Neglia JP, et al. Cause-Specific Late Mortality Among 5Year Survivors of Childhood Cancer: The Childhood Cancer Survivor Study. JNCI: Journal of the National Cancer Institute. 2008;100(19):1368-79. doi: 10.1093/jnci/djn310. Intervention 1348. Michel G, François C, Harju E, et al. The long-term impact of cancer: Evaluating psychological distress in adolescent and young adult cancer survivors in Switzerland. Psychooncology. 2019 Mar;28(3):577-85. doi: 10.1002/pon.4981. PMID: 30636177. Participants 1344. Mertens AC, Liu W, Ness KK, et al. Factors associated with recruiting adult survivors of childhood cancer into clinicbased research. Pediatr Blood Cancer. 2014 Oct;61(10):1846-51. doi: 10.1002/pbc.25130. PMID: 24976622. Intervention 1349. Michel G, Greenfield D, Absolom K, et al. Satisfaction with follow-up consultations among younger adults treated for cancer: the role of quality of life and psychological variables. Psycho-Oncology. 2011;20(8):813-22. doi: 10.1002/pon.1783. PMID: 104580896. Corporate Author: Late Effects Group Sheffield. Language: English. Entry Date: 20120323. Revision Date: 20200708. Publication Type: Journal Article. Participants 1345. Mertens AC, Schultz KA, Ness KK, et al. Social adjustment in survivors of childhood cancer: a report from the Childhood Cancer Survivor Study (CCSS)...American Psychosocial Oncology Society (APOS) Third Annual Conference, Amelia Island, Florida, 16th-19th February 2006. Psycho-Oncology. 2006;15:S40-1. PMID: 106016037. Language: English. Entry Date: 20071207. Revision Date: 20150711. Publication Type: Journal Article. Intervention 1350. Michel G, Kuehni CE, Rebholz CE, et al. Can health beliefs help in explaining attendance to follow‐up care? The Swiss Childhood Cancer Survivor Study. PsychoOncology. 2011 Oct 2011 2017-09-26;20(10):1034-43. doi: http://dx.doi.org/10.1002/pon.1823. PMID: 1020051773; 2012-11109-002. Duplicate B-122 1356. Mikkelsen TH, Soendergaard J, Jensen AB, et al. Cancer surviving patients' rehabilitation - understanding failure through application of theoretical perspectives from Habermas. BMC Health Services Research. 2008;8:122-. PMID: 105530380. Language: English. Entry Date: 20100730. Revision Date: 20150711. Publication Type: Journal Article. Outcome 1351. Michel G, Rebholz CE, von der Weid NX, et al. Psychological distress in adult survivors of childhood cancer: the Swiss Childhood Cancer Survivor study. J Clin Oncol. 2010 Apr 1;28(10):1740-8. doi: 10.1200/JCO.2009.23.4534. PMID: 20194864. Outcome 1352. Michel G, Taylor N, Absolom K, et al. Benefit finding in survivors of childhood cancer and their parents: further empirical support for the Benefit Finding Scale for Children. Child Care Health Dev. 2010 Jan;36(1):123-9. doi: 10.1111/j.13652214.2009.01034.x. PMID: 19961498. Outcome 1357. Milam J, Slaughter R, Meeske K, et al. Substance use among adolescent and young adult cancer survivors. Psychooncology. 2016 Nov;25(11):1357-62. doi: 10.1002/pon.3958. PMID: 26315824. Outcome 1358. Milam J, Slaughter R, Meeske K, et al. Substance use among adolescent and young adult cancer survivors. PsychoOncology. 2016;25(11):1357-62. doi: 10.1002/pon.3958. PMID: 119234476. Language: English. Entry Date: 20180725. Revision Date: 20171105. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 1353. Miedema B, Easley JK, Robinson LM. Comparing urban and rural young adult cancer survivors' experiences: a qualitative study. Rural Remote Health. 2013 AprJun;13(2):2324. PMID: 23534891. Participants 1354. Miedema B, Easley JKE, Robinson LM. Comparing urban and rural young adult cancer survivors' experiences: a qualitative study. Rural & Remote Health. 2013;13(1):1-12. PMID: 88846428. Language: English. Entry Date: 20140327. Revision Date: 20140731. Publication Type: Article. Participants 1359. Milam J, Slaughter R, Tobin JL, et al. Childhood Cancer Survivorship and Substance Use Behaviors: A Matched CaseControl Study Among Hispanic Adolescents and Young Adults. J Adolesc Health. 2018 Jul;63(1):115-7. doi: 10.1016/j.jadohealth.2018.02.005. PMID: 30060847. Intervention 1355. Migdady Y, Salhab M, Dang NH, et al. Disparities in conditional net survival among non-Hodgkin lymphoma survivors: a population-based analysis. Leuk Lymphoma. 2016;57(3):676-84. doi: 10.3109/10428194.2015.1102246. PMID: 26428541. Participants 1360. Millar B, Patterson P, Desille N. Emerging adulthood and cancer: how unmet needs vary with time-since-treatment. Palliat Support Care. 2010 Jun;8(2):151-8. doi: 10.1017/s1478951509990903. PMID: 20307366. Outcome B-123 1361. Millar MM, Kinney AY, Camp NJ, et al. Predictors of Response Outcomes for Research Recruitment Through a Central Cancer Registry: Evidence From 17 Recruitment Efforts for Population-Based Studies. Am J Epidemiol. 2019 May 1;188(5):928-39. doi: 10.1093/aje/kwz011. PMID: 30689685. Participants 1366. Miller LE. Communication dilemmas in the context of cancer: survivors' and partners' strategies for communicating throughout survivorship. Issues Ment Health Nurs. 2014 Dec;35(12):914-23. doi: 10.3109/01612840.2014.934939. PMID: 25426747. Participants 1367. Miller LE, Miller LE. Sources of uncertainty in cancer survivorship. Journal of Cancer Survivorship. 2012;6(4):431-40. doi: 10.1007/s11764-012-0229-7. PMID: 104386913. Language: English. Entry Date: 20130510. Revision Date: 20200708. Publication Type: journal article. Participants 1362. Miller C. The Unique Hurdles Facing Adolescent and Young Adult Cancer Survivors. Journal of Oncology Navigation & Survivorship. 2020;11(5):160-1. PMID: 142934515. Language: English. Entry Date: 20200430. Revision Date: 20200430. Publication Type: Article. Journal Subset: Nursing. Study design 1368. Miller TL, Lipsitz SR, Lopez-Mitnik G, et al. Characteristics and determinants of adiposity in pediatric cancer survivors. Cancer Epidemiol Biomarkers Prev. 2010 Aug;19(8):2013-22. doi: 10.1158/10559965.Epi-10-0163. PMID: 20647396. Intervention 1363. Miller C, van der Eijk M. The Benefits of Peer Connection for Adolescent and Young Adult Oncology Patients...Tenth Annual AONN+ Navigation & Survivorship Conference, November 6-10, 2019, Nashville, TN. Journal of Oncology Navigation & Survivorship. 2019;10(11):472-. PMID: 139253119. Language: English. Entry Date: 20191105. Revision Date: 20191105. Publication Type: Article. Participants 1369. Min Ah K, Jaehee Y. Life after cancer: How does public stigma increase psychological distress of childhood cancer survivors? International Journal of Nursing Studies. 2014;51(12):1605-14. doi: 10.1016/j.ijnurstu.2014.04.005. PMID: 99629382. Language: English. Entry Date: 20141201. Revision Date: 20190708. Publication Type: Article. Outcome 1364. Miller KA, Wojcik KY, Cockburn MG, et al. Prevalence and correlates of adherence to skin examination among adolescent and young adult survivors of melanoma from the Project Forward Study. Pediatr Blood Cancer. 2020 Mar;67(3):e28090. doi: 10.1002/pbc.28090. PMID: 31774240. Outcome 1370. Miropolsky EM, Baker KS, AbbeyLambertz M, et al. Participant Perceptions on a Fitbit and Facebook Intervention for Young Adult Cancer Survivors: A Qualitative Study. J Adolesc Young Adult Oncol. 2020 Jan 13. doi: 10.1089/jayao.2019.0072. PMID: 31928489. Participants 1365. Miller KA, Wojcik KY, Ramirez CN, et al. Supporting long-term follow-up of young adult survivors of childhood cancer: Correlates of healthcare self-efficacy. Pediatric Blood & Cancer. 2017;64(2):35863. doi: 10.1002/pbc.26209. PMID: 120281481. Language: English. Entry Date: 20170701. Revision Date: 20180823. Publication Type: journal article. Duplicate B-124 1371. Miropolsky EM, Scott Baker K, Abbey-Lambertz M, et al. Participant Perceptions on a Fitbit and Facebook Intervention for Young Adult Cancer Survivors: A Qualitative Study. Journal of Adolescent & Young Adult Oncology. 2020;9(3):410-7. doi: 10.1089/jayao.2019.0072. PMID: 143724432. Language: English. Entry Date: 20200616. Revision Date: 20200616. Publication Type: Article. Duplicate 1376. Miura A, Matsuda Y, Ogawa I, et al. Oncology nurses' recognition of long-term cancer survivorship care in Japan. Asia Pac J Oncol Nurs. 2015 Jul-Sep;2(3):136-43. doi: 10.4103/2347-5625.163412. PMID: 27981107. Participants 1377. Mizrahi D, Fardell JE, Wakefield CE, et al. How physically active do Australian and New Zealander childhood cancer survivors perceive themselves? A report from the ANZCHOG survivorship study. Complement Ther Med. 2019 Jun;44:196203. doi: 10.1016/j.ctim.2019.04.020. PMID: 31126556. Intervention 1372. Mitby PA, Robison LL, Whitton JA, et al. Utilization of special education services and educational attainment among long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Cancer. 2003 Feb 15;97(4):1115-26. doi: 10.1002/cncr.11117. PMID: 12569614. Outcome 1378. Mobley EM, Foster KJ, Terry WW. Identifying and Understanding the Gaps in Care Experienced by Adolescent and Young Adult Cancer Patients at the University of Iowa Hospitals and Clinics. J Adolesc Young Adult Oncol. 2018 Oct;7(5):592-603. doi: 10.1089/jayao.2018.0023. PMID: 29924681. Intervention 1373. Mitchell L, Tam S, Gupta AA. Crucial Conversations: Addressing Informational Needs of Adolescents and Young Adults Diagnosed With Cancer. Clin J Oncol Nurs. 2018 Oct 1;22(5):483-6. doi: 10.1188/18.Cjon.483-486. PMID: 30239526. Study design 1379. Mody R, Li S, Dover DC, et al. Twenty-five-year follow-up among survivors of childhood acute lymphoblastic leukemia: a report from the Childhood Cancer Survivor Study. Blood. 2008 Jun 15;111(12):5515-23. doi: 10.1182/blood2007-10-117150. PMID: 18334672. Outcome 1374. Mitka M. Young adult cancer survivors face barriers to receiving primary care. Jama. 2012 Oct 24;308(16):1618-9. doi: 10.1001/jama.2012.14197. PMID: 23093148. Outcome 1380. Moe PJ, Holen A. Long-term coping in childhood cancer survivors--influence of illness, treatment and demographic factors. Acta Paediatr. 2000 Jan;89(1):4-6. doi: 10.1080/080352500750028951. PMID: 10677047. Study design 1375. Mitka M, Mitka M. Young adult cancer survivors face barriers to receiving primary care. JAMA: Journal of the American Medical Association. 2012;308(16):1618-9. doi: 10.1001/jama.2012.14197. PMID: 108106544. Language: English. Entry Date: 20121109. Revision Date: 20200708. Publication Type: journal article. Duplicate 1381. Mokdad AH, Forouzanfar MH, Daoud F, et al. Health in times of uncertainty in the eastern Mediterranean region, 1990-2013: a systematic analysis for the Global Burden of Disease Study 2013. Lancet Glob Health. 2016 Oct;4(10):e70413. doi: 10.1016/s2214-109x(16)30168-1. PMID: 27568068. Participants B-125 1382. Molassiotis A, Van Den Akker OBA, Boughton BJ. Perceived social support, family environment and psychosocial recovery in bone marrow transplant longterm survivors. Social Science & Medicine. 1997;44(3):317-25. doi: 10.1016/s02779536(96)00101-3. PMID: 107272115. Language: English. Entry Date: 19980701. Revision Date: 20200701. Publication Type: Journal Article. Outcome 1387. Molnár ÉD, Kovács D, Bartyik K. Comparison of Quality of Life and Learning Success of Adolescents Surviving Cancer and Their Classmates. Journal of Cancer Education. 2020;35(2):352-8. doi: 10.1007/s13187-019-1472-7. PMID: 142270677. Language: English. Entry Date: In Process. Revision Date: 20200326. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 1383. Molinaro ML, Fletcher PC. "It Changed Everything. And Not All in a Bad Way": Reflections of Pediatric Cancer Experiences. Compr Child Adolesc Nurs. 2017 Sep;40(3):157-72. doi: 10.1080/24694193.2017.1307471. PMID: 28749228. Study design 1388. Mols F, Thong MS, de Poll-Franse LV, et al. Type D (distressed) personality is associated with poor quality of life and mental health among 3080 cancer survivors. Journal of Affective Disorders. 2012;136(1/2):26-34. doi: 10.1016/j.jad.2011.08.034. PMID: 104617028. Language: English. Entry Date: 20120511. Revision Date: 20200708. Publication Type: journal article. Participants 1384. Molinaro ML, Fletcher PC. Taking Lemons and Making Lemonade: Posttraumatic Growth From Pediatric Cancer. Clin Nurse Spec. 2018 Sep/Oct;32(5):268-78. doi: 10.1097/nur.0000000000000397. PMID: 30095526. Intervention 1389. Monnat S, Rhubart D, Wallington S. Differences in Human Papillomavirus Vaccination Among Adolescent Girls in Metropolitan Versus Non-metropolitan Areas: Considering the Moderating Roles of Maternal Socioeconomic Status and Health Care Access. Maternal & Child Health Journal. 2016;20(2):315-25. doi: 10.1007/s10995-015-1831-x. PMID: 112693318. Language: English. Entry Date: 20160203. Revision Date: 20170131. Publication Type: Article. Participants 1385. Molinaro ML, Fletcher PC. Who is a survivor? Perceptions from individuals who experienced pediatric cancer and their primary support persons. Support Care Cancer. 2018 Apr;26(4):1113-22. doi: 10.1007/s00520-017-3931-1. PMID: 29038854. Outcome 1386. Molnár É D, Kovács D, Bartyik K. Comparison of Quality of Life and Learning Success of Adolescents Surviving Cancer and Their Classmates. J Cancer Educ. 2020 Apr;35(2):352-8. doi: 10.1007/s13187-0191472-7. PMID: 30761445. Outcome 1390. Monteiro LS, Salazar F, Pacheco JJ, et al. Outcomes of invitational and opportunistic oral cancer screening initiatives in Oporto, Portugal. J Oral Pathol Med. 2015 Feb;44(2):145-52. doi: 10.1111/jop.12216. PMID: 25040234. Participants B-126 1396. Moses C, Flegg K, Dimaras H. Patient knowledge, experiences and preferences regarding retinoblastoma and research: A qualitative study. Health Expectations. 2020;23(3):632-43. doi: 10.1111/hex.13043. PMID: 144279119. Language: English. Entry Date: 20200701. Revision Date: 20200701. Publication Type: Article. Outcome 1391. Montgomery M. Breast self-exam: relevance for young female childhood cancer survivors. Southern Online Journal of Nursing Research. 2008;8(2):2p-p. PMID: 105713107. Language: English. Entry Date: 20081212. Revision Date: 20150711. Publication Type: Journal Article. Intervention 1392. Moody L, Turner A, Osmond J, et al. Web-based self-management for young cancer survivors: consideration of user requirements and barriers to implementation. J Cancer Surviv. 2015 Jun;9(2):188-200. doi: 10.1007/s11764-0140400-4. PMID: 25236685. Intervention 1397. Moules NJ, Laing CM, Estefan A, et al. "Family Is Who They Say They Are"a: Examining the Effects of Cancer on the Romantic Partners of Adolescents and Young Adults. Journal of Family Nursing. 2018;24(3):374-404. doi: 10.1177/1074840718786985. PMID: 131268623. Language: English. Entry Date: 20180820. Revision Date: 20190801. Publication Type: Article. Outcome 1393. Mooney-Somers J, Lewis P, Kerridge I. Discursive constructions of youth cancer: findings from creative methods research with healthy young people. J Cancer Surviv. 2016 Jun;10(3):427-36. doi: 10.1007/s11764-015-0488-1. PMID: 26563950. Outcome 1398. Moustafa D, Hawryluk EB. Comment on "Parent and child perspectives on perceived barriers to child sun protection and their association with sun protection strategies among children of melanoma survivors". Pediatr Dermatol. 2019 Sep;36(5):765. doi: 10.1111/pde.13927. PMID: 31529638. Study design 1394. Morasso G, Di Leo S, Caruso A, et al. Evaluation of a screening programme for psychological distress in cancer survivors. Supportive Care in Cancer. 2010;18(12):1545-52. doi: 10.1007/s00520009-0777-1. PMID: 104933419. Language: English. Entry Date: 20110318. Revision Date: 20171020. Publication Type: journal article. Participants 1399. Mouw MS, Wertman EA, Barrington C, et al. Care Transitions in Childhood Cancer Survivorship: Providers' Perspectives. Journal of Adolescent & Young Adult Oncology. 2017;6(1):111-9. doi: 10.1089/jayao.2016.0035. PMID: 121698430. Language: English. Entry Date: 20170901. Revision Date: 20180301. Publication Type: Article. Duplicate 1395. Morrison RS, Moody P, Shelton M. PAP SMEAR RATES: PREDICTOR OF CERVICAL CANCER MORTALITY DISPARITY? Online Journal of Rural Nursing & Health Care. 2010 Fall2010;10(2):21-7. doi: 10.14574/ojrnhc.v10i2.40. PMID: 66640083. Language: English. Entry Date: 20111103. Revision Date: 20200602. Publication Type: Article. Participants 1400. Moyer KH, Willard VW, Gross AM, et al. The impact of attention on social functioning in survivors of pediatric acute lymphoblastic leukemia and brain tumors. Pediatr Blood Cancer. 2012 Dec 15;59(7):1290-5. doi: 10.1002/pbc.24256. PMID: 22848032. Outcome B-127 1401. Moyer KH, Willard VW, Gross AM, et al. The impact of attention on social functioning in survivors of pediatric acute lymphoblastic leukemia and brain tumors. Pediatric Blood & Cancer. 2012;59(7):12905. doi: 10.1002/pbc.24256. PMID: 104373178. Language: English. Entry Date: 20130111. Revision Date: 20200708. Publication Type: journal article. Duplicate 1407. Mulrooney DA, Hyun G, Ness KK, et al. Major cardiac events for adult survivors of childhood cancer diagnosed between 1970 and 1999: report from the Childhood Cancer Survivor Study cohort. BMJ. 2020;368(16794). Intervention 1408. Mulrooney DA, Dover DC, Li S, et al. Twenty years of follow-up among survivors of childhood and young adult acute myeloid leukemia: a report from the Childhood Cancer Survivor Study. Cancer. 2008 May 1;112(9):2071-9. doi: 10.1002/cncr.23405. PMID: 18327823. Outcome 1402. Mueller S, Kline CN, Buerki RA, et al. Stroke impact on mortality and psychologic morbidity within the Childhood Cancer Survivor Study. Cancer. 2020 Mar 1;126(5):1051-9. doi: 10.1002/cncr.32612. PMID: 31809558. Intervention 1409. Mulrooney DA, Ness KK, Neglia JP, et al. Fatigue and sleep disturbance in adult survivors of childhood cancer: a report from the childhood cancer survivor study (CCSS). Sleep. 2008 Feb;31(2):271-81. doi: 10.1093/sleep/31.2.271. PMID: 18274275. Outcome 1403. Muffly LS, Hlubocky FJ, Khan N, et al. Psychological morbidities in adolescent and young adult blood cancer patients during curative-intent therapy and early survivorship. Cancer. 2016 Mar 15;122(6):954-61. doi: 10.1002/cncr.29868. PMID: 26749023. Participants 1410. Munoz A, Kaiser K, Yanez B, et al. Cancer experiences and health-related quality of life among racial and ethnic minority survivors of young adult cancer: a mixed methods study. Supportive Care in Cancer. 2016;24(12):4861-70. doi: 10.1007/s00520-016-3340-x. PMID: 119091354. Language: English. Entry Date: 20170820. Revision Date: 20180525. Publication Type: journal article. Duplicate 1404. Mulder RL, van der Pal HJH, Levitt GA, et al. Transition guidelines: An important step in the future care for childhood cancer survivors. A comprehensive definition as groundwork. Eur J Cancer. 2016 Feb;54:64-8. doi: 10.1016/j.ejca.2015.10.007. PMID: 26735352. Intervention 1405. Mulhern RK, Tyc VL, Phipps S, et al. Health-related behaviors of survivors of childhood cancer. Med Pediatr Oncol. 1995 Sep;25(3):159-65. doi: 10.1002/mpo.2950250302. PMID: 7623724. Outcome 1411. Munoz AR, Kaiser K, Yanez B, et al. Cancer experiences and health-related quality of life among racial and ethnic minority survivors of young adult cancer: a mixed methods study. Support Care Cancer. 2016 Dec;24(12):4861-70. doi: 10.1007/s00520-016-3340-x. PMID: 27435322. Participants 1406. Mulhern RK, Wasserman AL, Friedman AG, et al. Social competence and behavioral adjustment of children who are long-term survivors of cancer. Pediatrics. 1989 Jan;83(1):18-25. PMID: 2909972. Outcome B-128 1412. Murali C, Fernbach SD, Potocki L. Handing the pen to the patient: reflective writing for children and families affected by genetic conditions. Am J Med Genet A. 2014 Dec;164a(12):3021-6. doi: 10.1002/ajmg.a.36776. PMID: 25256956. Participants 1417. Musiol K, Bulska W, Brożek P, et al. Quality of life in survivors of childhood brain tumour and the association of children's diseases on quality of their parents life. Psychooncology. 2019 May;28(5):1088-95. doi: 10.1002/pon.5061. PMID: 30875709. Outcome 1413. Murphy D, Sawczyn KK, Quinn GP. Using a patient-centered approach to develop a fertility preservation brochure for pediatric oncology patients: a pilot study. J Pediatr Adolesc Gynecol. 2012 Apr;25(2):114-21. doi: 10.1016/j.jpag.2011.10.007. PMID: 22222100. Intervention 1418. Musiol K, Bulska W, Brożek P, et al. Quality of life in survivors of childhood brain tumour and the association of children's diseases on quality of their parents life. Psycho-Oncology. 2019;28(5):1088-95. doi: 10.1002/pon.5061. PMID: 136270530. Language: English. Entry Date: In Process. Revision Date: 20200430. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 1414. Murphy LK, Rodriguez EM, Schwartz L, et al. Longitudinal associations among maternal communication and adolescent posttraumatic stress symptoms after cancer diagnosis. Psychooncology. 2016 Jul;25(7):779-86. doi: 10.1002/pon.3918. PMID: 26216475. Outcome 1419. Mütsch J, Friedrich M, Leuteritz K, et al. Sexuality and cancer in adolescents and young adults - a comparison between reproductive cancer patients and patients with non-reproductive cancer. BMC Cancer. 2019 Aug 22;19(1):828. doi: 10.1186/s12885-019-6009-2. PMID: 31438895. Participants 1415. Murphy MH. Health Promotion in Adolescent and Young Adult Cancer Survivors: Mobilizing Compliance in a Multifaceted Risk Profile. Journal of Pediatric Oncology Nursing. 2013;30(3):139-52. doi: 10.1177/1043454213486194. PMID: 87598726. Language: English. Entry Date: 20130524. Revision Date: 20200708. Publication Type: Article. Journal Subset: Core Nursing. Participants 1420. Mwaka AD, Okello ES, Orach CG. Barriers to biomedical care and use of traditional medicines for treatment of cervical cancer: an exploratory qualitative study in northern Uganda. Eur J Cancer Care (Engl). 2015 Jul;24(4):503-13. doi: 10.1111/ecc.12211. PMID: 24923866. Setting 1421. Na S, Li L, Crosson B, et al. White matter network topology relates to cognitive flexibility and cumulative neurological risk in adult survivors of pediatric brain tumors. Neuroimage Clin. 2018;20:485-97. doi: 10.1016/j.nicl.2018.08.015. PMID: 30148064. Outcome 1416. Murphy-Banks R, Blanch-Hartigan D, Boehm L, et al. Personal Narrative: Raising Awareness of Adolescent and Young Adult Cancer Survivors in Similarly Aged University Students. Journal of Adolescent & Young Adult Oncology. 2019;8(4):434-41. doi: 10.1089/jayao.2018.0131. PMID: 137995646. Language: English. Entry Date: 20190813. Revision Date: 20190823. Publication Type: Article. Outcome B-129 1422. Nacif-Gomera ML, LorenzoGonzález R, Hernández M, et al. AMOR II: an effort to eradicate psychosocial barriers induced by immigration phenomenon in children with cancer. J Pediatr Hematol Oncol. 2013 Mar;35(2):118-23. doi: 10.1097/MPH.0b013e3182580c0c. PMID: 22858565. Intervention 1427. Nagler RH, Puleo E, Sprunck-Harrild K, et al. Internet use among childhood and young adult cancer survivors who smoke: implications for cessation interventions. Cancer Causes Control. 2012 Apr;23(4):647-52. doi: 10.1007/s10552-0129926-9. PMID: 22370697. Outcome 1428. Nagler RH, Puleo E, Sprunck-Harrild K, et al. Internet use among childhood and young adult cancer survivors who smoke: implications for cessation interventions. Cancer Causes & Control. 2012;23(4):64752. doi: 10.1007/s10552-012-9926-9. PMID: 104443107. Language: English. Entry Date: 20121207. Revision Date: 20200708. Publication Type: journal article. Duplicate 1423. Nagarajan R, Kamruzzaman A, Ness KK, et al. Twenty years of follow-up of survivors of childhood osteosarcoma: a report from the Childhood Cancer Survivor Study. Cancer. 2011 Feb 1;117(3):625-34. doi: 10.1002/cncr.25446. PMID: 20922787. Intervention 1424. Nagarajan R, Kamruzzaman A, Ness KK, et al. Twenty years of follow-up of survivors of childhood osteosarcoma: a report from the Childhood Cancer Survivor Study. Cancer (0008543X). 2011;117(3):625-34. doi: 10.1002/cncr.25446. PMID: 104995562. Language: English. Entry Date: 20110225. Revision Date: 20161125. Publication Type: journal article. Duplicate 1429. Nagler RH, Puleo E, Sprunck-Harrild K, et al. Health media use among childhood and young adult cancer survivors who smoke. Support Care Cancer. 2014 Sep;22(9):2497-507. doi: 10.1007/s00520014-2236-x. PMID: 24728617. Participants 1430. Naik H, Howell D, Su S, et al. EQ5D Health Utility Scores: Data from a Comprehensive Canadian Cancer Centre. Patient. 2017;10(1):105-15. doi: 10.1007/s40271-016-0190-z. PMID: 120851149. Language: English. Entry Date: 20170228. Revision Date: 20170228. Publication Type: Article. Outcome 1425. Nagarajan R, Neglia JP, Clohisy DR, et al. Education, employment, insurance, and marital status among 694 survivors of pediatric lower extremity bone tumors: a report from the childhood cancer survivor study. Cancer. 2003 May 15;97(10):255464. doi: 10.1002/cncr.11363. PMID: 12733155. Outcome 1431. Nalley C. Pediatric Hematology/Oncology: Discoveries, Challenges & Future Directions. Oncology Times. 2020;42:1-3. doi: 10.1097/01.cot.0000658652.86745.82. PMID: 144503444. Language: English. Entry Date: 20200727. Revision Date: 20200727. Publication Type: Article. Intervention 1426. Nagel K, Wizowski L, Duckworth J, et al. Using plain language skills to create an educational brochure about sperm banking for adolescent and young adult males with cancer. J Pediatr Oncol Nurs. 2008 JulAug;25(4):220-6. doi: 10.1177/1043454208319973. PMID: 18539907. Intervention B-130 1432. Nass SJ, Beaupin LK, DemarkWahnefried W, et al. Identifying and addressing the needs of adolescents and young adults with cancer: summary of an Institute of Medicine workshop. Oncologist. 2015 Feb;20(2):186-95. doi: 10.1634/theoncologist.2014-0265. PMID: 25568146. Participants 1437. Nathan PC, Greenberg ML, Ness KK, et al. Medical care in long-term survivors of childhood cancer: a report from the childhood cancer survivor study. Journal of Clinical Oncology. 2008;26(27):4401-9. doi: 10.1200/JCO.2008.16.9607. PMID: 105555280. Language: English. Entry Date: 20090130. Revision Date: 20161116. Publication Type: journal article. Duplicate 1433. Nass SJ, Beaupin LK, DemarkWahnefried W, et al. Identifying and Addressing the Needs of Adolescents and Young Adults With Cancer: Summary of an Institute of Medicine Workshop. Oncologist. 2015;20(2):186-97. doi: 10.1634/theoncologist.2014-0265. PMID: 103760559. Language: English. Entry Date: 20150220. Revision Date: 20200708. Publication Type: Journal Article. Duplicate 1438. National Cancer Institute. National Cancer Institute website. https://www.cancer.gov/. Accessed on July 21, 2020. Study design 1439. National Cancer Institute. Childhood Cancer Data Initiative Sharing, A life Lesson. YouTube; August 7, 2019. https://youtu.be/cCWwvOR6C78. Accessed on October 13 2020. Intervention 1434. Nass SJ, Beaupin LK, Demark‐ Wahnefried W, et al. Identifying and Addressing the Needs of Adolescents and Young Adults With Cancer: Summary of an Institute of Medicine Workshop. Oncologist. 2015;20(2):186-95. doi: 10.1634/theoncologist.2014-0265. PMID: 101044807. Language: English. Entry Date: 20150220. Revision Date: 20150224. Publication Type: Article. Duplicate 1440. National Cancer Institute. Facebook Live: The Role of Immunotherapy in Childhood Cancer Treatment. YouTube; October 25, 2018. https://youtu.be/UHROY4-2j44. Accessed on October 13 2020. Participants 1441. National Cancer Institute. Facebook Live: Beyond Treatment: Caring for the Needs of Children with Cancer. YouTube; September 19, 2019. https://youtu.be/hVIGo04p1wU. Accessed on October 13 2020. Intervention 1435. Nathan P, Agha M, Pole J, et al. Predictors of attendance at specialized survivor clinics in a population-based cohort of adult survivors of childhood cancer. Journal of Cancer Survivorship. 2016;10(4):611-8. doi: 10.1007/s11764-0160522-y. PMID: 116397355. Language: English. Entry Date: 20170430. Revision Date: 20180515. Publication Type: journal article. Duplicate 1442. National Cancer Survivorship Resource Center. Quality of Life: Programs and Navigation Overview: Expert Panel Summit Workgroup Overview. Participants 1443. National Coalition for Cancer Survivorship. https://canceradvocacy.org/. Accessed on November 3, 2020. Intervention 1436. Nathan PC, Greenberg ML, Ness KK, et al. Medical care in long-term survivors of childhood cancer: a report from the childhood cancer survivor study. J Clin Oncol. 2008 Sep 20;26(27):4401-9. doi: 10.1200/jco.2008.16.9607. PMID: 18802152. Duplicate B-131 1444. National Comprehensive Cancer Network. Taking Charge of Follow-Up Care. https://www.nccn.org/patients/resources/life _after_cancer/survivorship.aspx. Accessed on October 13 2020. Intervention 1449. Nemeth O, Hermann P, Kivovics P, et al. Long-term effects of chemotherapy on dental status of children cancer survivors. Pediatr Hematol Oncol. 2013 Apr;30(3):208-15. doi: 10.3109/08880018.2013.763391. PMID: 23373734. Outcome 1445. Nautsch F, Ludwig JM, Minzhi X, et al. Racial Disparities and Sociodemographic Differences in Incidence and Survival Among Pediatric Patients in the United States With Primary Liver Cancer: A Surveillance, Epidemiology, and End Results (SEER) Population Study. Journal of Clinical Gastroenterology. 2018;52(3):2627. doi: 10.1097/MCG.0000000000000833. PMID: 128030195. Language: English. Entry Date: In Process. Revision Date: 20190818. Publication Type: journal article. Journal Subset: Biomedical. Outcome 1450. Nemeth O, Kivovics M, Pinke I, et al. Late effects of multiagent chemotherapy on salivary secretion in children cancer survivors. J Am Coll Nutr. 2014;33(3):18691. doi: 10.1080/07315724.2013.834802. PMID: 24835469. Outcome 1451. Ness KK, Bhatia S, Baker KS, et al. Performance limitations and participation restrictions among childhood cancer survivors treated with hematopoietic stem cell transplantation: the bone marrow transplant survivor study. Arch Pediatr Adolesc Med. 2005 Aug;159(8):706-13. doi: 10.1001/archpedi.159.8.706. PMID: 16061776. Study design 1446. Nazemi KJ, Butler RW. Neuropsychological rehabilitation for survivors of childhood and adolescent brain tumors: a view of the past and a vision for a promising future. J Pediatr Rehabil Med. 2011;4(1):37-46. doi: 10.3233/prm-20110151. PMID: 21757809. Outcome 1452. Ness KK, Hudson MM, Ginsberg JP, et al. Physical performance limitations in the Childhood Cancer Survivor Study cohort. J Clin Oncol. 2009 May 10;27(14):2382-9. doi: 10.1200/jco.2008.21.1482. PMID: 19332713. Outcome 1447. Neill CC, Migliorati C, Trojan T, et al. Experience and expertise regarding orthodontic management of childhood and adolescent cancer survivors. American Journal of Orthodontics & Dentofacial Orthopedics. 2015;148(5):765-70. doi: 10.1016/j.ajodo.2015.05.027. PMID: 110656855. Language: English. Entry Date: 20160204. Revision Date: 20190326. Publication Type: journal article. Outcome 1453. Ness KK, Hudson MM, Ginsberg JP, et al. Physical performance limitations in the Childhood Cancer Survivor Study cohort. Journal of Clinical Oncology. 2009;27(14):2382-9. doi: 10.1200/JCO.2008.21.1482. PMID: 105535349. Language: English. Entry Date: 20090529. Revision Date: 20161116. Publication Type: journal article. Duplicate 1448. Nekhlyudov L, Mollica M, Jacobsen P, et al. Developing a Quality of Cancer Survivorship Care Framework: Implications for Clinical Care, Research, and Policy. JNCI: Journal of the National Cancer Institute. 2019;111(11):1120-30. Participants 1454. Ness KK, Hudson MM, Jones KE, et al. Effect of Temporal Changes in Therapeutic Exposure on Self-reported Health Status in Childhood Cancer Survivors. Ann Intern Med. 2017 Jan 17;166(2):89-98. doi: 10.7326/M16-0742. PMID: 27820947. Outcome B-132 1455. Ness KK, Leisenring WM, Huang S, et al. Predictors of inactive lifestyle among adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Cancer. 2009 May 1;115(9):1984-94. doi: 10.1002/cncr.24209. PMID: 19224548. Outcome 1461. Neville AR, Moothathamby N, Naganathan M, et al. "A place to call our own": The impact of camp experiences on the psychosocial wellbeing of children and youth affected by cancer – A narrative review. Complementary Therapies in Clinical Practice. 2019;36:18-28. doi: 10.1016/j.ctcp.2019.04.007. PMID: 137850543. Language: English. Entry Date: 20190806. Revision Date: 20190812. Publication Type: Article. Intervention 1456. Netherlands CCCT, Society DC, Center MUM, et al. ENdometrial Cancer SURvivors' Follow-up carE (ENSURE): Less is More? ; 2015. Participants 1462. Ng AK, Li S, Recklitis C, et al. Health practice in long-term survivors of Hodgkin's lymphoma. Int J Radiat Oncol Biol Phys. 2008 Jun 1;71(2):468-76. doi: 10.1016/j.ijrobp.2007.09.028. PMID: 18234434. Participants 1457. Netson KL, Ashford JM, Skinner T, et al. Executive dysfunction is associated with poorer health-related quality of life in pediatric brain tumor survivors. J Neurooncol. 2016 Jun;128(2):313-21. doi: 10.1007/s11060-016-2113-1. PMID: 27033060. Outcome 1463. Nice CHUd. National Observatory of Chronic Myeloid Leukemia Adolescent and Young Adults Treated With Tyrosine Kinase Inhibitors in First Intent. 2016. Outcome 1458. Netson KL, Conklin HM, Ashford JM, et al. Parent and teacher ratings of attention during a year-long methylphenidate trial in children treated for cancer. J Pediatr Psychol. 2011 May;36(4):438-50. doi: 10.1093/jpepsy/jsq102. PMID: 21097489. Outcome 1464. Nicklin E, Velikova G, Hulme C, et al. Long‐term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review. PsychoOncology. 2019 Mar 2019 1459. Netson KL, Conklin HM, Wu S, et al. Longitudinal investigation of adaptive functioning following conformal irradiation for pediatric craniopharyngioma and lowgrade glioma. Int J Radiat Oncol Biol Phys. 2013 Apr 1;85(5):1301-6. doi: 10.1016/j.ijrobp.2012.10.031. PMID: 23245284. Outcome 2020-02-06;28(3):477-87. doi: http://dx.doi.org/10.1002/pon.4989. PMID: 2175704187; 2019-06110-001. Outcome 1465. Nicklin E, Velikova G, Hulme C, et al. Long-term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review. PsychoOncology. 2019;28(3):477-87. doi: 10.1002/pon.4989. PMID: 135078703. Language: English. Entry Date: In Process. Revision Date: 20200302. Publication Type: journal article. Duplicate 1460. Neuhouser ML, Patterson RE, Schwartz SM, et al. Use of alternative medicine by children with cancer in Washington state. Preventive Medicine. 2001;33(5):347-54. PMID: 106905136. Language: English. Entry Date: 20020301. Revision Date: 20150711. Publication Type: Journal Article. Intervention B-133 1466. Nieman CL, Kinahan KE, Yount SE, et al. Fertility preservation and adolescent cancer patients: lessons from adult survivors of childhood cancer and their parents. Cancer Treat Res. 2007;138:201-17. doi: 10.1007/978-0-387-72293-1_15. PMID: 18080667. Outcome 1471. Nilsson MI, Saboonchi F, Alexanderson K, et al. Changes in importance of work and vocational satisfaction during the 2 years after breast cancer surgery and factors associated with this. J Cancer Surviv. 2016 Jun;10(3):56472. doi: 10.1007/s11764-015-0502-7. PMID: 26644189. Participants 1467. Nies M, Dekker BL, Sulkers E, et al. Psychosocial development in survivors of childhood differentiated thyroid carcinoma: a cross-sectional study. Eur J Endocrinol. 2018 Mar;178(3):215-23. doi: 10.1530/eje17-0741. PMID: 29254931. Outcome 1472. Ning MS, Perkins SM, Borinstein SC, et al. Role of radiation in the treatment of non-metastatic osseous Ewing sarcoma. J Med Imaging Radiat Oncol. 2016 Feb;60(1):119-28. doi: 10.1111/17549485.12389. PMID: 26439449. Outcome 1468. Nies M, Klein Hesselink MS, Huizinga GA, et al. Long-Term Quality of Life in Adult Survivors of Pediatric Differentiated Thyroid Carcinoma. J Clin Endocrinol Metab. 2017 Apr 1;102(4):121826. doi: 10.1210/jc.2016-2246. PMID: 28001468. Outcome 1473. Nipp RD, Shui AM, Perez GK, et al. Patterns in Health Care Access and Affordability Among Cancer Survivors During Implementation of the Affordable Care Act. JAMA Oncol. 2018 Jun 1;4(6):791-7. doi: 10.1001/jamaoncol.2018.0097. PMID: 29596618. Participants 1469. Nies M, Klein Hesselink MS, Huizinga GA, et al. Long-Term Quality of Life in Adult Survivors of Pediatric Differentiated Thyroid Carcinoma. Journal of Clinical Endocrinology & Metabolism. 2016:jc20162246-jc. doi: 10.1210/jc.20162246. PMID: 120361871. Language: English. Entry Date: 20180727. Revision Date: 20190708. Publication Type: journal article. Duplicate 1474. No authorship i. Abstracts of the 8th Annual Conference of the American Psychosocial Oncology Society, 17–19 February 2011, Anaheim, California, USA. Psycho-Oncology. 2011 Feb 2011 2019-04-12;20(Suppl 1):S1-S114. PMID: 1023196751; 2012-11241-001. Study design 1475. No authorship i. Abstracts of the APOS 10 <sup>th</sup> Annual Conference. Psycho-Oncology. 2013 Feb 2013 1470. Nikpay SS, Tebbs MG, Castellanos EH. Patient Protection and Affordable Care Act Medicaid expansion and gains in health insurance coverage and access among cancer survivors. Cancer. 2018 Jun 15;124(12):2645-52. doi: 10.1002/cncr.31288. PMID: 29663343. Participants 2020-05-14;22(Suppl 2):1-147. doi: http://dx.doi.org/10.1111/j.10991611.2013.03245.x. PMID: 1338416715; 2013-04648-001. Study design B-134 1481. Noll RB, Ris MD, Davies WH, et al. Social interactions between children with cancer or sickle cell disease and their peers: teacher ratings. J Dev Behav Pediatr. 1992 Jun;13(3):187-93. PMID: 1613114. Outcome 1476. Nolan J, Renderos TB, Hynson J, et al. Barriers to cervical cancer screening and follow‐up care among Black women in Massachusetts. Journal of Obstetric, Gynecologic, & Neonatal Nursing: Clinical Scholarship for the Care of Women, Childbearing Families, & Newborns. 2014 Sep 2014 - Oct 1482. Nooka AK, Behera M, Lonial S, et al. Access to Children's Oncology Group and Pediatric Brain Tumor Consortium phase 1 clinical trials: Racial/ethnic dissimilarities in participation. Cancer. 2016 Oct 15;122(20):3207-14. doi: 10.1002/cncr.30090. PMID: 27404488. Outcome Sep 2014 - Oct 2014 2017-09-25;43(5):580-8. doi: http://dx.doi.org/10.1111/1552-6909.12488. PMID: 1738489011; 2014-39307-006. Participants 1477. Nolan VG, Gapstur R, Gross CR, et al. Sleep disturbances in adult survivors of childhood brain tumors. Qual Life Res. 2013 May;22(4):781-9. doi: 10.1007/s11136-0120208-5. PMID: 22669471. Intervention 1483. Norberg AL. Parents of children surviving a brain tumor: burnout and the perceived disease-related influence on everyday life. J Pediatr Hematol Oncol. 2010 Oct;32(7):e285-9. doi: 10.1097/MPH.0b013e3181e7dda6. PMID: 20736846. Participants 1478. Nolbris M, Enskär K, Hellström AL. Experience of siblings of children treated for cancer. Eur J Oncol Nurs. 2007 Apr;11(2):106-12; discussion 13-6. doi: 10.1016/j.ejon.2006.10.002. PMID: 17141569. Participants 1484. Norberg AL, Steneby S. Experiences of parents of children surviving brain tumour: a happy ending and a rough beginning. Eur J Cancer Care (Engl). 2009 Jul;18(4):371-80. doi: 10.1111/j.13652354.2008.00976.x. PMID: 19490006. Participants 1479. Noll RB, MacLean WE, Jr., Whitt JK, et al. Behavioral adjustment and social functioning of long-term survivors of childhood leukemia: parent and teacher reports. J Pediatr Psychol. 1997 Dec;22(6):827-41. doi: 10.1093/jpepsy/22.6.827. PMID: 9494320. Outcome 1485. Nord C, Ganz PA, Aziz N, et al. Follow-up of long-term cancer survivors in the Nordic countries. Acta Oncol. 2007;46(4):433-40. doi: 10.1080/02841860701203552. PMID: 17497309. Outcome 1480. Noll RB, Patel SK, Embry L, et al. Children's Oncology Group's 2013 blueprint for research: Behavioral science. Pediatric Blood & Cancer. 2013;60(6):1048-54. doi: 10.1002/pbc.24421. PMID: 104271391. Corporate Author: COG Behavioral Sciences Committee. Language: English. Entry Date: 20130628. Revision Date: 20150711. Publication Type: Journal Article. Journal Subset: Biomedical. Study design 1486. Northman L, Morris M, Loucas C, et al. The Effectiveness of a Hospital-Based School Liaison Program: A Comparative Study of Parental Perception of School Supports for Children With Pediatric Cancer and Neurofibromatosis Type 1. J Pediatr Oncol Nurs. 2018 Jul/Aug;35(4):276-86. doi: 10.1177/1043454218765140. PMID: 29600747. Intervention B-135 1487. Northman L, Ross S, Morris M, et al. Supporting pediatric cancer survivors with neurocognitive late effects: a model of care. J Pediatr Oncol Nurs. 2015 MayJun;32(3):134-42. doi: 10.1177/1043454214554012. PMID: 25416520. Intervention 1493. O'Dell S. Young adults diagnosed with Hodgkin's lymphoma: Survivorship and quality of life: University of Northern Colorado; 2010. Outcome 1494. O'Hare AE, Aitken K, Eden OB. Computerized psychometry screening in long-term survivors of childhood acute lymphoblastic leukemia. Pediatr Hematol Oncol. 1988;5(3):197-208. doi: 10.3109/08880018809031270. PMID: 3152965. Outcome 1488. Nowe E, Friedrich M, Leuteritz K, et al. Cancer-Related Fatigue and Associated Factors in Young Adult Cancer Patients. J Adolesc Young Adult Oncol. 2019 Jun;8(3):297-303. doi: 10.1089/jayao.2018.0091. PMID: 30789284. Participants 1495. Oancea SC, Brinkman TM, Ness KK, et al. Emotional distress among adult survivors of childhood cancer. J Cancer Surviv. 2014 Jun;8(2):293-303. doi: 10.1007/s11764-013-0336-0. PMID: 24459073. Outcome 1489. Nuss SL, Wilson ME. Health-related quality of life following hematopoietic stem cell transplant during childhood. J Pediatr Oncol Nurs. 2007 Mar-Apr;24(2):106-15. doi: 10.1177/1043454206296033. PMID: 17332424. Study design 1496. Oancea SC, Gurney JG, Ness KK, et al. Cigarette smoking and pulmonary function in adult survivors of childhood cancer exposed to pulmonary-toxic therapy: results from the St. Jude lifetime cohort study. Cancer Epidemiol Biomarkers Prev. 2014 Sep;23(9):1938-43. doi: 10.1158/10559965.EPI-14-0266. PMID: 24939744. Outcome 1490. Nwachukwu CR, Youland RS, Chioreso C, et al. Health related quality of life (HRQOL) in long-term survivors of pediatric low grade gliomas (LGGs). J Neurooncol. 2015 Feb;121(3):599-607. doi: 10.1007/s11060-014-1673-1. PMID: 25467557. Outcome 1497. Oeffinger KC. Longitudinal riskbased health care for adult survivors of childhood cancer. Curr Probl Cancer. 2003 May-Jun;27(3):143-67. doi: 10.1016/s01470272(03)00031-x. PMID: 12748583. Study design 1491. O'Callaghan C, Baron A, Barry P, et al. Music's relevance for pediatric cancer patients: a constructivist and mosaic research approach. Support Care Cancer. 2011 Jun;19(6):779-88. doi: 10.1007/s00520-010-0879-9. PMID: 20422229. Intervention 1498. Oeffinger KC. Are survivors of acute lymphoblastic leukemia (ALL) at increased risk of cardiovascular disease? Pediatr Blood Cancer. 2008 Feb;50(2 Suppl):462-7; discussion 8. doi: 10.1002/pbc.21410. PMID: 18064658. Outcome 1492. O'Callaghan CC, McDermott F, Reid P, et al. Music's Relevance for People Affected by Cancer: A Meta-Ethnography and Implications for Music Therapists. J Music Ther. 2016 Winter;53(4):398-429. doi: 10.1093/jmt/thw013. PMID: 27980035. Participants 1499. Oeffinger KC, Mertens AC, Sklar CA, et al. Chronic health conditions in adult survivors of childhood cancer. New England Journal of Medicine. 2006;355(15):1572-82. Intervention B-136 1506. Ojha RP, Jackson BE, Tota JE, et al. Younger age distribution of cervical cancer incidence among survivors of pediatric and young adult cancers. Gynecol Oncol. 2014 Aug;134(2):309-13. doi: 10.1016/j.ygyno.2014.05.011. PMID: 24875121. Outcome 1500. Oeffinger KC, McCabe MS. Models for delivering survivorship care. J Clin Oncol. 2006 Nov 10;24(32):5117-24. doi: 10.1200/JCO.2006.07.0474. PMID: 17093273. Participants 1501. Oeffinger KC, Mertens AC, Hudson MM, et al. Health care of young adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Ann Fam Med. 2004 Jan-Feb;2(1):61-70. doi: 10.1370/afm.26. PMID: 15053285. Duplicate 1507. Okada H, Maru M, Maeda R, et al. Impact of childhood cancer on maternal employment in Japan. Cancer Nurs. 2015 Jan-Feb;38(1):23-30. doi: 10.1097/ncc.0000000000000123. PMID: 24915465. Participants 1502. Oeffinger KC, Mertens AC, Sklar CA, et al. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med. 2006 Oct 12;355(15):1572-82. doi: 10.1056/NEJMsa060185. PMID: 17035650. Duplicate 1508. Okado Y, Rowley C, Schepers SA, et al. Profiles of Adjustment in Pediatric Cancer Survivors and Their Prediction by Earlier Psychosocial Factors. J Pediatr Psychol. 2018 Oct 1;43(9):1047-58. doi: 10.1093/jpepsy/jsy037. PMID: 29800307. Outcome 1503. Oeffinger KC, Robison LL. Childhood cancer survivors, late effects, and a new model for understanding survivorship. JAMA. 2007 Jun 27;297(24):2762-4. doi: 10.1001/jama.297.24.2762. PMID: 17595279. Outcome 1509. Olesen M, Duun-Henriksen A-K, Hansson H, et al. A person-centered intervention targeting the psychosocial needs of gynecological cancer survivors: a randomized clinical trial. Journal of Cancer Survivorship. 2016;10(5):832-41. doi: 10.1007/s11764-016-0528-5. PMID: 118022462. Language: English. Entry Date: 20180724. Revision Date: 20191121. Publication Type: journal article. Participants 1504. Oeffinger KC, van Leeuwen FE, Hodgson DC. Methods to assess adverse health-related outcomes in cancer survivors. Cancer Epidemiol Biomarkers Prev. 2011 Oct;20(10):2022-34. doi: 10.1158/10559965.Epi-11-0674. PMID: 21980010. Intervention 1510. Olson AL, Boyle WE, Evans MW, et al. Overall function in rural childhood cancer survivors. The role of social competence and emotional health. Clin Pediatr (Phila). 1993 Jun;32(6):334-42. doi: 10.1177/000992289303200603. PMID: 8344043. Comparator 1505. Oh Y, Seo H, Sung KW, et al. The Effects of Attention Problems on Psychosocial Functioning in Childhood Brain Tumor Survivors: A 2-Year Postcraniospinal Irradiation Follow-up. J Pediatr Hematol Oncol. 2017 Mar;39(2):e46-e53. doi: 10.1097/mph.0000000000000766. PMID: 28099397. Outcome 1511. OncoLink. https://www.oncolink.org/. Accessed on November 3, 2020. Intervention B-137 1512. Ortega-Ortega M, Montero-Granados R, Jiménez-Aguilera JD. Differences in the economic valuation and determining factors of informal care over time: the case of blood cancer. Gac Sanit. 2018 Sep-Oct;32(5):4117. doi: 10.1016/j.gaceta.2017.02.006. PMID: 28529098. Participants 1517. Ottaviani G, Robert RS, Huh WW, et al. Sociooccupational and physical outcomes more than 20 years after the diagnosis of osteosarcoma in children and adolescents: limb salvage versus amputation. Cancer. 2013 Oct 15;119(20):3727-36. doi: 10.1002/cncr.28277. PMID: 23907996. Outcome 1513. Ortiz MCA, Lima RAG. Experiences of families with children and adolescents after completing a cancer treatment: support for the nursing care. Revista LatinoAmericana de Enfermagem (RLAE). 2007;15(3):411-7. doi: 10.1590/s010411692007000300008. PMID: 106159609. Language: English. Entry Date: 20070928. Revision Date: 20200316. Publication Type: Journal Article. Outcome 1518. Ottawa Uo, Brunswick UoN, University M, et al. 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Physiotherapy Canada. 2020 Spring2020;72(2):207-16. doi: 10.3138/ptc2018-0077. PMID: 143018462. Language: English. Entry Date: 20200506. Revision Date: 20200508. Publication Type: Article. Intervention 1521. Ozono S, Saeki T, Mantani T, et al. Psychological distress related to patterns of family functioning among Japanese childhood cancer survivors and their parents. Psychooncology. 2010 May;19(5):545-52. doi: 10.1002/pon.1606. PMID: 19623675. Outcome 1522. Ozono S, Saeki T, Mantani T, et al. Factors related to posttraumatic stress in adolescent survivors of childhood cancer and their parents. Support Care Cancer. 2007 Mar;15(3):309-17. doi: 10.1007/s00520-006-0139-1. PMID: 17021857. Outcome 1516. Ospina‐Romero M, Portilla CA, Bravo LE, et al. Caregivers' Self-Reported Absence of Social Support Networks is Related to Treatment Abandonment in Children With Cancer. Pediatric Blood & Cancer. 2016;63(5):825-31. doi: 10.1002/pbc.25919. PMID: 113881366. Language: English. Entry Date: 20160725. Revision Date: 20190711. Publication Type: journal article. Outcome 1523. Pace T, Arizona Uo. Compassion Meditation for Cancer Survivor-Caregiver Dyads. 2018. Participants B-138 1524. Pacheco-Figueiredo L, Lunet N. Health status, use of healthcare, and socioeconomic implications of cancer survivorship in Portugal: results from the Fourth National Health Survey. J Cancer Surviv. 2014 Dec;8(4):611-7. doi: 10.1007/s11764-014-0370-6. PMID: 24903019. Participants 1529. Palmer SL, Leigh L. Survivors of pediatric posterior fossa tumors: cognitive outcome, intervention, and risk-based care. European Journal of Oncology Nursing. 2009;13(3):171-8. doi: 10.1016/j.ejon.2008.09.002. PMID: 105428435. Language: English. Entry Date: 20091127. Revision Date: 20150819. Publication Type: Journal Article. Outcome 1525. Pagani Bagliacca E, Sironi G, Veneroni L, et al. Tumorial: Video Tutorials Produced by Young Patients on the Youth Project to Voice Their Experiences. Journal of Adolescent & Young Adult Oncology. 2020;9(3):436-40. doi: 10.1089/jayao.2020.0008. PMID: 143724451. Language: English. Entry Date: 20200616. Revision Date: 20200616. Publication Type: Article. Participants 1530. Pan-Pan L, Ke-Feng W, Yi X, et al. Racial patterns of patients with primary mediastinal large B-cell lymphoma: SEER analysis. Medicine. 2016;95(27):1-7. doi: 10.1097/MD.0000000000004054. PMID: 116822886. Language: English. Entry Date: 20170208. Revision Date: 20180614. Publication Type: journal article. Outcome 1531. Panagopoulou P, Georgakis MK, Baka M, et al. Persisting inequalities in survival patterns of childhood neuroblastoma in Southern and Eastern Europe and the effect of socio-economic development compared with those of the US. Eur J Cancer. 2018 Jun;96:44-53. doi: 10.1016/j.ejca.2018.03.003. PMID: 29673989. Intervention 1526. Palma E, Deatrick JA, Hobbie WL, et al. Maternal Caregiving Demands for Adolescent and Young Adult Survivors of Pediatric Brain Tumors. Oncol Nurs Forum. 2015 May;42(3):222-9. doi: 10.1188/15.Onf.222-229. PMID: 25901374. Participants 1527. Pálmarsdóttir R, Kiesbye Øvlisen A, Severinsen MT, et al. Socioeconomic impact of Hodgkin lymphoma in adult patients: a systematic literature review. Leuk Lymphoma. 2019 Dec;60(13):3116-31. doi: 10.1080/10428194.2019.1613538. PMID: 31167589. Participants 1532. Pang JW, Friedman DL, Whitton JA, et al. Employment status among adult survivors in the Childhood Cancer Survivor Study. Pediatr Blood Cancer. 2008 Jan;50(1):104-10. doi: 10.1002/pbc.21226. PMID: 17554791. Intervention 1533. Panjwani AA, Marín-Chollom AM, Pervil IZ, et al. Illness Uncertainties Tied to Developmental Tasks Among Young Adult Survivors of Hematologic Cancers. J Adolesc Young Adult Oncol. 2019 Apr;8(2):149-56. doi: 10.1089/jayao.2018.0024. PMID: 30489197. Participants 1528. Palmer NR, Geiger AM, Felder TM, et al. Racial/Ethnic disparities in health care receipt among male cancer survivors. Am J Public Health. 2013 Jul;103(7):1306-13. doi: 10.2105/ajph.2012.301096. PMID: 23678936. Participants 1534. Paoli-Calmettes I, Université AM. Evaluation of Adverse Long-term Effects in Young Adult Survivors of Acute Leukemia. 2014. Participants B-139 1535. Papazoglou A, King TZ, Morris RD, et al. Parent report of attention problems predicts later adaptive functioning in children with brain tumors. Child Neuropsychol. 2009 Jan;15(1):40-52. doi: 10.1080/09297040802036102. PMID: 18608223. Outcome 1541. Park JJ, Park HA. Prevalence of cigarette smoking among adult cancer survivors in Korea. Yonsei Med J. 2015 Mar;56(2):556-62. doi: 10.3349/ymj.2015.56.2.556. PMID: 25684009. Participants 1542. Park M, Park HJ, Lee JM, et al. School performance of childhood cancer survivors in Korea: A multi-institutional study on behalf of the Korean Society of Pediatric Hematology and Oncology. Psycho-Oncology. 2018;27(9):2257-64. doi: 10.1002/pon.4819. PMID: 131977104. Language: English. Entry Date: In Process. Revision Date: 20190902. Publication Type: journal article. Outcome 1536. Paraponaris A, Teyssier LS, Ventelou B. Job tenure and self-reported workplace discrimination for cancer survivors 2 years after diagnosis: does employment legislation matter? Health Policy. 2010 Dec;98(23):144-55. doi: 10.1016/j.healthpol.2010.06.013. PMID: 20619922. Participants 1537. Park CL, Cho D, Blank TO, et al. Cognitive and emotional aspects of fear of recurrence: predictors and relations with adjustment in young to middle-aged cancer survivors. Psychooncology. 2013 Jul;22(7):1630-8. doi: 10.1002/pon.3195. PMID: 23060271. Participants 1543. Park SH, Strauss SM. Similarities and differences in the correlates of comorbidities in US male and female adult cancer survivors. Public Health Nurs. 2019 Jul;36(4):478-87. doi: 10.1111/phn.12617. PMID: 31058360. Participants 1538. Park EJ, Park S, Cho SI, et al. What cigarette price is required for smokers to attempt to quit smoking? Findings from the ITC Korea Waves 2 and 3 Survey. Tob Control. 2015 Jul;24 Suppl 3:iii48-iii55. doi: 10.1136/tobaccocontrol-2015-052232. PMID: 26101044. Outcome 1544. Park SM, Son KY, Park JH, et al. Disparities in short-term and long-term allcause mortality among Korean cancer patients with and without preexisting disabilities: a nationwide retrospective cohort study. Support Care Cancer. 2012 May;20(5):963-70. doi: 10.1007/s00520011-1168-y. PMID: 21519947. Participants 1539. Park ER, Li FP, Liu Y, et al. Health insurance coverage in survivors of childhood cancer: the Childhood Cancer Survivor Study. J Clin Oncol. 2005 Dec 20;23(36):9187-97. doi: 10.1200/jco.2005.01.7418. PMID: 16361621. Intervention 1545. Parry C, Morningstar E, Kendall J, et al. Working without a net: leukemia and lymphoma survivors' perspectives on care delivery at end-of-treatment and beyond. J Psychosoc Oncol. 2011;29(2):175-98. doi: 10.1080/07347332.2010.548444. PMID: 21391070. Participants 1540. Park HJ. Long-term follow-up study and long-term care of childhood cancer survivors. Korean J Pediatr. 2010;53:465– 70. Study design 1546. Parsay S, Mosavi-Jarrahi A, Arabgol F, et al. Intellectual and behavioral impairment after chemotherapy and radiotherapy among children with cancer in Iran. Asian Pac J Cancer Prev. 2011;12(5):1329-32. PMID: 21875291. Outcome B-140 1552. Parsons SK, Barlow SE, Levy SL, et al. Health-related quality of life in pediatric bone marrow transplant survivors: according to whom? Int J Cancer Suppl. 1999;12:4651. doi: 10.1002/(sici)10970215(1999)83:12+<46::aid-ijc9>3.0.co;2-c. PMID: 10679870. Intervention 1547. Parsons HM, Begun JW, Kuntz KM, et al. Lymph Node Evaluation for Colon Cancer in an Era of Quality Guidelines: Who Improves? Journal of Oncology Practice. 2013;9(4):e164-e71. doi: 10.1200/JOP.2012.000812. PMID: 89595631. Language: English. Entry Date: 20130815. Revision Date: 20190711. Publication Type: Article. Participants 1553. Passport for Care – Cancer Survivor. Passport for Care – Cancer Survivor. https://cancersurvivor.passportforcare.org/. Accessed on August 7, 2020. Intervention 1548. Parsons HM, Penn DC, Li Q, et al. Increased clinical trial enrollment among adolescent and young adult cancer patients between 2006 and 2012-2013 in the United States. Pediatr Blood Cancer. 2019 Jan;66(1):e27426. doi: 10.1002/pbc.27426. PMID: 30256525. Outcome 1554. Pastore G, Mosso ML, Magnani C, et al. Physical impairment and social life goals among adult long-term survivors of childhood cancer: a population-based study from the childhood cancer registry of Piedmont, Italy. Tumori. 2001 NovDec;87(6):372-8. PMID: 11989588. Outcome 1549. Parsons HM, Schmidt S, Tenner LL, et al. Early impact of the Patient Protection and Affordable Care Act on insurance among young adults with cancer: Analysis of the dependent insurance provision. Cancer. 2016 Jun 1;122(11):1766-73. doi: 10.1002/cncr.29982. PMID: 26998967. Participants 1555. Patel SK, Fernandez N, Dekel N, et al. Socioeconomic status as a possible moderator of neurocognitive outcomes in children with cancer. Psychooncology. 2016 Jan;25(1):115-8. doi: 10.1002/pon.3797. PMID: 25780996. Intervention 1550. Parsons HM, Schmidt S, Tenner LL, et al. Early impact of the Patient Protection and Affordable Care Act on insurance among young adults with cancer: Analysis of the dependent insurance provision. Cancer (0008543X). 2016;122(11):1766-73. doi: 10.1002/cncr.29982. PMID: 115421235. Language: English. Entry Date: 20170307. Revision Date: 20181203. Publication Type: journal article. Participants 1556. Patel SK, Katz ER, Richardson R, et al. Cognitive and problem solving training in children with cancer: a pilot project. J Pediatr Hematol Oncol. 2009 Sep;31(9):670-7. doi: 10.1097/MPH.0b013e3181b25a1d. PMID: 19707159. Outcome 1557. Patel SK, Lai-Yates JJ, Anderson JW, et al. Attention dysfunction and parent reporting in children with brain tumors. Pediatric Blood & Cancer. 2007;49(7):9704. doi: 10.1002/pbc.21151. PMID: 106004553. Language: English. Entry Date: 20080229. Revision Date: 20200708. Publication Type: Journal Article. Outcome 1551. Parsons JA, Eakin JM, Bell RS, et al. 'So, are you back to work yet?' Reconceptualizing 'work' and 'return to work' in the context of primary bone cancer. Social Science & Medicine. 2008;67(11):1826-36. doi: 10.1016/j.socscimed.2008.09.011. PMID: 105602686. Language: English. Entry Date: 20090227. Revision Date: 20200518. Publication Type: Journal Article. Outcome B-141 1564. Patenaude AF, Kupst MJ. Psychosocial functioning in pediatric cancer. J Pediatr Psychol. 2005 Jan-Feb;30(1):9-27. doi: 10.1093/jpepsy/jsi012. PMID: 15610981. Intervention 1558. Patel SK, Lo TT, Dennis JM, et al. Neurocognitive and behavioral outcomes in Latino childhood cancer survivors. Pediatr Blood Cancer. 2013 Oct;60(10):1696-702. doi: 10.1002/pbc.24608. PMID: 23733619. Intervention 1565. Patterson JM, Holm KE, Gurney JG. The impact of childhood cancer on the family: a qualitative analysis of strains, resources, and coping behaviors. Psychooncology. 2004 Jun;13(6):390-407. doi: 10.1002/pon.761. PMID: 15188446. Participants 1559. Patel SK, Lo TTY, Dennis JM, et al. Neurocognitive and behavioral outcomes in Latino childhood cancer survivors. Pediatric Blood & Cancer. 2013;60(10):1696-702. doi: 10.1002/pbc.24608. PMID: 104205850. Corporate Author: In collaboration with PADRES Contra El Cáncer. Language: English. Entry Date: 20131115. Revision Date: 20200708. Publication Type: journal article. Duplicate 1566. Patterson P, McDonald FE, Ciarrochi J, et al. A study protocol for Truce: a pragmatic controlled trial of a seven-week acceptance and commitment therapy program for young people who have a parent with cancer. BMC Psychol. 2015 Sep 9;3(1):31. doi: 10.1186/s40359-015-0087-y. PMID: 26353784. Participants 1560. Patel SK, Miranda L, Delgado N, et al. Adaptation of an Intervention to Reduce Disparities in School HRQOL for Latino Childhood Cancer Survivors. J Pediatr Psychol. 2020 Sep 1;45(8):921-32. doi: 10.1093/jpepsy/jsaa048. PMID: 32735009. Intervention 1567. Patterson P, Medlow S, McDonald FE. Recent developments in supporting adolescent and young adult siblings of cancer patients. Curr Opin Oncol. 2015 Jul;27(4):311-5. doi: 10.1097/cco.0000000000000194. PMID: 26049270. Study design 1561. Patel SK, Ross P, Cuevas M, et al. Parent-directed intervention for children with cancer-related neurobehavioral late effects: a randomized pilot study. J Pediatr Psychol. 2014 Oct;39(9):1013-27. doi: 10.1093/jpepsy/jsu045. PMID: 24966398. Outcome 1568. Patterson P, Perz J, Tindle R, et al. Infertility After Cancer: How the Need to Be a Parent, Fertility-Related Social Concern, and Acceptance of Illness Influence Quality of Life. Cancer Nurs. 2020 Mar 24. doi: 10.1097/ncc.0000000000000811. PMID: 32209862. Participants 1562. Patel SK, Wong AL, Cuevas M, et al. Parenting stress and neurocognitive late effects in childhood cancer survivors. Psycho-Oncology. 2013;22(8):1774-82. doi: 10.1002/pon.3213. PMID: 104083038. Language: English. Entry Date: 20140808. Revision Date: 20200708. Publication Type: journal article. Duplicate 1569. Paxton RJ, Jones LW, Rosoff PM, et al. Associations between leisure-time physical activity and health-related quality of life among adolescent and adult survivors of childhood cancers. Psychooncology. 2010 Sep;19(9):997-1003. doi: 10.1002/pon.1654. PMID: 19918964. Intervention 1563. Patel SK, Wong AL, Cuevas M, et al. Parenting stress and neurocognitive late effects in childhood cancer survivors. Psychooncology. 2013 Aug;22(8):1774-82. doi: 10.1002/pon.3213. PMID: 23097416. Outcome B-142 1575. Peck B. Effects of childhood cancer on long-term survivors and their families. Br Med J. 1979 May 19;1(6174):1327-9. doi: 10.1136/bmj.1.6174.1327. PMID: 221066. Outcome 1570. Paxton RJ, Jones LW, Rosoff PM, et al. Associations between leisure-time physical activity and health-related quality of life among adolescent and adult survivors of childhood cancers. Psycho-Oncology. 2010;19(9):997-1003. doi: 10.1002/pon.1654. PMID: 104919685. Language: English. Entry Date: 20110204. Revision Date: 20200708. Publication Type: journal article. Duplicate 1576. Peckham VC. Learning disabilities in long-term survivors of childhood cancer: concerns for parents and teachers. Int Disabil Stud. 1991 Oct-Dec;13(4):141-5. doi: 10.3109/03790799109166280. PMID: 1783577. Study design 1571. Payne JB, Dance KV, Farone M, et al. Patient and caregiver perceptions of lymphoma care and research opportunities: A qualitative study. Cancer (0008543X). 2019;125(22):4096-104. doi: 10.1002/cncr.32401. PMID: 139372866. Language: English. Entry Date: 20200513. Revision Date: 20200528. Publication Type: journal article. Journal Subset: Biomedical. Outcome 1577. Peckham VC, Meadows AT, Bartel N, et al. Educational late effects in longterm survivors of childhood acute lymphocytic leukemia. Pediatrics. 1988 Jan;81(1):127-33. PMID: 3422112. Outcome 1578. Peddie VL, Porter MA, Barbour R, et al. Factors affecting decision making about fertility preservation after cancer diagnosis: a qualitative study. BJOG. 2012 Aug;119(9):1049-57. doi: 10.1111/j.14710528.2012.03368.x. PMID: 22642563. Intervention 1572. Pearce A, Tomalin B, Kaambwa B, et al. Financial toxicity is more than costs of care: the relationship between employment and financial toxicity in long-term cancer survivors. J Cancer Surviv. 2019 Feb;13(1):10-20. doi: 10.1007/s11764-0180723-7. PMID: 30357537. Participants 1579. Pedersen HM. The longer-term psychological implications for pediatric cancer survivors and families through the lens of attachment theory: A critical literature review [Psy.D.]: Azusa Pacific University; 2016. Outcome 1573. Peasant C, Foster RH, Russell KM, et al. Caregiver Sexual and HPV Communication Among Female Survivors of Childhood Cancer. J Pediatr Oncol Nurs. 2016 May-Jun;33(3):199-208. doi: 10.1177/1043454215607339. PMID: 26668213. Intervention 1580. Pedersen KJ, Boisen KA, Midtgaard J, et al. Facing the Maze: Young Cancer Survivors' Return to Education and Work— A Professional Expert Key Informant Study. Journal of Adolescent & Young Adult Oncology. 2018;7(4):445-52. doi: 10.1089/jayao.2017.0128. PMID: 131126921. Language: English. Entry Date: 20180816. Revision Date: 20190801. Publication Type: Article. Participants 1574. Peavey M, Arian S, Gibbons W, et al. On-Site Fertility Preservation Services for Adolescents and Young Adults in a Comprehensive Cancer Center. J Adolesc Young Adult Oncol. 2017 Jun;6(2):229-34. doi: 10.1089/jayao.2016.0057. PMID: 27845854. Outcome B-143 1587. Pérez ‐ Campdepadrós M, Castellano ‐ Tejedor C, Sábado ‐ Álvarez C, et al. Type of tumour, gender and time since diagnosis affect differently health-related quality of life in adolescent survivors. European Journal of Cancer Care. 2015;24(5):635-41. doi: 10.1111/ecc.12215. PMID: 109075388. Language: English. Entry Date: 20150826. Revision Date: 20190708. Publication Type: Article. Duplicate 1581. Peikert ML, Inhestern L, Bergelt C. Psychosocial interventions for rehabilitation and reintegration into daily life of pediatric cancer survivors and their families: A systematic review. PLoS One. 2018;13(4):e0196151. doi: 10.1371/journal.pone.0196151. PMID: 29672608. Intervention 1582. Pelcovitz D, Goldenberg B, Kaplan S, et al. 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COVID Relief Package and Access to Cancer Care. July 28, 2020. https://static1.squarespace.com/static/5d28c 9b99401fd0001068fd9/t/5f3fc84f507fa636b 2231550/1598015567550/Cancer+Leadershi p+Council+to+Chairman+Alexander+regard ing+pandemic+preparedness+June+2020.pd f. Accessed on November 9, 2020. Intervention 1605. Poggi G, Liscio M, Galbiati S, et al. Brain tumors in children and adolescents: cognitive and psychological disorders at different ages. Psychooncology. 2005 May;14(5):386-95. doi: 10.1002/pon.855. PMID: 15386759. Outcome 1606. Poggi G, Liscio M, Pastore V, et al. Psychological intervention in young brain tumor survivors: the efficacy of the cognitive behavioural approach. Disability & Rehabilitation. 2009;31(13):1066-73. doi: 10.1080/09638280802509546. PMID: 105364371. Language: English. Entry Date: 20090814. Revision Date: 20190103. Publication Type: Journal Article. Setting 1612. Pollock EA, Litzelman K, Wisk LE, et al. 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Long-term complications and quality of life in children with intraspinal tumors. Pediatric Blood & Cancer. 2008;50(4):8448. doi: 10.1002/pbc.21284. PMID: 105884843. Language: English. Entry Date: 20080411. Revision Date: 20200708. Publication Type: Journal Article. Outcome 1617. Porteous E, Peterson ER, Cartwright C. Siblings of Young People With Cancer in NZ: Experiences That Positively and Negatively Support Well-Being. J Pediatr Oncol Nurs. 2019 Mar/Apr;36(2):119-30. doi: 10.1177/1043454218819455. PMID: 30556465. Outcome 1622. Price J, Wurz A, Ramphal R, et al. Using a dyadic approach to explore parental support for physical activity among young cancer survivors. Disabil Rehabil. 2020 Jan 19:1-9. doi: 10.1080/09638288.2020.1712621. PMID: 31957500. Outcome B-147 1623. Pritchard-Jones K, Pieters R, Reaman GH, et al. Sustaining innovation and improvement in the treatment of childhood cancer: lessons from high-income countries. 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Medicine (Baltimore). 2019 Feb;98(6):e14279. doi: 10.1097/md.0000000000014279. PMID: 30732142. Intervention 1631. Pugh G, Hough R, Gravestock H, et al. The Lifestyle Information and Intervention Preferences of Teenage and Young Adult Cancer Survivors: A Qualitative Study. Cancer Nurs. 2018 Sep/Oct;41(5):389-98. doi: 10.1097/ncc.0000000000000508. PMID: 28622193. Outcome 1626. Proc P, Szczepańska J, Herud A, et al. Dental caries among childhood cancer survivors. Medicine. 2019;98(6):e14279-e. doi: 10.1097/MD.0000000000014279. PMID: 135999022. Language: English. Entry Date: 20190427. Revision Date: 20190523. Publication Type: journal article. Duplicate 1632. Pui C, Cheng C, Leung W, et al. Extended follow-up of long-term survivors of childhood acute lymphoblastic leukemia. New England Journal of Medicine. 2003;349(7):640-9. PMID: 106726463. Language: English. Entry Date: 20040423. Revision Date: 20150711. Publication Type: Journal Article. Outcome 1627. 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Physical impairment and social adaptation in adult survivors of childhood and adolescent rhabdomyosarcoma: A report from the Childhood Cancer Survivors Study. Psychooncology. 2007 Jan;16(1):26-37. doi: 10.1002/pon.1072. PMID: 16921476. Outcome 1640. Quast LF, Turner EM, McCurdy MD, et al. Health-related quality of life in parents of pediatric brain tumor survivors at the end of tumor-directed therapy. J Psychosoc Oncol. 2016 Jul-Aug;34(4):274-90. doi: 10.1080/07347332.2016.1175535. PMID: 27070180. Participants 1641. Queenan JA, Farahani P, EhsaniMoghadam B, et al. The Prevalence and Risk for Herpes Zoster Infection in Adult Patients With Diabetes Mellitus in the Canadian Primary Care Sentinel Surveillance Network. Can J Diabetes. 2018 Oct;42(5):465-9. doi: 10.1016/j.jcjd.2017.10.060. PMID: 29395844. Participants 1636. Punyko JA, Mertens AC, Gurney JG, et al. Long-term medical effects of childhood and adolescent rhabdomyosarcoma: a report from the childhood cancer survivor study. Pediatr Blood Cancer. 2005 Jun 15;44(7):643-53. doi: 10.1002/pbc.20310. PMID: 15700252. Outcome 1637. Puski A, Hovick S, Senter L, et al. Involvement and Influence of Healthcare Providers, Family Members, and Other Mutation Carriers in the Cancer Risk Management Decision-Making Process of BRCA1 and BRCA2 Mutation Carriers. J Genet Couns. 2018 Sep;27(5):1291-301. doi: 10.1007/s10897-018-0254-4. PMID: 29594659. Participants 1642. Quillen J, Crawford E, Plummer B, et al. Parental follow-through of neuropsychological recommendations for childhood-cancer survivors. J Pediatr Oncol Nurs. 2011 Sep-Oct;28(5):306-10. doi: 10.1177/1043454211418668. PMID: 21844242. Outcome 1643. Quillen J, Li Y, Demski M, et al. Comparing the Knowledge of Parents and Survivors Who Attend a Survivorship Clinic. J Pediatr Oncol Nurs. 2018 Jan/Feb;35(1):56-64. doi: 10.1177/1043454217735828. PMID: 29094652. Outcome 1638. Qi L, Leisenring WM, Ness KK, et al. 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Qualitative Health Research. 2011 Jun 2011 2017-09-25;21(6):796-806. doi: http://dx.doi.org/10.1177/104973231038006 0. PMID: 885701614; 2011-09520-006. Participants B-150 1658. Rai A, Chawla N, Han X, et al. Has the Quality of Patient-Provider Communication About Survivorship Care Improved? J Oncol Pract. 2019 Nov;15(11):e916-e24. doi: 10.1200/jop.19.00157. PMID: 31265350. Participants 1663. Ramsay JM, Mann K, Kaul S, et al. Follow-Up Care Provider Preferences of Adolescent and Young Adult Cancer Survivors. J Adolesc Young Adult Oncol. 2018 Apr;7(2):204-9. doi: 10.1089/jayao.2017.0083. PMID: 29346008. Participants 1659. Rai A, Han X, Zheng Z, et al. Determinants and Outcomes of Satisfaction With Healthcare Provider Communication Among Cancer Survivors. J Natl Compr Canc Netw. 2018 Aug;16(8):975-84. doi: 10.6004/jnccn.2018.7034. PMID: 30099374. Participants 1664. Rauck AM, Green DM, Yasui Y, et al. 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Evaluation of a comprehensive care clinic model for children with brain tumor and risk for hypothalamic obesity. Obesity (Silver Spring). 2010 Sep;18(9):1768-74. doi: 10.1038/oby.2009.491. PMID: 20057368. Comparator 1667. Rebholz CE, Rueegg CS, Michel G, et al. Clustering of health behaviours in adult survivors of childhood cancer and the general population. Br J Cancer. 2012 Jul 10;107(2):234-42. doi: 10.1038/bjc.2012.250. PMID: 22722311. Intervention 1662. Ramirez CN, Wojcik KY, Ritt-Olson A, et al. Prevalence and correlates of health information-seeking among Hispanic and non-Hispanic childhood cancer survivors. Supportive Care in Cancer. 2018;26(4):1305-13. doi: 10.1007/s00520017-3956-5. PMID: 128149800. Language: English. Entry Date: 20190308. Revision Date: 20190515. Publication Type: journal article. Duplicate 1668. Rebholz CE, von der Weid NX, Michel G, et al. Follow-up care amongst long-term childhood cancer survivors: a report from the Swiss Childhood Cancer Survivor Study. Eur J Cancer. 2011 Jan;47(2):221-9. doi: 10.1016/j.ejca.2010.09.017. PMID: 20943372. Intervention B-151 1669. Reilly R, Micklem J, Yerrell P, et al. Aboriginal experiences of cancer and care coordination: Lessons from the Cancer Data and Aboriginal Disparities (CanDAD) narratives. Health Expect. 2018 Oct;21(5):927-36. doi: 10.1111/hex.12687. PMID: 29691974. Participants 1675. Rhee MA, Chung KM, Lee Y, et al. Impact of psychological and cancer-related factors on HRQoL for Korean childhood cancer survivors. Qual Life Res. 2014 Nov;23(9):2603-12. doi: 10.1007/s11136014-0709-5. PMID: 24817318. Comparator 1676. Richter D, Mehnert A, Schepper F, et al. Validation of the German version of the late adolescence and young adulthood survivorship-related quality of life measure (LAYA-SRQL). Health Qual Life Outcomes. 2018 Jan 4;16(1):4. doi: 10.1186/s12955-017-0827-1. PMID: 29301526. Study design 1670. Rejniak KA, Lloyd MC, Reed DR, et al. Diagnostic assessment of osteosarcoma chemoresistance based on Virtual Clinical Trials. Med Hypotheses. 2015 Sep;85(3):348-54. doi: 10.1016/j.mehy.2015.06.015. PMID: 26130106. Outcome 1671. Research EOf, EORTC ToC-, Institute NC. Study of Long-Term Outcomes of Patients With Acute Lymphoblastic Leukemia Who Were Enrolled as Children on Clinical Trials EORTC-58741, EORTC58831, EORTC-58832, or EORTC-58881 Between 1971 and 1998. 2011. Outcome 1677. Rieker PP, Fitzgerald EM, Kalish LA. Adaptive behavioral responses to potential infertility among survivors of testis cancer. J Clin Oncol. 1990 Feb;8(2):347-55. doi: 10.1200/jco.1990.8.2.347. PMID: 2299374. Participants 1678. Rigon H, Lopes LF, do Rosario Latorre M, et al. The GEPETTO program for surveillance of long-term survivors of childhood cancer: preliminary report from a single institution in Brazil. Med Pediatr Oncol. 2003 Jun;40(6):405-6. doi: 10.1002/mpo.10146. PMID: 12692816. Outcome 1672. Reulen RC, Frobisher C, Winter DL, et al. Long-term risks of subsequent primary neoplasms among survivors of childhood cancer. JAMA. 2011 Jun 8;305(22):2311-9. doi: 10.1001/jama.2011.747. PMID: 21642683. Outcome 1673. Reulen RC, Winter DL, Frobisher C, et al. Long-term Cause-Specific Mortality Among Survivors of Childhood Cancer. JAMA. 2010;304(2):172-9. doi: 10.1001/jama.2010.923. Intervention 1679. Ris MD, Leisenring WM, Goodman P, et al. Neuropsychological and socioeconomic outcomes in adult survivors of pediatric low-grade glioma. Cancer. 2019 Sep 1;125(17):3050-8. doi: 10.1002/cncr.32186. PMID: 31231797. Outcome 1674. Rey-Casserly C, Diver T. Late effects of pediatric brain tumors. Current Opinion in Pediatrics. 2019;31(6):789-96. doi: 10.1097/MOP.0000000000000837. PMID: 144232803. Language: English. Entry Date: 20200627. Revision Date: 20200627. Publication Type: journal article. Study design 1680. Ritt-Olson A, Miller K, BaezcondeGarbanati L, et al. Depressive Symptoms and Quality of Life Among Adolescent and Young Adult Cancer Survivors: Impact of Gender and Latino Culture. J Adolesc Young Adult Oncol. 2018 Jun;7(3):384-8. doi: 10.1089/jayao.2017.0078. PMID: 29768076. Intervention B-152 1681. Rivero-Vergne A, Berrios R, Romero I. Cultural aspects of the Puerto Rican cancer experience: the mother as the main protagonist. Qual Health Res. 2008 Jun;18(6):811-20. doi: 10.1177/1049732308318505. PMID: 18503022. Intervention 1686. Roberts RM, Robins T, Gannoni AF, et al. Survivors of Childhood Cancer in South Australia Attending a Late-Effects Clinic: A Descriptive Report of Psychological, Cognitive, and Academic Late-Effects. Journal of Psychosocial Oncology. 2014;32(2):152-66. doi: 10.1080/07347332.2013.873998. PMID: 94953917. Language: English. Entry Date: 20140321. Revision Date: 20150819. Publication Type: Article. Outcome 1682. Rivero-Vergne A, Berrios R, Romero I. The Return to the Community After Cancer Treatment: From Safety to Reality Check. Journal of Psychosocial Oncology. 2011;29(1):67-82. doi: 10.1080/07347332.2010.532300. PMID: 57378952. Language: English. Entry Date: 20110131. Revision Date: 20190308. Publication Type: Article. Outcome 1687. Roberts SC, Knight A, Whitcomb BW, et al. Validity of self-reported fertilitythreatening cancer treatments in female young adult cancer survivors. J Cancer Surviv. 2017 Aug;11(4):517-23. doi: 10.1007/s11764-017-0610-7. PMID: 28265843. Outcome 1683. Robert R, Zhukovsky DS, Mauricio R, et al. Bereaved parents' perspectives on pediatric palliative care. Journal of Social Work in End-of-Life & Palliative Care. 2012 Dec 2012 1688. Robertson AR, Johnson DA. Rehabilitation and development after childhood cancer: can the need for physical exercise be met? Pediatr Rehabil. 2002 OctDec;5(4):235-40. doi: 10.1080/1363849031000094072. PMID: 12745903. Intervention 2017-09-25;8(4):316-38. doi: http://dx.doi.org/10.1080/15524256.2012.73 2023. PMID: 1315880605; 2012-32423-007. Outcome 1689. Robin Yabroff K, Short PF, Machlin S, et al. Access to preventive health care for cancer survivors. Am J Prev Med. 2013 Sep;45(3):304-12. doi: 10.1016/j.amepre.2013.04.021. PMID: 23953357. Participants 1684. Robert RS, Ottaviani G, Huh WW, et al. Psychosocial and functional outcomes in long-term survivors of osteosarcoma: a comparison of limb-salvage surgery and amputation. Pediatric Blood & Cancer. 2010;54(7):990-9. doi: 10.1002/pbc.22419. PMID: 105179016. Language: English. Entry Date: 20100604. Revision Date: 20200708. Publication Type: journal article. Outcome 1690. Robinson KE, Gerhardt CA, Vannatta K, et al. Survivors of childhood cancer and comparison peers: the influence of early family factors on distress in emerging adulthood. J Fam Psychol. 2009 Feb;23(1):23-31. doi: 10.1037/a0014199. PMID: 19203156. Outcome 1685. Roberts CS, Turney ME, Knowles AM. Psychosocial issues of adolescents with cancer. Social Work in Health Care. 1998 1998 2017-09-26;27(4):3-18. doi: http://dx.doi.org/10.1300/J010v27n04_02. PMID: 619356013; 1998-10312-001. Outcome B-153 1691. Robinson PD, Oberoi S, Tomlinson D, et al. Management of fatigue in children and adolescents with cancer and in paediatric recipients of haemopoietic stemcell transplants: a clinical practice guideline. Lancet Child Adolesc Health. 2018 May;2(5):371-8. doi: 10.1016/S23524642(18)30059-2. PMID: 30169270. Intervention 1696. Rosen G, Brand SR. Sleep in children with cancer: case review of 70 children evaluated in a comprehensive pediatric sleep center. Support Care Cancer. 2011 Jul;19(7):985-94. doi: 10.1007/s00520-0100921-y. PMID: 20517621. Outcome 1697. Rosenberg AR, Starks H, Jones B. "I know it when I see it." The complexities of measuring resilience among parents of children with cancer. Support Care Cancer. 2014 Oct;22(10):2661-8. doi: 10.1007/s00520-014-2249-5. PMID: 24756554. Participants 1692. Robison LL, Armstrong GT, Boice JD, et al. The Childhood Cancer Survivor Study: a National Cancer Institute-supported resource for outcome and intervention research. J Clin Oncol. 2009 May 10;27(14):2308-18. doi: 10.1200/jco.2009.22.3339. PMID: 19364948. Intervention 1698. Rosenberg SM, Vaz-Luis I, Gong J, et al. Employment trends in young women following a breast cancer diagnosis. Breast Cancer Res Treat. 2019 Aug;177(1):207-14. doi: 10.1007/s10549-019-05293-x. PMID: 31147983. Participants 1693. Rodriguez-Galindo C, Friedrich P, Alcasabas P, et al. Toward the Cure of All Children With Cancer Through Collaborative Efforts: Pediatric Oncology As a Global Challenge. Journal of Clinical Oncology. 2015;33(27):3065-73. doi: 10.1200/JCO.2014.60.6376. PMID: 109393741. Language: English. Entry Date: 20151217. Revision Date: 20160827. Publication Type: journal article. Study design 1699. Rosenberg-Yunger ZRS, Klassen AF, Amin L, et al. Barriers and facilitators of transition from pediatric to adult long-term follow-up care in childhood cancer survivors. Journal of Adolescent and Young Adult Oncology. 2013 Sep 2013 2017-09-25;2(3):104-11. doi: http://dx.doi.org/10.1089/jayao.2013.0003. PMID: 1756535381; 2015-44186-004. Duplicate 1694. Rodriguez-Villamizar LA, Rojas Díaz MP, Acuña Merchán LA, et al. Spacetime clustering of childhood leukemia in Colombia: a nationwide study. BMC Cancer. 2020 Jan 20;20(1):48. doi: 10.1186/s12885-020-6531-2. PMID: 31959128. Outcome 1700. Roser K, Baenziger J, Mader L, et al. Attendance to Follow-Up Care in Survivors of Adolescent and Young Adult Cancer: Application of the Theory of Planned Behavior. Journal of Adolescent & Young Adult Oncology. 2018;7(5):584-91. doi: 10.1089/jayao.2018.0010. PMID: 132245203. Language: English. Entry Date: 20181016. Revision Date: 20191001. Publication Type: Article. Participants 1695. Rohan EA, Townsend JS, Fleischmann A, et al. "When I Needed It": Evaluation of the Use and Timing of Sharsheret's Thriving Again Program for Young Breast Cancer Survivors. J Cancer Educ. 2018 Oct;33(5):976-82. doi: 10.1007/s13187-017-1178-7. PMID: 28181113. Participants B-154 1701. Roser K, Erdmann F, Michel G, et al. The impact of childhood cancer on parents' socio-economic situation-A systematic review. Psychooncology. 2019 Jun;28(6):1207-26. doi: 10.1002/pon.5088. PMID: 30970149. Participants 1708. Ruccione K. The legacy of pediatric oncology nursing in advancing survivorship research and clinical care. J Pediatr Oncol Nurs. 2009 Sep-Oct;26(5):255-65. doi: 10.1177/1043454209343179. PMID: 19837956. Intervention 1702. Ross JA, Davies SM. Cancer among offspring of survivors of childhood cancer. N Engl J Med. 1998 Sep 24;339(13):923-4. doi: 10.1056/nejm199809243391314. PMID: 9750093. Participants 1709. Ruccione K, Lu Y, Meeske K. Adolescents’ psychosocial health-related quality of life within 6 months after cancer treatment completion. Cancer Nursing. 2013 Sep 2013 - Oct 1703. Ross K. Interdisciplinary team to tackle fertility issues in cancer survivors. J Natl Cancer Inst. 2008 Apr 2;100(7):457-8. doi: 10.1093/jnci/djn094. PMID: 18364495. Participants Sep 2013 - Oct 2013 2020-07-22;36(5):e61-e72. doi: http://dx.doi.org/10.1097/NCC.0b013e3182 902119. PMID: 1509631150; 2013-34493011. Intervention 1704. Roth AK, Ris MD, Orobio J, et al. Cognitive mediators of adaptive functioning outcomes in survivors of pediatric brain tumors treated with proton radiotherapy. Pediatric Blood & Cancer. 2020;67(2):N.PAG-N.PAG. doi: 10.1002/pbc.28064. PMID: 141075659. Language: English. Entry Date: 20200424. Revision Date: 20200424. Publication Type: journal article. Journal Subset: Biomedical. Outcome 1710. Rueegg CS, Gianinazzi ME, Rischewski J, et al. Health-related quality of life in survivors of childhood cancer: the role of chronic health problems. J Cancer Surviv. 2013 Dec;7(4):511-22. doi: 10.1007/s11764-013-0288-4. PMID: 23784593. Outcome 1711. Rueegg CS, Kriemler S, Zuercher SJ, et al. A partially supervised physical activity program for adult and adolescent survivors of childhood cancer (SURfit): study design of a randomized controlled trial [NCT02730767]. BMC Cancer. 2017 Dec 5;17(1):822. doi: 10.1186/s12885-017-38018. PMID: 29207962. Study design 1705. Rothstein DH, Li V. Transitional care in pediatric neurosurgical patients. Semin Pediatr Surg. 2015 Apr;24(2):79-82. doi: 10.1053/j.sempedsurg.2015.01.005. PMID: 25770368. Intervention 1712. Rueegg CS, Michel G, Wengenroth L, et al. Physical performance limitations in adolescent and adult survivors of childhood cancer and their siblings. PLoS One. 2012;7(10):e47944. doi: 10.1371/journal.pone.0047944. PMID: 23082232. Intervention 1706. Rourke MT, Hobbie WL, Schwartz L, et al. Posttraumatic stress disorder (PTSD) in young adult survivors of childhood cancer. Pediatr Blood Cancer. 2007 Aug;49(2):177-82. doi: 10.1002/pbc.20942. PMID: 16862538. Outcome 1707. Ruble K, Kelly KP. Radiation therapy in childhood cancer. Semin Oncol Nurs. 1999 Nov;15(4):292-302. doi: 10.1016/s0749-2081(99)80058-8. PMID: 10588033. Intervention B-155 1713. Rueegg CS, von der Weid NX, Rebholz CE, et al. Daily physical activities and sports in adult survivors of childhood cancer and healthy controls: a populationbased questionnaire survey. PLoS One. 2012;7(4):e34930. doi: 10.1371/journal.pone.0034930. PMID: 22506058. Intervention 1719. Rutskij R, Gaarden T, Bremnes R, et al. A study of coping in long-term testicular cancer survivors. Psychol Health Med. 2010 Mar;15(2):146-58. doi: 10.1080/13548501003623955. PMID: 20391232. Participants 1720. Ryerson AB, Wasilewski‐Masker K, Border WL, et al. Pediatric quality of life in long-term survivors of childhood cancer treated with anthracyclines. Pediatric Blood & Cancer. 2016;63(12):2205-11. doi: 10.1002/pbc.26149. PMID: 118942215. Language: English. Entry Date: 20170627. Revision Date: 20180709. Publication Type: journal article. Outcome 1714. Rugbjerg K, Mellemkjaer L, Boice JD, et al. Cardiovascular disease in survivors of adolescent and young adult cancer: a Danish cohort study, 1943-2009. J Natl Cancer Inst. 2014 Jun;106(6):dju110. doi: 10.1093/jnci/dju110. PMID: 24848622. Participants 1715. Rugbjerg K, Olsen JH. Long-term Risk of Hospitalization for Somatic Diseases in Survivors of Adolescent or Young Adult Cancer. JAMA Oncol. 2016 Feb;2(2):193200. doi: 10.1001/jamaoncol.2015.4393. PMID: 26584448. Participants 1721. Sabatino SA, Coates RJ, Uhler RJ, et al. Health insurance coverage and cost barriers to needed medical care among U.S. adult cancer survivors age<65 years. Cancer. 2006 Jun 1;106(11):2466-75. doi: 10.1002/cncr.21879. PMID: 16639732. Participants 1716. Ruiz ME, Sender L, Torno L, et al. The Associations of Age and Ethnicity on Substance Use Behaviors of Adolescent and Young Adult Childhood Cancer Survivors. Psychooncology. 2016 Oct;25(10):1229-36. doi: 10.1002/pon.4225. PMID: 27434382. Outcome 1722. Saita E, Acquati C. Evaluating the Framed Portrait Experience as an Intervention to Enhance Self-Efficacy and Self-Esteem in a Sample of Adolescent and Young Adult Cancer Survivors: Results of a Pilot Study. J Adolesc Young Adult Oncol. 2020 Feb;9(1):111-4. doi: 10.1089/jayao.2019.0063. PMID: 31742467. Intervention 1717. Ruiz-Casado A, Alejo LB, SantosLozano A, et al. Validity of the Physical Activity Questionnaires IPAQ-SF and GPAQ for Cancer Survivors: Insights from a Spanish Cohort. Int J Sports Med. 2016 Nov;37(12):979-85. doi: 10.1055/s-0042103967. PMID: 27557405. Study design 1723. Salem H, Johansen C, Schmiegelow K, et al. FAMily-Oriented Support (FAMOS): development and feasibility of a psychosocial intervention for families of childhood cancer survivors. Acta Oncol. 2017 Feb;56(2):367-74. doi: 10.1080/0284186x.2016.1269194. PMID: 28080169. Intervention 1718. Runowicz CD, Leach CR, Henry NL, et al. American Cancer Society/American Society of Clinical Oncology Breast Cancer Survivorship Care Guideline. J Clin Oncol. 2016 Feb 20;34(6):611-35. doi: 10.1200/JCO.2015.64.3809. PMID: 26644543. Participants 1724. Saletta F, Seng MS, Lau LM. Advances in paediatric cancer treatment. Transl Pediatr. 2014 Apr;3(2):156-82. doi: 10.3978/j.issn.2224-4336.2014.02.01. PMID: 26835334. Outcome B-156 1730. Sands SA, Oberg JA, Gardner SL, et al. Neuropsychological functioning of children treated with intensive chemotherapy followed by myeloablative consolidation chemotherapy and autologous hematopoietic cell rescue for newly diagnosed CNS tumors: an analysis of the Head Start II survivors. Pediatric Blood & Cancer. 2010;54(3):429-36. doi: 10.1002/pbc.22318. PMID: 105288222. Language: English. Entry Date: 20100312. Revision Date: 20200708. Publication Type: Journal Article. Outcome 1725. Salley CG, Gerhardt CA, Fairclough DL, et al. Social self-perception among pediatric brain tumor survivors compared with peers. J Dev Behav Pediatr. 2014 Sep;35(7):427-34. doi: 10.1097/dbp.0000000000000077. PMID: 25127341. Outcome 1726. Samardakiewicz M, Kowalczyk JR. Psychosocial functioning of childhood cancer survivors living in rural areas. Ann Agric Environ Med. 2007;14(2):335-9. PMID: 18247473. Outcome 1727. Sanchez-Birkhead AC, CarbajalSalisbury S, Arce Larreta J, et al. Addressing Disparities: The Alliance Breast Cancer Community-Based Program for Hispanic Women. Clin J Oncol Nurs. 2016 Oct 1;20(5):481-6. doi: 10.1188/16.Cjon.2005ap. PMID: 27668368. Participants 1731. Sands SA, Pasichow KP. Psychological and social impact of being a pediatric brain tumor survivor. Cancer Treat Res. 2009;150:297-307. doi: 10.1007/b109924_18. PMID: 19834675. Outcome 1732. SanGiacomo N, Toth J, Hobbie W, et al. Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors [Formula: see text]. J Pediatr Oncol Nurs. 2019 Nov/Dec;36(6):402-12. doi: 10.1177/1043454219844229. PMID: 31046569. Outcome 1728. Sanderson M, Khabele D, Brown CL, et al. Results of a Health Education Message Intervention on HPV Knowledge and Receipt of Follow-up Care among Latinas Infected with High-risk Human Papillomavirus. J Health Care Poor Underserved. 2015 Nov;26(4):1440-55. doi: 10.1353/hpu.2015.0131. PMID: 26548691. Participants 1733. Sansom-Daly UM, Wakefield CE, Bryant RA, et al. Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors. Psychooncology. 2019 Feb;28(2):284-92. doi: 10.1002/pon.4938. PMID: 30414219. Participants 1729. Sandheinrich T, Wondmeneh SB, Mohrmann C, et al. Knowledge and perceptions of infertility in female cancer survivors and their parents. Support Care Cancer. 2018 Jul;26(7):2433-9. doi: 10.1007/s00520-018-4080-x. PMID: 29427193. Outcome 1734. Sansom‐Daly UM, Wakefield CE, Bryant RA, et al. Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors. Psycho-Oncology. 2019 Feb 2019 2020-03-02;28(2):284-92. doi: http://dx.doi.org/10.1002/pon.4938. PMID: 2148331161; 2018-61399-001. Duplicate B-157 1735. Sansom‐Daly UM, Wakefield CE, McGill BC, et al. Ethical and Clinical Challenges Delivering Group-based Cognitive-Behavioural Therapy to Adolescents and Young Adults with Cancer Using Videoconferencing Technology. Australian Psychologist. 2015;50(4):271-8. doi: 10.1111/ap.12112. PMID: 108441797. Language: English. Entry Date: 20150917. Revision Date: 20180627. Publication Type: Article. Participants 1740. Sawyer MG, Toogood I, Rice M, et al. School performance and psychological adjustment of children treated for leukemia. A long-term follow-up. Am J Pediatr Hematol Oncol. 1989 Summer;11(2):14652. PMID: 2751071. Outcome 1741. Scardaville MC, Murphy KM, Liu F, et al. Knowledge of Legal Protections and Employment-Related Resources Among Young Adults with Cancer. Journal of Adolescent & Young Adult Oncology. 2019;8(3):312-9. doi: 10.1089/jayao.2018.0097. PMID: 136865176. Language: English. Entry Date: 20190612. Revision Date: 20200601. Publication Type: Article. Outcome 1736. Santacroce SJ, Crandell JB. Feasibility and preliminary findings from a pilot study of allostatic load in adolescentyoung adult childhood cancer survivors and their siblings. J Pediatr Oncol Nurs. 2014 May-Jun;31(3):122-34. doi: 10.1177/1043454213520190. PMID: 24647010. Intervention 1742. Schaapveld M, Aleman BM, van Eggermond AM, et al. Second Cancer Risk Up to 40 Years after Treatment for Hodgkin's Lymphoma. N Engl J Med. 2015 Dec 24;373(26):2499-511. doi: 10.1056/NEJMoa1505949. PMID: 26699166. Outcome 1737. Sarradon-Eck A, Bouhnik A-D, Rey D, et al. Use of non-conventional medicine two years after cancer diagnosis in France: evidence from the VICAN survey. Journal of Cancer Survivorship. 2017;11(1):N.PAGN.PAG. doi: 10.1007/s11764-017-0599-y. PMID: 121151809. Language: English. Entry Date: 20170926. Revision Date: 20180507. Publication Type: journal article. Participants 1743. Schepers SA, Okado Y, Russell K, et al. Adjustment in Childhood Cancer Survivors, Healthy Peers, and Their Parents: The Mediating Role of the Parent-Child Relationship. J Pediatr Psychol. 2019 Mar 1;44(2):186-96. doi: 10.1093/jpepsy/jsy069. PMID: 30247631. Outcome 1738. Saslow D, Boetes C, Burke W, et al. American Cancer Society guidelines for breast screening with MRI as an adjunct to mammography. CA Cancer J Clin. 2007 Mar-Apr;57(2):75-89. doi: 10.3322/canjclin.57.2.75. PMID: 17392385. Study design 1744. Schindera C, Kuehni CE, Pavlovic M, et al. Single-Center Cohort Study for Diagnosing Preclinical Cardiac Dysfunction in Swiss Childhood Cancer Survivors: A Study Protocol. JMIR Res Protoc. 2020 Apr 7. doi: 10.2196/17724. PMID: 32269016. Outcome 1739. Sato I, Higuchi A, Yanagisawa T, et al. Employment status and termination among survivors of pediatric brain tumors: a cross-sectional survey. Int J Clin Oncol. 2018 Oct;23(5):801-11. doi: 10.1007/s10147-018-1279-2. PMID: 29713910. Intervention B-158 1745. Schindera C, Weiss A, Hagenbuch N, et al. Physical activity and screen time in children who survived cancer: A report from the Swiss Childhood Cancer Survivor Study. Pediatric Blood & Cancer. 2020;67(2):N.PAG-N.PAG. doi: 10.1002/pbc.28046. PMID: 141075645. Corporate Author: Swiss Pediatric Oncology Group (SPOG). Language: English. Entry Date: 20200424. Revision Date: 20200424. Publication Type: journal article. Duplicate 1750. Scholtes C, Baust K, Weinhold L, et al. Health status, Health-Related Quality of Life and Socio-economic Outcome in Childhood Brain Tumor Survivors: a German Cohort Study. Neuro Oncol. 2019 Feb 22;21(8):1069-81. doi: 10.1093/neuonc/noz044. PMID: 30793186. Outcome 1751. Schootman M, Homan S, Weaver KE, et al. The health and welfare of rural and urban cancer survivors in Missouri. Prev Chronic Dis. 2013 Sep 12;10:E152. doi: 10.5888/pcd10.130052. PMID: 24028832. Participants 1746. Schindera C, Weiss A, Hagenbuch N, et al. Physical activity and screen time in children who survived cancer: A report from the Swiss Childhood Cancer Survivor Study. Pediatr Blood Cancer. 2020 Feb;67(2):e28046. doi: 10.1002/pbc.28046. PMID: 31750617. Outcome 1752. Schuitema I, de Sonneville L, Kaspers G, et al. Executive Dysfunction 25 Years after Treatment with Cranial Radiotherapy for Pediatric Lymphoid Malignancies. J Int Neuropsychol Soc. 2015 Oct;21(9):657-69. doi: 10.1017/s1355617715000788. PMID: 26391667. Outcome 1747. Schindler M, Spycher BD, Ammann RA, et al. Cause-specific long-term mortality in survivors of childhood cancer in Switzerland: A population-based study. Int J Cancer. 2016 Jul 15;139(2):322-33. doi: 10.1002/ijc.30080. PMID: 26950898. Outcome 1753. Schulte F, Bartels U, Barrera M. A pilot study evaluating the efficacy of a group social skills program for survivors of childhood central nervous system tumors using a comparison group and teacher reports. Psycho-Oncology. 2014;23(5):597600. doi: 10.1002/pon.3472. PMID: 103816787. Language: English. Entry Date: 20150116. Revision Date: 20200708. Publication Type: Journal Article. Intervention 1748. Schlup MS. Cancer survivorship. Oncol Nurs Forum. 1991 Apr;18(3):476. PMID: 2057392. Study design 1749. Schmidt R, Richter D, Sender A, et al. Motivations for having children after cancer - a systematic review of the literature. European Journal of Cancer Care. 2016;25(1):6-17. doi: 10.1111/ecc.12276. PMID: 112256437. Language: English. Entry Date: 20160115. Revision Date: 20180703. Publication Type: Article. Outcome 1754. Schulte F, Bartels U, Bouffet E, et al. Body weight, social competence, and cognitive functioning in survivors of childhood brain tumors. Pediatric Blood & Cancer. 2010;55(3):532-9. doi: 10.1002/pbc.22543. PMID: 105063494. Language: English. Entry Date: 20100827. Revision Date: 20150711. Publication Type: Journal Article. Journal Subset: Biomedical. Outcome B-159 1760. Schultz KA, Ness KK, Whitton J, et al. Behavioral and social outcomes in adolescent survivors of childhood cancer: a report from the childhood cancer survivor study. J Clin Oncol. 2007 Aug 20;25(24):3649-56. doi: 10.1200/jco.2006.09.2486. PMID: 17704415. Outcome 1755. Schulte F, Brinkman TM, Li C, et al. Social adjustment in adolescent survivors of pediatric central nervous system tumors: A report from the Childhood Cancer Survivor Study. Cancer. 2018 Sep 1;124(17):3596608. doi: 10.1002/cncr.31593. PMID: 30067866. Outcome 1756. Schulte F, Kunin-Batson AS, OlsonBullis BA, et al. Social attainment in survivors of pediatric central nervous system tumors: a systematic review and metaanalysis from the Children's Oncology Group. Journal of Cancer Survivorship. 2019;13(6):921-31. doi: 10.1007/s11764019-00808-3. PMID: 139882252. Language: English. Entry Date: In Process. Revision Date: 20200612. Publication Type: journal article. Outcome 1761. Schuurhuizen CSEW, Braamse AMJ, Konings IRHM, et al. Predictors for use of psychosocial services in patients with metastatic colorectal cancer receiving first line systemic treatment. BMC Cancer. 2019;19(1):1-10. doi: 10.1186/s12885-0195318-9. PMID: 134549293. Language: English. Entry Date: In Process. Revision Date: 20190902. Publication Type: journal article. Participants 1762. Schwartz CE, Feinberg RG, Jilinskaia E, et al. An evaluation of a psychosocial intervention for survivors of childhood cancer: paradoxical effects of response shift over time. Psychooncology. 1999 JulAug;8(4):344-54. doi: 10.1002/(sici)10991611(199907/08)8:4<344::Aidpon399>3.0.Co;2-t. PMID: 10474852. Intervention 1757. Schulte F, Vannatta K, Barrera M. Social problem solving and social performance after a group social skills intervention for childhood brain tumor survivors. Psycho-Oncology. 2014;23(2):183-9. doi: 10.1002/pon.3387. PMID: 104009363. Language: English. Entry Date: 20141003. Revision Date: 20200708. Publication Type: Journal Article. Intervention 1763. Schwartz CL. Creating a bridge for transition: From pediatric cancer survival to life-long, risk-based health care of the adult cancer survivor. Cancer. 2020 Feb 1;126(3):473-6. doi: 10.1002/cncr.32569. PMID: 31626326. Study design 1758. Schulte F, Wurz A, Reynolds K, et al. Quality of Life in Survivors of Pediatric Cancer and Their Siblings: The Consensus Between Parent-Proxy and Self-Reports. Pediatr Blood Cancer. 2016 Apr;63(4):67783. doi: 10.1002/pbc.25868. PMID: 26739262. Outcome 1764. Schwartz L, Drotar D. Posttraumatic stress and related impairment in survivors of childhood cancer in early adulthood compared to healthy peers. J Pediatr Psychol. 2006 May;31(4):356-66. doi: 10.1093/jpepsy/jsj018. PMID: 15788716. Intervention 1759. Schulte F, Wurz A, Russell KB, et al. Social adjustment and repressive adaptive style in survivors of pediatric cancer. J Psychosoc Oncol. 2018 May-Jun;36(3):27486. doi: 10.1080/07347332.2018.1431754. PMID: 29452053. Outcome B-160 1765. Schwartz LA, Daniel LC, HenryMoss D, et al. Feasibility and acceptability of a pilot tailored text messaging intervention for adolescents and young adults completing cancer treatment. Psychooncology. 2020 Jan;29(1):164-72. doi: 10.1002/pon.5287. PMID: 31713265. Outcome 1771. Seitzman RL, Glover DA, Meadows AT, et al. Self-concept in adult survivors of childhood acute lymphoblastic leukemia: a cooperative Children's Cancer Group and National Institutes of Health study. 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European Journal of Oncology Nursing. 2020;44:N.PAG-N.PAG. doi: 10.1016/j.ejon.2019.101708. PMID: 141863947. Language: English. Entry Date: 20200227. Revision Date: 20200304. Publication Type: Article. Participants 1767. Sciences WFUH, Institute NC. Stepped-Care Telehealth for Distress in Rural Cancer Survivors. 2018. Participants 1768. Scrignaro M, Nichelli F, Cattaneo L, et al. From Adjustment to Thriving: Exploring Well-Being in Young Adult Survivors of Childhood Cancer and Their Siblings. J Adolesc Young Adult Oncol. 2016 Dec;5(4):330-6. doi: 10.1089/jayao.2016.0005. PMID: 27295558. Outcome 1774. Sender L, Zabokrtsky KB. Adolescent and young adult patients with cancer: a milieu of unique features. Nat Rev Clin Oncol. 2015 Aug;12(8):465-80. doi: 10.1038/nrclinonc.2015.92. PMID: 26011488. Outcome 1769. Searle NS, Askins M, Bleyer WA. Homebound schooling is the least favorable option for continued education of adolescent cancer patients: a preliminary report. Med Pediatr Oncol. 2003 Jun;40(6):380-4. doi: 10.1002/mpo.10270. PMID: 12692806. Outcome 1775. Sender LS. From the Editor-inChief's Desk. Journal of Adolescent & Young Adult Oncology. 2015;4(2):55-. doi: 10.1089/jayao.2015.28999.eic. PMID: 103288045. Language: English. Entry Date: 20170809. Revision Date: 20170809. Publication Type: Editorial. Study design 1770. Seaver E, Geyer R, Sulzbacher S, et al. Psychosocial adjustment in long-term survivors of childhood medulloblastoma and ependymoma treated with craniospinal irradiation. Pediatr Neurosurg. 1994;20(4):248-53. doi: 10.1159/000120798. PMID: 8043463. Outcome B-161 1782. Shaharudin SH, Sulaiman S, Emran NA, et al. The use of complementary and alternative medicine among Malay breast cancer survivors. Altern Ther Health Med. 2011 Jan-Feb;17(1):50-6. PMID: 21614944. Participants 1776. Sergentanis T, Dessypris N, Kanavidis P, et al. Socioeconomic status, area remoteness, and survival from childhood leukemia: results from the Nationwide Registry for Childhood Hematological Malignancies in Greece. Eur J Cancer Prev. 2013 Sep;22(5):473-9. doi: 10.1097/CEJ.0b013e32835c7f69. PMID: 23238585. Outcome 1783. Sharp LK, Kinahan KE, Didwania A, et al. Quality of life in adult survivors of childhood cancer. J Pediatr Oncol Nurs. 2007 Jul-Aug;24(4):220-6. doi: 10.1177/1043454207303885. PMID: 17588894. Intervention 1777. Servitzoglou M, Papadatou D, Tsiantis I, et al. Psychosocial functioning of young adolescent and adult survivors of childhood cancer. Support Care Cancer. 2008 Jan;16(1):29-36. doi: 10.1007/s00520007-0278-z. PMID: 17562085. Outcome 1784. Shaw MP, Bath LE, Duff J, et al. Obesity in leukemia survivors: the familial contribution. Pediatr Hematol Oncol. 2000 Apr-May;17(3):231-7. doi: 10.1080/088800100276406. PMID: 10779989. Outcome 1778. Servitzoglou M, Papadatou D, Tsiantis I, et al. Quality of life of adolescent and young adult survivors of childhood cancer. Journal of Pediatric Nursing. 2009;24(5):415-22. doi: 10.1016/j.pedn.2007.02.073. PMID: 105235766. Language: English. Entry Date: 20100108. Revision Date: 20150819. Publication Type: Journal Article. Outcome 1785. Shay LA, Parsons HM, Vernon SW. Survivorship Care Planning and Unmet Information and Service Needs Among Adolescent and Young Adult Cancer Survivors. J Adolesc Young Adult Oncol. 2017 Jun;6(2):327-32. doi: 10.1089/jayao.2016.0053. PMID: 28103126. Participants 1779. Servitzoglou M, Papadatou D, Tsiantis I, et al. Psychosocial functioning of young adolescent and adult survivors of childhood cancer. Supportive Care in Cancer. 2008;16(1):29-36. doi: 10.1007/s00520-007-0278-z. PMID: 105672290. Language: English. Entry Date: 20081024. Revision Date: 20190103. Publication Type: journal article. Duplicate 1786. Shekarabi-Ahari G, Younesi J, Borjali A, et al. The effectiveness of group hope therapy on hope and depression of mothers with children suffering from cancer in tehran. Iran J Cancer Prev. 2012 Fall;5(4):183-8. PMID: 25352968. Participants 1780. Shad A, Myers SN, Hennessy K. Late effects in cancer survivors: “the shared care model”. Curr Oncol Rep. 2012 Apr;14(2):182-90. doi: 10.1007/s11912-0120224-1. PMID: 22286374. Intervention 1787. Shepherd EJ, Woodgate RL. Cancer survivorship in children and young adults: a concept analysis. J Pediatr Oncol Nurs. 2010 Mar-Apr;27(2):109-18. doi: 10.1177/1043454209349807. PMID: 20044589. Intervention 1781. Shah SS, Dellarole A, Peterson EC, et al. Long-term psychiatric outcomes in pediatric brain tumor survivors. Childs Nerv Syst. 2015 May;31(5):653-63. doi: 10.1007/s00381-015-2669-7. PMID: 25726165. Outcome B-162 1794. Sinnott SM, Park CL. Social WellBeing in Adolescent and Young Adult Cancer Survivors. J Adolesc Young Adult Oncol. 2019 Feb;8(1):32-9. doi: 10.1089/jayao.2018.0043. PMID: 30251903. Outcome 1788. Shepherd EJ, Woodgate RL. A journey within a journey: the lived experience of parents who do not live near their child's tertiary cancer center. J Pediatr Oncol Nurs. 2011 Jul-Aug;28(4):231-43. doi: 10.1177/1043454211409583. PMID: 21653910. Outcome 1795. Sisk BA, Friedrich A, Blazin LJ, et al. Communication in Pediatric Oncology: A Qualitative Study. Pediatrics. 2020 Sep;146(3). doi: 10.1542/peds.2020-1193. PMID: 32820068. Outcome 1789. Sheppard L, Eiser C, Kingston J. Mothers' perceptions of children's quality of life following early diagnosis and treatment for retinoblastoma (Rb). Child Care Health Dev. 2005 Mar;31(2):137-42. doi: 10.1111/j.1365-2214.2005.00498.x. PMID: 15715692. Outcome 1796. Skiba MB, McElfresh JJ, Howe CL, et al. Dietary Interventions for Adult Survivors of Adolescent and Young Adult Cancers: A Systematic Review and Narrative Synthesis. Journal of Adolescent & Young Adult Oncology. 2020;9(3):31527. doi: 10.1089/jayao.2019.0105. PMID: 143724436. Language: English. Entry Date: 20200616. Revision Date: 20200616. Publication Type: Article. Participants 1790. Shigemoto K, Abe K, Kaneko F, et al. Assessment of degree of satisfaction of cancer patients and their families with rehabilitation and factors associated with it-results of a Japanese population. Disabil Rehabil. 2007 Mar 30;29(6):437-44. doi: 10.1080/09638280600835952. PMID: 17364798. Participants 1797. Sklar CA, Antal Z, Chemaitilly W, et al. Hypothalamic-Pituitary and Growth Disorders in Survivors of Childhood Cancer: An Endocrine Society Clinical Practice Guideline. J Clin Endocrinol Metab. 2018 Aug 1;103(8):2761-84. doi: 10.1210/jc.2018-01175. PMID: 29982476. Intervention 1791. Shin H, Bartlett R, De Gagne JC. Health-Related Quality of Life Among Survivors of Cancer in Adolescence: An Integrative Literature Review. J Pediatr Nurs. 2019 Jan-Feb;44:97-106. doi: 10.1016/j.pedn.2018.11.009. PMID: 30683287. Intervention 1798. Skou AS, Olsen S, Nielsen LH, et al. Hearing Status in Survivors of Childhood Acute Myeloid Leukemia Treated With Chemotherapy Only: A NOPHO-AML Study. J Pediatr Hematol Oncol. 2019 Jan;41(1):e12-e7. doi: 10.1097/mph.0000000000001302. PMID: 30550508. Outcome 1792. Shiraishi E, Sugimoto K, Shapiro JS, et al. Study of the Awareness of Adoption as a Family-Building Option Among Oncofertility Stakeholders in Japan. J Glob Oncol. 2018 Jul;4:1-7. doi: 10.1200/jgo.18.00043. PMID: 30085894. Participants 1793. Simony SB, Lund LW, Erdmann F, et al. Effect of socioeconomic position on survival after childhood cancer in Denmark. Acta Oncol. 2016 Jun;55(6):742-50. doi: 10.3109/0284186x.2016.1144933. PMID: 26935257. Outcome 1799. Slater ME, Kelly AS, Sadak KT, et al. Active transportation in adult survivors of childhood cancer and neighborhood controls. J Cancer Surviv. 2016 Feb;10(1):11-20. doi: 10.1007/s11764-0150447-x. PMID: 25809159. Intervention B-163 1806. 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Racial disparity in primary hepatocellular carcinoma: tumor stage at presentation, surgical treatment and survival. Journal of the National Medical Association. 2006;98(12):1934-9. PMID: 105891709. Language: English. Entry Date: 20080418. Revision Date: 20161114. Publication Type: journal article. Outcome 1808. Song H, Nam Y, Gould J, et al. Cancer survivor identity shared in a social media intervention. J Pediatr Oncol Nurs. 2012 Mar-Apr;29(2):80-91. doi: 10.1177/1043454212438964. PMID: 22472482. Comparator 1802. Sloper T, Larcombe IJ, Charlton A. Psychosocial adjustment of five-year survivors of childhood cancer. J Cancer Educ. 1994 Fall;9(3):163-9. doi: 10.1080/08858199409528300. PMID: 7811605. Intervention 1809. Song S, Hwang E, Moon HG, et al. Adherence to Guidelines for Cancer Survivors and Health-Related Quality of Life among Korean Breast Cancer Survivors. Nutrients. 2015 Dec 9;7(12):10307-19. doi: 10.3390/nu7125532. PMID: 26690215. Participants 1803. Smith DK, Murphy BA. Lower levels of education and household income mediate lower dental care utilization among survivors of early life cancers. Prev Med Rep. 2019 Jun;14:100868. doi: 10.1016/j.pmedr.2019.100868. PMID: 31024789. Intervention 1810. Southard ME, Sira N, Lamson A, et al. Relational and Spiritual Coping Among Emerging and Young Adult Cancer Survivors. Journal of Holistic Nursing. 2020;38(1):52-67. doi: 10.1177/0898010119874983. PMID: 142637795. Language: English. Entry Date: 20200411. Revision Date: 20200411. Publication Type: Article. Participants 1804. Smith K, Ostroff J, Tan C, et al. Alterations in self-perceptions among adolescent cancer survivors. Cancer Invest. 1991;9(5):581-8. doi: 10.3109/07357909109018956. PMID: 1933490. Outcome 1805. Smitherman AB, Anderson C, Lund JL, et al. Frailty and Comorbidities Among Survivors of Adolescent and Young Adult Cancer: A Cross-Sectional Examination of a Hospital-Based Survivorship Cohort. Journal of Adolescent and Young Adult Oncology. 2018;7(3):374-83. Intervention B-164 1818. Sripan P, Chitapanarux I, FidlerBenaoudia MM, et al. Impact of universal health care and screening on incidence and survival of Thai women with cervical cancer: A population-based study of the Chiang Mai Province. Cancer Epidemiol. 2019 Dec;63:101594. doi: 10.1016/j.canep.2019.101594. PMID: 31539716. Participants 1811. Souza CM, Cristofani LM, Cornacchioni AL, et al. Comparative study of quality of life of adult survivors of childhood acute lymphocytic leukemia and Wilms' tumor. Einstein (Sao Paulo). 2015 Oct-Dec;13(4):492-9. doi: 10.1590/s167945082015ao3231. PMID: 26537509. Outcome 1812. Spangler SL. The relationship between quality of life and social support among adolescent survivors of childhood cancer; 2010. Outcome 1819. St. Baldrick’s Foundation. St. Baldrick’s Foundation. https://www.stbaldricks.org/grantssearch/areaOfInterestID/18/grantPeriod/all/p age/1/. Accessed on August 7 2020. 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J Pediatr Psychol. 1992 Feb;17(1):15-31. doi: 10.1093/jpepsy/17.1.15. PMID: 1545319. Outcome 1822. Stam H, Grootenhuis MA, Last BF. Social and emotional adjustment in young survivors of childhood cancer. Support Care Cancer. 2001 Oct;9(7):489-513. doi: 10.1007/s005200100271. PMID: 11680830. Outcome 1816. Sperling C, Sandager M, Jensen H, et al. Current organisation of follow-up does not meet cancer patients' needs. Dan Med J. 2014 Jun;61(6):A4855. PMID: 24947626. Participants 1823. Stam H, Grootenhuis MA, Last BF. The course of life of survivors of childhood cancer. Psycho-Oncology. 2005;14(3):22738. doi: 10.1002/pon.839. PMID: 106392083. Language: English. Entry Date: 20060203. Revision Date: 20200708. Publication Type: Journal Article. Outcome 1817. Spruit JL, Prince-Paul M. Palliative care services in pediatric oncology. Ann Palliat Med. 2019 Feb;8(Suppl 1):S49-s57. doi: 10.21037/apm.2018.05.04. PMID: 29860857. Outcome B-165 1824. Stegenga K, Macpherson CF. “I’m a Survivor, Go Study That Word and You’ll See My Name”. Cancer Nursing. 2014;37(6):418-28. doi: 10.1097/NCC.0000000000000132. PMID: 99470775. Language: English. Entry Date: 20141124. Revision Date: 20190708. Publication Type: Article. Outcome 1829. Stern M, Ewing L, Davila E, et al. Design and rationale for NOURISH-T: a randomized control trial targeting parents of overweight children off cancer treatment. Contemp Clin Trials. 2015 Mar;41:227-37. doi: 10.1016/j.cct.2014.12.018. PMID: 25559916. Intervention 1830. Stevens MC, Mahler H, Parkes S. The health status of adult survivors of cancer in childhood. Eur J Cancer. 1998 Apr;34(5):694-8. doi: 10.1016/s09598049(98)00012-4. PMID: 9713276. Outcome 1825. Steinberg DM, Santiago RA, Tanenbaum ML, et al. "It Made Me the Person I Am Today...": Survivors of Childhood, Adolescent, and Young Adult Cancer Reflect on Their Experiences. Journal of Adolescent & Young Adult Oncology. 2020;9(2):239-46. doi: 10.1089/jayao.2019.0122. PMID: 142834615. Language: English. Entry Date: 20200425. Revision Date: 20200425. Publication Type: Article. Outcome 1831. Stevens MM. "Shuttle sheet": a patient-held medical record for pediatric oncology families. Med Pediatr Oncol. 1992;20(4):330-5. doi: 10.1002/mpo.2950200412. PMID: 1608356. Intervention 1826. Stensheim H, Klungsøyr K, Skjaerven R, et al. Birth outcomes among offspring of adult cancer survivors: a population-based study. Int J Cancer. 2013 Dec 1;133(11):2696-705. doi: 10.1002/ijc.28292. PMID: 23729011. Participants 1832. Stevens MM, Dalla Pozza L, Cavalletto B, et al. Pain and symptom control in paediatric palliative care. Cancer Surv. 1994;21:211-31. PMID: 8564995. Intervention 1833. Stewart SA, Abidi S, Parker L, et al. Clinical guideline-driven personalized selfmanagement diary for paediatric cancer survivors. Stud Health Technol Inform. 2014;205:18-22. PMID: 25160137. Intervention 1827. Sterba K, Zapka J, LaPelle N, et al. A Formative Study of Colon Cancer Surveillance Care: Implications for Survivor-Centered Interventions. Journal of Cancer Education. 2015;30(4):719-27. doi: 10.1007/s13187-014-0756-1. PMID: 110400669. Language: English. Entry Date: 20160826. Revision Date: 20180716. Publication Type: journal article. Participants 1834. Stitzlein RN, Wojcik J, Sebro RA, et al. Team Approach: Osteosarcoma of the Distal Part of the Femur in Adolescents. JBJS Rev. 2017 Dec;5(12):e5. doi: 10.2106/jbjs.Rvw.17.00030. PMID: 29278618. Outcome 1828. Stern M, Bleck J, Ewing LJ, et al. NOURISH-T: Targeting caregivers to improve health behaviors in pediatric cancer survivors with obesity. Pediatr Blood Cancer. 2018 May;65(5):e26941. doi: 10.1002/pbc.26941. PMID: 29350459. Intervention 1835. Stokke J, Sung L, Gupta A, et al. Systematic review and meta-analysis of objective and subjective quality of life among pediatric, adolescent, and young adult bone tumor survivors. Pediatr Blood Cancer. 2015 Sep;62(9):1616-29. doi: 10.1002/pbc.25514. PMID: 25820683. Outcome B-166 1836. Stolley MR, Sharp LK, Tangney CC, et al. Health behaviors of minority childhood cancer survivors. Cancer. 2015 May 15;121(10):1671-80. doi: 10.1002/cncr.29202. PMID: 25564774. Intervention 1842. Strauser D, Feuerstein M, Chan F, et al. Vocational services associated with competitive employment in 18-25 year old cancer survivors. Journal of Cancer Survivorship. 2010;4(2):179-86. doi: 10.1007/s11764-010-0119-9. PMID: 105025360. Language: English. Entry Date: 20101008. Revision Date: 20171114. Publication Type: journal article. Duplicate 1837. Stone AL, Karlson C, Heathcote LC, et al. Topical Review: Pain in Survivors of Pediatric Cancer: Applying a Prevention Framework. Journal of Pediatric Psychology. 2018;43(3):237-42. doi: 10.1093/jpepsy/jsx114. PMID: 128635746. Language: English. Entry Date: 20190927. Revision Date: 20200309. Publication Type: journal article. Duplicate 1843. Strauser D, Klosky JL, Brinkman TM, et al. Career readiness in adult survivors of childhood cancer: a report from the St. Jude Lifetime Cohort Study. J Cancer Surviv. 2015 Mar;9(1):20-9. doi: 10.1007/s11764-014-0380-4. PMID: 25047713. Outcome 1838. Stone AL, Karlson CW, Heathcote LC, et al. Topical Review: Pain in Survivors of Pediatric Cancer: Applying a Prevention Framework. J Pediatr Psychol. 2018 Apr 1;43(3):237-42. doi: 10.1093/jpepsy/jsx114. PMID: 29048571. Intervention 1844. Strauser D, Wagner S, Wong AW, et al. Career readiness, developmental work personality and age of onset in young adult central nervous system survivors. Disabil Rehabil. 2013 Apr;35(7):543-50. doi: 10.3109/09638288.2012.703754. PMID: 22891646. Outcome 1839. Stoppelbein L, Greening L, Wells H. Parental coping and posttraumatic stress symptoms among pediatric cancer populations: tests of competing models. Psychooncology. 2013 Dec;22(12):2815-22. doi: 10.1002/pon.3358. PMID: 23893502. Participants 1845. Strauser D, Wagner S, Wong AWK, et al. Career readiness, developmental work personality and age of onset in young adult central nervous system survivors. Disability and Rehabilitation: An International, Multidisciplinary Journal. 2013 Apr 2013 1840. Stout NL, Silver JK, Alfano CM, et al. Long-Term Survivorship Care After Cancer Treatment: A New Emphasis on the Role of Rehabilitation Services. Phys Ther. 2019 Jan 1;99(1):10-3. doi: 10.1093/ptj/pzy115. PMID: 30329114. Intervention 2017-09-25;35(7):543-50. doi: http://dx.doi.org/10.3109/09638288.2012.70 3754. PMID: 1509633984; 2013-07774-003. Duplicate 1846. Strauser DR, Chan F, Fine E, et al. Development of the perceived barriers scale: a new instrument identifying barriers to career development and employment for young adult survivors of pediatric CNS tumors. J Cancer Surviv. 2019 Feb;13(1):19. doi: 10.1007/s11764-018-0722-8. PMID: 30357721. Outcome 1841. Strauser D, Feuerstein M, Chan F, et al. Vocational services associated with competitive employment in 18–25 year old cancer survivors. Journal of Cancer Survivorship. 2010 Jun 2010 2017-09-25;4(2):179-86. doi: http://dx.doi.org/10.1007/s11764-010-01199. PMID: 819631403; 2010-12243-010. Outcome B-167 1847. Strong LC. Genetic implications for long-term survivors of childhood cancer. Cancer. 1993 May 15;71(10 Suppl):343540. doi: 10.1002/10970142(19930515)71:10+<3435::aidcncr2820711750>3.0.co;2-h. PMID: 8387878. Outcome 1852. Sun Y, Wang Y, Li M, et al. Longterm trends of liver cancer mortality by gender in urban and rural areas in China: an age-period-cohort analysis. 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Eur J Cancer. 2011 Feb;47(3):397-403. doi: 10.1016/j.ejca.2010.09.040. PMID: 21035324. Outcome 1850. Su-Mi O, Hye-Jung L, Gwang-Suk K, et al. Factors Affecting Social Adjustment of Childhood Cancer Survivors. Child Health Nursing Research. 2013;19(3):238-45. doi: 10.4094/chnr.2013.19.3.238. PMID: 90286825. Language: Chinese. Entry Date: 20140205. Revision Date: 20140205. Publication Type: Article. Not English 1855. Sundberg KK, Lampic C, Arvidson J, et al. Sense of coherence and need for support among long-term survivors of childhood cancer. Cancer Nurs. 2012 JulAug;35(4):E43-9. doi: 10.1097/NCC.0b013e318233157a. PMID: 22067691. Outcome 1856. Sung-Sil H, Ho-Ran P. Predictors of Meaning in Life in Adolescents with Leukemia. Child Health Nursing Research. 2015;21(1):74-81. doi: 10.4094/chnr.2015.21.1.74. PMID: 100818712. Language: Korean. Entry Date: 20150210. Revision Date: 20170517. Publication Type: Article. Not English 1851. Su-Mi O, Hyejung L, Sue K, et al. Social Adjustment of Adolescent Cancer Survivors: A Concept Analysis. Child Health Nursing Research. 2019;25(3):290302. doi: 10.4094/chnr.2019.25.3.290. PMID: 137994548. Language: English. Entry Date: 20190814. Revision Date: 20190814. Publication Type: Article. Outcome B-168 1857. Sunhee L, Dong Hee K, Lee S, et al. The relationship between perceived parental rearing behaviors and school adjustment of adolescent cancer survivors in Korea: A cross-sectional study. Medicine. 2017;96(32):1-5. doi: 10.1097/MD.0000000000007758. PMID: 124730915. Language: English. Entry Date: 20170902. Revision Date: 20200507. Publication Type: journal article. Outcome 1862. Sznewajs A. What programs do you have in place to support childhood cancer survivors? ONS Connect. 2007 Jun;22(6):13. PMID: 17598613. Study design 1863. Tabaac AR, Sutter ME, Wall CSJ, et al. Gender Identity Disparities in Cancer Screening Behaviors. Am J Prev Med. 2018 Mar;54(3):385-93. doi: 10.1016/j.amepre.2017.11.009. PMID: 29338956. Participants 1858. Surbone A, Baider L, Weitzman TS, et al. Psychosocial care for patients and their families is integral to supportive care in cancer: MASCC position statement. Support Care Cancer. 2010 Feb;18(2):255-63. doi: 10.1007/s00520-009-0693-4. PMID: 19609571. Participants 1864. Tai E, Buchanan N, Townsend J, et al. Health status of adolescent and young adult cancer survivors. Cancer. 2012 Oct 1;118(19):4884-91. doi: 10.1002/cncr.27445. PMID: 22688896. Participants 1859. Sürer Adanir A, Taşkiran G, Küpesiz OA, et al. Psychopathology in pediatric bone marrow transplantation survivors and their mothers. Pediatr Int. 2017 Sep;59(9):979-85. doi: 10.1111/ped.13344. PMID: 28631412. Outcome 1865. Tai E, Buchanan N, Townsend J, et al. Health status of adolescent and young adult cancer survivors. Cancer (0008543X). 2012;118(19):4884-91. doi: 10.1002/cncr.27445. PMID: 104369200. Language: English. Entry Date: 20130111. Revision Date: 20200708. Publication Type: journal article. Duplicate 1860. Syrjala KL, Stover AC, Yi JC, et al. Measuring social activities and social function in long-term cancer survivors who received hematopoietic stem cell transplantation. Psycho-Oncology. 2010;19(5):462-71. doi: 10.1002/pon.1572. PMID: 105186749. Language: English. Entry Date: 20100820. Revision Date: 20200708. Publication Type: journal article. Outcome 1866. Tai EW, Ward KC, Bonaventure A, et al. Survival among children diagnosed with acute lymphoblastic leukemia in the United States, by race and age, 2001 to 2009: Findings from the CONCORD-2 study. Cancer. 2017 Dec 15;123 Suppl 24(Suppl 24):5178-89. doi: 10.1002/cncr.30899. PMID: 29205314. Outcome 1861. Szalda D, Pierce L, Hobbie W, et al. Engagement and experience with cancerrelated follow-up care among young adult survivors of childhood cancer after transfer to adult care. Journal of Cancer Survivorship. 2016;10(2):342-50. doi: 10.1007/s11764-015-0480-9. PMID: 113903567. Language: English. Entry Date: 20161123. Revision Date: 20180703. Publication Type: journal article. Duplicate 1867. Takei Y, Ogata A, Ozawa M, et al. Psychosocial difficulties in adolescent and young adult survivors of childhood cancer. Pediatr Int. 2015 Apr;57(2):239-46. doi: 10.1111/ped.12495. PMID: 25203461. Outcome B-169 1873. Tarazi WW, Bradley CJ, Harless DW, et al. Medicaid expansion and access to care among cancer survivors: a baseline overview. J Cancer Surviv. 2016 Jun;10(3):583-92. doi: 10.1007/s11764-0150504-5. PMID: 26662864. Participants 1868. Takei Y, Ogata A, Ozawa M, et al. Psychosocial difficulties in adolescent and young adult survivors of childhood cancer. Pediatrics International. 2015;57(2):239-46. doi: 10.1111/ped.12495. PMID: 102060038. Language: English. Entry Date: 20150415. Revision Date: 20180712. Publication Type: Article. Duplicate 1874. Tarver D. Cancer survivorship in young adults: Addressing disparities in an invisible population [Ph.D.]: The University of Alabama at Birmingham; 2019. Participants 1869. Tallen G, Resch A, Calaminus G, et al. Strategies to improve the quality of survival for childhood brain tumour survivors. Eur J Paediatr Neurol. 2015 Nov;19(6):619-39. doi: 10.1016/j.ejpn.2015.07.011. PMID: 26278499. Study design 1875. Taskila T, de Boer AG, van Dijk FJ, et al. Fatigue and its correlates in cancer patients who had returned to work-a cohort study. Psycho-Oncology. 2011;20(11):123641. doi: 10.1002/pon.1843. PMID: 104590590. Language: English. Entry Date: 20120323. Revision Date: 20200708. Publication Type: Journal Article. Outcome 1870. Tang A, Alyman C, Anderson L, et al. Long-Term Social Outcomes of Hyperfractionated Radiation on Childhood ALL Survivors. Pediatric Blood & Cancer. 2016;63(8):1445-50. doi: 10.1002/pbc.26027. PMID: 116286229. Language: English. Entry Date: 20170320. Revision Date: 20181115. Publication Type: journal article. Outcome 1876. Taylor GM. Cancer in the offspring of survivors of childhood leukaemia and non-Hodgkin lymphomas. Br J Cancer. 1996 Mar;73(6):847-8. doi: 10.1038/bjc.1996.149. PMID: 8611393. Intervention 1871. Tanner LR, Hooke MC. Improving body function and minimizing activity limitations in pediatric leukemia survivors: The lasting impact of the Stoplight Program. Pediatr Blood Cancer. 2019 May;66(5):e27596. doi: 10.1002/pbc.27596. PMID: 30609245. Outcome 1877. Taylor L, Simpson K, Bushardt R, et al. Insurance barriers for childhood survivors of pediatric brain tumors: the case for neurocognitive evaluations. Pediatr Neurosurg. 2006;42(4):223-7. doi: 10.1159/000092358. PMID: 16714862. Outcome 1872. Tarazi W, Bradley C, Harless D, et al. Medicaid expansion and access to care among cancer survivors: a baseline overview. Journal of Cancer Survivorship. 2016;10(3):583-92. doi: 10.1007/s11764015-0504-5. PMID: 115248132. Language: English. Entry Date: 20180724. Revision Date: 20180731. Publication Type: journal article. Duplicate 1878. Taylor N, Absolom K, Michel G, et al. Comparison of self-reported late effects with medical records among survivors of childhood cancer. Eur J Cancer. 2010 Apr;46(6):1069-78. doi: 10.1016/j.ejca.2010.01.022. PMID: 20171084. Outcome B-170 1879. Taylor N, Absolom K, Snowden J, et al. Need for psychological follow-up among young adult survivors of childhood cancer. European Journal of Cancer Care. 2012;21(1):52-8. doi: 10.1111/j.13652354.2011.01281.x. PMID: 69734325. Language: English. Entry Date: 20120406. Revision Date: 20150819. Publication Type: Article. Intervention 1885. Teta MJ, Del Po MC, Kasl SV, et al. Psychosocial consequences of childhood and adolescent cancer survival. J Chronic Dis. 1986;39(9):751-9. doi: 10.1016/00219681(86)90158-x. PMID: 3525599. Outcome 1886. The Alliance for Childhood Cancer. ASPHO Joins the Alliance for Childhood Cancer's FY21 NIH, NCI, and STAR Act Appropriations Requests to Senate March 9, 2020. http://aspho.org/uploads/Alliance_for_Child hood_Cancer_FY21_NIH_Appropriations_ Request_Senate_FINAL.pdf. Study design 1880. Teall T, Barrera M, Barr R, et al. Psychological resilience in adolescent and young adult survivors of lower extremity bone tumors. Pediatr Blood Cancer. 2013 Jul;60(7):1223-30. doi: 10.1002/pbc.24441. PMID: 23255460. Outcome 1881. Teng A, Lee DY, Cai J, et al. Patterns and outcomes of colorectal cancer in adolescents and young adults. J Surg Res. 2016 Sep;205(1):19-27. doi: 10.1016/j.jss.2016.05.036. PMID: 27620994. Participants 1887. The George Washington University. National Cancer Survivorship Resource Center Toolkit. https://smhs.gwu.edu/gwci/survivorship/ncsr c/national-cancer-survivorship-centertoolkit. Accessed on August 10 2020. Participants 1882. Tercyak KP, Nicolas M, Councill T, et al. Brief report: health beliefs among survivors of childhood cancer. J Pediatr Psychol. 2004 Jul-Aug;29(5):397-402. doi: 10.1093/jpepsy/jsh043. PMID: 15187178. Outcome 1888. Thomas EM, Weiss SM. Nonpharmacological interventions with chronic cancer pain in adults. Cancer Control. 2000 Mar-Apr;7(2):157-64. doi: 10.1177/107327480000700206. PMID: 10783820. Participants 1883. Termuhlen AM, Tersak JM, Liu Q, et al. Twenty-five year follow-up of childhood Wilms tumor: a report from the Childhood Cancer Survivor Study. Pediatric Blood & Cancer. 2011;57(7):1210-6. doi: 10.1002/pbc.23090. PMID: 104602252. Language: English. Entry Date: 20120323. Revision Date: 20200708. Publication Type: journal article. Outcome 1889. Thompson AL. Close relationships among young adult survivors of childhood cancer: A quantitative and qualitative analysis; 2008. Outcome 1890. Thompson AL, Gerhardt CA, Miller KS, et al. Survivors of childhood cancer and comparison peers: the influence of peer factors on later externalizing behavior in emerging adulthood. J Pediatr Psychol. 2009 Nov-Dec;34(10):1119-28. doi: 10.1093/jpepsy/jsp019. PMID: 19324936. Outcome 1884. Tesauro GM, Rowland JH, Lustig C. Survivorship resources for post-treatment cancer survivors. Cancer Practice. 2002;10(6):277-83. doi: 10.1046/j.15235394.2002.106007.x. PMID: 106834694. Language: English. Entry Date: 20030530. Revision Date: 20200708. Publication Type: Journal Article. Participants B-171 1891. Thompson AL, Long KA, Marsland AL. Impact of childhood cancer on emerging adult survivors' romantic relationships: a qualitative account. J Sex Med. 2013 Feb;10 Suppl 1:65-73. doi: 10.1111/j.1743-6109.2012.02950.x. PMID: 23057814. Outcome 1896. Tobin J, Allem JP, Slaughter R, et al. Posttraumatic growth among childhood cancer survivors: Associations with ethnicity, acculturation, and religious service attendance. J Psychosoc Oncol. 2018 MarApr;36(2):175-88. doi: 10.1080/07347332.2017.1365799. PMID: 28816639. Intervention 1892. Thompson AL, Marsland AL, Marshal MP, et al. Romantic relationships of emerging adult survivors of childhood cancer. Psychooncology. 2009 Jul;18(7):767-74. doi: 10.1002/pon.1471. PMID: 19061200. Outcome 1897. Tobin J, Miller KA, BaezcondeGarbanati L, et al. Acculturation, Mental Health, and Quality of Life among Hispanic Childhood Cancer Survivors: A Latent Class Analysis. Ethn Dis. 2018 Winter;28(1):5560. doi: 10.18865/ed.28.1.55. PMID: 29467567. Intervention 1893. Tillery R, Willard VW, Howard Sharp KM, et al. Impact of the parent-child relationship on psychological and social resilience in pediatric cancer patients. Psychooncology. 2020 Feb;29(2):339-46. doi: 10.1002/pon.5258. PMID: 31661716. Outcome 1898. Tobin JL, Thomas SM, Freyer DR, et al. Estimating cancer treatment intensity from SEER cancer registry data: methods and implications for population-based registry studies of pediatric cancers. Cancer Causes Control. 2020 Oct;31(10):881-90. doi: 10.1007/s10552-020-01328-7. PMID: 32757117. Intervention 1894. Tish Knobf M, Ferrucci LM, Cartmel B, et al. Needs assessment of cancer survivors in Connecticut. Journal of Cancer Survivorship. 2012;6(1):1-10. doi: 10.1007/s11764-011-0198-2. PMID: 104520499. Language: English. Entry Date: 20120629. Revision Date: 20200708. Publication Type: journal article. Participants 1899. Tolkkinen A, Madanat-Harjuoja L, Taskinen M, et al. Impact of parental socioeconomic factors on childhood cancer mortality: a population-based registry study. Acta Oncologica. 2018;57(11):1547-55. doi: 10.1080/0284186X.2018.1478125. PMID: 133774506. Language: English. Entry Date: 20190102. Revision Date: 20200424. Publication Type: Article. Outcome 1895. Tobin J, Allem J-P, Slaughter R, et al. Posttraumatic growth among childhood cancer survivors: Associations with ethnicity, acculturation, and religious service attendance. Journal of Psychosocial Oncology. 2018;36(2):175-88. doi: 10.1080/07347332.2017.1365799. PMID: 127841395. Language: English. Entry Date: 20180218. Revision Date: 20200602. Publication Type: Article. Duplicate 1900. Tonning Olsson I, Brinkman TM, Hyun G, et al. Neurocognitive outcomes in long-term survivors of Wilms tumor: a report from the St. Jude Lifetime Cohort. J Cancer Surviv. 2019 Aug;13(4):570-9. doi: 10.1007/s11764-019-00776-8. PMID: 31243647. Outcome B-172 1901. Tonning Olsson I, Brinkman TM, Hyun G, et al. Neurocognitive outcomes in long-term survivors of Wilms tumor: a report from the St. Jude Lifetime Cohort. Journal of Cancer Survivorship. 2019;13(4):570-9. doi: 10.1007/s11764-01900776-8. PMID: 137870885. Language: English. Entry Date: In Process. Revision Date: 20200606. Publication Type: journal article. Journal Subset: Biomedical. Duplicate 1906. Tougas AM, Jutras S, Bigras M. Types and Influence of Social Support on School Engagement of Young Survivors of Leukemia. J Sch Nurs. 2016 Aug;32(4):28193. doi: 10.1177/1059840516635711. PMID: 27009588. Outcome 1907. Tougas AM, Jutras S, Bigras M, et al. The potential role of benefit and burden finding in school engagement of young leukaemia survivors: an exploratory study. Child Care Health Dev. 2016 Jan;42(1):6875. doi: 10.1111/cch.12245. PMID: 25824576. Outcome 1902. Tonsing KN, Ow R. Quality of Life, Self-Esteem, and Future Expectations of Adolescent and Young Adult Cancer Survivors. Health & Social Work. 2018;43(1):15-21. doi: 10.1093/hsw/hlx047. PMID: 127894933. Language: English. Entry Date: 20180216. Revision Date: 20190201. Publication Type: Article. Outcome 1908. Touyz LM, Cohen J, Cohn RJ, et al. Childhood cancer survivors report preferring lifestyle interventions delivered in person rather than online: An adolescent and parent perspective. Pediatr Blood Cancer. 2019 Oct;66(10):e27922. doi: 10.1002/pbc.27922. PMID: 31309668. Intervention 1903. Torp S, Nielsen RA, Fosså SD, et al. Change in employment status of 5-year cancer survivors. Eur J Public Health. 2013 Feb;23(1):116-22. doi: 10.1093/eurpub/ckr192. PMID: 22227027. Participants 1909. Touyz LM, Cohen J, Neville KA, et al. Changes in body mass index in long-term survivors of childhood acute lymphoblastic leukemia treated without cranial radiation and with reduced glucocorticoid therapy. Pediatric Blood & Cancer. 2017;64(4):n/aN.PAG. doi: 10.1002/pbc.26344. PMID: 121387594. Language: English. Entry Date: 20170728. Revision Date: 20180927. Publication Type: journal article. Outcome 1904. Torp S, Nielsen RA, Gudbergsson SB, et al. Sick leave patterns among 5-year cancer survivors: a registry-based retrospective cohort study. J Cancer Surviv. 2012 Sep;6(3):315-23. doi: 10.1007/s11764012-0228-8. PMID: 22706884. Participants 1910. Trecker CC, Kozubal DE, Quigg M, et al. Quality care in transverse myelitis: a responsive protocol. J Child Neurol. 2009 May;24(5):577-83. doi: 10.1177/0883073808325655. PMID: 19211922. Participants 1905. Tougas A-M, Jutras S, Bigras M. Types and Influence of Social Support on School Engagement of Young Survivors of Leukemia. Journal of School Nursing. 2016;32(4):281-93. doi: 10.1177/1059840516635711. PMID: 116808488. Language: English. Entry Date: 20170608. Revision Date: 20180524. Publication Type: Article. Duplicate 1911. Trego ML, Baba ZM, DiSantis KI, et al. Food insecurity among adult cancer survivors in the United States. J Cancer Surviv. 2019 Aug;13(4):641-52. doi: 10.1007/s11764-019-00783-9. PMID: 31297721. Participants B-173 1912. Tremolada M, Bonichini S, Basso G, et al. Post-traumatic Stress Symptoms and Post-traumatic Growth in 223 Childhood Cancer Survivors: Predictive Risk Factors. Front Psychol. 2016;7:287. doi: 10.3389/fpsyg.2016.00287. PMID: 26973578. Intervention 1917. Treviño RA, Vallejo L, Hughes DC, et al. Mexican-American and Puerto Rican breast cancer survivors' perspectives on exercise: similarities and differences. J Immigr Minor Health. 2012 Dec;14(6):1082-9. doi: 10.1007/s10903012-9648-9. PMID: 22610693. Participants 1913. Tremolada M, Bonichini S, Basso G, et al. Perceived social support and healthrelated quality of life in AYA cancer survivors and controls. Psychooncology. 2016 Dec;25(12):1408-17. doi: 10.1002/pon.4072. PMID: 26810123. Outcome 1918. Trust UHSNF, Southampton Uo. HORIZONS: Understanding the Impact of Cancer Diagnosis and Treatment on Everyday Life. 2016. Participants 1919. Tsai W-L, Chien C-Y, Huang H-Y, et al. Prognostic value of quality of life measured after treatment on subsequent survival in patients with nasopharyngeal carcinoma. Quality of Life Research. 2013;22(4):715-23. doi: 10.1007/s11136012-0213-8. PMID: 104071561. Language: English. Entry Date: 20140418. Revision Date: 20200708. Publication Type: journal article. Outcome 1914. Tremolada M, Bonichini S, Basso G, et al. Adolescent and young adult cancer survivors narrate their stories: Predictive model of their personal growth and their follow-up acceptance. Eur J Oncol Nurs. 2018 Oct;36:119-28. doi: 10.1016/j.ejon.2018.09.001. PMID: 30322502. Outcome 1920. Tsangaris E, Johnson J, Taylor R, et al. Identifying the supportive care needs of adolescent and young adult survivors of cancer: a qualitative analysis and systematic literature review. Support Care Cancer. 2014 Apr;22(4):947-59. doi: 10.1007/s00520-0132053-7. PMID: 24271938. Participants 1915. Tremolada M, Schiavo S, Varotto S, et al. Patient Satisfaction in Italian Childhood Cancer Survivors: Human Aspects of Treatment as a Key Factor in Patients' Quality of Life. Health & Social Work. 2015;40(4):e148-e55. doi: 10.1093/hsw/hlv067. PMID: 110709679. Language: English. Entry Date: 20151109. Revision Date: 20191111. Publication Type: Article. Intervention 1921. Tuinman MA, Lehmann V, Hagedoorn M. Do single people want to date a cancer survivor? A vignette study. PLoS One. 2018;13(3):e0194277. doi: 10.1371/journal.pone.0194277. PMID: 29566002. Outcome 1916. Tresman R, Brown M, Fraser F, et al. A School Passport as Part of a Protocol to Assist Educational Reintegration After Medulloblastoma Treatment in Childhood. Pediatr Blood Cancer. 2016 Sep;63(9):163642. doi: 10.1002/pbc.26071. PMID: 27196034. Participants 1922. Turcotte LM, Liu Q, Yasui Y, et al. Chemotherapy and Risk of Subsequent Malignant Neoplasms in the Childhood Cancer Survivor Study Cohort. Journal of Clinical Oncology. 2019;37(34):3310-20. Intervention B-174 1923. Turner CD, Chordas CA, Liptak CC, et al. Medical, psychological, cognitive and educational late-effects in pediatric lowgrade glioma survivors treated with surgery only. Pediatric Blood & Cancer. 2009;53(3):417-23. doi: 10.1002/pbc.22081. PMID: 105385357. Language: English. Entry Date: 20090814. Revision Date: 20200708. Publication Type: Journal Article. Outcome 1928. Twombly R. Childhood cancer survivor study doubles to examine late effects of new treatments. J Natl Cancer Inst. 2007 Nov 7;99(21):1574-6. doi: 10.1093/jnci/djm218. PMID: 17971522. Intervention 1929. Twombly R. Pediatric brain tumor survivors, physicians, and researchers face long-term challenges. J Natl Cancer Inst. 2009 Jul 1;101(13):908-10. doi: 10.1093/jnci/djp190. PMID: 19549957. Outcome 1924. Turner JK, Hutchinson A, Wilson C. Correlates of post-traumatic growth following childhood and adolescent cancer: A systematic review and meta-analysis. Psychooncology. 2018 Apr;27(4):1100-9. doi: 10.1002/pon.4577. PMID: 29096418. Outcome 1930. Tyc VL, Hadley W, Crockett G. Prediction of health behaviors in pediatric cancer survivors. Med Pediatr Oncol. 2001 Jul;37(1):42-6. doi: 10.1002/mpo.1161. PMID: 11466722. Outcome 1925. Turner JK, Hutchinson A, Wilson C. Correlates of post‐traumatic growth following childhood and adolescent cancer: A systematic review and meta‐analysis. Psycho-Oncology. 2018 Apr 2018 1931. Tyc VL, Lensing S, Rai SN, et al. Predicting perceived vulnerability to tobacco-related health risks and future intentions to use tobacco among pediatric cancer survivors. Patient Educ Couns. 2006 Aug;62(2):198-204. doi: 10.1016/j.pec.2005.07.001. PMID: 16139983. Outcome 2019-05-30;27(4):1100-9. doi: http://dx.doi.org/10.1002/pon.4577. PMID: 1968546104; 2017-53067-001. Duplicate 1932. Tzelepis F, Paul CL, Sanson-Fisher RW, et al. Unmet supportive care needs of haematological cancer survivors: rural versus urban residents. Ann Hematol. 2018 Jul;97(7):1283-92. doi: 10.1007/s00277018-3285-x. PMID: 29525897. Participants 1926. Turner-Sack AM, Menna R, Setchell SR, et al. Psychological Functioning, PostTraumatic Growth, and Coping in Parents and Siblings of Adolescent Cancer Survivors. Oncol Nurs Forum. 2016 Jan;43(1):48-56. doi: 10.1188/16.Onf.48-56. PMID: 26679444. Outcome 1933. Uglow LS. The benefits of an animalassisted intervention service to patients and staff at a children's hospital. Br J Nurs. 2019 Apr 25;28(8):509-15. doi: 10.12968/bjon.2019.28.8.509. PMID: 31002549. Intervention 1927. Tutelman PR, Chambers CT, Urquhart R, et al. When "a headache is not just a headache": A qualitative examination of parent and child experiences of pain after childhood cancer. Psychooncology. 2019 Sep;28(9):1901-9. doi: 10.1002/pon.5170. PMID: 31276614. Outcome 1934. Ulman Foundation. https://ulmanfoundation.org/. Accessed on November 3, 2020. Intervention B-175 1935. University BV. The Impact of Exercise Approaches on Sleep in Children With Acute Lymphoblastic Leukemia. 2019. Outcome 1945. University of California I, Foundation TH, American Cancer Society I, et al. Treating Pain in Children With Cancer: Pain Buddy. 2019. Participants 1936. University College L, Hospitals UCL, Trust SUHFN, et al. Individualised Versus Conventional Medical Follow-up for Women After Primary Treatment for Ovarian Cancer. 2006. Participants 1946. University of California LA. Primary Care Clinical Excellence Incentive Study. 2019. Participants 1937. University E. Promoting Quality of Life Among Young Adult Cancer Survivors. 2017. Outcome 1947. University of California LA, Health LACDoP. Increasing Human Papillomavirus Vaccine Uptake in Low-Income, Ethnic Minority Adolescents in Los Angeles County. 2012. Participants 1938. University GS. FOCUS for Pediatric Sickle Cell Disease and Cancer. 2020. Intervention 1948. University of California SD. Reproductive Health Survivorship Care Plan. 2015. Participants 1939. University Hospital A. Executive and Socio-cognitive Functions in Survivors of Primary Brain Tumor: Impact on Patients' Quality of Life. 2016. Outcome 1949. University of Wisconsin M. Promotion of Well-being of Young Adult Brain Cancer Survivors. 2019. Intervention 1950. University S. Study to Improve Survivorship Care Related to Fertility and Family-building After Cancer. 2020. Participants 1940. University Hospital Inselspital B, AG SS, Solothurn B, et al. Cancer Adverse Effects PReventIon With Care & Exercise: the CAPRICE Study. 2019. Participants 1951. Upton P, Eiser C. School experiences after treatment for a brain tumour. Child: Care, Health & Development. 2006;32(1):917. doi: 10.1111/j.1365-2214.2006.00569.x. PMID: 106421478. Language: English. Entry Date: 20060407. Revision Date: 20200708. Publication Type: Journal Article. Outcome 1941. University Hospital M, Besancon CHUd. Oncological Care for Patients With Meningioma. 2019. Participants 1942. University Hospital M, society m. Physical Activity Adapted at Home Supervised by Videoconferencing in Postcancer for Children AYA Treated for Leukemia (ONCOPED SAPATIC). 2019. Outcome 1952. Utah Uo, Institute SC, Medicare Cf, et al. Reducing Cancer Disparities for American Indians in the Rural Intermountain West. 2006. Participants 1943. University I. Exercise Intervention in Adolescent and Young Adult Cancer Survivors. 2019. Outcome 1953. Vaarwerk B, Limperg PF, NaafsWilstra MC, et al. Getting control during follow-up visits: the views and experiences of parents on tumor surveillance after their children have completed therapy for rhabdomyosarcoma or Ewing sarcoma. Support Care Cancer. 2019 Oct;27(10):3841-8. doi: 10.1007/s00520019-04678-4. PMID: 30747278. Outcome 1944. University L, Hospital SU, Rigshospitalet D. eHealth as an Aid for Facilitating and Supporting Selfmanagement in Families With Long-term Childhood Illness. 2019. Intervention B-176 1954. Valdivieso M, Kujawa AM, Jones T, et al. Cancer survivors in the United States: a review of the literature and a call to action. Int J Med Sci. 2012;9(2):163-73. doi: 10.7150/ijms.3827. PMID: 22275855. Participants 1960. van Dijk J, Grootenhuis MA, Imhof SM, et al. Coping strategies of retinoblastoma survivors in relation to behavioural problems. Psychooncology. 2009 Dec;18(12):1281-9. doi: 10.1002/pon.1507. PMID: 19222049. Intervention 1955. Valle CG, Tate DF. Engagement of young adult cancer survivors within a Facebook-based physical activity intervention. Transl Behav Med. 2017 Dec;7(4):667-79. doi: 10.1007/s13142-0170483-3. PMID: 28374211. Participants 1961. van Dijk J, Huisman J, Moll AC, et al. Health-related quality of life of child and adolescent retinoblastoma survivors in the Netherlands. Health Qual Life Outcomes. 2007 Dec 3;5:65. doi: 10.1186/1477-7525-565. PMID: 18053178. Outcome 1956. Valle CG, Tate DF, Mayer DK, et al. A randomized trial of a Facebook-based physical activity intervention for young adult cancer survivors. J Cancer Surviv. 2013 Sep;7(3):355-68. doi: 10.1007/s11764013-0279-5. PMID: 23532799. Participants 1962. van Dijk J, Imhof SM, Moll AC, et al. Quality of life of adult retinoblastoma survivors in the Netherlands. Health Qual Life Outcomes. 2007 Jun 4;5:30. doi: 10.1186/1477-7525-5-30. PMID: 17547767. Outcome 1957. van den Berg M, van Dulmen-den Broeder E, Overbeek A, et al. Fertility studies in female childhood cancer survivors: selecting appropriate comparison groups. Reprod Biomed Online. 2014 Sep;29(3):352-61. doi: 10.1016/j.rbmo.2014.06.002. PMID: 25047538. Outcome 1963. van Dijk J, Oostrom KJ, Imhof SM, et al. Behavioural functioning of retinoblastoma survivors. Psycho-Oncology. 2009;18(1):87-95. doi: 10.1002/pon.1381. PMID: 105601647. Language: English. Entry Date: 20090508. Revision Date: 20150711. Publication Type: Journal Article. Journal Subset: Biomedical. Outcome 1958. van der Poel MWM, Oerlemans S, Schouten HC, et al. Quality of life more impaired in younger than in older diffuse large B cell lymphoma survivors compared to a normative population: a study from the population-based PROFILES registry. Annals of Hematology. 2014;93(5):811-9. doi: 10.1007/s00277-013-1980-1. PMID: 104062016. Language: English. Entry Date: 20150213. Revision Date: 20200708. Publication Type: Journal Article. Participants 1964. Van Dijk-Lokkart EM, Steur LMH, Braam KI, et al. Longitudinal development of cancer-related fatigue and physical activity in childhood cancer patients. Pediatr Blood Cancer. 2019 Dec;66(12):e27949. doi: 10.1002/pbc.27949. PMID: 31436372. Intervention 1965. Van Dongen-Melman JE. Information booklet for parents of children surviving cancer. Leukemia. 1997 Nov;11(11):1799-806. doi: 10.1038/sj.leu.2400830. PMID: 9369409. Intervention 1959. van Dijk EM, van Dulmen-den Broeder E, Kaspers GJ, et al. Psychosexual functioning of childhood cancer survivors. Psychooncology. 2008 May;17(5):506-11. doi: 10.1002/pon.1274. PMID: 17935145. Outcome B-177 1966. Van Dongen-Melman JE. Developing psychosocial aftercare for children surviving cancer and their families. Acta Oncol. 2000;39(1):23-31. doi: 10.1080/028418600430932. PMID: 10752650. Outcome 1972. Vanclooster S, Bilsen J, Peremans L, et al. Short-term perspectives of parents and teachers on school reintegration of childhood brain tumour survivors. Dev Neurorehabil. 2019 Jul;22(5):321-8. doi: 10.1080/17518423.2018.1498553. PMID: 30015543. Participants 1967. Van Dongen-Melman JE, De Groot A, Hählen K, et al. Impact of childhood leukemia on family planning. Pediatr Hematol Oncol. 1995 Mar-Apr;12(2):11727. doi: 10.3109/08880019509029544. PMID: 7626379. Outcome 1973. Vanclooster S, Van Hoeck K, Peremans L, et al. Reintegration into school of childhood brain tumor survivors: a qualitative study using the International Classification of Functioning, Disability and Health - Children and Youth framework. Disabil Rehabil. 2020 Jan 7:1-11. doi: 10.1080/09638288.2019.1708484. PMID: 31910686. Outcome 1968. van Laar M, Feltbower RG, Gale CP, et al. Cardiovascular sequelae in long-term survivors of young peoples' cancer: a linked cohort study. Br J Cancer. 2014 Mar 4;110(5):1338-41. doi: 10.1038/bjc.2014.37. PMID: 24504369. Intervention 1974. Vann JC, Biddle AK, Daeschner CW, et al. Health insurance access to young adult survivors of childhood cancer in North Carolina. Med Pediatr Oncol. 1995 Nov;25(5):389-95. doi: 10.1002/mpo.2950250505. PMID: 7674996. Outcome 1969. Van Liew JR, Christensen AJ, Howren MB, et al. Fear of Recurrence Impacts Health-Related Quality of Life and Continued Tobacco Use in Head and Neck Cancer Survivors. Health Psychology. 2014;33(4):373-81. doi: 10.1037/a0032680. PMID: 95469748. Language: English. Entry Date: 20140411. Revision Date: 20140412. Publication Type: Article. Participants 1975. Vannatta K, Gerhardt CA, Wells RJ, et al. Intensity of CNS treatment of pediatric cancer: prediction of social outcomes in survivors. Pediatric Blood & Cancer. 2007;49(5):716-22. doi: 10.1002/pbc.21062. PMID: 105981267. Language: English. Entry Date: 20080215. Revision Date: 20200623. Publication Type: Journal Article. Outcome 1970. van Litsenburg RR, Kunst A, Huisman J, et al. Health status utilities in pediatrics: a systematic review of acute lymphoblastic leukemia. Med Decis Making. 2014 Jan;34(1):21-32. doi: 10.1177/0272989x13497263. PMID: 23886678. Outcome 1976. Vartanian JG, Carvalho AL, Toyota J, et al. Socioeconomic effects of and risk factors for disability in long-term survivors of head and neck cancer. Archives of Otolaryngology - Head & Neck Surgery. 2006;132(1):32-5. doi: 10.1001/archotol.132.1.32. PMID: 106445405. Language: English. Entry Date: 20060526. Revision Date: 20200708. Publication Type: Journal Article. Participants 1971. Vanclooster S, Bilsen J, Peremans L, et al. Reintegration Into School After Treatment for a Brain Tumor: The Child's Perspective. Glob Pediatr Health. 2019;6:2333794x19860659. doi: 10.1177/2333794x19860659. PMID: 31321257. Outcome B-178 1977. Vassal G, Fitzgerald E, Schrappe M, et al. Challenges for children and adolescents with cancer in Europe: the SIOP-Europe agenda. Pediatr Blood Cancer. 2014 Sep;61(9):1551-7. doi: 10.1002/pbc.25044. PMID: 24706509. Outcome 1983. Vetsch J, Rueegg CS, Mader L, et al. Parents' preferences for the organisation of long-term follow-up of childhood cancer survivors. Eur J Cancer Care (Engl). 2018 Mar;27(2):e12649. doi: 10.1111/ecc.12649. PMID: 28134478. Intervention 1984. Vetsch J, Rueegg CS, Mader L, et al. Parents' preferences for the organisation of long‐term follow‐up of childhood cancer survivors. European Journal of Cancer Care. 2018 Mar 2018 1978. Vassal G, Zwaan CM, Ashley D, et al. New drugs for children and adolescents with cancer: the need for novel development pathways. Lancet Oncol. 2013 Mar;14(3):e117-24. doi: 10.1016/s14702045(13)70013-5. PMID: 23434337. Outcome 2018-05-23;27(2):1-11. PMID: 2042691803; 2018-12903-064. Duplicate 1985. Vetsch J, Wakefield CE, Doolan EL, et al. 'Why us?' Causal attributions of childhood cancer survivors, survivors' parents and community comparisons - a mixed methods analysis. Acta Oncol. 2019 Feb;58(2):209-17. doi: 10.1080/0284186x.2018.1532600. PMID: 30614350. Intervention 1979. Vaudre G, Trocmé N, LandmanParker J, et al. [Quality of life of adolescents surviving childhood acute lymphoblastic leukemia]. Arch Pediatr. 2005 Nov;12(11):1591-9. doi: 10.1016/j.arcped.2005.07.017. PMID: 16216482. Not English 1980. Vehling S, Mehnert A, Hartmann M, et al. Anxiety and depression in long-term testicular germ cell tumor survivors. Gen Hosp Psychiatry. 2016 Jan-Feb;38:21-5. doi: 10.1016/j.genhosppsych.2015.09.001. PMID: 26439320. Participants 1986. Vetsch J, Wakefield CE, Doolan EL, et al. 'Why us?' Causal attributions of childhood cancer survivors, survivors' parents and community comparisons - a mixed methods analysis. Acta Oncologica. 2019;58(2):209-17. doi: 10.1080/0284186X.2018.1532600. PMID: 134919340. Language: English. Entry Date: 20190228. Revision Date: 20190404. Publication Type: Article. Duplicate 1981. Verberne LM, Maurice-Stam H, Grootenhuis MA, et al. Sleep disorders in children after treatment for a CNS tumour. J Sleep Res. 2012 Aug;21(4):461-9. doi: 10.1111/j.1365-2869.2011.00971.x. PMID: 22780916. Outcome 1987. Vetsch J, Wakefield CE, Robertson EG, et al. Health-related quality of life of survivors of childhood acute lymphoblastic leukemia: a systematic review. Quality of Life Research. 2018;27(6):1431-43. doi: 10.1007/s11136-018-1788-5. PMID: 129610725. Language: English. Entry Date: 20180910. Revision Date: 20190927. Publication Type: journal article. Outcome 1982. Verbruggen LC, Wang Y, Armenian SH, et al. Guidance regarding COVID-19 for survivors of childhood, adolescent, and young adult cancer: A statement from the International Late Effects of Childhood Cancer Guideline Harmonization Group. Pediatr Blood Cancer. 2020 Sep 23:e28702. doi: 10.1002/pbc.28702. PMID: 32969160. Intervention B-179 1995. Wada RK, Glaser DW, Bantum EO, et al. Hawai'i's multiethnic adolescent and young adult survivors of childhood cancer: are their health behavior risks similar to state and national samples? Hawaii J Med Public Health. 2013 Nov;72(11):380-5. PMID: 24251083. Participants 1988. Vickberg SMJ, Duhamel KN, Smith MY, et al. Global meaning and psychological adjustment among survivors of bone marrow transplant. PsychoOncology. 2001;10(1):29-39. doi: 10.1002/10991611(200101/02)10:1<29::aidpon482>3.0.co;2-y. PMID: 107021088. Language: English. Entry Date: 20010511. Revision Date: 20200701. Publication Type: journal article. Participants 1996. Wakefield CE, Butow P, Fleming CA, et al. Family information needs at childhood cancer treatment completion. Pediatr Blood Cancer. 2012 Apr;58(4):6216. doi: 10.1002/pbc.23316. PMID: 21910212. Outcome 1989. Virginia Uo, Arizona Uo. Telemedicine Nurse-Led Intervention for Rural Cancer Survivors. 2020. Participants 1997. Wakefield CE, McLoone J, Butow P, et al. Support after the completion of cancer treatment: perspectives of Australian adolescents and their families. Eur J Cancer Care (Engl). 2013 Jul;22(4):530-9. doi: 10.1111/ecc.12059. PMID: 23730980. Intervention 1990. Vivar CG, Canga N, Canga AD, et al. The psychosocial impact of recurrence on cancer survivors and family members: a narrative review. J Adv Nurs. 2009 Apr;65(4):724-36. doi: 10.1111/j.13652648.2008.04939.x. PMID: 19228235. Outcome 1998. Wakefield CE, McLoone JK, Donovan LA, et al. Thank you for your lovely card: ethical considerations in responding to bereaved parents invited in error to participate in childhood cancer survivorship research. Med Health Care Philos. 2015 Feb;18(1):113-9. doi: 10.1007/s11019-014-9587-4. PMID: 25070880. Outcome 1991. Vivar CG, McQueen A. Informational and emotional needs of longterm survivors of breast cancer. J Adv Nurs. 2005 Sep;51(5):520-8. doi: 10.1111/j.13652648.2005.03524.x. PMID: 16098169. Study design 1992. Vlachioti E, Perdikaris P, Megapanou E, et al. Assessment of quality of life in adolescent patients with cancer and adolescent survivors of childhood cancer. J Spec Pediatr Nurs. 2016 Oct;21(4):178-88. doi: 10.1111/jspn.12154. PMID: 27554139. Outcome 1999. Wakefield CE, McLoone JK, Evans NT, et al. It's more than dollars and cents: the impact of childhood cancer on parents' occupational and financial health. J Psychosoc Oncol. 2014;32(5):602-21. doi: 10.1080/07347332.2014.936653. PMID: 24988134. Participants 1993. Vrijmoet-Wiersma CM, Egeler RM, Koopman HM, et al. Parental stress and perceived vulnerability at 5 and 10 years after pediatric SCT. Bone Marrow Transplant. 2010 Jun;45(6):1102-8. doi: 10.1038/bmt.2009.309. PMID: 19881554. Participants 2000. Wakefield CE, McLoone JK, Fleming CAK, et al. Adolescent cancer and health-related decision-making: An Australian multi-perspective family analysis of appointment attendance and involvement in medical and lifestyle choices. Journal of Adolescent and Young Adult Oncology. 2011 Dec 2011 1994. Vuotto SC. Modeling pathways to health behaviors of young-adult survivors of childhood cancer; 2016. Outcome B-180 2006. Walsh C, Jang Y, Currin-McCulloch J, et al. Pilot Use of Selected Measures from the Patient-Reported Outcomes Measurement Information System Social and Mental Health Domains with Young Adult Cancer Patients During the Transition to Survivorship Care. Journal of Adolescent & Young Adult Oncology. 2019;8(5):635-9. doi: 10.1089/jayao.2019.0022. PMID: 139079840. Language: English. Entry Date: 20191024. Revision Date: 20191024. Publication Type: Article. Participants 2017-09-25;1(4):173-80. doi: http://dx.doi.org/10.1089/jayao.2011.0030. PMID: 1817569254; 2015-45391-003. Intervention 2001. Wakefield CE, Sansom-Daly UM, McGill BC, et al. Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: study protocol for a randomised controlled trial. Trials. 2015 Apr 11;16:153. doi: 10.1186/s13063-015-06816. PMID: 25872773. Intervention 2007. Walsh KS, Noll RB, Annett RD, et al. Standard of Care for Neuropsychological Monitoring in Pediatric Neuro-Oncology: Lessons From the Children's Oncology Group (COG). Pediatr Blood Cancer. 2016 Feb;63(2):191-5. doi: 10.1002/pbc.25759. PMID: 26451963. Outcome 2002. Walker AJ, Lewis FM, Lin Y, et al. Trying to Feel Normal Again: Early Survivorship for Adolescent Cancer Survivors. Cancer Nurs. 2019 Jul/Aug;42(4):E11-e21. doi: 10.1097/ncc.0000000000000629. PMID: 30024440. Intervention 2008. Walsh KS, Paltin I, Gioia GA, et al. Everyday executive function in standard-risk acute lymphoblastic leukemia survivors. Child Neuropsychol. 2015;21(1):78-89. doi: 10.1080/09297049.2013.876491. PMID: 24428397. Outcome 2003. Wallace MH, Peiter PB, Pendergrass TW. Parents of long-term survivors of childhood cancer: a preliminary survey to characterize concerns and needs. Oncol Nurs Forum. 1987 May-Jun;14(3):39-43. PMID: 3646685. Intervention 2009. Walton AL, Albrecht TA, Lux L, et al. Social Media: Support for survivors and young adults with cancer. Clinical Journal of Oncology Nursing. 2017;21(5):537-40. doi: 10.1188/17.CJON.537-540. PMID: 125427486. Language: English. Entry Date: 20171005. Revision Date: 20181001. Publication Type: Article. Study design 2004. Wallin AE, Steineck G, Nyberg T, et al. Insufficient communication and anxiety in cancer-bereaved siblings: A nationwide long-term follow-up. Palliat Support Care. 2016 Oct;14(5):488-94. doi: 10.1017/s1478951515001273. PMID: 26515111. Participants 2005. Walling AM, Keating NL, Kahn KL, et al. Lower Patient Ratings of Physician Communication Are Associated With Unmet Need for Symptom Management in Patients With Lung and Colorectal Cancer. Journal of Oncology Practice. 2016;12(6):564-e669. doi: 10.1200/JOP.2015.005538. PMID: 116948229. Language: English. Entry Date: 20160728. Revision Date: 20190711. Publication Type: Article. Participants 2010. Wampler MA, Galantino ML, Huang S, et al. Physical activity among adult survivors of childhood lower-extremity sarcoma. J Cancer Surviv. 2012 Mar;6(1):45-53. doi: 10.1007/s11764-0110187-5. PMID: 21681405. Intervention B-181 2011. Wampler MA, Galantino ML, Huang S, et al. Physical activity among adult survivors of childhood lower-extremity sarcoma. Journal of Cancer Survivorship. 2012;6(1):45-53. doi: 10.1007/s11764-0110187-5. PMID: 104520496. Language: English. Entry Date: 20120629. Revision Date: 20200708. Publication Type: journal article. Duplicate 2016. Watanabe-Galloway S, Flom N, Liyan X, et al. Cancer-Related Disparities and Opportunities for Intervention in Northern Plains American Indian Communities. Public Health Reports. 2011;126(3):318-29. doi: 10.1177/003335491112600304. PMID: 60552657. Language: English. Entry Date: 20110707. Revision Date: 20190517. Publication Type: Article. Outcome 2012. Ward SL, Turpin A, Spicer AC, et al. Long-Term Pulmonary Function and Quality of Life in Children After Acute Respiratory Distress Syndrome: A Feasibility Investigation. Pediatr Crit Care Med. 2017 Jan;18(1):e48-e55. doi: 10.1097/pcc.0000000000001014. PMID: 28060170. Participants 2017. Waterworth S. Long-term effects of cancer on children and their families. Br J Nurs. 1992 Aug 13-Sep 9;1(8):373-4, 6-7. doi: 10.12968/bjon.1992.1.8.373. PMID: 1521053. Study design 2018. Wei G, Julia V, Peacock J, et al. Place of death in children and young people with cancer and implications for end of life care: a population-based study in England, 1993-2014. BMC Cancer. 2016:1-15. doi: 10.1186/s12885-016-2695-1. PMID: 118251526. Language: English. Entry Date: 20180725. Revision Date: 20180725. Publication Type: journal article. Duplicate 2013. Warner E, Nam G, Zhang Y, et al. Health behaviors, quality of life, and psychosocial health among survivors of adolescent and young adult cancers. Journal of Cancer Survivorship. 2016;10(2):280-90. doi: 10.1007/s11764-015-0474-7. PMID: 113903573. Language: English. Entry Date: 20161123. Revision Date: 20180628. Publication Type: journal article. Duplicate 2019. Weinstein AG, Henrich CC, Armstrong GT, et al. Roles of positive psychological outcomes in future health perception and mental health problems: A report from the Childhood Cancer Survivor Study. Psychooncology. 2018 Dec;27(12):2754-60. doi: 10.1002/pon.4881. PMID: 30189119. Outcome 2014. Warner EL, Park ER, Stroup A, et al. Childhood cancer survivors' familiarity with and opinions of the Patient Protection and Affordable Care Act. J Oncol Pract. 2013 Sep;9(5):246-50. doi: 10.1200/jop.2013.000919. PMID: 23943900. Intervention 2020. Weiss A, Sommer G, Kasteler R, et al. Long-term auditory complications after childhood cancer: A report from the Swiss Childhood Cancer Survivor Study. Pediatr Blood Cancer. 2017 Feb;64(2):364-73. doi: 10.1002/pbc.26212. PMID: 27650356. Outcome 2015. Wasserman AL, Thompson EI, Wilimas JA, et al. The psychological status of survivors of childhood/adolescent Hodgkin's disease. Am J Dis Child. 1987 Jun;141(6):626-31. doi: 10.1001/archpedi.1987.04460060044029. PMID: 3578186. Outcome B-182 2026. Wendland EM, Caierão J, Domingues C, et al. POP-Brazil study protocol: a nationwide cross-sectional evaluation of the prevalence and genotype distribution of human papillomavirus (HPV) in Brazil. BMJ Open. 2018 Jun 7;8(6):e021170. doi: 10.1136/bmjopen-2017-021170. PMID: 29880568. Intervention 2021. Weiss A, Sommer G, Kuonen R, et al. Validation of questionnaire-reported hearing with medical records: A report from the Swiss Childhood Cancer Survivor Study. PLoS One. 2017;12(3):e0174479. doi: 10.1371/journal.pone.0174479. PMID: 28333999. Outcome 2022. Weiss A, Sommer G, Schindera C, et al. Hearing loss and quality of life in survivors of paediatric CNS tumours and other cancers. Qual Life Res. 2019 Feb;28(2):515-21. doi: 10.1007/s11136-0182021-2. PMID: 30306534. Outcome 2027. Wengenroth L, Gianinazzi ME, Rueegg CS, et al. Health-related quality of life in young survivors of childhood cancer. Qual Life Res. 2015 Sep;24(9):2151-61. doi: 10.1007/s11136-015-0961-3. PMID: 25784561. Intervention 2023. Weiss A, Sommer G, Schindera C, et al. Hearing loss and quality of life in survivors of paediatric CNS tumours and other cancers. Quality of Life Research. 2019;28(2):515-21. doi: 10.1007/s11136018-2021-2. PMID: 134563294. Language: English. Entry Date: In Process. Revision Date: 20200203. Publication Type: journal article. Journal Subset: Allied Health. Duplicate 2028. Wengenroth L, Rueegg CS, Michel G, et al. Life partnerships in childhood cancer survivors, their siblings, and the general population. Pediatr Blood Cancer. 2014 Mar;61(3):538-45. doi: 10.1002/pbc.24821. PMID: 24136901. Outcome 2029. Wengenroth L, Rueegg CS, Michel G, et al. Concentration, working speed and memory: cognitive problems in young childhood cancer survivors and their siblings. Pediatr Blood Cancer. 2015 May;62(5):875-82. doi: 10.1002/pbc.25396. PMID: 25645276. Intervention 2024. Welch JJG, Kenney LB, Hirway P, et al. Understanding predictors of continued long-term pediatric cancer care across the region: A report from the Consortium for New England Childhood Cancer Survivors. Pediatric Blood & Cancer. 2017;64(10):n/aN.PAG. doi: 10.1002/pbc.26564. PMID: 124751429. Language: English. Entry Date: 20171021. Revision Date: 20181015. Publication Type: journal article. Duplicate 2030. Wengenroth L, Sommer G, Schindler M, et al. Income in Adult Survivors of Childhood Cancer. PLoS One. 2016;11(5):e0155546. doi: 10.1371/journal.pone.0155546. PMID: 27213682. Outcome 2025. Wenceslao S, Gotay CC, Cheung LW, et al. Patterns of childhood cancer in Hawai'i between 1975 and 2000. Hawaii Med J. 2006 Aug;65(8):221-5. PMID: 17004620. Intervention 2031. Wenninger K, Helmes A, Bengel J, et al. Coping in long-term survivors of childhood cancer: relations to psychological distress. Psychooncology. 2013 Apr;22(4):854-61. doi: 10.1002/pon.3073. PMID: 22461240. Outcome B-183 2032. Wenzel L, DeAlba I, Habbal R, et al. Quality of life in long-term cervical cancer survivors. Gynecol Oncol. 2005 May;97(2):310-7. doi: 10.1016/j.ygyno.2005.01.010. PMID: 15863123. Participants 2037. White V, Skaczkowski G, Thompson K, et al. Experiences of Care of Adolescents and Young Adults with Cancer in Australia. Journal of Adolescent & Young Adult Oncology. 2018;7(3):315-25. doi: 10.1089/jayao.2017.0104. PMID: 130018230. Language: English. Entry Date: 20180615. Revision Date: 20190603. Publication Type: Article. Intervention 2033. Weston C. 'Reaching Out': international models for transitional care for teenage and young adult cancer patients. International Practice Development Journal. 2018;8(1):1-10. doi: 10.19043/ipdj81.006. PMID: 133860669. Language: English. Entry Date: 20190107. Revision Date: 20190110. Publication Type: Article. Journal Subset: Blind Peer Reviewed. Participants 2038. Whitt JK, Wells RJ, Lauria MM, et al. Cranial radiation in childhood acute lymphocytic leukemia. Neuropsychologic sequelae. Am J Dis Child. 1984 Aug;138(8):730-6. doi: 10.1001/archpedi.1984.02140460022009. PMID: 6377873. Outcome 2034. Wheeler SB, Kohler RE, Goyal RK, et al. Is medical home enrollment associated with receipt of guideline-concordant followup care among low-income breast cancer survivors? Med Care. 2013 Jun;51(6):494502. doi: 10.1097/MLR.0b013e31828d4d0c. PMID: 23673393. Participants 2039. Wiener L, Oppenheim D, Breyer J, et al. A worldview of the professional experiences and training needs of pediatric psycho‐oncologists. Psycho-Oncology. 2012 Sep 2012 2017-09-25;21(9):944-53. doi: http://dx.doi.org/10.1002/pon.3064. PMID: 1122599777; 2012-24083-005. Duplicate 2035. White A, Pollack LA, Smith JL, et al. Racial and ethnic differences in health status and health behavior among breast cancer survivors--Behavioral Risk Factor Surveillance System, 2009. J Cancer Surviv. 2013 Mar;7(1):93-103. doi: 10.1007/s11764-012-0248-4. PMID: 23212604. Participants 2040. Wiener L, Pao M. Comprehensive and family-centered psychosocial care in pediatric oncology: Integration of clinical practice and research. 2nd ed. ed: WileyBlackwell; 2012. Study design 2041. Wikman A, Hovén E, Cernvall M, et al. Parents of children diagnosed with cancer: work situation and sick leave, a fiveyear post end-of-treatment or a child's death follow-up study. Acta Oncol. 2016 SepOct;55(9-10):1152-7. doi: 10.3109/0284186x.2016.1167956. PMID: 27159219. Outcome 2036. White PH. Access to health care: health insurance considerations for young adults with special health care needs/disabilities. Pediatrics. 2002 Dec;110(6 Pt 2):1328-35. PMID: 12456953. Participants B-184 2042. Wikman A, Mattsson E, von Essen L, et al. Prevalence and predictors of symptoms of anxiety and depression, and comorbid symptoms of distress in parents of childhood cancer survivors and bereaved parents five years after end of treatment or a child's death. Acta Oncol. 2018 Jul;57(7):950-7. doi: 10.1080/0284186x.2018.1445286. PMID: 29498559. Participants 2048. Willard VW, Tillery R, Gordon ML, et al. Profiles of Perceived Social Functioning in Adolescent and Young Adult Survivors of Childhood Cancer. Psychooncology. 2020 May 17. doi: 10.1002/pon.5417. PMID: 32419288. Outcome 2049. Williams A. Establishing a Support Group to Address Psychosocial Needs of Young Women with Gynecologic Cancers...10th Annual Navigation & Survivorship Conference, November 6-10, 2019, Nashville, TN. Journal of Oncology Navigation & Survivorship. 2019;10(11):469-. PMID: 139253116. Language: English. Entry Date: 20191105. Revision Date: 20191105. Publication Type: Article. Participants 2043. Wilford J, Buchbinder D, Fortier MA, et al. "She Was a Little Social Butterfly": A Qualitative Analysis of Parent Perception of Social Functioning in Adolescent and Young Adult Brain Tumor Survivors. J Pediatr Oncol Nurs. 2017 Jul/Aug;34(4):239-49. doi: 10.1177/1043454216688660. PMID: 28615001. Outcome 2044. Wilkins KL, Woodgate RL. Taking care of second cancer risk. Cancer Nurs. 2012 Jan-Feb;35(1):55-62. doi: 10.1097/NCC.0b013e3182164951. PMID: 21558847. Outcome 2050. Wilson E. Social work, cancer survivorship and liminality: meeting the needs of young women diagnosed with early stage breast cancer. Journal of Social Work Practice. 2020;34(1):95-111. doi: 10.1080/02650533.2019.1604497. PMID: 141207482. Language: English. Entry Date: 20200118. Revision Date: 20200123. Publication Type: Article. Participants 2045. Willard VW, Conklin HM, Huang L, et al. Concordance of parent-, teacher- and self-report ratings on the Conners 3 in adolescent survivors of cancer. Psychol Assess. 2016 Sep;28(9):1110-8. doi: 10.1037/pas0000265. PMID: 27537005. Outcome 2051. Wilson JZ, Marin D, Maxwell K, et al. Association of Posttraumatic Growth and Illness-Related Burden With Psychosocial Factors of Patient, Family, and Provider in Pediatric Cancer Survivors. J Trauma Stress. 2016 Oct;29(5):448-56. doi: 10.1002/jts.22123. PMID: 27580167. Outcome 2046. Willard VW, Hostetter SA, Hutchinson KC, et al. Benefit Finding in Maternal Caregivers of Pediatric Cancer Survivors: A Mixed Methods Approach. J Pediatr Oncol Nurs. 2016 Sep;33(5):353-60. doi: 10.1177/1043454215620119. PMID: 26811326. Outcome 2052. 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Key Informant interviews for Guiding Question 1: What are the disparities in survivorship care for pediatric cancer survivors? Question What Types of Disparities Impact Survivorship Care for Pediatric Survivors? Preliminary Feedback (included as prompt on slide) 1. 2. 3. 4. 5. 6. 7. What Disparities Do You Think Are Most Significant in Impacting Pediatric Cancer Survivorship Care? 1. Access to care (including recommended prevention, surveillance, and treatment), subspecialty providers, rehabilitation services 2. Transitions in care, including changes in insurance, primary care providers (PCP), and other health care teams that may disproportionately impact vulnerable, low SES, racial/ethnic minority groups Socioeconomic status (SES) Employment Insurance: under/uninsured, type of insurance, inconsistency/transitions in insurance Access to care, rehabilitation services, green space for physical activity/health food options Caregiver, family, and community dynamics Relationship to the health system, including providers Transitions in care from pediatric to adult settings C-1 Which Domains of Disparities Should Be Distinguished? 1. Medical 2. SES 3. Cultural KI Feedback All of these issues are intertwined and dramatically impact survivors; parent insurance lapses at age 26 and visits/scans could get postponed and can be very expensive if paid out of pocket; mental health issues and social isolation are big problems, life may never go back to “normal” and it never does. --Even when barriers are reduced (e.g., free care, room & board, transportation), there are still other issues that can prevent survivorship care (e.g., other children to care for, job requirements); this becomes even more complicated as they transition to adult care, there is much less outreach to help them get care; we need a better understanding of what is going on in their personal lives that prevent care. We are successful in keeping kids insured. However, community-based public health insurance (state-based), can be lacking in support. St. Jude may foster co-dependency, because their experience at St. Jude cannot be replicated easily in other places/communities. --We need a better understanding of the different aspects of low SES, it is not just education and income – there are other issues to consider such as paid time off/sick leave; health literacy, health finance, and insurance literacy. --Health-related social needs/determinants (e.g., food insecurity, housing). --Geography, which relates to SES and insurance barriers. --Expertise more in disparities in upfront treatment/therapy; enormous dearth of data in survivors in children; more disadvantaged or vulnerable populations never actually become survivors, so overall goals need to also look at upstream barriers to cancer treatment. Very large dearth of data in regard to survivorship care disparities in each of the domains: certainly, are CCS publications – health related QOL by race/ethnicity; thinking of insurance, underinsurance, and loss of insurance; SES is particularly important, very few data on SES and disparities in pediatric survivorship care. In pediatric oncology, we have failed to include family reported measures at baseline– don’t have access to SES of family at diagnosis to be able to track outcomes. SES data that are available are cross-sectional at time of CCSS cohort enrollment C-2 Knowledge of providers (or home community); access and coverage in the health care plan; feel that pediatric guidelines are lacking data and dissemination for what is available; opportunities to partner w/ NCCN/ASCO may be helpful --Mentioned the COG guidelines but acknowledged that end-users do not necessarily have high utilization; however, evidence supporting the beneficial impact of screening is limited. --We need to reach/educate adult primary care providers; but has had challenges dissemination/publishing in adult/primary care journals. --Sometimes the patient has to work on “bridging the gap” with their PCPs. --SES is likely to be one of the more important exposures driving disparities in survivorship care – research is sorely needed SES (by multiple measures) is a main driver of these access disparities How SES interfaces with access to care – think of this at the patient/family level– are they available and understandable by the family– language/literacy; risk/benefit analyses to get to these appointments/access care with all the resources needed to get to an appointment (childcare, time off work, food insecurity, etc.) Age related barriers (parent bringing a 5-year-old, versus 20-year-old) Regional availability: Are they even there? Does insurance cover it? No further discussion. Question What Types of Disparities Impact Survivorship Care for Pediatric Survivors? What Disparities Do You Think Are Most Significant in Impacting Pediatric Cancer Survivorship Care? Which Domains of Disparities Should Be Distinguished? and not necessarily at time of diagnosis, which would be important to know. There is data on number of subspecialty providers based on distance and correlated to adherence to survivorship guidelines. Not robust data on caregiver, family and community dynamics; transitions, large drop off cliff when get to adult providers, lots of data out there. --Health care system; pediatric cancer survivors have had majority of care in academic medical centers (AMC), and very little (versus young/older adults) in community setting/private practice. Thus, the system itself is an ameliorating factor. Place of initial treatment makes a difference because survivorship care is more likely at major centers. Place of treatment is a source of disparity. Where do they get survivorship care? Do the pediatric providers do this? What happens as the survivor ages (is adulthood at 18 or 21)? Where do they go for care at older ages? Issues related to access to care across the cancer care continuum matters (e.g., insurance). SES challenges in the family also matter (can the family prioritize survivorship care?), employment status, insurance coverage, etc. Table C2. Key Informant interviews for Guiding Question 2: What are the barriers to survivorship care for pediatric cancer survivors who experience disparities? Question What Are the Most Influential Barriers to Pediatric Cancer Survivorship Care? How Do Those Barriers Change as CCS Transition From Pediatric to Adult Survivorship Care? Survey Monkey feedback (included as prompt on slide) 1. 2. 3. 4. Lack of awareness of community providers and survivors. Lack of reimbursement for survivorship care, particularly care that addresses psychosocial needs. Loss of psychosocial support more routinely provided in pediatric centers, particularly with care coordination of medically complex patients. Access to care (insurance, geographic, employment-based insurance) changes during this transition, responsibility shifts from parent/family to self, shifts in care teams from pediatric to adult medicine providers. C-3 How Do Barriers to Survivorship Care Vary by Subgroups of Pediatric Cancer Survivors? How Do Barriers Affecting Specific Subgroups Change Over Time, Specifically as They Transition From Pediatric to Adult Care? 1. Particularly vulnerable subgroups include those with (or at high risk for) for multimorbidity; may have more difficulty replicating quality of comprehensive multidisciplinary care provided at a pediatric center. 2. Relationship/familiarity and trust with pediatric providers may not exist with adult providers. 3. Access to adult medicine providers may shift due to employment and SES status of the individual. Question What Are the Most Influential Barriers to Pediatric Cancer Survivorship Care? How Do Those Barriers Change as CCS Transition From Pediatric to Adult Survivorship Care? KI Feedback Low prevalence in the general population. One experience with 1 patient, will not inform the clinician about the next cancer survivor. Another complicating issue is the age range of the survivor. As a young adult, it is difficult to selfadvocate in a complicated system, with intermittent care. Some young adults don’t care or prioritize this. --In pediatric settings, there are usually easier access to specialists and integrative care is easier. Otherwise, PCPs have to negotiate access. Care for medical conditions is easier than care for mental health issues. --Most influential barriers – complex and multifactorial – reimbursement and vulnerable patients (less likely to adhere to care/guidelines) – if no reimbursement and a provider is pressed for time- could drive disparities. --Health system itself probably the biggest barrier; during treatment, pediatric patients are well-taken care of and “overprotected” by our system and this goes away when therapy is completed. Transition to adulthood with PC where they can be followed long term is key; PCPs need to be on the forefront of this, but they face huge challenges (e.g., system-limiting factors and resources). Anything beyond surveillance is difficult, especially for more complex cases – the system may limit where these patients are seen for follow-up care; but, is this what is best for the patient? This care may be highly fragmented. Vulnerable groups in 2 buckets – 1) those that have barriers from SES or educational level (biggest barrier are SES related) and 2) patients really complex needs and need multidisciplinary care (biggest barrier is our health care system). C-4 How Do Barriers to Survivorship Care Vary by Subgroups of Pediatric Cancer Survivors? How Do Barriers Affecting Specific Subgroups Change Over Time, Specifically as They Transition From Pediatric to Adult Care? Those in rural areas. It is a big deal for them to enter a city. Insurance may not matter as much because a provider may not be in their area. --Broader issue than access to adult medicine providers that could shift due to employment and SES – subgroups w/ certain types of jobs that don’t offer insurance or paid sick leave may be particularly disadvantaged; health insurance coverage and sick leave through an employer will make a difference. --People with neurocognitive issues. Those with significant disability may have more support than those with “mild” disabilities (who are more “on their own”) --Underlying, these vulnerable populations could already have disadvantages- these are magnified when the transition happens. Lower SES population (more likely to be racial/ethnic minorities), underemployed, underinsured, lack of resources, cost shifting from day to day fires (food, electricity, etc.). Survivors will age out of public insurance programs. Trust – different depending on the setting – new cancer versus surveillance later. Language – if family is not English speaking or uncomfortable health literacy, then can be an enormous barrier – you may not understand the guidelines. Things that may enhance survivorship care – not familiar with data, but anecdotally – family or patient resilience – warrants examination. Table C3. Key Informant interview for Guiding Question 3: What are proposed strategies for addressing those barriers? Question What Strategies To Address Barriers to Survivorship Care That Lead to Disparities Are Most Promising? Preliminary Feedback (included as prompt on slide) 1. 2. 3. 4. Development and dissemination of health surveillance recommendations have helped link survivors to resources and address unmet needs Policy changes aimed at reducing barriers to accessing preventive services and eliminating pre-existing clauses to care has been important Policy changes are also needed to properly reimburse clinicians for comprehensive care coordination For cancer survivorship care in general, incorporating primary care and multidisciplinary care teams will be important moving forward Do Those Strategies Need To Be Implemented Using Different Approaches for Subgroups of Survivors? 1. More medically or psychosocially complex survivors benefit the most from care coordination by dedicated staff. A. Risk-stratification of care is essential; depending on cancer type, age at diagnosis, etc. C-5 Which Professional Bodies Have Proposed Strategies? 1. 2. Children’s Oncology Group American Society of Clinical Oncology KI Feedback Eliminating preexisting conditions clauses helped reduced barriers, yes, but there are many others – in states that did not expand Medicaid, challenges are likely significant – would suggest expanding --Think about what CCS have in common with other children w/ illnesses to leverage broader platform; if there are issues that are common among other groups, if you could expand the base, could raise the prominence of the issue --Policy level - Under or un-insurance Policies that have improved insurance at at-risk populations (for example, the Patient Protection and Afforable Care Act) – potentially have an impact to access the care recommended Not familiar with policy changes around reimbursement Having a comprehensive document that summarizes their cancer care and recommended guidelines, can increase adherence among PCPs These are available, but rarely ever studied It is expensive to take care of late effects – can be many years/decades – an intervention that helps insurance companies see that it is cost effective and provide the guidelines for insurance companies to follow --It has to go past what you have in “A”. It is important to have follow-up guidelines for providers. It is easy to follow guidelines at major health centers. However, the majority of survivors will not be seen at specialty centers. PCPs will not easily use these guidelines (e.g., does the PCP have the resources to carry them out? If they discover an issue, does the PCP and/or patient have the resources to follow through?). A risk-adapted follow-up plan can be undermined by the system (e.g., care is essential, but resources/reimbursement are inadequate; capitated payment for PC is a disincentive for adequate/expensive survivorship care). Without the following policy changes, there won’t be enough resources: 1. Insurance coverage of survivorship care Maybe “strategies to address barriers” for children w/ chronic conditions could help raise prominence for pediatric providers --Not robust data on what disparities exist to begin with – hard to talk about implementing strategies There needs to be more robust examination of disparities and at a certain time continuum – this needs to be defined first Comprehensive survivorship care – survivorship clinic versus adhering to survivorship guidelines and how that changes over time and how it varies over age group (child versus young adult) For example, you demonstrate that CCS from low income homes or material hardship are less likely to adhere – the reason why – (time off work versus childcare) – then that could be tackled. --Risk-stratification is essential; guidelines are written by exposure, disease site, and age; but, how do you take this information and best use/implement this in a health system? We need to create risk buckets (e.g., low, intermediate, high), and then develop models of care based on those buckets. To treat all survivors as one is not realistic. Consider adding access to care, comorbidities, SES, social determinants of health, etc. to the risk stratification criteria using technology; potentially in existing cohorts (there was a recent NCI supplement focused on this). The CCSS is a limited cohort for this type of work, because other institutions do not have the same resources. Once developed, this algorithm can provide a better risk assessment that can facilitate the creation of more accurate C-6 COG – has made a significant effort to make sure each CCS has a treatment summary and guidelines for surveillance/management. Regarding strategies for more nuanced barriers (language, income, insurance) – not familiar with that from COG or ASCO. Question What Strategies To Address Barriers to Survivorship Care That Lead to Disparities Are Most Promising? 2. Reimbursement for risk-stratified survivorship care 3. Provide opportunities for the uninsured/underinsured via surveillance (e.g., adequate reimbursement and resources at safety net clinics). The answer cannot be survivorship clinics at all pediatric hospitals. At AMCs, oncologists can see adult survivors of pediatric cancers, but most institutions do not have the funds to do this. Even in the best of circumstances, the survivor needs to still walk in the door, and have insurance that covers their survivorship care. Do Those Strategies Need To Be Implemented Using Different Approaches for Subgroups of Survivors? guidelines which can then reduce disparities between survivors. We should do a better job of measuring financial toxicity; if done more systematically, the algorithm may do a better job of identifying risk. We can’t define a perfect system that is not attainable. Which Professional Bodies Have Proposed Strategies? Table C4. Key Informant interviews for Guiding Question 4: What published and unpublished studies have assessed these strategies? Question How Effective Are Strategies That You Are Familiar With? Survey Monkey feedback (included as prompt on slide) 1. KI Feedback There has been a lot of research, but not as much on current/conventional risk factors (racial/ethnic minorities, low SES); our US (and cancer) population is more heterogeneous now than US (and cancer) population 20-30 years ago. --We suffer from an absence of detailed information; prospective data is rare; CCS treated outside of large pediatric centers is unknown, we know much less about those who are not enrolled in survivorship cohorts (or not in care), particularly rural survivors; this is exacerbated by the relative rarity of the disease. --Some in the adult oncology literature that has talked about risk stratification, but not been in practice; UK guidelines are the furthest along (then Australia); but no systematic reviews on whether risk stratification works or doesn’t work, but there is evidence that adherence facilitates early detection. Limited, high-level evidence of effectiveness of the strategies used by COG (e.g., does adherence to guideline recommended health surveillance reduce mortality/improve quality of life; most definitely, there is evidence that adherence facilitates early detection) C-7 What Confounding Factors Pose a Challenge to Interpreting Research and Evaluation Studies? 1. Relative rarity of pediatric cancer 2. Heterogeneous cancer subtypes and treatment (that keeps evolving) 3. Very delayed onset of health events in relation to treatment 4. Need for collaboration to have meaningful numbers in cohorts to address confounders of outcomes These 4 are the 4 biggest. One of the greatest challenges. Almost impossible to comprehensively study this. --Additional issue – simply lack data (or lack of access to this data) to appropriately do these analyses. We don’t have data on SES/health literacy/culture/financial literacy/language at time of treatment. --Who is going to fund a study that will look these issues? (due to low power, and length of time needed). Anything outside of the CCSS is commonly deemed as redundant, but other cohorts (looking at different issues) should be funded. This would be expensive, but there may be benefits if the different cohorts have some overlap. Table C5. Key Informant interviews for Guiding Question 5: What are future directions for research in addressing barriers to survivorship care for pediatric cancer survivors? Question Preliminary Feedback (included as prompt on slide) What Are the Most Important Gaps in Our Current Knowledge of Disparities and Barriers to Survivorship Care, and How Would You Recommend Filling Those? 1. How to address information needs of community clinicians (at point of care) to expedite quality survivorship care 2. How to educate/empower survivors to self-advocate for care 3. How to address the need for development of easily accessible resources (app or in EMR) How Can Future Research Be Designed To Minimize the Confounding Factors Influencing Barriers, and Ultimately, Disparities? Are You Aware of Any Important Ongoing Studies Addressing Disparities or Barriers in Pediatric Survivorship Care? 1. 1. 2. 3. Data sharing and collaboration across institutions and nations is important to assure diversity of population and characterize needs of clinically heterogeneous survivors C-8 Medical SES Cultural KI Feedback Some CCS don’t even realize that you can apply for disability; connecting people to resources to help survivors advocate for their care/other needs is important. --Identifying the “healthcare neighborhood” will be important for survivors and what are the POC-related to those neighborhoods; are there teams in these neighborhoods; need to understand who is involved in transitions in care. --How to define SES – we don’t know what the right social determinants are. Kira’s bias is to utilize measurements that are amenable to INTERVENTION. So, we can take the next step. For example, use zip code to link to poverty level – not a highly impactful measure because can’t change. However, primary language would be a possible one – providing materials/education in a patient’s primary language. Another is Health literacy – providing materials in a way patients and families can understand. Income perspective – parent reported income is important – because state and federal programs may be available Concrete materials screen – food insecurity measuring (2-point question screener) Having a 1-page social determinants of health screener – available and validated in adults, could be utilized for pediatric patients – could be a starting point. --Answer has to be in technology. We have to focus on technological answers that can facilitate the survivor, oncologist and PCP. Community clinicians are extremely busy and don’t have the ability to do the survivorship care plan. Educating and empowering survivors is great, but if there isn’t someone on the provider end with Setting is important and variable; some orgs, like St. Jude, is integrative whereas other are more treatment focused and less dedicated to survivorship; one size does not fit all settings – those with limited treatments, have limited risks (brain survivors have higher needs and related services); our healthcare systems need to be flexible to the variable needs of CCS. --Lack of a data commons that we can all submit to – this is a big barrier to advancing the science. Getting access to data is a year-long process – can delay moving care delivery forward. Less access to robust research or consortiums among providers that are at smaller/less-connected centers Not aware of multi center interventions Studies are single institution. C-9 Most studies are just describing the disparities, not addressing them. --US healthcare is different, but how do survivorship outcomes differ with other countries. --UK has established levels of care that determine the provider type survivor will see; other groups are increasingly using riskstratification for care, but most have access to PSP; Study looking at Passport through Pancare (giving survivorship care plan). Most other countries are struggling with transitioning from oncology to primary/community care, similar to the US; but access to care is more difficult in the US. --Perhaps telehealth can provide better care, utilizing experts remotely, possibly using pandemic to help push this forward? --Provider survey on pandemic services is being implemented. Could there be Centers of Excellence that provide services to anyone remotely? This can improve care more broadly that can be universally disseminated. --Agree that this is a great idea, especially to help w/ barriers related to transportation for those living in a rural area; thinking about how we can take advantage of some of the positive outcomes of the pandemic --Many of the telehealth rules are still evolving, know that there is a desire to maintain telehealth especially for those w/ chronic conditions to maintain access, but there’s also awareness that these types of visits could be abused or fraudulent; questions about reimbursement for telehealth (figuring out whether these visits really are commensurate is needed); this wide-spread adoption has been great, but need to figure out the best practices and incentives for telehealth use; Center of Question What Are the Most Important Gaps in Our Current Knowledge of Disparities and Barriers to Survivorship Care, and How Would You Recommend Filling Those? adequate resources, then it can be incredibly frustrating. App or EMR – can this help and provide a solution; technology, using risk stratification to create an automated survivorship care plan using low, intermediate, and high-risk buckets and recommending and facilitating the appropriate model of care is best; this could all be followed using apps and dashboards. For example, low risk patients may be seen using telehealth (direct to patient to remove barriers to care); high risk seen by specialist + PCP; COVID is increasing telehealth direct to patient and this can be an essential strategy going forward. How Can Future Research Be Designed To Minimize the Confounding Factors Influencing Barriers, and Ultimately, Disparities? Are You Aware of Any Important Ongoing Studies Addressing Disparities or Barriers in Pediatric Survivorship Care? Excellence (COE) type model can provide access to the needed expertise but issue of referral to that program is a problem, from the health plan side, COEs are used to only allow care at one of these types of centers, which could create a barrier – it’s a balance of suggesting the use of COE but using when necessary – need clear guidelines of when survivorship care should only be done at COE --Grant recently proposed was not funded; reviewers thought it was not a problem. We do have a pilot with rural providers for survivorship care using telehealth; this is an IMPORTANT area and an RFA on this would be ideal. Some RFAs exclude pediatric survivors. The CCSS is amazing, but there is too much emphasis on this resource (versus other work focused on disparities/barriers). We do have barriers/disparities that funders/reviewers do not appreciate. Survivorship is NOT the same as pediatric cancer treatment. C-10 Appendix D. Evidence Tables Table D1. Guiding Question 1: Disparities in care Author, Year Country Related Publications Proportion of CCS Disparities Analyzed Cancer Origin Study Name/Trial ID Barakat, 201218 USA Racial/ethnic minorities, Underserved or rural populations, Sex (biological), Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage) Sex (biological), Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage) Proportion of CCS: 100% Multiple cancer origin N/A Berg, 201620 USA N/A Proportion of CCS: 100% Multiple cancer origin Berkman, 201921 USA Proportion of CCS: 100% N/A Casillas, 201132 USA Brain/CNS Proportion of CCS: 50% or more LIVESTRONG Survivorship Center of Excellence Network Crom, 200747 N/A de Fine Licht, 201750 Adult Life after Childhood Cancer in Scandinavia (ALiCCS) Gardner, 201468 USA Holmes, USA Multiple countries USA Racial/ethnic minorities, Underserved or rural populations,Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage) Proportion of CCS: 100% Multiple cancer origin Proportion of CCS: 100% Sex (biological), Other: age at hospitalization, age at cancer diagnosis, type of cancer diagnosis, country (Denmark, Finland, Iceland, or Sweden) Multiple cancer origin USA Proportion of CCS: 100% Racial/ethnic minorities, Sex (biological), Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage), Other: Age at diagnosis, age at study, time since treatment completion Sex (biological) UK Multiple cancer origin Proportion of CCS: 100% Income, Education Proportion of CCS: 100% Multiple cancer origin N/A Johnson, 200485 N/A Racial/ethnic minorities, Income, Underserved or rural populations, Sex (biological), Employment, Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage), Other: Age, marital status Proportion of CCS: 100% Multiple cancer origin N/A 198676 Racial/ethnic minorities Multiple cancer origin Klosky, 200896; Hudson, 200279 After Completion of Therapy (ACT) Clinic Daly, 201948 Racial/ethnic minorities, Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage) Multiple cancer origin D-1 Author, Year Country Related Publications Proportion of CCS Disparities Analyzed Cancer Origin Study Name/Trial ID Kazak, 199991 USA Alderfer, 200913; Kazak, 200490 Multiple cancer origin Surviving Cancer Competently Intervention Program (SCCIP) May, 2017110 USA Proportion of CCS: 100% N/A McBride, 2011111 Canada Multiple cancer origin Proportion of CCS: 100% USA Proportion of CCS: 100% N/A Michel, 2011116 Switzerland Multiple cancer origin Proportion of CCS: 100% Michel, 2016114; Lupatsch, 2016105; Gianinazzi, 201470; University of Bern, 200722; Vetsch, 2016166; Michel, 2017115 2018118; Miller, Miller, 2017119; Cousineau, 201946; Slaughter, 2020153; Tobin, 2020161; Sleight, 2019155; Slaughter, 2020154 Racial/ethnic minorities, Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage) Income, Underserved or rural populations, Sex (biological) Multiple cancer origin Childhood, Adolescent, and Young Adult Cancer Survivors (CAYACS) Research Program Mendoza, 2018113 Swiss Childhood Cancer Survivor Study Milam, 2015117 Other: Poor family functioning as measured by Family Assessment Device scale Proportion of CCS: 100% Income Underserved or rural populations, Sex (biological), Education, Employment, Other: Treatment reported late effects, age at study, parental education; cultural background (migration background and language region), diagnosis, treatment, type of treating hospital, relapse, parent-reported late effects, parent's age at study, child's age at study, time since diagnosis Multiple cancer origin USA Racial/ethnic minorities, Income, Underserved or rural populations, Sex (biological), Education, Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage), Other: Prior survivorship care, higher treatment intensity, younger age at survey; parents' age, cancer treatment hospital site, treatment intensity; receipt of survivorship care in prior two years, treatment intensity, current age; Mobility Proportion of CCS: 100% Multiple cancer origin Project Forward 1 D-2 Author, Year Country Related Publications Proportion of CCS Disparities Analyzed Cancer Origin Study Name/Trial ID Nathan, 2016123 Canada Marr, 2017108 Pediatric Oncology Group of Ontario Networked Information System Oeffinger, 2004127 Kirchhoff, 201393; Casillas, 201533; Nathan, 2008122; Caplin, 201728; Casillas, 201129; Castellino, 200536; Geller, 201969; Kaste, 200989; Kirchhoff, 201895; Nipp, 2017125; Recklitis, 2010135; Yeazel, 2004171; Ford, 202065; Park, 2017131; Smith, 2010156; Park, 2012132; Krull, 201198; Nathan, 2010124; Kadan-Lottick, 200287; Kurt, 2012101 Childhood Cancer Survivor Study Ojha, 2014130 Behavioral Risk Factor Surveillance System Reppucci, 2017136 SuRFF Program at the Cohen Children’s Medical Center of New York Streefkerk, 2019157 DCOG-LATER Income, Underserved or rural populations, Sex (biological), Other: Age at diagnosis, year of diagnosis, treatment intensity, radiation, prior recurrence Proportion of CCS: 100% Multiple cancer origin Multiple countries Proportion of CCS: 100% USA Proportion of CCS: 100% Racial/ethnic minorities, Income, Underserved or rural populations, Sex (biological), Education, Employment, Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage), Other: Current age; severe, disabling, or life-threatening chronic condition; presence of neurocognitive problems and antidepressant use; cancer diagnosis; marital status, receipt of a survivorship care plan, survivorship care in prior two years, written treatment summary, and those in chronic pain Multiple cancer origin Racial/ethnic minorities, Sex (biological), Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage) Multiple cancer origin USA Other: Current age Proportion of CCS: 100% Multiple cancer origin Netherlands Sex (biological), Other: Age at diagnosis, decade of diagnosis, diagnosis, treatment modality, stem cell transplant, comorbid conditions Proportion of CCS: 100% Multiple cancer origin D-3 Author, Year Country Related Publications Proportion of CCS Disparities Analyzed Cancer Origin Study Name/Trial ID Sutradhar, 2015158 Pediatric Oncology Group of Ontario Networked Information System (POGONIS) Szalda, 2016160 Szalda, Canada Multiple cancer origin USA 2017159 Multiple cancer origin UK Proportion of CCS: 100% N/A Welch, 2017169 USA Multiple cancer origin Proportion of CCS: 100% N/A Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage) Proportion of CCS: 100% Cancer Survivorship Program at Children’s Hospital of Philadelphia van Laar, 2013164 Consortium for New England Childhood Cancer Survivors Zheng, 2016172 Underserved or rural populations, Other: Diagnosis, age at diagnosis, treatment with radiation, treatment intensity (ITR, Cyclophosphamideequivalent dose, Doxorubicin-equivalent dose), continuity of care, annual physical examination Proportion of CCS: 100% Sex (biological), Other: Age Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage),Other: Age (adult at follow-up); enrolled on a clinical trial; type of leukemia Leukemia USA Racial/ethnic minorities, Income, Sex (biological), Insurance (under/uninsured, type of insurance coverage, churns/transitions in coverage), Other: Diagnosis, treatment, enrolled on a clinical trial, relapsed disease, travel time to hospital Proportion of CCS: 100% Multiple cancer origin D-4 Table D2. Guiding Question 2: Barriers to care Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Ahn, 201712 Korean Childhood Cancer Survivors Korea Survey Proportion of CCS: 100% Multiple cancer origin Level: Caregiver/family/local environment, Patient Category: Patient/Provider knowledge, Health literacy, Other: Age Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Cultural, language, and literacy factors Aziz, 200617 N/A USA Survey Proportion of CCS: NR Multiple cancer origin Level: Patient, Provider, Health system Category: Access to care, Patient/Provider knowledge, Insurance coverage Patient or caregiver/family/community barrier type: Prioritization of survivorship care Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist); Geographic or transportation factors, local availability of services; Insurance coverage/reimbursement; Other: Lack of institutional value, capacity for care, difficulty in communication with community physicians, and survivor-driven barriers Berg, 201620 N/A USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care, Insurance coverage, Health literacy Patient or caregiver/family/community barrier type: Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Patient autonomy; Trust in providers/medical community Berkman, 201921 N/A USA Analytic study Proportion of CCS: 100% Brain/CNS Level: Patient Category: Access to care, Insurance coverage Patient or caregiver/family/community barrier type: Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare) Casillas, 201031 N/A USA Interview Proportion of CCS: 100% Multiple cancer origin Level: Caregiver/family/local environment, Patient Category: Patient/Provider knowledge, Cultural, Health literacy, Other: cancer experience as traumatic for family, don't want to think about late effects, stigma of cancer Patient or caregiver/family/community barrier type: Cultural, language, and literacy factors Related Publications Study Name/Trial ID D-5 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Casillas, 201132 LIVESTRONG Survivorship Center of Excellence Network USA Survey Proportion of CCS: 50% or more Multiple cancer origin Level: Patient, Provider Category: Access to care, Patient/Provider knowledge Patient or caregiver/family/community barrier type: Prioritization of survivorship care; Knowledge of need for life-long survivorship care; Trust in providers/medical community; Other: health care self-efficacy Provider, health system, or payer barrier type: Geographic or transportation factors, local availability of services Cherven, 201438 N/A USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Caregiver/family/local environment, Patient Category: Patient/Provider knowledge, Health literacy, Other: Parents' education level Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care Crom, 200747 Klosky, 200896; Hudson, 200279 After Completion of Therapy (ACT) Clinic USA Analytic study Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care, Patient/Provider knowledge, Insurance coverage, Other: Employment Status Patient or caregiver/family/community barrier type: Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Other: Acuity of survivorship visit; social work consult also scheduled de Moor, 200751 N/A USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Provider, Health system Category: Access to care, Other: Health system characteristics Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist); Geographic or transportation factors, local availability of services; Other: Staffing and time constraints to offer smoking cessation services Related Publications Study Name/Trial ID D-6 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type DiNofia, 201757 N/A USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Caregiver/family/local environment Category: Cultural, Other: parent perspective Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Patient autonomy; Trust in providers/medical community; Other: flexible scheduling, include parents, availability and access to a variety of providers (e.g., mental health), access to primary care physician, access to vocational training, survivor feeling ready to transition, parent feeling ready to transition, gradual introduction of transition Eshelman-Kent, 201163 N/A USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Patient, Provider, Health system Category: Access to care, Patient/Provider knowledge Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Trust in providers/medical community Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist); Geographic or transportation factors, local availability of services; Insurance coverage/reimbursement; Knowledge or comfort in ability to provide survivorship care; Other: Conflict between COG recommendations for risk-based care and adult provider recommendations; perceived lack of interest in caring for survivors from adult health care providers Frederick, 201766 N/A USA Interview Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care, Patient/Provider knowledge Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Patient autonomy; Trust in providers/medical community; Other: Education preferences, family role in transition, survivor expectation of providers, and knowledge deficits Related Publications Study Name/Trial ID D-7 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Frobisher, 200867 British Childhood Cancer Survivorship Study UK Survey Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care, Other: Employment, Patient or caregiver/family/community barrier type: Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare) Gardner, 201468 N/A USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care, Patient/Provider knowledge, Insurance coverage Patient or caregiver/family/community barrier type: Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Other: Use of prescription medication, have a primary care provider, see primary care provider less than once per year, count of the number of barriers to psychosocial support services, personal preference of provider type and social norm (mental health professional, pastor, support group) Granek, 201272 N/A Canada Interview Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care Patient or caregiver/family/community barrier type: Other: Identification with being a cancer survivor (cancer identity, cancer a thing of the past); emotional components (fear and anxiety, gratitude/having perspective) Hays, 199273 N/A USA Survey, Analytic study Proportion of CCS: 100% Multiple cancer origin Level: Payer Category: Insurance coverage Provider, health system, or payer barrier type: Insurance coverage/reimbursement Related Publications Study Name/Trial ID D-8 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Henderson, 201074 N/A USA Survey Proportion of CCS: NR Multiple cancer origin Level: Provider Category: Patient/Provider knowledge Provider, health system, or payer barrier type: Geographic or transportation factors, local availability of services; Knowledge or comfort in ability to provide survivorship care; Other: Familiarity with available guidelines, years of practice, number of patients seen per week, prior training in the care of childhood cancer survivors, practice location, available long-term follow-up clinic, routine referral of survivors to other physicians, and indicators of whether they were very comfortable (e.g., Likert score of 5 or higher) with survivors 21 years, older than 21 years but less than 30 years, and 30 years Holmes, 198676 N/A USA Survey, Interview Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Insurance coverage, Other: Life insurance Patient or caregiver/family/community barrier type: Other: Ability to get needed coverage Howard, 201877 N/A Canada Interview Proportion of CCS: 100% Multiple cancer origin Level: Patient, Health system Category: Access to care Patient or caregiver/family/community barrier type: Trust in providers/medical community Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist); Geographic or transportation factors, local availability of services; Transition from pediatric to adult care; Knowledge or comfort in ability to provide survivorship care Iwai, 201782 N/A Japan Survey Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care, Patient/Provider knowledge, Other: Financial concerns, employment issues Patient or caregiver/family/community barrier type: Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Patient autonomy; Cultural, language, and literacy factors; Trust in providers/medical community Related Publications Study Name/Trial ID D-9 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Iyer, 201783 N/A USA Survey, Interview Proportion of CCS: 50% or more Multiple cancer origin Level: Provider Category: Access to care, Patient/Provider knowledge Provider, health system, or payer barrier type: Transition from pediatric to adult care; Knowledge or comfort in ability to provide survivorship care; Other: Unsure of which provider is responsible for which late effects/comorbid conditions Jereb, 200084 N/A Slovenia Survey Proportion of CCS: 100% Multiple cancer origin Level: Caregiver/family/local environment, Patient, Provider Category: Access to care, Patient/Provider knowledge Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist); Other: Reluctance to give up on their patients Keats, 201992 N/A Canada Interview Proportion of CCS: 100% Multiple cancer origin Level: Caregiver/family/local environment, Patient, Provider Category: Access to care, Patient/Provider knowledge Patient or caregiver/family/community barrier type: Patient autonomy; Trust in providers/medical community; Other: Perceived lack of sharing of medical information among providers Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist); Knowledge or comfort in ability to provide survivorship care Kirchhoff, 201494 N/A USA Interview Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care, Patient/Provider knowledge, Insurance coverage, Health literacy Patient or caregiver/family/community barrier type: Prioritization of survivorship care; Knowledge of need for life-long survivorship care; Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Trust in providers/medical community; Other: Current primary health-care experiences (provider recently moved, provider retired/relocated); cancer-related communication with primary care providers (limited to no communication with primary care providers); Knowledge and impressions about survivorship care (care plans need to include longitudinal detailed plans about where to go for specific types of health care needs and where they can go that accepts their insurance and tells them how much the care will cost) Related Publications Study Name/Trial ID D-10 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Knighting, 202097 N/A UK Interview Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Patient autonomy; Cultural, language, and literacy factors; Trust in providers/medical community Kuhlthau, 201699 National Health Interview Survey USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care Patient or caregiver/family/community barrier type: Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Other: Delayed medical care; forgone medical care Li, 1976104 N/A USA Survey, Analytic study Proportion of CCS: 100% Multiple cancer origin Level: Provider Category: Access to care, Insurance coverage Provider, health system, or payer barrier type: Transition from pediatric to adult care, Knowledge or comfort in ability to provide survivorship care Maeda, 2010106 N/A Japan Survey Proportion of CCS: 50% or more Multiple cancer origin Level: Patient Category: Access to care, Patient/Provider knowledge, Health literacy Patient or caregiver/family/community barrier type: Prioritization of survivorship care; Knowledge of need for life-long survivorship care; Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Cultural, language, and literacy factors Mendoza, 2018113 N/A USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Health system Category: Access to care, Insurance coverage Provider, health system, or payer barrier type: Insurance coverage/reimbursement Related Publications Study Name/Trial ID D-11 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Michel, 2011116 Michel, 2016114; Lupatsch, 2016105; Gianinazzi, 201470; University of Bern, 200722; Vetsch, 2016166; Michel, 2017115 Swiss Childhood Cancer Survivor Study Switzerland Survey Proportion of CCS: 100% Multiple cancer origin Level: Caregiver/family/local environment, Patient, Provider Category: Access to care, Patient/Provider knowledge, Cultural, Health literacy Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Other: Distressed versus nondistressed survivors; Illness Perception Questionnaire (IPQ) Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist); Geographic or transportation factors, local availability of services; Transition from pediatric to adult care; Insurance coverage/reimbursement; Knowledge or comfort in ability to provide survivorship care Milam, 2015117 Miller, 2018118; Miller, 2017119; Cousineau, 201946; Slaughter, 2020153; Tobin, 2020161; Sleight, 2019155; Slaughter, 2020154 Project Forward 1 USA Survey, Analytic study Proportion of CCS: 100% Multiple cancer origin Level: Caregiver/family/local environment, Patient Category: Access to care, Patient/Provider knowledge, Cultural, Insurance coverage Patient or caregiver/family/community barrier type: Prioritization of survivorship care; Knowledge of need for life-long survivorship care,Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Patient autonomy; Cultural, language, and literacy factors; Other: Higher health care self-efficacy (being uninsured was financial driver); parents' mental health/psychosocial status Related Publications Study Name/Trial ID D-12 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Mouw, 2017120 N/A USA Interview Proportion of CCS: NR Multiple cancer origin Level: Patient, Provider, Health system, Payer Category: Access to care, Patient/Provider knowledge, Cultural, Insurance coverage, Health literacy Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Patient autonomy; Cultural, language, and literacy factors Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist); Geographic or transportation factors, local availability of services; Transition from pediatric to adult care; Insurance coverage/reimbursement; Knowledge or comfort in ability to provide survivorship care; In-network providers; Other: Providerdriven patient education; adequate funding to support survivorship clinic activities Novakovic, 1997126 N/A USA Survey Proportion of CCS: 50% or more Bone cancer Level: Patient Category: Access to care, Insurance coverage Patient or caregiver/family/community barrier type: Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare) Related Publications Study Name/Trial ID D-13 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Oeffinger, 2004127 Kirchhoff, 201393; Casillas, 201533; Nathan, 2008122; Caplin, 201728; Casillas, 201129; Castellino, 200536; Geller, 201969; Kaste, 200989; Kirchhoff, 201895; Nipp, 2017125; Recklitis, 2010135; Yeazel, 2004171; Ford, 202065; Park, 2017131; Smith, 2010156; Park, 2012132; Krull, 201198; Nathan, 2010124; Kadan-Lottick, 200287; Kurt, 2012101 CCSS Multiple countries Survey, Interview, Analytic study Proportion of CCS: 100% Multiple cancer origin Level: Caregiver/family/local environment, Patient, Provider, Health system, Payer Category: Access to care, Patient/Provider knowledge, Cultural, Insurance coverage, Health literacy, Other: Late effects; financial hardship (medical, psychosocial, and behavioral) Patient or caregiver/family/community barrier type: Prioritization of survivorship care; Knowledge of need for life-long survivorship care; Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Patient autonomy; Cultural, language, and literacy factors; Trust in providers/medical community; Other: Prepared list of concerns for routine care visit, asked about screening during visit, heard about ABCDE rule for melanoma Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist); Geographic or transportation factors, local availability of services; Insurance coverage/reimbursement; In-network providers Quillen, 2017133 N/A USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care, Patient/Provider knowledge Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Trust in providers/medical community Rosenberg-Yunger, 2013139 N/A Canada Interview Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care, Patient/Provider knowledge, Health literacy Patient or caregiver/family/community barrier type: Prioritization of survivorship care; Knowledge of need for life-long survivorship care; Trust in providers/medical community Sadak, 2012140 N/A USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Patient, Payer Category: Access to care, Patient/Provider knowledge, Insurance coverage, Health literacy Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Patient autonomy Provider, health system, or payer barrier type: Transition from pediatric to adult care; Insurance coverage/reimbursement Related Publications Study Name/Trial ID D-14 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Sadak, 2017142 N/A USA Interview Proportion of CCS: 100% Multiple cancer origin, Other: focused on providers not CCS Level: Patient, Provider Category: Patient/Provider knowledge, Insurance coverage Provider, health system, or payer barrier type: Transition from pediatric to adult care Sadak, 2019143 N/A USA Survey Proportion of CCS: Unclear Other: Focused on facilities, not individual CCS Level: Health system Category: Other: Size of the transition program Provider, health system, or payer barrier type: Geographic or transportation factors, local availability of services; Transition from pediatric to adult care Sadak, 2020141 N/A USA Interview Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care Patient or caregiver/family/community barrier type: Prioritization of survivorship care; Knowledge of the need for life-long survivorship care; Financial or employment resources; Patient autonomy; Cultural, language, and literacy factors; Trust in providers/medical community; Other: Transition practices should be flexible and individually tailored (optimal age to transition must be flexible); effective communication is critical to a successful transition; survivors desire continuity during the transition (reliable transfer of medical information to new providers is key, consistent provider(s) during the transition is helpful); comprehensive care means care that also addresses psychosocial wellbeing (educational messages on health insurance are timely and very much needed, support during life transitions is a necessary component of psychosocial support) Sherman, 2004147 N/A USA Survey Proportion of CCS: 100% Multiple cancer origin Level: Health system Category: Access to care Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist) Related Publications Study Name/Trial ID D-15 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Sima, 2014150 N/A USA Survey Proportion of CCS: NR Other: provider-focused Level: Provider Category: Patient/Provider knowledge Provider, health system, or payer barrier type: Resources to deliver needed care or respond to needs (PCP or specialist); Geographic or transportation factors, local availability of services; Transition from pediatric to adult care; Knowledge or comfort in ability to provide survivorship care; Other: Awareness and interest in the medical problems of adult CCS Szalda, 2016160 Szalda, 2017159 Cancer Survivorship Program at CHOP USA Survey, Analytic study Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care, Patient/Provider knowledge, Insurance coverage Patient or caregiver/family/community barrier type: Prioritization of survivorship care; Patient autonomy; Cultural, language, and literacy factors; Trust in providers/medical community Van Laar, 2013164 N/A UK Survey Proportion of CCS: 100% Multiple cancer origin Level: Patient Category: Access to care Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Other: less waiting time Related Publications Study Name/Trial ID D-16 Author, Year Country Methodology Proportion of CCS Cancer Origin Barrier Level Barrier Category Barrier Type Vetsch, 2017165 Signorelli, 2019148; Nandakumar, 2018121; Signorelli, 2017149 ANZCHOG Survivorship Study Australia and New Zealand Survey, Interview Proportion of CCS: 100% Multiple cancer origin Level: Caregiver/family/local environment, Patient, Provider, Health system Category: Access to care, Patient/Provider knowledge, Cultural, Insurance coverage, Health literacy Patient or caregiver/family/community barrier type: Knowledge of need for life-long survivorship care; Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Patient autonomy; Cultural, language, and literacy factors; Trust in providers/medical community; Other: Low confidence in PCPs' ability to deliver survivorship care; age, cognitive difficulties Provider, health system, or payer barrier type: Geographic or transportation factors, local availability of services, Transition from pediatric to adult care; Insurance coverage/reimbursement; Knowledge or comfort in ability to provide survivorship care; Other: Dependence on pediatric providers; inconsistent transition practices, lack of resources for research, multidisciplinary team, location of nearby providers, helpful patient education materials (facilitator) Wadhwa, 2019167 N/A USA Proportion of CCS: 50% or more Survey Other: primary care providers Level: Provider Category: Patient/Provider knowledge Patient or caregiver/family/community barrier type: Knowledge or comfort in ability to provide survivorship care Warner, 2014168 N/A USA Interview Proportion of CCS: 100% Multiple cancer origin Related Publications Study Name/Trial ID D-17 Level: Patient, Provider, Health system Category: Access to care, Patient/Provider knowledge, Insurance coverage, Other: Quality of care Patient or caregiver/family/community barrier type: Prioritization of survivorship care; Financial or employment resources (e.g., money to spend on co-pays or coinsurance, time off work, childcare); Trust in providers/medical community Provider, health system, or payer barrier type: Knowledge or comfort in ability to provide survivorship care Table D3. Guiding Question 4: Evaluated strategies Author, Year Proportion of CCS Strategy and Intervention Approach Assessed Outcome Domain and Measure Related Publications Cancer Origin Description of Survivorship Care Strategy Authors’ Conclusion Bashore, 201619 N/A Pre-Post USA Proportion of CCS: 100% Multiple cancer origin Strategy: Care plan, Model of care Intervention category: Education, Given tools for empowerment Evaluation regarding the usefulness of a workbook to assist survivors to become ready to transition to adult care. Primary target: Patient Blaauwbroek, 200824 N/A CT UK Proportion of CCS: 100% Multiple cancer origin Strategy: Model of care Intervention category: Access to care,Given tools for empowerment Survivor and local primary care provider satisfaction with shared care model: year 1 - all survivors had survivorship care visit with primary care provider at long-term follow-up clinic at start of study; year 2 - follow-up one year later with primary care provider (given survivorship care plan); and year 3 survivors returned to the survivorship clinic and saw a primary care provider, discussed risk-stratified care needs in the future Primary target: Patient, Provider Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: transition in care Authors’ conclusion: The majority of the participants reported the sections of the workbook on their medical history, provider information, and insurance were the most helpful. After completing the workbook intervention, survivors reported higher mean scores on readiness to transition and being ready to make the changes to transition. Outcomes: Health services/Economics: Quality and satisfaction with care Authors’ conclusion: Most survivors and primary care providers were satisfied with this shared-care model; clear advantages of follow-up care given by local family doctors rather than by hospital staff include less patient travel, shorter waiting times, better patient familiarity with surroundings (e.g., the doctor’s practice), and less stigmatization; as survivors age and possibly develop additional chronic illnesses, access to care in the context of total health needs is more useful. Study Name/Trial ID Design Country D-18 Author, Year Proportion of CCS Strategy and Intervention Approach Assessed Outcome Domain and Measure Related Publications Cancer Origin Description of Survivorship Care Strategy Authors’ Conclusion Blaauwbroek, 201223 N/A Analytic study Netherlands Proportion of CCS: 100% Multiple cancer origin Strategy: Care plan Intervention category: Given tools for empowerment Web-based survivorship care plan given to survivors and primary care providers. Primary target: Patient Casillas, 201730 N/A Analytic study USA Proportion of CCS: 100% Multiple cancer origin Strategy: Survivorship care service Intervention category: Education Develop and examine the acceptability, feasibility, and usability of a text messaging system for improving the receipt of survivorship care; text messages delivered programmed reminders to schedule and attend survivorship appointments, tailored suggestions for community resources for cancer survivors, and messages prompting participant feedback regarding appointments and resources. Primary target: Patient Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: survivorship care plan Authors’ conclusion: Most survivors and primary care providers found the survivorship care plan user-friendly (both online and printed versions); most survivors thought their knowledge of late effects had improved and nearly all survivors had become more aware of the benefits of followup. Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Survivorship care Authors’ conclusion: Text messaging system is an acceptable form of communication, the screening reminders and feedback prompts feasible for improving the receipt of survivorship care, and the tailored suggestions for community resources usable for connecting survivors to relevant services; survivors shared that this has the potential to mitigate barriers in coordinating survivorship care, encourage active self-management of survivorship care, and help survivors reach personal survivorship health behavior goals beyond late effect screening. Study Name/Trial ID Design Country D-19 Author, Year Proportion of CCS Strategy and Intervention Approach Assessed Outcome Domain and Measure Related Publications Cancer Origin Description of Survivorship Care Strategy Authors’ Conclusion Casillas, 201934 N/A RCT USA Proportion of CCS: 100% Multiple cancer origin Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Knowledge of survivorship care, survivorship care selfefficacy, attitude towards survivor-focused care Authors’ conclusion: The text-messaging group had increased survivorship care knowledge compared to the control group (current standard-of-care educational materials); the peer navigation group had increased survivorship care self-efficacy compared to the control group. Both intervention groups showed increased attitudes towards seeking survivor-focused care compared to the control group. Casillas, 202035 N/A Pre-Post USA Proportion of CCS: 100% Multiple cancer origin Strategy: Survivorship care service, Care plan, Other: Knowledge of survivorship care, survivorship care self-efficacy, attitude towards survivorfocused care Intervention category: Education, Given tools for empowerment Evaluation of text-messaging and peer navigation interventions were compared to standard-of-care survivorship educational materials to increase survivors' (1) late effects knowledge and (2) knowledge, attitudes, and selfefficacy towards seeking survivorfocused care; no clear provider target because the educational materials provided to patients could be delivered by anyone on the care team Primary target: Patient Strategy: Survivorship care service Intervention category: Education Single-arm pilot study evaluated a novel intervention (a photonovela) on its ability to educate Latino AYA survivors and their family members and engage them in survivorship care; a health advocate led each photonovela intervention session. The patient targets were CCS and their parents Primary target: Patient, Family Study Name/Trial ID Design Country D-20 Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Educate Latino survivors and their family and engage them in survivorship care Authors’ conclusion: The photonovela intervention was effective in improving survivorship care confidence of Latino AYA survivors and their families both at the followup and booster assessments. Additionally, the intervention had small to medium effect on family members on higher mean scores for cancer stigma from baseline to booster assessment, but also improved knowledge for family members from baseline to booster. Author, Year Proportion of CCS Strategy and Intervention Approach Assessed Outcome Domain and Measure Related Publications Cancer Origin Description of Survivorship Care Strategy Authors’ Conclusion Costello, 201745 N/A Analytic study USA Proportion of CCS: 100% Multiple cancer origin Strategy: Survivorship care service, Model of care Intervention category: Access to care Pediatric oncologists and adult primary care providers used telemedicine to help aid childhood cancer survivors with their transition in follow-up care to their primary care provider. Primary target: Patient, Provider Crom, 200747 Klosky, 200896; Hudson, 200279 After Completion of Therapy (ACT) Clinic RCT USA Proportion of CCS: 100% Multiple cancer origin de Moor, 201152 Emmons, 201360 NCT00588107 Analytic study USA Proportion of CCS: NR Multiple cancer origin Strategy: Other: Knowledge of late effects Intervention category: Education Assess the efficacy of an educational intervention targeting survivorship clinic attendees' health knowledge about cancer treatment and risks, health perceptions, and health behavior practice at baseline and follow-up one year later. Primary target: Patient Strategy: Other: Access to survivorship care/primary care providers were included as covariates Intervention category: Education, Psychosocial Website and print materials intervention for smoking cessation for childhood, adolescent, and young adult cancer survivors Primary target: Patient Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: telemedicine of survivorship visit with oncologist and PCP; Health services/Economics: Primary care, specialty care, or other care utilization: telemedicine of survivorship visit with oncologist and PCP Authors’ conclusion: Use of telemedicine technology for transition visit increased knowledge, comfort and abilities, and patient satisfaction in survivorship care. Negative comments from CCS were primarily related to equipment difficulties. Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Attenders versus non-attenders at survivorship visits; Health services/Economics: Primary care, specialty care, or other care utilization: Difficulty obtaining care; Health services/Economics: Financial hardship, costs, and resource utilization; Other: Health knowledge of late effects Authors’ conclusion: Female survivors in the intervention group (standard of care plus the educational intervention) reported higher health knowledge than male survivors at one year follow-up. Study Name/Trial ID Design Country D-21 Outcomes: Biomedical: Late effects and morbidity, Psychosocial: Substance use Authors’ conclusion: Encouragement to quit smoking by one’s regular doctor or oncologist was associated with a making more quit attempts. Author, Year Proportion of CCS Strategy and Intervention Approach Assessed Outcome Domain and Measure Related Publications Cancer Origin Description of Survivorship Care Strategy Authors’ Conclusion Devine, 202055 NCT02699996 CT USA Proportion of CCS: 100% Multiple cancer origin Strategy: Survivorship care service Intervention category: Education, Given tools for empowerment Self-management (5 online educational modules) and peer mentoring (6 video conference or phone calls) intervention to promote self-management of followup care; the main target was the survivor and the secondary target was the peer mentor. Primary target: Patient Ducassou, 201758 N/A Cohort France Proportion of CCS: 100% Multiple cancer origin Strategy: Model of care Intervention category: Access to care Shared care program between primary care provider and oncologist Primary target: Patient Eilertsen, 200459 N/A Analytic study Norway Proportion of CCS: 100% Multiple cancer origin Strategy: Model of care Intervention category: Education Held a collaborative meeting between the child, their parents, and the professionals in the family’s home community and the pediatric unit. Primary target: Patient, Family, Provider Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Feasibility; Psychosocial: Psychological; Health services/Economics: Primary care, specialty care, or other care utilization: Barriers to care, transition readiness; Health services/Economics: Quality and satisfaction with care Authors’ conclusion: Significant positive relationship with transition readiness using multiple measures including knowledge, beliefs/expectations, goals/motivation; positively associated w/ grit; negatively associated w/ FOCUS instrument (measures barriers to care). Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: shared care (oncologist and PCP); Health services/ Economics: Primary care, specialty care, or other care utilization: shared care (oncologist and PCP) Authors’ conclusion: Personalized and incentive-based guidance was very useful in helping survivors adhere to follow-up care. Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Survivorship care Authors’ conclusion: Health professionals regard collaboration with CCS, family, and other professionals as being valuable and important for follow-up care for CCS. Study Name/Trial ID Design Country D-22 Author, Year Proportion of CCS Strategy and Intervention Approach Assessed Outcome Domain and Measure Related Publications Cancer Origin Description of Survivorship Care Strategy Authors’ Conclusion Ford, 201364 N/A Cohort USA Proportion of CCS: 100% Multiple cancer origin Strategy: Model of care Intervention category: Access to care Survivorship clinic attendance. Primary target: Patient Hudson, 202078 NCT01003574 (Evaluation of Cardiovascular Health Outcomes Among Survivors (ECHOS)) RCT USA Proportion of CCS: 100% Multiple cancer origin Iyer, 201783 N/A Analytic study USA Proportion of CCS: 50% or more Multiple cancer origin Strategy: Care plan, Model of care Intervention category: Education, Given tools for empowerment Distance-delivered intervention of two sessions of tailored telephone counseling delivered by an advanced practice provider (treatment group) to see if this would increase the proportion of at-risk survivors who completed cardiomyopathy screening; the control group received the mailed survivorship care plan only. Primary target: Patient Strategy: Care plan, Model of care, Other: Primary care provider knowledge of survivorship care plan Intervention category: Access to care Survivorship care plans, preferences, and barriers from the perspective of primary care provider and CCS Primary target: Provider Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: knowledge of the need for life-long survivorship care; Psychosocial: Psychological Authors’ conclusion: No significant differences in survivors knowledge about their cancer diagnosis, perceptions of risk of future health problems, or psychological or emotional problems reported by those in long-term survivorship clinic versus those in non-specialized clinic. Outcomes: Biomedical: Late effects and morbidity Authors’ conclusion: Intervention significantly increased the likelihood of cardiomyopathy screening among at-risk survivors of childhood cancer; this method of intervention provides evidence that distance-delivered survivorship services could help reach at-risk populations. Study Name/Trial ID Design Country D-23 Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Survivorship care plans, barriers, and preferences regarding care; Health services/Economics: Primary care, specialty care, or other care utilization Authors’ conclusion: Primary care providers generally felt uncomfortable using the survivorship care plan and providing survivorship care, the biggest barrier was lack of knowledge. Author, Year Proportion of CCS Strategy and Intervention Approach Assessed Outcome Domain and Measure Related Publications Cancer Origin Description of Survivorship Care Strategy Authors’ Conclusion Kadan-Lottick, 201888 Yale University, 2010163 NCT02816866 RCT USA Proportion of CCS: 100% Multiple cancer origin Strategy: Care plan, Model of care Intervention category: Access to care, Given tools for empowerment Distribution of survivorship care plan to patient and primary care providers (both primary targets); to be implemented by either primary care provider or survivorship clinic provider. Primary target: Patient, Provider Kunin-Batson, 2016100 NCT01593618 RCT USA Proportion of CCS: 100% Multiple cancer origin Strategy: Care plan Intervention category: Education Web-based educational intervention for adolescent and young adult survivors of childhood cancer that provided their survivorship care plans electronically to improve cancer-related knowledge and psychosocial functioning. Primary target: Patient Landier, 2015102 N/A Time series USA Proportion of CCS: 100% Multiple cancer origin Strategy: Care plan Intervention category: Access to care, Education Survivorship clinic and tailored education regarding risk for late effects. Primary target: Patient Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Survivorship care plan taken to oncologist or PCP; Health services/Economics: Primary care, specialty care, or other care utilization: Survivorship care plan taken to oncologist or PCP Authors’ conclusion: Empowering childhood cancer survivors with survivorship care plan to be implemented by their primary care provider is not sufficient to meet consensus follow-up recommendations compared to those who attend survivorship clinic; those who had a survivorship care plan and attended follow-up care with primary care reported much lower adherence to guidelinerecommended surveillance tests and less identification of late complications of therapy. Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Knowledge of cancer diagnosis, history, and treatment; Psychosocial: Psychological Authors’ conclusion: The web-based intervention was not statistically better in improving cancer-related knowledge compared to the standard of care (face-to-face counseling); anxiety and health beliefs were associated with survivors’ knowledge about cancer, including knowledge of steps survivors could take to mitigate risks for late effects. Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Awareness of health risks in survivorship Authors’ conclusion: Risk-based education in a survivorship clinic significantly increases awareness of personal health risk through three sessions. Study Name/Trial ID Design Country D-24 Author, Year Proportion of CCS Strategy and Intervention Approach Assessed Outcome Domain and Measure Related Publications Cancer Origin Description of Survivorship Care Strategy Authors’ Conclusion Oeffinger, 2011129 N/A CT Multiple countries Proportion of CCS: 100% Lymphoma Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Screening echocardiogram and/or mammogram; Biomedical: Late effects and morbidity Authors’ conclusion: Mailed survivorship care plans were found to be a feasible and effective way to deliver cancer treatment summaries and screening recommendations for high-risk survivors to encourage risk-based surveillance for late effects. Oeffinger, 2019128 NCT01579552 (EMPOWER Study) RCT Multiple countries Proportion of CCS: 100% Multiple cancer origin Raj, 2018134 N/A Analytic study USA Proportion of CCS: 100% Brain/CNS Strategy: Care plan Intervention category: Given tools for empowerment Mailed survivorship care plan to highrisk survivors who were not receiving recommended cancer or cardiac surveillance (primary target) in hopes that they would communicate with their local primary care provider (secondary target); also sought to evaluate the use of a web-based virtual information center for survivors (primary target) and clinicians (secondary target). Primary target: Patient Strategy: Survivorship care service Intervention category: Education Mailed informational packet and participated in a motivational interview from trained counselors to examine the impact on screening mammography by 12 months after the intervention. Primary target: Patient Strategy: Survivorship care service Intervention category: Psychosocial To evaluate the development of a webbased psychosocial intervention ("A Survivor’s Journey") for pediatric brain tumor survivors and caregivers on improvement in psychosocial functioning for the survivor. Primary target: Patient, Family Study Name/Trial ID Design Country D-25 Outcomes: Biomedical: Late effects and morbidity; Health services/Economics: Primary care, specialty care, or other care utilization: Mammography screening Authors’ conclusion: At a one-year follow-up, women in the intervention group were significantly more likely than those in the control group to report a mammogram (intervention was more successful among women age 25 to 39 years than among those age 40 to 50 years). Outcomes: Psychosocial: Psychological Authors’ conclusion: Feedback from survivors, their parents, and care providers all favored the web-based delivery of this intervention and supported the need for accessible interventions that are customizable to the unique needs of survivors; survivors and caregivers favored interventions that can be delivered remotely (e.g., do not require additional visits). Author, Year Proportion of CCS Strategy and Intervention Approach Assessed Outcome Domain and Measure Related Publications Cancer Origin Description of Survivorship Care Strategy Authors’ Conclusion Reynolds, 2019137 N/A Cohort Canada Proportion of CCS: 100% Multiple cancer origin Strategy: Model of care Intervention category: Access to care Survivorship care at specialized longterm follow-up care facilities versus at primary-care facilities. Primary target: Patient Rose-Felker, 2019138 N/A Pre-Post USA Proportion of CCS: NR Other: not specified Strategy: Other: Educational intervention targeting pediatric cardiologists Intervention category: Education Educational intervention using pre/post test to assess knowledge of surveillance needs for childhood cancer survivors among pediatric cardiologists Primary target: Provider Santacroce, 201086 HEROS PLUS AYA RCT USA Proportion of CCS: 100% Multiple cancer origin Strategy: Survivorship care service, Care plan Intervention category: Psychosocial Coping skills training intervention via telephone and discussed plans for future monitoring with survivors (main target) and parents (secondary) Primary target: Patient, Family Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: survivorship care at oncologist (versus PCP); Health services/Economics: Primary care, specialty care, or other care utilization: survivorship care at primary care provider (versus oncologist) Authors’ conclusion: Cancer-center based models reported higher rates of compliance with exposure-based medical late effect screening guidelines, cancer-specific follow-up behaviors, and the reporting of fewer physical complaints than the community-based providers. Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: pediatric cardiologists; Biomedical: Late effects and morbidity Authors’ conclusion: Post-intervention, there was an improvement in pediatric cardiologist knowledge including childhood cancer survivors surveillance, treatment related risk, risk of cardiac dysfunction with time since treatment, the role of dexrazoxane in cardioprotection, that a webbased risk-assessment tool to estimate the risk of congestive heart failure in survivors by age 40 exists and can be used, and that African-Americans childhood cancer survivors are at increased risk for late cardiotoxicity. Outcomes: Psychosocial: Psychological; Other: Psychosocial outcomes for survivors and parents Authors’ conclusion: Post-intervention, outcomes for HEROS (standard of care for long-term follow up care) AYA and parents remained the same or deteriorated; while outcomes for HEROS PLUS (standard of care plus telephone-delivered psychosocial care) AYA and parents improved in Posttraumatic Growth Inventory. Study Name/Trial ID Design Country D-26 Author, Year Proportion of CCS Strategy and Intervention Approach Assessed Outcome Domain and Measure Related Publications Cancer Origin Description of Survivorship Care Strategy Authors’ Conclusion Schwartz, 2018145 N/A Pre-Post USA Proportion of CCS: NR Multiple cancer origin Strategy: Other: Educational intervention targeting pediatric residents Intervention category: Education Examined residents’ knowledge, clinical skills, and attitudes towards cancer survivorship topics before and after receiving curriculum. Primary target: Provider Schwartz, 2019144 AYA STEPS (AYA Selfmanagement via Texting, Education, and Plans for Survivorship) Post-only USA Proportion of CCS: 100% Multiple cancer origin Williamson, 2014170 SurvivorLink Analytic study USA Proportion of CCS: 100% Multiple cancer origin Strategy: Survivorship care service Intervention category: Education Creation and initial use of the AYA STEPS (Adolescent and Young Adult Self-management via Texting, Education, and Plans for Survivorship) mobile app to encourage adherence to survivorship care plans. Primary target: Patient Strategy: Care plan, Model of care Intervention category: Given tools for empowerment Creation of a personal health record, stored a health document, and electronically shared their health record with a provider. Primary target: Patient Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: pediatric residents' knowledge and clinical skills related to caring for childhood cancer survivors Authors’ conclusion: The post-curriculum evaluation showed a significant improvement in residents’ knowledge, clinical skills, and comfort in discussing topics relevant to survivorship care; residents also reported that they would recommend it to other residency programs. Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Survivorship care plan Authors’ conclusion: Survivors reported that the app and the embedded tailored messages related to their health and survivorship care plan were easy to use and generally satisfying and beneficial; final results of the RCT (approximately 200 participants) is pending. Study Name/Trial ID Design Country Notes: CCS childhood cancer survivor D-27 Outcomes: Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Survivorship care engagement via use of SurvivorLink Authors’ conclusion: Having attended survivorship clinic is the most significant predictor of registering and using SurvivorLink, a patient-controlled communication tool where survivors can electronically store and share documents with healthcare providers. Table D4. Guiding Question 5: Ongoing studies Author, Year Proportion of CCS Intervention Type Related Publications Cancer Origin Description of Survivorship Care Strategy Chow, 202043 Chow, 202044 NCT03104543 [Communicating Health Information and Improving Coordination With Primary Care (CHIIP)] RCT USA Expected completion: 03/01/2022 Proportion of CCS: 100% Multiple cancer origin Daniel, 201549 NCT02046811 RCT USA Expected completion: 01/01/2018 Proportion of CCS: 100% Multiple cancer origin Survivorship care service Printed, mailed survivorship care plan with personalized health history (e.g., absolute and relative risk estimates of ischemic heart disease and cardiomyopathy/heart failure compared with the general population, based on each participant's prior childhood cancer treatment exposures), recommendations, and clinically meaningful results from the baseline home visit (e.g., average blood pressure, lipid profile, diabetes screening, body mass index). Other: Self examination Patient activation and education (PAE) including text messaging, print and web-based tutorials; PAE plus physician activation (PAE+MD) adding physician activation/educational materials about survivors' increased skin cancer risk and conducting fullbody skin exams; PAE plus physician activation, plus teledermoscopy (PAE+MD+TD) adding participant receipt of a dermatoscope intended to empower them to photograph suspect moles or lesions for review by the study dermatologist Study Name/Trial ID Assessed Outcome Domain and Measure Design Country Expected completion D-28 Biomedical: Late effects and morbidity; Psychosocial: Psychological; Health services/Economics: Primary care, specialty care, or other care utilization Health services/Economics: Primary care, specialty care, or other care utilization: skin examination by survivor or provider Author, Year Proportion of CCS Intervention Type Related Publications Cancer Origin Description of Survivorship Care Strategy Denzler, 2020 54 NCT04284189 (After Care of Childhood Cancer Survivors Switzerland) Analytic study Switzerland Expected completion: August 2021 Proportion of CCS: 100% Multiple cancer origin Devine, 201956 NCT04075734 RCT USA Expected completion: 09/30/2020 Escoffery, 201962 Emory University, 2020162; SurvivorLink, 202027 NCT03543852 RCT USA Expected completion: 05/01/2023 Proportion of CCS: 100% Multiple cancer origin Model of care Investigate which long-term follow-up care model (or which parts of the models) have the best fit for Swiss childhood cancer survivors (primary target); evaluate transition readiness, identify facilitators factors for transition and adherence to follow-up care, and compare the transition models of the three participating centers. Survivorship care service, Care plan Managing Your Health, an online selfmanagement skills and peer mentoring intervention, which focuses on overcoming survivor barriers to selfmanagement of their survivorship care. Study Name/Trial ID Assessed Outcome Domain and Measure Design Country Expected completion Proportion of CCS: 100% Multiple cancer origin Survivorship care service, Care plan Patient-controlled electronic personal health record and system (SurvivorLink) D-29 Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Knowledge of survivorship care needs, self-efficacy for survivorship care planning, attitudes towards survivorship care; Psychosocial: Psychological; Health services/Economics: Primary care, specialty care, or other care utilization: Communication from survivor to PCP Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: survivorship care plan Author, Year Proportion of CCS Intervention Type Related Publications Cancer Origin Description of Survivorship Care Strategy Proportion of CCS: 100% Leukemia, Lymphoma Care plan Test the feasibility and acceptability of an online survivorship care plan generator for adult survivors of pediatric cancers. Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: feasibility of online platform for survivorship care plan Proportion of CCS: 100% Multiple cancer origin Survivorship care service, Care plan Examination of electronic educational materials on survivors' (main target) knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivorship care. Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: Knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivorship care; Psychosocial: Psychological Proportion of CCS: NR Multiple cancer origin Model of care Follow-up with a primary care physician in the adult setting who is knowledgeable about late effects of childhood cancer treatment; transition support and education was provided by a transition nurse navigator. Survivorship Care Domain: Utilization of survivorship care services, care plans, or models of care: survivorship care clinic Study Name/Trial ID Assessed Outcome Domain and Measure Design Country Expected completion Hill-Kayser, 202075 NCT02559219 (SmartALACC) Analytic study USA Expected completion: NR; study complete as of 04/24/2020, publication of results pending Marchak, 2020107 NCT04257058 Pre-Post USA Expected completion: 04/01/2023 McClellan, 2015112 N/A Post-only USA Expected completion: NR D-30

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Disparities and Barriers to Pediatric Cancer Survivorship Care Technical Brief Number 39 R

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